2024-06-17T12:22:01-04:00 2023-12-31 461517562 Simmons & Jamieson CPAs 6525 The Corners Parkway Suite 116 Peachtree Corners GA 30092 990 2023-01-01 760700153 AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS AMER PO BOX 29545 ATLANTA GA 30359 WENDY M BOOK MD PRESIDENT 7134937749 2024-06-12 true WENDY BOOK true James B Murphy P00847588 7704482525 2024-06-17 2 00 AAL1 IAL1 2023 2023-04-26 12:10:37Z APFED 777820 false X APFED.ORG X 2001 TX APFED IS DEDICATED TO PREVENTING AND CURING EOSINOPHIL-ASSOCIATED DISEASES WHILE ENHANCING THE QUALITY OF LIFE FOR PATIENTS AND FAMILIES. WE ACHIEVE THIS BY PASSIONATELY EMBRACING, SUPPORTING, AND ADVANCING EDUCATION, AWARENESS, RESEARCH, ADVOCACY, AND SUPPORT INITIATIVES FOR T 9 9 3 0 0 504146 657368 224900 117000 430 2587 -111 729476 776844 189658 220000 0 168936 167081 0 9513 241816 356493 600410 743574 129066 33270 786075 841530 12358 34543 773717 806987 APFED IS DEDICATED TO PREVENTING AND CURING EOSINOPHIL-ASSOCIATED DISEASES WHILE ENHANCING THE QUALITY OF LIFE FOR PATIENTS AND FAMILIES. WE ACHIEVE THIS BY PASSIONATELY EMBRACING, SUPPORTING, AND ADVANCING EDUCATION, AWARENESS, RESEARCH, ADVOCACY, AND SUPPORT INITIATIVES FOR T false false 465834 EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT:APFED HOSTED ITS ANNUAL PATIENT CONFERENCE IN DENVER AND VIRTUALLY, PRODUCED 12 PODCAST EPISODES AND 14 WEBINARS TO EDUCATE PATIENTS AND CAREGIVERS ABOUT EOSINOPHIL-ASSOCIATED DISEASE. WE PUBLISHED MONTHLY EDUCATIONAL E-NEWS, A QUARTERLY NEWSLETTER, AND SOCIAL MEDIA CONTENT, AND MADE DIGITAL EOE EDUCATIONAL MATERIALS AVAILABLE IN SPANISH. APFED CELEBRATED NATIONAL EOSINOPHIL AWARENESS WEEK AND INITIATED SPECIAL LIGHTING OF OVER 70 LANDMARKS NATIONWIDE TO RAISE AWARENESS. WE CELEBRATED THE 2ND ANNUAL WORLD EOSINOPHILIC DISEASES DAY WITH GLOBAL PATIENT ADVOCACY GROUPS. APFED PARTICIPATED IN OPENING REMARKS FOR AN EOSINOPHIL CONFERENCE IN ROME TO EMPHASIZE COLLABORATION FOR IMPROVED PATIENT CARE. WE LAUNCHED A 6-MONTH EOE AWARENESS CAMPAIGN IN TIMES SQUARE, NYC, AND AWARDED THREE $1,000 college SCHOLARSHIPS TO STUDENTS WITH EOSINOPHILIC DISEASE. APFED JOINED THE VALUE BASED CHRONIC DISEASE COLLABORATIVE AND SERVED EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE PROFESSIONALS TO EDUCATE THEM ABOUT EOE, CO-AUTHORING TWO RELATED ABSTRACTS THAT WERE PRESENTED AT THE AMCP NEXUS MEETING FOR MANAGED CARE PROFESSIONALS. WE COLLABORATED WITH AAFA TO CONDUCT A NEEDS ASSESSMENT AND PUBLISH LIFE WITH EOE: THE PATIENT EXPERIENCE AND OPPORTUNITIES TO IMPROVE CARE IN THE U.S. APFED PARTICIPATED IN WORKGROUPS ON HEALTH EQUITY, PRESENTED TO CORPORATE TEAMS, GAVE MEDIA INTERVIEWS, AND RECORDED A SEGMENT FOR THE NORD EDUCATIONAL VIDEO SERIES ON PATIENT ADVOCACY IN DRUG DEVELOPMENT. WE CONTINUED TO ADVOCATE FOR THERAPY ACCESS AND FOOD ALLERGEN LABELING IN THE U.S. EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE PROFESSIONALS TO EDUCATE THEM ABOUT EOE, CO-AUTHORING TWO RELATED ABSTRACTS THAT WERE PRESENTED AT THE AMCP NEXUS MEETING FOR MANAGED CARE PROFESSIONALS. WE COLLABORATED WITH AAFA TO CONDUCT A NEEDS ASSESSMENT AND PUBLISH LIFE WITH EOE: THE PATIENT EXPERIENCE AND OPPORTUNITIES TO IMPROVE CARE IN THE U.S. APFED PARTICIPATED IN WORKGROUPS ON HEALTH EQUITY, PRESENTED TO CORPORATE TEAMS, GAVE MEDIA INTERVIEWS, AND RECORDED A SEGMENT FOR THE NORD EDUCATIONAL VIDEO SERIES ON PATIENT ADVOCACY IN DRUG DEVELOPMENT. WE CONTINUED TO ADVOCATE FOR THERAPY ACCESS AND FOOD ALLERGEN LABELING IN THE U.S. 226400 226400 RESEARCH: APFED AWARDED TWO RESEARCHERS EACH A $100,000 2-YEAR RESEARCH GRANT, AWARDED A $20,000 RESEARCH GRANT TO CEGIR TO SUPPORT EG RESEARCH, PROVIDED $5,000 TO SUPPORT INTERNATIONAL EOSINOPHIL SOCIETY PROFESSIONAL SYMPOSIUM FOR RESEARCHERS AND CLINICIANS, AND AWARDED 3 SEPARATE $750 ABSTRACT AWARDS. APFED ATTENDED ANNUAL PROFESSIONAL MEETINGS OF AAAAI, ACG, ACAAI, AND VIRTUALLY ATTENDED DDW TO DISCUSS PATIENT NEEDS WITH ATTENDEES AND DISSEMINATE RESOURCES. APFED CO-AUTHORED 5 RESEARCH POSTERS THAT WERE PRESENTED AT MEDICAL MEETINGS, 4 MANUSCRIPTS, AND A ROSTRUM THAT WERE PUBLISHED IN MEDICAL JOURNALS. WE INFORMED PATIENTS OF RESEARCH OPPORTUNITIES, COLLABORATED WITH CEGIR, MAINTAINED PARTNERSHIP FOR THE EOSINOPHIL.CONNECT PATIENT INSIGHTS NETWORK, CONTINUED ON STEERING COMMITTEE FOR THE EGID PARTNERS REGISTRY, AND PARTICIPATED IN RDCRN CPAG MEETINGS. 692234 true true false false false false false false false false false false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 2 0 true 3 true false false false false false false false false false false false false false false false false false X 9 9 true false false false true false false true true false false true true true true true true false false false AK AL AR CA CO CT FL GA HI KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X X MICHAEL PIANSKY MD 7134937749 PO BOX 29545 ATLANTA GA 30359 X MARY JO STROBEL EXECUTIVE DIRECTOR 55.00 0.00 X 93534 0 0 DAWN MCCOY DIRECTOR 10.00 0.00 X 0 0 0 WILLIAM BUSSE MD DIRECTOR 5.00 0.00 X 0 0 0 JIM DELANO DIRECTOR 5.00 0.00 X 0 0 0 TOM FANNING WEB COORDINATOR 15.00 0.00 X 0 0 0 ELIZABETH MCCARTY VICE PRESIDENT 5.00 0.00 X X 0 0 0 WENDY M BOOK PRESIDENT 15.00 0.00 X X 0 0 0 MICHAEL PIANSKY TREASURER 15.00 0.00 X X 0 0 0 PRADYUMNA TUMMALA CHAIRMAN 5.00 0.00 X X 0 0 0 GILES M SCHANEN SECRETARY 10.00 0.00 X X 0 0 0 93534 0 0 0 false false false 2653 88073 566642 657368 PATIENT EDUCATION PARTN 611710 117000 117000 117000 2587 2587 88073 865 976 -111 -111 776844 119476 0 0 220000 220000 155035 145026 6502 3507 12046 11039 501 506 11600 11600 6477 977 5500 5772 5772 13028 13028 123124 123124 3447 3447 EDUCATION PROGRAMS 160146 160146 Advocacy 32899 32899 743574 692234 41827 9513 786075 841530 786075 841530 12358 34543 12358 34543 X 773717 806987 773717 806987 786075 841530 33270 0 X false true X true X 322439 329612 385968 564671 769616 2372306 174538 225216 256075 225798 2719 884346 4059 978 963 1029 1939 8968 501036 555806 643006 791498 774274 3265620 3265620 121 55 82 430 2587 3275 121 55 82 430 2587 3275 501157 555861 643088 791928 776861 3268895 0.99900 0.99970 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true false false false false false false false false false 777821 777821 977 977 778798 744551 744551 977 977 745528 Other revenues included on Form 990 (Part XI, line 4b) COGS Subtracted from revenue of $977.00 Other expenses included on Form 990 (Part XII, line 4b) COGS reported in the revenue section of $977.00 General Appe HOPE-HORIZON false THE REGENTS OF THE UNIVERSITY OF CA 9500 GILMAN DRTIVE MC 0009 LA JOLLA CA 920930009 50000 RESEARCH Northwestern University 633 Clark Crown G-547 Evanston IL 60208 50000 RESEARCH Regent of Univ of CA San Fancisco PO Box 748872 Los Angeles CA 900744972 50000 RESEARCH CCHMC 3333 Burnet Ave MLC 4900 Cincinnati OH 45229 50000 RESEARCH Cincinnati Childrens Hospital Med 3333 Burnet Ave MLC 7028 Cincinnati OH 452293039 20000 RESEARCH Officer directors etc family relationship Part VI line 2 Wendy M Book, MD - PresidentMichael Piansky, MD - TreasurerRelated by marriage Members or stockholder classes and rights Part VI line 6 The organization has members and memberships that are open to anyone who wishes to be involved in the cause. Form 990 governing body review Part VI line 11 The organizations tax return preparer provided a preliminary copy of the return to board members for review. Any necessary changes are made and the final return is presented to the president for signature and filing. Conflict of interest policy compliance Part VI line 12c AT THE BOARDS ANNUAL MEETING, THE CONFICT OF INTEREST POLICY IS REVIEW WITH ALL THE BOARD MEMBERS. Governing documents etc available to public Part VI line 19 The organization makes its governing documents, conflicts of interest statement and financial statements available to the pubic upon written request. General explanation attachment Form 990 PART III LINE 4 TEH ORGANIZATION MOST SIGNIFICANT PROGRAMS:LINE 4b: EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT: APFED HOSTED ITS ANNUAL PATIENT CONFERENCE IN DENVER AND VIRTUALLY, PRODUCED 12 PODCAST EPISODES AND 14 WEBINARS TO EDUCATE PATIENTS AND CAREGIVERS ABOUT EOSINOPHIL-ASSOCIATED DISEASE. WE PUBLISHED MONTHLY EDUCATIONAL E-NEWS, A QUARTERLY NEWSLETTER, AND SOCIAL MEDIA CONTENT, AND MADE DIGITAL EOE EDUCATIONAL MATERIALS AVAILABLE IN SPANISH. APFED CELEBRATED NATIONAL EOSINOPHIL AWARENESS WEEK AND INITIATED SPECIAL LIGHTING OF OVER 70 LANDMARKS NATIONWIDE TO RAISE AWARENESS. WE CELEBRATED THE 2ND ANNUAL WORLD EOSINOPHILIC DISEASES DAY WITH GLOBAL PATIENT ADVOCACY GROUPS. APFED PARTICIPATED IN OPENING REMARKS FOR AN EOSINOPHIL CONFERENCE IN ROME TO EMPHASIZE COLLABORATION FOR IMPROVED PATIENT CARE. WE LAUNCHED A 6-MONTH EOE AWARENESS CAMPAIGN IN TIMES SQUARE, NYC, AND AWARDED THREE $1,000 college SCHOLARSHIPS TO STUDENTS WITH EOSINOPHILIC DISEASE. APFED JOINED THE VALUE BASED CHRONIC DISEASE COLLABORATIVE AND SERVED AS EXPERT FACULTY IN A SERIES OF ROUNDTABLES AND LIVE WEBCASTS FOR MANAGED CARE PROFESSIONALS TO EDUCATE THEM ABOUT EOE, CO-AUTHORING TWO RELATED ABSTRACTS THAT WERE PRESENTED AT THE AMCP NEXUS MEETING FOR MANAGED CARE PROFESSIONALS. WE COLLABORATED WITH AAFA TO CONDUCT A NEEDS ASSESSMENT AND PUBLISH LIFE WITH EOE: THE PATIENT EXPERIENCE AND OPPORTUNITIES TO IMPROVE CARE IN THE U.S. APFED PARTICIPATED IN WORKGROUPS ON HEALTH EQUITY, PRESENTED TO CORPORATE TEAMS, GAVE MEDIA INTERVIEWS, AND RECORDED A SEGMENT FOR THE NORD EDUCATION VIDEO SERIES ON PATIENT ADVOCACY IN DRUG DEVELOPMENT. WE CONTINUED TO ADVOCATE FOR THERAPY ACCESS AND FOOD ALLERGEN LABELING IN THE U.S.VIDEO SERIES ON PATIENT ADVOCACY IN DRUG DEVELOPMENT. WE CONTINUED TO ADVOCATE FOR THERAPY ACCESS AND FOOD ALLERGEN LABELING IN THE U.S.