2026-07-09T16:31:11-07:00 2026-01-31 931157146 KERN & THOMPSON LLC 1800 SW FIRST AVE STE 410 PORTLAND OR 97201 990 2025-02-01 680516066 ALS Northwest ALSN 5032385559 825 NE Multnomah St Ste 940 Portland OR 97232 CASSY ADAMS Executive Dir. 2026-07-08 true Eric A Zehntbauer CPA P01294391 5032223338 X 2025 2025-03-06 01:10:19Z CASSY ADAMS 825 NE Multnomah St Ste 940 Portland OR 97232 2941308 false X WWW.ALSNORTHWEST.ORG X 2002 OR LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 20 20 24 450 0 2784849 2856912 0 102739 84396 -163315 -159724 2724273 2781584 322165 368479 0 1767135 1773998 0 342280 962071 869735 3051371 3012212 -327098 -230628 4335042 4393568 531032 403754 3804010 3989814 X LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. false false 847879 247937 OUTREACH AND ADVOCACYALS NORTHWEST PROVIDES ONGOING FINANCIAL SUPPORT TO SUPPORT FEDERAL AND STATE PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2026, INCLUDE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR CONTINUED FUNDING FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, THE ACT FOR ALS ACT AND FEDERAL SUPPORT FOR ALS RESEARCH. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE WALK ALS, SKI ALS, RIDE ALS, MAY ALS AWARENESS MONTH, ALS RESEARCH SYMPOSIUM, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW THE ORGANIZATIONS SERVICES CAN HELP.NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE REGION AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE ORGANIZATIONS MISSION.AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN THE NORTHWEST. 565259 120542 INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 429 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 75 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE ORGANIZATIONS FINANCIAL ASSISTANCE PROGRAM IS DESIGNED TO PROVIDE HELP WITH THE HIGH COSTS OF CARE FOR FAMILIES LIVING WITH ALS. OVER $128,990 IN GRANTS WERE MADE TO 190 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES. 371499 EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2026, CARE SERVICE COORDINATORS MADE 300 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM ARE QUESTIONS. COORDINATORS FACILITATED 182 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. 324336 CAREGIVER SUPPORT PROGRAMSTHE CAREGIVER SUPPORT PROGRAM PROVIDES NEEDED EMOTIONAL SUPPORT AND PRACTICAL GUIDANCE AND INFORMATION SUPPORT FOR FAMILY AND OTHER CAREGIVERS OF PEOPLE LIVING WITH ALS. WITH SUPPORT GROUPS AND ONE-ON-ONE CAREGIVER CONSULTATIONS THE ORGANIZATION SUPPORTED 590 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2026.THE FAMILY SUPPORT PROGRAM OFFERS INFORMATION AND LIVE SUPPORT EVENTS FOR FAMILIES LIVING WITH ALS WHO HAVE CHILDREN OR GRANDCHILDREN. OUR FAMILY FUN WEEK PROVIDED EDUCATION AND RECREATION TO MULTIPLE FAMILIES ACROSS OREGON AND SOUTHWEST WASHINGTON. WE PARTNERED WITH THE PROVIDENCE ALS CENTER TO SPONSOR CAREGIVER 101 TRAININGS WHERE FAMILY CAREGIVERS LEARNED PRACTICAL SKILLS FOR CARING FOR THEIR LOVED ONE WITH ALS.THE BEREAVEMENT PROGRAM PROVIDED SUPPORT FOR 500 FAMILIES WHO HAD LOST A LOVED ONE WITH ALS IN THE LAST YEAR WITH MAIL, TELEPHONE, AND EDUCATIONAL OUTREACH COMMUNICATIONS TO ASSIST FAMILY MEMBERS MOVING THROUGH THE GRIEVING PROCESS. 253669 ALS CLINICS AND CERTIFIED CENTER SUPPORTTO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS SPECIALTY MULTIDISCIPLINARY CLINICS. THESE ONE-STOP SHOPS ARE EVIDENCE-BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS AT THE PROVIDENCE ALS CENTER, THE VA PORTLAND HEALTH SYSTEM ALS CENTER, THE OHSU ALS CENTER, KAISER SUNNYSIDE MEDICAL CENTER IN CLACKAMAS, AND ST. CHARLES MEDICAL CENTER IN BEND.THE ORGANIZATION HAS ASSISTED WITH STAFFING, SUPPLIES, AND PROFESSIONAL EDUCATION FOR CLINIC PROVIDERS. DURING THE YEAR ENDED JANUARY 31, 2026, THE ORGANIZATION SUPPORTED OVER 652 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS. IN ADDITION, THE ORGANIZATION PROVIDED FUNDING FOR SPECIAL PROJECTS THAT FUNDED COUNSELING SERVICES AND PROVIDED ONGOING COLLABORATION WITH THE PROVIDENCE ALS CENTER AND THE CAREGIVING 101 PROGRAM. ADDITIONAL FUNDS WERE SHARED TO THE ALS CENTER AT OHSU TO SUPPORT NURSING STAFFING. 578005 2362642 true true false false false false false false false false true false false true true false true false false false false false false false true false false true true true false false false false false false false false false false false false false true false false false true 14 0 true 24 true false false false false false true true false 0 false false false false false false false X 20 20 true false false false false false false true true false false true true true true true true true true false OR X X CASSY ADAMS 5032385559 825 NE MULTNOMAH ST STE 940 PORTLAND OR 97232 CASSY ADAMS Executive Dir. 40.00 0.00 X 139308 0 20244 AMY EASTON DEVELOPMENT DIR. 40.00 0.00 104282 0 18065 JASON DRUCKER President 2.00 0.00 X X 0 0 0 ROCKY DALLUM Vice President 2.00 0.00 X X 0 0 0 JERRY CATLIN Treasurer 2.00 0.00 X X 0 0 0 DOUG MCCLURE Secretary 2.00 0.00 X X 0 0 0 AMY FRAZEY Past President 2.00 0.00 X X 0 0 0 ARTURO GONZALEZ Past Vice Pres. 2.00 0.00 X X 0 0 0 MARK TURNBULL Director 2.00 0.00 X 0 0 0 MARK DOAR Director 2.00 0.00 X 0 0 0 MARK DUIN DIRECTOR 2.00 0.00 X 0 0 0 TOM HOLT Director 2.00 0.00 X 0 0 0 WHITNEY PARNELL Director 2.00 0.00 X 0 0 0 KEN FINK Director 2.00 0.00 X 0 0 0 IAN MCHONE DIRECTOR 2.00 0.00 X 0 0 0 KATIE CURTIS Director 2.00 0.00 X 0 0 0 LOU LIBBY Director 2.00 0.00 X 0 0 0 NICK OLNEY Director 2.00 0.00 X 0 0 0 ELIZABETH GARVIN Director 2.00 0.00 X 0 0 0 OLIVIA MACKENZIE Director 2.00 0.00 X 0 0 0 MARK FOAT Director 2.00 0.00 X 0 0 0 NOONA LEAVELL Director 2.00 0.00 X 0 0 0 PAULA FOAT Director 2.00 0.00 X 0 0 0 243590 38309 2 false true false LLOYD CENTER TOWER 3420 CARMEL MOUNTAIN ROAD STE 100 SAN DIEGO CA 92121 RENT 112475 BLACKBAUD INC PO BOX 830413 PHILADELPHIA PA 19182 SOFTWARE/TECH 126703 2 456426 2400486 2856912 0 84396 84396 0 0 0 0 456426 159724 -159724 -159724 0 0 0 2781584 -75328 247937 247937 120542 120542 0 0 159552 135244 11362 12946 0 1268728 1075493 89004 104231 62492 52952 4905 4635 151442 128324 11886 11232 131784 112370 8927 10487 0 0 0 0 0 0 172343 62763 80419 29161 26184 23041 2278 865 156359 106733 13231 36395 0 0 136126 115745 13526 6855 95397 65616 276 29505 0 46761 17971 97 28693 0 0 0 10184 7278 856 2050 Printing and Publications 56584 23026 3702 29856 SUPPLIES AND RESOURCE MATERIAL 52856 7841 17988 27027 EQUIPMENT & MAINTENANCE 31842 18295 13547 COLLEGE FUNDING 31500 31500 53599 9971 35286 8342 3012212 2362642 307290 342280 X 409897 582898 231627 91001 40000 21839 0 0 0 0 0 24950 48177 38522 38522 0 3209013 3331823 0 0 0 419555 317830 4335042 4393568 76978 41112 15315 25438 438739 337204 531032 403754 X 3594010 3889814 210000 100000 3804010 3989814 4335042 4393568 -230628 416432 X false true X true false X 4365692 3816969 2222425 2344513 2856912 15606511 0 0 4365692 3816969 2222425 2344513 2856912 15606511 1580475 14026036 25507 59625 97493 102739 84396 369760 0 0 15976271 0.87790 0.87960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 38522 38522 RIGHT OF USE LEASE ASSET 317830 317830 RIGHT OF USE LEASE LIABILITY 337204 337204 3198016 416432 416432 2781584 2781584 3012212 3012212 3012212 false GALA 456426 456426 46752 74893 38079 456426 456426 46752 74893 38079 159724 -159724 true ALS NETWORK PO BOX 7082 WOODLAND HILLS CA 91365 954163338 501(C)(3) 150000 0 RESEARCH ALS UNITED 9459 SW GEMINI DR BEAVERTON OR 97008 883176104 501(C)(3) 72937 0 RESEARCH PROVIDENCE ST VINCENT 9205 SW BARNES RD PORTLAND OR 97225 930575982 501(C)(3) 18000 0 RESEARCH 3 0 SUPPORT INDIVIDUALS WITH ALS 169 120542 Grantmaker's Description of How Grants are Used GRANT EXPENSES ARE TRACKED USING GAAP PROCEDURE AND COMPLY WITH ALL REPORTING REQUIRED BY GRANTORS ON OUTCOMES AND RESTRICTIONS. X false false false false false false false false false CASSY ADAMS Executive Dir. 139308 8359 11885 159552 Form 990, Part VI, Section A, Line 2 PAULA FOAT AND MARK FOAT ARE MARRIED. Form 990, Part VI, Section B, Line 11b DRAFT 990 IS SUBMITTED ELECTRONICALLY TO BOARD MEMBERS FOR APPROVAL PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c ANNUAL SIGNED FORM SPECIFYING CONFLICTS OF INTEREST IS REQUIRED OF ALL DIRECTORS. BOARD MEMBERS HAVING CONFLICT OF INTEREST WILL RECUSE THEMSELVES FROM RELATED MATTERS. NO CONFLICTS HAVE BEEN NOTED. Form 990, Part VI, Section B, Line 15a THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES AND SUBSTANTIATES THE COMPENSATION FOR THE EXECUTIVE DIRECTOR. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section B, Line 15b THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES, AND SUBSTANTIATES COMPENSATION FOR OTHER OFFICERS AND KEY EMPLOYEES. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section C, Line 19 GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REASONABLE REQUEST. THE FEDERAL FORM 990 IS AVAILABLE ON OUR WEBSITE AND THROUGH CANDID AND CHARITY NAVIGATOR WEBSITES. ALS ASSOCIATION NATIONAL OFFICE 1275 K STREET NW WASHINGTON DC 20005 133271855 ALS RESEARCH AND TREATMENT DC 501(C)3 7 N/A false false true false false false false false false false false false false false false false false false false false