2026-06-22T10:45:39-04:00 2025-12-31 061648707 FIONDELLA MILONE & LASARACINA LLP 300 WINDING BROOK DR STE 1 GLASTONBURY CT 06033 990 2025-01-01 260307367 CONNECTICUT BRAIN TUMOR ALLIANCE INC CONN 8602645776 45 NOD RD AVON CT 06001 CHRISTOPHER CUSANO CEO 8602645776 2026-05-21 true AMBER D TUCKER P01593305 8606573651 2026-06-09 2025 2025-03-06 01:10:19Z CHRISTOPHER CUSANO 45 NOD RD AVON CT 06001 579108 false X WWW.CTBTA.ORG X 2007 CT THIS ENTITY IS DEDICATED TO PROVIDING HOPE AND SUPPORT FOR BRAIN TUMOR PATIENTS AND CAREGIVERS, WHILE ADVANCING PUBLIC AWARENESS OF BRAIN TUMORS, QUALITY OF CARE, AND BRAIN TUMOR RESEARCH. 14 14 2 75 0 436940 308238 0 23674 33994 78095 158841 538709 501073 188000 205000 0 132527 145785 0 76548 90561 116959 411088 467744 127621 33329 605596 650953 3612 4356 601984 646597 THIS ENTITY IS DEDICATED TO PROVIDING HOPE AND SUPPORT FOR BRAIN TUMOR PATIENTS AND CAREGIVERS, WHILE ADVANCING PUBLIC AWARENESS OF BRAIN TUMORS, QUALITY OF CARE, AND BRAIN TUMOR RESEARCH. false false 316128 205000 SUPPORT PROVIDED TO HOSPITALS TO FUND BRAIN TUMOR RESEARCH AND TREATMENT OPTIONS AND TO PROVIDE SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. 316128 true true false true false false false false false false false false false false false true false false false false false false false false true false false true false false false false false false false true true true false false false false false false false false false true 5 0 true 2 true false false false false false false false false false false false false X 14 14 true false true false false false false true true false false true true true true true true true true false CT X DAVID FORREST 8602645776 45 NOD ROAD AVON CT 06001 DAN TAPPER CHAIR 2.00 X X 0 0 0 DAVID LEMKUIL VICE CHAIR 3.00 X X 0 0 0 DAVID FORREST TREASURER 5.00 X X 0 0 0 KATIE TRAINER SECRETARY 1.00 X X 0 0 0 ALEXANDRA FLOWERS DIRECTOR 3.00 X 0 0 0 JENNIFER PACE DIRECTOR 3.00 X 0 0 0 CHERYL ITALIA DIRECTOR 3.00 X 0 0 0 SUSAN LEMKUIL DIRECTOR 3.00 X 0 0 0 JAMES ITALIA DIRECTOR 0.50 X 0 0 0 DONALD SCHIFFER DIRECTOR 1.00 X 0 0 0 RODGER DUNLAP DIRECTOR 1.50 X 0 0 0 CHRISTY CARDONE DIRECTOR 2.00 X 0 0 0 JULIE DOUGHERTY DIRECTOR 0.50 X 0 0 0 LINDSAY WASSERMAN DIRECTOR 1.00 X 0 0 0 CHRISTOPHER CUSANO CEO 40.00 X 105000 0 0 105000 1 false false false 228665 79573 11294 308238 33994 33994 236876 228665 78035 158841 501073 33994 X 205000 205000 105000 80205 13956 10839 18152 18152 22633 10410 10816 1407 28160 28160 61811 61811 3160 2339 505 316 15047 11135 2407 1505 2581 1910 413 258 OTHER EXPENSES 4118 3047 659 412 OTHER GRANTS 2082 2082 467744 316128 75068 76548 112697 75147 365458 412266 659 102 126782 163438 605596 650953 3612 4356 3612 4356 X 564152 602947 37832 43650 601984 646597 605596 650953 X 33329 11284 X true X false false X 305713 561159 406112 436940 308238 2018162 2675 31593 4442 120812 236876 396398 308388 592752 410554 557752 545114 2414560 2414560 3535 3171 18865 23674 33994 83239 3535 3171 18865 23674 33994 83239 311923 595923 429419 581426 579108 2497799 0.96670 0.97720 0.03000 0.02000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false false false false false true 16000 16000 false X 497357 26284 26284 471073 30000 30000 501073 452744 15000 15000 437744 30000 30000 467744 SCHEDULE D, PAGE 3, PART X THE ORGANIZATION HAS RECEIVED AN EXEMPTION FROM THE INTERNAL REVENUE SERVICE (IRS) FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION IS REQUIRED TO MAKE THE APPROPRIATE TAX PAYMENTS ON ANY INCOME CONSIDERED UNRELATED TO ITS EXEMPT PURPOSE. THERE WAS NO UNRELATED BUSINESS INCOME FOR THE YEAR ENDED DECEMBER 31, 2025. THE ORGANIZATION HAS FILED FOR AND RECEIVED INCOME TAX EXEMPTIONS IN THE JURISDICTIONS WHERE IT IS REQUIRED TO DO SO. ADDITIONALLY, THE ORGANIZATION HAS FILED INTERNAL REVENUE SERVICE FORM 990, RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, AS REQUIRED. MANAGEMENT OF THE ORGANIZATION EVALUATES ALL SIGNIFICANT TAX POSITIONS REQUIRED BY GAAP. AT DECEMBER 31, 2025, MANAGEMENT DETERMINED THE ORGANIZATION DOES NOT HAVE ANY TAX POSITION THAT WOULD REQUIRE THE RECORDING OF ANY ADDITIONAL TAX LIABILITY NOR DOES IT HAVE ANY UNREALIZED TAX BENEFITS THAT WOULD EITHER INCREASE OR DECREASE WITHIN THE NEXT 12 MONTHS. THE ORGANIZATION'S INCOME TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE APPROPRIATE TAXING JURISDICTIONS, AND REMAIN OPEN FOR EXAMINATION FOR TAX YEARS 2022 AND FORWARD. HOWEVER, THE ORGANIZATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE ORGANIZATION BEEN CONTACTED BY ANY OF THE TAXING AUTHORITIES. SCHEDULE D, PAGE 4, PART XI, LINE 4B GRANTS (INCLUDED IN FUNDRAISING EXPENSE) 30,000 SCHEDULE D, PAGE 4, PART XII, LINE 4B GRANTS (FUNDRAISING EXPENSE) 30,000 PATH OF HOPE 225575 168094 57481 13530 131 10551 BRAINSTORMIN 126770 48836 77934 5000 3600 945 2229 2 113196 11735 101461 42049 465541 228665 236876 18530 3731 945 54829 78035 158841 true UNIVERSITY OF CONNECTICUT HEALTH CE 263 FARMINGTON AVE FARMINGTON CT 06030 521725543 10000 BRAIN TUMOR RESEARCH SAINT FRANCIS FOUNDATION 95 WOODLAND ST HARTFORD CT 06106 061008255 25000 PATIENT ASSISTANCE HARTFORD HOSPITAL 80 SEYMOUR ST HARTFORD CT 06106 060646668 40000 PATIENT ASSISTANCE CONNECTICUT CHILDREN'S FOUNDATION 282 WASHINGTON ST HARTFORD CT 06106 222619869 40000 PATIENT ASSISTANCE YALE UNIVERSITY 20 YORK ST NEW HAVEN CT 06510 060646973 30000 BRAIN TUMOR RESEARCH YALE NEW HAVEN HOSPITAL 20 YORK ST NEW HAVEN CT 06510 060646652 45000 PATIENT ASSISTENCE HEALING MEALS COMMUNITY PROJECT 140 NOD RD WEATOGUE CT 06089 475464291 15000 PATIENT ASSISTANCE 7 SKIMKUS MURPHY & LEMKUIL INC SML REAL ESTATE INC DIRECTOR INSURANCE CONTRACTS false SKIMKUS MURPHY & LEMKUIL INC SML REAL ESTATE INC RELATED TO DIRE INSURANCE CONTRACTS false SHIMKUS MURPHY &LEMKUIL INC SML REAL ESTATE INC OFFICER INSURANCE CONTRACTS false SCHEDULE L, PART V SUSAN LEMKUIL, DIRECTOR ON THE CTBTA BOARD, IS AN OWNER OF SHIMKUS, MURPHY, & LEMKUIL, INC./SML REAL ESTATE, INC., THE INSURANCE AGENCY WHICH SELLS INSURANCE TO THE CONNECTICUT BRAIN TUMOR ALLIANCE ("CTBTA") AND FINDS INSURANCE PRODUCTS THAT MEET OUR NONPROFIT NEEDS. DAVID LEMKUIL, OFFICER ON THE CTBTA BOARD, IS SUSAN LEMKUIL'S SPOUSE AND VICE PRESIDENT OF SHIMKUS, MURPHY & LEMKUIL./SML REAL ESTATE, INC. MARY BETH MURPHY, SUSAN LEMKUIL'S SISTER, IS OUR INSURANCE AGENT AND AN OWNER OF SHIMKUS, MURPHY & LEMKUIL./SML REAL ESTATE, INC. WE OBTAIN QUOTES FROM OTHER INSURANCE AGENCIES, AND THE LEMKUILS ARE NOT PART OF THE DECISION TO PROCURE INSURANCE THROUGH SHIMKUS, MURPHY & LEMKUIL, INC./SML REAL ESTATE, INC. IN FOLLOWING OUR CONFLICT OF INTEREST POLICY, AND AFTER EXERCISING DUE DILIGENCE, THE CTBTA BOARD DETERMINED THAT IT COULD NOT WITH REASONABLE EFFORTS OBTAIN A MORE ADVANTAGEOUS TRANSACTION FROM ANOTHER ENTITY, AND IT WAS DETERMINED THAT OUR PRESENT INSURANCE ARRANGEMENT IS IN THE BEST INTEREST OF THE CTBTA. FORM 990, PAGE 6, PART VI, LINE 2 SUSAN LEMKUIL SHIMKUS, MURPHY,&LEMKIL DIRECTOR OWNER SUSAN LEMKUIL DAVID LEMKUIL DIRECTOR DIRECTOR SPOUSE FORM 990, PAGE 6, PART VI, LINE 4 ORGANIZATIONS BYLAWS WERE UPDATED IN DECEMBER 2025 FORM 990, PAGE 6, PART VI, LINE 11B THE CTBTA BOARD TREASURER AND CEO THOROUGHLY REVIEW THE FORM 990, AND THE CEO SIGNS THE FORM 990 AFTER PROPER EXAMINATION OF THE RETURN. EITHER THE PRESIDENT OF THE BOARD OR THE CEO PROVIDES ALL BOARD MEMBERS WITH A COPY OF THE FORM 990, WITH AN OPPORTUNITY FOR REVIEW, DISCUSSION, PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 12C PURPOSE. THE PURPOSE OF THE CONFLICT OF INTEREST POLICY, WHICH IS INCORPORATED INTO THIS ORGANIZATION'S BYLAWS, IS TO PROTECT THE CONNECTICUT BRAIN TUMOR ALLIANCE'S INTEREST WHEN IT IS CONTEMPLATING ENTERING A TRANSACTION OR ARRANGEMENT THAT MIGHT BENEFIT THE PRIVATE INTEREST OF AN OFFICER OR DIRECTOR OF THE ORGANIZATION OR MIGHT RESULT IN AN EXCESS BENEFIT. DUTY TO DISCLOSE. IN CONNECTION WITH ANY ACTUAL OR POTENTIAL CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING ANY DIRECTOR, PRINCIPAL OFFICER, STAFF MEMBER, OR COMMITTEE MEMBER WITH GOVERNING BOARD DELEGATED POWERS) MUST DISCLOSE THE EXISTENCE OF A FINANCIAL INTEREST AND BE GIVEN THE OPPORTUNITY TO DISCLOSE ALL MATERIAL FACTS TO THE DIRECTORS AND MEMBERS OF COMMITTEES WITH GOVERNING BOARD DELEGATED POWERS CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. DETERMINING WHETHER A CONFLICT OF INTEREST EXISTS. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, THE REMAINING GOVERNING BOARD OR COMMITTEE MEMBERS DECIDE IF A CONFLICT OF INTEREST EXISTS, IN THE ABSENCE OF THAT INTERESTED PERSON. PROCEDURES FOR ADDRESSING THE CONFLICT OF INTEREST. A) AN INTERESTED PERSON MAY MAKE A PRESENTATION AT THE GOVERNING BOARD OR COMMITTEE MEETING, BUT AFTER THE PRESENTATION, HE/SHE MAY BE ASKED TO LEAVE THE MEETING DURING THE DISCUSSION OF, AND THE VOTE ON, THE TRANSACTION OR ARRANGEMENT INVOLVING THE POSSIBLE CONFLICT OF INTEREST. B) THE BOARD OR COMMITTEE INVESTIGATES ALTERNATIVES TO THE PROPOSED TRANSACTION OR ARRANGEMENT. C) AFTER EXERCISING DUE DILIGENCE, THE BOARD OR COMMITTEE DETERMINES WHETHER THE ORGANIZATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT WITH A PERSON OR ENTITY THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST. D) IF A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT IS NOT REASONABLY POSSIBLE UNDER CIRCUMSTANCES NOT PRODUCING A CONFLICT OF INTEREST, THE GOVERNING COMMITTEE DETERMINES BY A MAJORITY VOTE OF THE DISINTERESTED DIRECTORS WHETHER THE TRANSACTION OR ARRANGEMENT IS IN THE ORGANIZATION'S BEST INTEREST, FOR ITS OWN BENEFIT, AND WHETHER IT IS FAIR AND REASONABLE, AND THEN IT DECIDES WHETHER TO ENTER INTO THE TRANSACTION OR ARRANGEMENT. FORM 990, PAGE 6, PART VI, LINE 15A THE CTBTA IN EVALUATING THE COMPENSATION OF OUR EXECUTIVE DIRECTOR/CEO, AND ANY EMPLOYEE, USES MARKET INTELLIGENCE AND COMPARATIVE DATA FOUND IN THE PUBLIC DOMAIN, INCLUDING BUT NOT LIMITED TO GUIDESTAR'S COMPENSATION REPORT, TAILORED TO GEOGRAPHIC REGION, NONPROFIT AREA, AND JOB TITLE(S). THE CTBTA USES MEASUREMENTS OF GROSS REVENUE TO EXPENSE AND PROGRAM PERFORMANCE IN EVALUATING THE ROLE AND RESPONSIBILITIES OF OUR EXECUTIVE DIRECTOR/CEO, AND OF ANY OTHER EMPLOYEES, AND THE CORRESPONDING SALARY/COMPENSATION PACKAGE. FOR THE EXECUTIVE DIRECTOR/CEO, COMPENSATION DUE DILIGENCE AND PROCESS IS CONDUCTED AT THE BOARD LEVEL WITHIN A SUBCOMMITTEE, AND THEN BY CONTEMPORANEOUS DELIBERATION AND DECISION BY A FULL BOARD VOTE. FOR ANY OTHER EMPLOYEE, COMPENSATION DUE DILIGENCE AND PROCESS IS CONDUCTED BY THE EXECUTIVE DIRECTOR/CEO, AND THEN PRESENTED TO THE EXECUTIVE BOARD FOR APPROVAL, FOLLOWED BY A FULL BOARD VOTE AS PART OF THE ANNUAL BUDGET/FINANCIAL REVIEW. FORM 990, PAGE 6, PART VI, LINE 15B THE CTBTA IN EVALUATING THE COMPENSATION OF OUR EXECUTIVE DIRECTOR/CEO, AND ANY EMPLOYEE, USES MARKET INTELLIGENCE AND COMPARATIVE DATA FOUND IN THE PUBLIC DOMAIN, INCLUDING BUT NOT LIMITED TO GUIDESTAR'S COMPENSATION REPORT, TAILORED TO GEOGRAPHIC REGION, NONPROFIT AREA, AND JOB TITLE(S). THE CTBTA USES MEASUREMENTS OF GROSS REVENUE TO EXPENSE AND PROGRAM PERFORMANCE IN EVALUATING THE ROLE AND RESPONSIBILITIES OF OUR EXECUTIVE DIRECTOR/CEO, AND OF ANY OTHER EMPLOYEES, AND THE CORRESPONDING SALARY/COMPENSATION PACKAGE. FOR THE EXECUTIVE DIRECTOR/CEO, COMPENSATION DUE DILIGENCE AND PROCESS IS CONDUCTED AT THE BOARD LEVEL WITHIN A SUBCOMMITTEE, AND THEN BY CONTEMPORANEOUS DELIBERATION AND DECISION BY A FULL BOARD VOTE. FOR ANY OTHER EMPLOYEE, COMPENSATION DUE DILIGENCE AND PROCESS IS CONDUCTED BY THE EXECUTIVE DIRECTOR/CEO, AND THEN PRESENTED TO THE EXECUTIVE BOARD FOR APPROVAL, FOLLOWED BY A FULL BOARD VOTE AS PART OF THE ANNUAL BUDGET/FINANCIAL REVIEW. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC AT ITS OFFICE AND UPON REQUEST. FORM 990, PART IX, LINE 11G FUNDRAISING FEES 0 0 61,811 FORM 990, PART XI, LINE 9 GRANTS (INCLUDED IN FUNDRAISING EXPENSE) -30,000 GRANTS (FUNDRAISING EXPENSE) 30,000