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    <ReturnTs>2026-05-29T07:37:37-05:00</ReturnTs>
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      <InCareOfNm>% Catilin Piccirillo</InCareOfNm>
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      <PhoneNum>7184063842</PhoneNum>
      <USAddress>
        <AddressLine1Txt>3 Higgins Drive</AddressLine1Txt>
        <CityNm>Vernon</CityNm>
        <StateAbbreviationCd>NJ</StateAbbreviationCd>
        <ZIPCd>07462</ZIPCd>
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      <PersonNm>CATILIN PICCIRILLO</PersonNm>
      <PersonTitleTxt>President</PersonTitleTxt>
      <PhoneNum>7184063842</PhoneNum>
      <SignatureDt>2026-05-29</SignatureDt>
      <DiscussWithPaidPreparerInd>false</DiscussWithPaidPreparerInd>
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      <PreparerPersonNm>ANDREW R PICCIRILLO</PreparerPersonNm>
      <PTIN>P01357974</PTIN>
      <PhoneNum>9732480913</PhoneNum>
      <PreparationDt>2026-05-29</PreparationDt>
      <SelfEmployedInd>X</SelfEmployedInd>
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    <TaxYr>2025</TaxYr>
    <BuildTS>2025-03-06 01:10:19Z</BuildTS>
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      <WebsiteAddressTxt>www.dessh.org</WebsiteAddressTxt>
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      <TotalExpensesAmt>62695</TotalExpensesAmt>
      <ExcessOrDeficitForYearAmt>43608</ExcessOrDeficitForYearAmt>
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      <NetAssetsOrFundBalancesEOYAmt>230095</NetAssetsOrFundBalancesEOYAmt>
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        <EOYAmt>230095</EOYAmt>
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        <EOYAmt>0</EOYAmt>
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        <EOYAmt>230095</EOYAmt>
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        <EOYAmt>230095</EOYAmt>
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      <PrimaryExemptPurposeTxt>Research for</PrimaryExemptPurposeTxt>
      <ProgramSrvcAccomplishmentGrp>
        <DescriptionProgramSrvcAccomTxt>Annual Clinic that benefits the DEESH foundation. Interacti ve with doctors and families of children with the disorder</DescriptionProgramSrvcAccomTxt>
        <ProgramServiceExpensesAmt>33394</ProgramServiceExpensesAmt>
      </ProgramSrvcAccomplishmentGrp>
      <ProgramSrvcAccomplishmentGrp>
        <DescriptionProgramSrvcAccomTxt>Executive Director. Managing the operations of the organization</DescriptionProgramSrvcAccomTxt>
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      </ProgramSrvcAccomplishmentGrp>
      <ProgramSrvcAccomplishmentGrp>
        <DescriptionProgramSrvcAccomTxt>Expenses for annual conference</DescriptionProgramSrvcAccomTxt>
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      </ProgramSrvcAccomplishmentGrp>
      <TotalProgramServiceExpensesAmt>57312</TotalProgramServiceExpensesAmt>
      <OfficerDirectorTrusteeEmplGrp>
        <PersonNm>CAITLIN PICCIRILLO</PersonNm>
        <TitleTxt>Executive Director</TitleTxt>
        <AverageHrsPerWkDevotedToPosRt>10.00</AverageHrsPerWkDevotedToPosRt>
        <CompensationAmt>14400</CompensationAmt>
        <EmployeeBenefitProgramAmt>0</EmployeeBenefitProgramAmt>
        <ExpenseAccountOtherAllwncAmt>0</ExpenseAccountOtherAllwncAmt>
      </OfficerDirectorTrusteeEmplGrp>
      <OfficerDirectorTrusteeEmplGrp>
        <PersonNm>AMANDA PICCIRILLO</PersonNm>
        <TitleTxt>Secretary</TitleTxt>
        <AverageHrsPerWkDevotedToPosRt>0.00</AverageHrsPerWkDevotedToPosRt>
        <CompensationAmt>0</CompensationAmt>
        <EmployeeBenefitProgramAmt>0</EmployeeBenefitProgramAmt>
        <ExpenseAccountOtherAllwncAmt>0</ExpenseAccountOtherAllwncAmt>
      </OfficerDirectorTrusteeEmplGrp>
      <OfficerDirectorTrusteeEmplGrp>
        <PersonNm>STEPHEN PICCIRILLO</PersonNm>
        <TitleTxt>Treasurer</TitleTxt>
        <AverageHrsPerWkDevotedToPosRt>0.00</AverageHrsPerWkDevotedToPosRt>
        <CompensationAmt>0</CompensationAmt>
        <EmployeeBenefitProgramAmt>0</EmployeeBenefitProgramAmt>
        <ExpenseAccountOtherAllwncAmt>0</ExpenseAccountOtherAllwncAmt>
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      <ChgMadeToOrgnzngDocNotRptInd>false</ChgMadeToOrgnzngDocNotRptInd>
      <OrganizationHadUBIInd>false</OrganizationHadUBIInd>
      <SubjectToProxyTaxInd>false</SubjectToProxyTaxInd>
      <OrganizationDissolvedEtcInd>false</OrganizationDissolvedEtcInd>
      <Form1120PolFiledInd>false</Form1120PolFiledInd>
      <MadeLoansToFromOfficersInd>false</MadeLoansToFromOfficersInd>
      <EngagedInExcessBenefitTransInd>false</EngagedInExcessBenefitTransInd>
      <ProhibitedTaxShelterTransInd>false</ProhibitedTaxShelterTransInd>
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        <PersonNm>STEPHEN J PICCIRILLO</PersonNm>
        <USAddress>
          <AddressLine1Txt>12 Colonial Circle</AddressLine1Txt>
          <CityNm>Glenwood</CityNm>
          <StateAbbreviationCd>NJ</StateAbbreviationCd>
          <ZIPCd>07418</ZIPCd>
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        <PhoneNum>9732144978</PhoneNum>
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      <ForeignFinancialAccountInd>false</ForeignFinancialAccountInd>
      <ForeignOfficeInd>false</ForeignOfficeInd>
      <DonorAdvisedFndsInd>false</DonorAdvisedFndsInd>
      <OperateHospitalInd>false</OperateHospitalInd>
      <TanningServicesProvidedInd>false</TanningServicesProvidedInd>
      <RelatedOrganizationCtrlEntInd>false</RelatedOrganizationCtrlEntInd>
      <TransactionWithControlEntInd>false</TransactionWithControlEntInd>
      <PoliticalCampaignActyInd>false</PoliticalCampaignActyInd>
      <LobbyingActivitiesInd>false</LobbyingActivitiesInd>
      <SchoolOperatingInd>false</SchoolOperatingInd>
      <TrnsfrExmptNonChrtblRltdOrgInd>false</TrnsfrExmptNonChrtblRltdOrgInd>
      <PartVIOfCompOfHghstPdEmplTxt>NONE</PartVIOfCompOfHghstPdEmplTxt>
      <PartVIHghstPdCntrctProfSrvcTxt>NONE</PartVIHghstPdCntrctProfSrvcTxt>
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      <InvestmentIncomePYPct>0.00000</InvestmentIncomePYPct>
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          <State>RESTRICTED</State>
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      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>Part I Line 16</FormAndLineReferenceDesc>
        <ExplanationTxt>Conferences, conventions, and meetings $9518.00</ExplanationTxt>
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        <FormAndLineReferenceDesc>Part I Line 16</FormAndLineReferenceDesc>
        <ExplanationTxt>Clinic Expense $33394.00</ExplanationTxt>
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        <ExplanationTxt>Office Expenses $5383.00</ExplanationTxt>
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