2024-05-14T11:07:30-04:00 2023-12-31 203746583 TAYLOR ROTH AND COMPANY 800 GRANT ST STE 205 DENVER CO 802032944 990 2023-01-01 473238441 THE EHE FOUNDATION EHEF 9062806432 1561 HOPI COURT HOBART WI 54313 SARAH BRIGHT TREASURER 9062806432 2024-05-13 true SARAH BRIGHT 999009999 false KEN ROTH P01389203 3038308109 2024-05-14 2023 2023-04-26 12:10:37Z JULIA WAHL 1561 HOPI COURT HOBART WI 54313 414593 false X FIGHTEHE.ORG X 2015 AK TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. 6 5 2 12 0 870093 359411 0 22402 55182 1333 0 893828 414593 580402 217320 0 18783 0 35256 361899 326246 942301 562349 -48473 -147756 2099078 1902421 287882 176830 1811196 1725591 TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS. false false 437128 217320 RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM. 48251 PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT. 485379 true true false false false false false false false false false false false false false false true false false false true true false false false false false true false false false false false false false true false true false false false false false false false false false true 5 0 true 2 true false false false false false false false false false false false false X 6 5 false false false false false false false true true false false true true true false true true false false false X X JULIE WAHL 9062806432 1561 HOPI COURT HOBART WI 54313 TAMMY SILVERTHORNE EXECUTIVE DI 40.00 X 11342 0 1946 DENISE ROBINSON BOARD MEM./R 40.00 X X 70400 0 0 JULIA WAHL BOARD VP/FIN 45.00 X X 41100 0 0 JENNI KOVACH PRESIDENT 7.00 X X 0 0 0 SARAH BRIGHT TREASURER 3.00 X X 0 0 0 LEEANN CONNER BOARD MEMBER 25.00 X 22500 0 0 AMY BAGHDADI BOARD MEMBER 3.00 X 0 0 0 JOHN MCFADDEN BOARD MEMBER 3.00 X 0 0 0 DAVID CASIMIR BOARD MEMBER 3.00 X 0 0 0 145342 1946 false false false 359411 359411 55182 1376 53806 414593 1376 53806 X 114728 114728 2000 2000 100592 100592 13288 10897 1063 1328 3412 2798 273 341 136 111 12 13 1947 1597 155 195 8856 8856 6955 6955 275942 223573 20635 31734 237 194 43 20501 17550 1366 1585 11594 9507 2087 1496 1197 299 DUES & SUBSCRIPTIONS 500 500 ALL OTHER 165 135 13 17 562349 485379 41714 35256 328997 105814 766143 865160 125000 50000 116 28579 878822 852868 2099078 1902421 12882 76830 275000 100000 287882 176830 X 1489096 1478491 322100 247100 1811196 1725591 2099078 1902421 -147756 62151 X false true X true false X 525033 1064376 1555159 870093 359411 4374072 525033 1064376 1555159 870093 359411 4374072 1419441 2954631 5733 825 17782 20471 53806 98617 48576 6695 63368 1333 119972 4592661 61228 0.64330 0.60970 X PART II, LINE 10 NET FUNDRAISING 118,639 REIMBURSEMENTS 1,333 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 469789 62151 62151 407638 6955 6955 414593 555394 555394 6955 6955 562349 true EUROPE PROGRAM SERVICE RESEARCH GRANTS 100592 100592 100592 RESEARCH FUNDS 73992 WIRE TRANSFER RESEARCH FUNDS 26600 WIRE TRANSFER 2 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 100,592 0 true ALBANY MEDICAL COLLEGE MS-231 47 NEW SCOTLAND AVE MC-151 ALBANY NY 12208 141338307 40000 RESEARCH/DEVELOPMENT THE CLEVELAND CLINIC 9500 EUCLID AVE CLEVELAND OH 44195 912153073 30000 RESEARCH/DEVELOPMENT THE UNIVERSITY OF IOWA 501 NEWTON ROAD IOWA CITY IA 52242 426004813 36800 RESEARCH/DEVELOPMENT 3 DENISE ROBINSON BD MEM/RES DIR 70400 CONTRACTOR PAY false JULIA WAHL BD VP/FIN MGR 41100 CONTRACTOR PAY false LEEANN CONNER BD MEM/MKTG 22500 CONTRACTOR PAY false CHORDOMA FOUNDATION EXECUTIVE DIR. 53499 CONTRACTOR PAY false SCHEDULE L, PART V THREE MEMBERS OF THE BOARD OF DIRECTORS ARE ALSO EMPLOYED BY THE ORGANIZATION AS CONTRACT EMPLOYEES. THEIR COMPENSATION IS FOR WORK PERFORMED AS CONTRACTORS, NOT FOR THEIR DUTIES AS BOARD MEMBERS. THE EXECUTIVE DIRECTOR WAS ALSO EMPLOYED BY THE CHORDOMA FOUNDATION AND THE ADDITIONAL SERVICES SHE PROVIDED IN THAT CAPACITY WERE REIMBURSED BY THE EHE FOUNDATION. HER COMPENSATION WAS FOR WORK PERFORMED AS A CONTRACTOR, NOT FOR HER DUTIES AS EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 11B THE 990 IS REVIEWED AND APPROVED BY MANAGEMENT AND THE FULL BOARD OF DIRECTORS PRIOR TO FILING ELECTRONICALLY WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT PERSONNEL 211,513 20,635 25,794 WEBSITE/SOCIAL MEDIA 12,060 0 5,940 TOTAL 223,573 20,635 31,734