2026-07-14T08:16:40-05:00 2025-08-31 872525370 CITRIN COOPERMAN ADVISORS LLC 11400 WEST OLYMPIC BLVD 350 LOS ANGELES CA 90064 990 2024-09-01 943130081 EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION EPID 3109949237 2757 ANCHOR AVENUE LOS ANGELES CA 90064 PAUL JOSEPH CFO 3109949237 2026-07-13 1 1 SHEILA MOGHIMI-KAMRAN P00170368 3104778355 2026-07-13 2024 2025-03-06 01:10:19Z PAUL JOSEPH 2757 ANCHOR AVENUE LOS ANGELES CA 90064 882870 0 X WWW.EBMRF.ORG X 1990 CA TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EBMRF FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES & INTERNATIONALLY FOR CHILDREN'S HEALTH. 5 5 0 0 0 0 738108 725708 0 0 150668 157162 0 -103147 888776 779723 344866 697474 0 0 0 0 0 0 6111 55826 30785 400692 728259 488084 51464 4182723 4111020 0 0 4182723 4111020 THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES & INTERNATIONALLY FOR CHILDREN'S HEALTH. 0 0 697474 697474 THE EBMRF IS DEDICATED TO FINDING A CURE FOR EPIDERMOLYSIS BULLOSA BY FUNDING THE BEST CUTTING EDGE AND INNOVATIVE RESEARCH AND SEEKING OUT NEW RESEARCHERS AND SCIENTISTS AT AMERICA AND EUROPE'S TOP INSTITUTIONS. THROUGH OUR ONGOING FUNDING OF RESEARCH STUDIES AND CLINICAL TRIALS AT ACCLAIMED UNIVERSITIES, 16 EB CLINICAL RESEARCH CONSORTIUM (EBCRC) SITES AND THROUGH OUR ANNUAL FUNDRAISERS, WE ARE COMMITTED TO FUNDING A CURE AND SUCESSFUL TREATMENTS FOR EB. GRANTS ARE EVALUATED AND ONCE APPROVED, ARE FUNDED ON A 1 YEAR BASIS, AND ARE SUBJECT TO PROJECT MILESTONES. MULTI-YEAR GRANTS ARE REVIEWED ANNUALLY AND EVALUATED ON THEIR PROGRESS AND OUR AVAILABLE FUNDING. ALL GRANTS INCLUDE A 5% LIMIT ON INDIRECT COSTS. 697474 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 5 1 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 CA X PAUL JOSEPH 3109949237 2757 ANCHOR AVENUE LOS ANGELES CA 90064 X LYNN ANDERSON FOUNDER, PRESIDENT EMERITUS 1.00 X 0 0 0 ANDREA PETT-JOSEPH PRESIDENT/EXECUTIVE DIRECTOR 5.00 X X 0 0 0 PAUL JOSEPH CHIEF FINANCIAL OFFICER 4.00 X X 0 0 0 PERSIA FARDAD-FINN OPERATIONS COORDINATOR 5.00 X 0 0 0 MARC GURVITZ DIRECTOR 3.00 X 0 0 0 0 0 0 0 0 0 0 0 483097 242611 725708 157162 157162 0 483097 103147 -103147 -103147 779723 0 0 54015 689794 689794 7680 7680 13491 13491 5315 5315 1964 1964 EVENT EXPENSES 6111 6111 TAXES & LICENSES 3904 3904 728259 697474 24674 6111 38752 54618 3309553 3331443 504418 136288 330000 588671 4182723 4111020 0 0 X 4182723 4111020 4182723 4111020 4182723 4111020 51464 -180000 56833 0 X 0 0 0 X 571133 294279 1369917 738108 725708 3699145 571133 294279 1369917 738108 725708 3699145 306062 3393083 13406 21458 90039 150668 157162 432733 4131878 0.82120 0.81930 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 EQUITY INVESTMENT - KAMAL THERAPEUTICS 150000 F EQUITY INVESTMENT - NOVA ANCHORA 438671 F 588671 1 0 0 0 0 0 0 0 0 0 NORTH AMERICA RESEARCH 7680 WIRE TRANSFER 0 1 0 0 0 0 0 0 PART I, LINE 2: GRANTS ARE VIGOROUSLY EVALUATED PRE & POST DONATION VIA OUR MEDICAL ADVISORY BOARD IN CONJUNCTION WITH EACH INVESTIGATOR WITHIN OUR EBCRC CONSORTIUM PARTICIPATING IN A MONTHLY CONFERENCE CALL AND AN ANNUAL PUBLISHED REPORT (COVERING MILESTONES AND FULL ACCOUNTING OF GRANT EXPENDITURES). CONCERT 483097 483097 76389 8385 18373 483097 483097 76389 8385 18373 103147 -103147 1 ELIKSA THERAPEUTICS INC 3805 OLD EASTON ROAD DOYLESTOWN PA 18902 150000 0 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 602080001 362167817 501(C)(3) 32460 0 RESEARCH NOVA ANCHORA LLC 115 LEONARD STREET NEW YORK NY 10013 133064472 501(C)(3) 125000 0 RESEARCH PHOENIX CHILDREN'S HOSPITAL 1919 EAST THOMAS ROAD PHOENIX AZ 85016 860422559 501(C)(3) 12500 0 RESEARCH STANFORD UNIVERSITY 485 BROADWAY MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501(C)(3) 266950 0 RESEARCH THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BOULEVARD PHILADELPHIA PA 191044388 231352166 501(C)(3) 86956 0 RESEARCH UC SAN DIEGO FOUNDATION(SPF ACCOUNT) 9500 GILMAN DRIVE 0940 LA JOLLA CA 920930940 952872494 501(C)(3) 6829 0 RESEARCH 6 1 PART I, LINE 2: GRANTS ARE VIGOROUSLY EVALUATED PRE & POST DONATION VIA OUR MEDICAL ADVISORY BOARD IN CONJUNCTION WITH EACH INVESTIGATOR WITHIN OUR EBCRC CONSORTIUM PARTICIPATING IN A MONTHLY CONFERENCE CALL AND AN ANNUAL PUBLISHED REPORT (COVERING MILESTONES AND FULL ACCOUNTING OF GRANT EXPENDITURES). FORM 990, PART VI, SECTION A, LINE 2 PAUL JOSEPH AND ANDREA PETT-JOSEPH HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS ARE PROVIDED WITH A COPY OF FORM 990 FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES THIS INFORMATION AVAILABLE TO THE PUBLIC UPON REQUEST.