2024-05-01T11:36:20-05:00 2023-12-31 221478099 COHNREZNICK LLP 14 SYLVAN WAY PARSIPPANY NJ 070543801 990 2023-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 3122605900 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 MICHAEL J KENNEDY CFO 3122605900 2024-05-01 1 MICHAEL KENNEDY 999009999 0 LORI ROTHE YOKOBOSKY CPA P01273422 9732283500 2024-04-22 3 AAL1 IAL1 2023 2023-04-26 12:10:37Z X DR DONALD S WOOD 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 73496390 0 X WWW.MDA.ORG X 1950 NY SEE SCHEDULE O 19 19 242 855 593965 0 59144929 56761618 0 0 3244992 2236376 837916 439898 63227837 59437892 13032682 14912477 0 0 24019882 26112512 0 0 14812103 21917743 21102781 58970307 62127770 4257530 -2689878 64403820 66561388 57595156 58167552 6808664 8393836 X MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. 0 0 20276854 7278043 PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O) EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. 9824296 7539608 RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES. 13150106 94826 PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS. 43251256 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 87 0 1 242 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MO MT NE NV NJ NM NY NC ND OH OK OR PA PR RI SC SD TN UT VA WA WV WI WY X X JON VAN COTT VP OF FINANCE CONTROLLER 6467132020 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 ANJAN ARALIHALLI DIRECTOR 1.00 X 0 0 0 ANKUR GHIA OUTGOING DIRECTOR 1.00 X 0 0 0 BENJAMIN CUMBO III DIRECTOR 1.00 X 0 0 0 CHARLES D SCHOOR ESQ DIRECTOR 1.00 X 0 0 0 CHRIS ROSA VICE CHAIRMAN 5.00 X X 0 0 0 DAN FRIES DIRECTOR 1.00 X 0 0 0 ELIZABETH MCNALLY MD PHD DIRECTOR 1.00 X 0 0 0 EUGENE WILLIAMS OUTGOING DIRECTOR 1.00 X 0 0 0 GOVERNOR BRAD HENRY CHAIRMAN 5.00 X X 0 0 0 HON ROBERT E PIPIA DIRECTOR 1.00 X 0 0 0 JENNIFER GOTTLIEB DIRECTOR 1.00 X 0 0 0 JOHN COSTANTINO DIRECTOR 1.00 X 0 0 0 JOHN E HOWELL DIRECTOR 1.00 X 0 0 0 LILIAN WU PHD DIRECTOR 1.00 X 0 0 0 LOUIS KUNKEL PHD DIRECTOR 1.00 X 0 0 0 MARK SMITH DIRECTOR 1.00 X 0 0 0 MATT PLUMMER DIRECTOR 1.00 X 0 0 0 MIKE ROWLETT DIRECTOR 1.00 X 0 0 0 NANCY KINDELAN DIRECTOR 1.00 X 0 0 0 STEVE FURNARY DIRECTOR 1.00 X 0 0 0 TOM SIMON DIRECTOR 1.00 X 0 0 0 DONALD WOOD PRESIDENT & CEO 50.00 X 490624 0 33322 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 50.00 X 357404 0 10494 MICHAEL KENNEDY TREASURER & CFO 50.00 X 334979 0 44280 ANGELA LEK VP, RESEARCH 50.00 X 194037 0 6392 MONICA PAPPAS VP, TECHNOLOGY 50.00 X 195958 0 5091 NORA CAPOCCI VP, HEALTHCARE SERVICES 50.00 X 198041 0 6577 PERIPEDES GONDIM VP, HUMAN RESOURCES & VOLUNTEERS 50.00 X 223723 0 7136 SHARON HESTERLEE CHIEF RESEARCH OFFICER 50.00 X 237040 0 40391 2231806 0 153683 53 0 1 0 GLC PART OF SPM GROUP 15 WEST HARRIS AVENUE SUITE 300 LA GRANGE IL 60525 CONTENT MARKETING AGENCY 687825 DATA AXLE INC PO BOX 959819 ST LOUIS MO 631959819 MARKETING SERVICES 358741 PURSUANT GROUP PO BOX 120519 DALLAS TX 753120519 FUNDRAISING CONSULTANT 349000 1ST DEGREE LLC 755 GRAND BOULEVARD SUITE B-105 25 MIRAMAR BEACH FL 32550 MARKETING SERVICES 143925 MORGAN LEWIS & BOCKIUS LLP P O BOX 8500 S-6050 PHILADELPHIA PA 191786050 LEGAL ADVICE 129070 6 X 275063 34604910 357144 21524501 71822 56761618 1443870 1443870 1141007 1141007 45000 0 45000 45000 45000 11453099 10632633 27960 820466 -27960 792506 792506 1679130 34604910 3397905 -1718775 -1718775 QUEST ADVERTISING 541800 593965 593965 GRANT RECOVERY 900099 378701 378701 972666 59437892 378701 593965 1703608 13079331 13079331 1833146 1833146 1271104 807838 67893 395373 18726172 11901237 1000206 5824729 346139 219985 18488 107666 4289865 2726382 229130 1334353 1479232 940112 79009 460111 349667 76297 95262 178108 181481 72426 30802 78253 847575 847575 214421 214421 2638271 2324746 161242 152283 2810141 1644919 80426 1084796 2918444 1224103 84733 1609608 2848748 1571680 360699 916369 810787 215259 565823 29705 1441173 668066 225259 547848 79840 79370 470 717096 286181 121709 309206 1030408 535102 495306 497483 198537 84435 214511 EVENT EXPENSES 2656326 1125478 1530848 PRODUCTION COSTS 817329 817329 243591 56157 149098 38336 62127770 43251256 4064411 14812103 X 2593156 1037262 0 1555894 6490910 3683724 3592054 5439147 3820381 4099385 2514895 1783069 5288518 3903161 2833812 1385357 45050644 49996486 76213 76213 73096 24911 24911 64403820 66561388 6841579 7034528 2897572 2040021 3023278 3550230 7969067 9375467 36863660 36167306 57595156 58167552 X 3229419 4593741 3579245 3800095 6808664 8393836 64403820 66561388 X -2689878 5223012 -947962 X 0 1 X 1 0 X 99904218 51829703 60181680 59144929 56761618 327822148 99904218 51829703 60181680 59144929 56761618 327822148 1377316 326444832 1552285 1042846 968429 1684474 2629877 7877911 10004 10004 7499 2950 10449 335720512 0.97240 0.97470 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GAMING EVENTS - 2019 AMOUNT: $ 7,499. 2020 AMOUNT: $ 2,950. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 847575 847575 42024980 42872555 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 628981 486336 869855 847575 2832747 250000 250000 250000 250000 1000000 1500000 982396 24380 133867 312379 11462 816802 1191057 -195884 12777 982396 1077753 126644 13340 1191057 929020 160235 11502 1077753 778813 161908 11701 929020 1.00000 0 0 5288518 3903161 1385357 1385357 ACCRUED PENSION COST 36089553 OPERATING LEASE LIABILITY 77753 36167306 X 63023267 5223012 -1027475 4195537 58827730 214421 395741 610162 59437892 61438095 -395741 -395741 61833836 214421 79513 293934 62127770 PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES. PART X, LINE 2: U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2023, 2022, 2021, 2020 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2023, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -947,962. FUNDRAISING EXPENSES -79,513. PART XI, LINE 4B - OTHER ADJUSTMENTS: LOSS ON DISPOSAL OF FIXED ASSETS -27,960. SUBLEASE RENTAL 45,000. GRANT RECOVERY 378,701. PART XII, LINE 2D - OTHER ADJUSTMENTS: LOSS ON DISPOSAL OF FIXED ASSETS 27,960. SUBLEASE RENTAL -45,000. GRANT RECOVERY -378,701. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 79,513. 0 EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES RESEARCH GRANT 454256 EUROPE 0 0 PROGRAM SERVICES RESEARCH GRANT 843315 NORTH AMERICA 0 0 PROGRAM SERVICES RESEARCH GRANT 535075 0 0 0 0 0 0 1832646 0 1832646 EAST ASIA AND THE PACIFIC RESEARCH 454256 CHECK/WIRE 0 EUROPE RESEARCH 843815 CHECK/WIRE 0 NORTH AMERICA RESEARCH 535075 CHECK/WIRE 0 0 24 0 0 0 0 0 0 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. 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030219309 STATE OF VT 20000 0 MEDICAL DIAGNOSIS AND REGISTRY SUPPORT UNIVERSITY OF WASHINGTON MEDICAL CENTER BOX 356143 1959 NE PACIFIC SEATTLE WA 981956143 916001537 STATE OF WA 50000 0 MEDICAL DIAGNOSIS UT SOUTHWESTERN MEDICAL CENTER ATTN SUSAN IANNACCONE AND JENNIFER KNIGHT PO BOX 841765 1950 N STEMMONS FREEWAY STE 5010 DALLAS TX 75207 756002868 STATE OF TX 190000 0 MEDICAL DIAGNOSIS UW HOSPITAL & CLINICS AUTHORITY DRAWER 853 MILWAUKEE WI 53278 391835630 501(C)(3) 20000 0 MEDICAL DIAGNOSIS VALLEY CHILDRENS HOSPITAL 9300 VALLEY CHILDRENS PLACE MADERA CA 93636 941294954 501(C)(3) 10000 0 MEDICAL DIAGNOSIS VANDERBILT UNIVERSITY MEDICAL CENTER DEPT OF FINANCE ATTN STEVE TODD PO BOX 121236 DALLAS TX 753121236 352528741 501(C)(3) 125000 0 MEDICAL DIAGNOSIS AND REGISTRY SUPPORT WASHINGTON UNIVERSITY IN ST LOUIS 700 ROSEDALE AVE CAMPUS BOX 1034 ST LOUIS MO 63112 430653611 501(C)(3) 125000 0 RESEARCH WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION OFFICE OF SPONSORED PROGRAMS 886 CHESTNUT RIDGE ROAD MORGANTOWN WV 26506 550665758 501(C)(3) 30000 0 MEDICAL DIAGNOSIS YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS PO BOX 1873 NEW HAVEN CT 065081873 060646973 501(C)(3) 35000 0 MEDICAL DIAGNOSIS AND RESEARCH 196 9 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. X X X X X 0 0 0 0 0 0 0 0 0 DONALD WOOD PRESIDENT & CEO 490624 0 0 0 0 0 0 0 33322 0 523946 0 0 0 MICHAEL KENNEDY TREASURER & CFO 334979 0 0 0 0 0 9900 0 34380 0 379259 0 0 0 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 357404 0 0 0 0 0 9900 0 594 0 367898 0 0 0 SHARON HESTERLEE CHIEF RESEARCH OFFICER 237040 0 0 0 0 0 7452 0 32939 0 277431 0 0 0 PERIPEDES GONDIM VP, HUMAN RESOURCES & VOLUNTEERS 223723 0 0 0 0 0 6565 0 571 0 230859 0 0 0 NORA CAPOCCI VP, HEALTHCARE SERVICES 198041 0 0 0 0 0 4402 0 2175 0 204618 0 0 0 MONICA PAPPAS VP, TECHNOLOGY 195958 0 0 0 0 0 4520 0 571 0 201049 0 0 0 ANGELA LEK VP, RESEARCH 194037 0 0 0 0 0 5821 0 571 0 200429 0 0 0 X 709 71822 FMV 0 0 0 PART I, COLUMN (B): COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS. FORM 990, PART I, LINE 1 MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE. FORM 990, PART VIII, LINE 1E: TAX YEAR 2022 TOTAL CONTRIBUTIONS INCLUDED AMOUNTS RELATED TO FORGIVENESS OF PPP LOAN, IN ACCORDANCE WITH THE IRS 990 INSTRUCTIONS, $2,000,000. NOT INCLUDING THESE AMOUNTS THE TOTAL CONTRIBUTIONS WERE LARGELY FLAT GOING FROM $57,144,929 TO $56,761,618. FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -947,962.