2026-07-08T13:22:26-06:00 2025-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2025-01-01 813557785 RUNX1 Foundation dba RUNX1 Research Program % Katrin Ericson RUNX 8058804105 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 KATRIN ERICSON President Executive Director 8058804105 2026-07-08 true JOHN MULLINS P01429307 2027706371 2026-07-08 2025 2025-03-06 01:10:19Z Katrin Ericson 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 2110160 false X www.runx1-fpd.org X 2016 CA See Schedule O. 3 2 4 44 0 0 2394842 2102083 0 7350 5795 2282 2402192 2110160 1101158 1033544 0 919068 879945 0 48837 332111 228414 2352337 2141903 49855 -31743 319651 288737 164817 165646 154834 123091 X See Schedule O. false false 1894463 1033544 In 2025, the RUNX1 Research Program (RRP) continued its mission to fund research to prevent blood cancer in individuals with RUNX1 Familial Platelet Disorder (RUNX1-FPD). RRP awarded grants to investigators across leading academic medical centers, supporting research focused on disease mechanisms, clonal evolution, and blood cancer interception. Key funded programs included independent investigator grants, co-funded partnerships with Alexs Lemonade Stand Foundation, the American Cancer Society (new LEAP grant program), and support for several clinical trials (e.g. pilot study evaluating sirolimus as a preemptive intervention). RRP also continued operating its longitudinal RUNX1 Patient Data Hub, launching a centralized biospecimen bank (RUNX1 Tissue Bank), supporting patient recruitment for clinical research, and engaging the RUNX1-FPD patient and scientific community through its annual scientific conference, patient meeting, educational webinars, peer support groups, and patient-facing resources. 1894463 true true false false false false false false false false false false false false true true true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false true 12 0 true 4 true false false false false false false false false false false false false X 3 2 true false false false false false false true true false false false false false false false false false CA X The Organization 8058804105 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 Katrin Ericson President Executive Director 55.00 0.00 X X 472524 0 30216 Amanda Eggen Director of Patient Engagement 50.00 0.00 X 149891 0 15978 Timothy Babich Chairperson 5.00 0.00 X X 0 0 0 Monica Babich Secretary Treasurer CFO 5.00 0.00 X X 0 0 0 622415 0 46194 2 false true false 2102083 2102083 5795 5795 0 Miscellaneous 900099 2282 2282 2282 2110160 2282 0 5795 1033544 1033544 472524 378019 70879 23626 279355 223484 41903 13968 28118 22494 4218 1406 60922 48738 9138 3046 39026 31221 5854 1951 13155 3154 10001 39798 39798 2899 1199 1700 30120 24096 4518 1506 32689 26152 4903 1634 23344 23344 2039 2039 6192 6192 Program Research 78178 78178 2141903 1894463 198603 48837 315433 278737 10000 4218 319651 288737 24444 29153 140373 136493 164817 165646 X 154834 123091 154834 123091 319651 288737 -31743 0 X false true X true false X 5335888 670719 1542823 2394842 2102083 12046355 5335888 670719 1542823 2394842 2102083 12046355 917274 11129081 201 6189 7350 5795 19535 2282 2282 12068172 0.92220 0.88820 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED EIDL Note Payable 136493 136493 X 2110160 2110160 2110160 2141903 2141903 2141903 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that The Organization does not hold any uncertain tax positions. true American Cancer Society Inc 270 Peachtree St NW Ste 1300 Atlanta GA 30303 131788491 501c3 375000 Research Icahn School of Medicine at Mt Sin 1 Gustave L Levy Pl New York NY 10029 136171197 501c3 30000 Research Childrens Hospital of Philadelphia 3615 Civic Center Philadelphia PA 19101 232237932 501c3 92107 Research Oregon Health Sciences University F 2020 Southwest 4th Avenue Ste 900 Portland OR 97201 237083114 501c3 62296 Research The University of Texas MD Anderson 1515 Holcombe Boulevard Houston TX 77030 746001118 501c3 212517 Research University of Massachussetts Medica 55 Lake Avenue Worcester MA 01655 043108190 501c3 46875 Research Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 340714585 501c3 30000 Research University of Pennsylvania 338 South 19th Street Philadelphia PA 19103 231352685 501c3 153750 Research 8 X X false false false false false false false false false KATRIN ERICSON President Executive Director 338514 134010 15914 14302 502740 AMANDA EGGEN Director of Patient Engagement 141891 8000 11991 3987 165869 Officer directors etc family relationship Part VI line 2 Timothy and Monica Babich, the two co-directors, are married. Form 990 governing body review Part VI line 11 The Voting Members of the Organization have reviewed the form 990 and all schedules and have unanimously agreed on its accuracy. All members have received a copy for their records. Governing documents etc available to public Part VI line 19 The Organization will publish financial information, governing documents and conflict of interest policy on the Organizations website. Part III response or note to any other line in Part III Part I - Summary and Part III - Organizations Mission Statement To provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families.