2024-08-05T13:49:07-05:00 2023-12-31 042571780 AAFCPAS INC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2023-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2024-08-01 1 1 JOHN BUCKLEY CPA P00830631 5083669100 2024-08-01 2023 2024-08-08 14:25:15Z DAVID ARONS 55 CHAPEL STREET 006 NEWTON MA 02458 13349365 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 14 14 52 42579 0 0 13242979 12821930 0 0 -18394 369617 0 157818 13224585 13349365 2241460 2467750 0 0 4989190 5649249 0 0 1133653 3169772 4133341 10400422 12250340 2824163 1099025 15423168 15961971 1240860 675141 14182308 15286830 X NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 5572619 2467750 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING PROJECTS IN OUR DEFEAT BRAIN TUMORS PROGRAM PORTFOLIO DESIGNED TO TRANSLATE DISCOVERIES INTO TRANSFORMATIVE MEDICAL BREAKTHROUGHS FOR ADULTS AND CHILDREN WITH BRAIN TUMORS. OUR "DEFEAT" PROGRAM BRINGS TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND PARTNERSHIPS WITH INDUSTRY. NBTS BRAIN TUMOR INVESTMENT FUND CATALYZES THE BRAIN TUMOR BIOTECH AND BIOPHARMA SPACE BRIDGING PROMISING ACADEMIC RESEARCH TO MOVE INTO INDUSTRIAL DEVELOPMENT. THE NBTS' RESEARCH ROUNDTABLE PROGRAM CONVENES STAKEHOLDERS TO TAKE ON BARRIERS AND OPPORTUNITIES TO BRAIN TUMOR TREATMENT DEVELOPMENT. 1602553 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 3145427 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, PERSONALIZED SUPPORT AND NAVIGATION FOR PATIENTS AND GROUP SUPPORT PROGRAMS, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 10320599 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 0 1 0 0 1 1 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 70 0 1 52 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X RICH LESCARBEAU 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 TOM ROLOFF CHAIR (UNTIL 6/2023) 2.00 X X 0 0 0 EDJAH NDUOM CHAIR 2.00 X X 0 0 0 ROBERT BURGER VICE CHAIR (UNTIL 2/2023) 1.00 X X 0 0 0 ERICA BIRKE VICE CHAIR 1.00 X X 0 0 0 DAVE BROWN TREASURER (UNTIL 9/2023) 1.00 X X 0 0 0 MIL PAREKH TREASURER 1.00 X X 0 0 0 LIZ SALMI CLERK (UNTIL 6/2023) 1.00 X X 0 0 0 LEAH RECHT JD CLERK 1.00 X X 0 0 0 SALO ZELERMYER JD BOARD MEMBER (UNTIL 6/2023) 1.00 X 0 0 0 RYAN LANG BOARD MEMBER 1.00 X 0 0 0 ALLISON BISHOF BOARD MEMBER 1.00 X 0 0 0 DR JOOHEE SUL BOARD MEMBER 1.00 X 0 0 0 CORIE YUTKIN BOARD MEMBER 1.00 X 0 0 0 ADAM HAYDEN BOARD MEMBER 1.00 X 0 0 0 KABIR SETHI BOARD MEMBER 1.00 X 0 0 0 FRANK MACCHIAROLA BOARD MEMBER 1.00 X 0 0 0 ERIC OLSON PHD BOARD MEMBER (UNTIL 6/2023) 1.00 X 0 0 0 ROBERT CORRAO BOARD MEMBER (UNTIL 6/2023) 1.00 X 0 0 0 DR EVANTHIA GALANIS BOARD MEMBER (UNTIL 6/2023) 1.00 X 0 0 0 CHRIS BROWN BOARD MEMBER 1.00 X 0 0 0 KAREN TURNER BOARD MEMBER 1.00 X 0 0 0 JONATHAN WEINBERG BOARD MEMBER 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 269769 0 41448 DOROTHY WHALEN CFO 40.00 X 168680 0 16845 KEVIN JEANS VICE PRES, DEVELOPMENT 40.00 X 200373 0 7145 KIRK TANNER CSO 40.00 X 213838 0 9927 ASHLEY BRENNAN VICE PRES, DEVELOPMENT 40.00 X 141146 0 36334 JOHN HIGGINS MANAGING DIRECTOR, BTIF 40.00 X 153125 0 16374 KATIE GERMAIN CHIEF MARKETING & COMM OFFICER 40.00 X 155700 0 5805 MARISA PETRILLO CHIEF PEOPLE OFFICER 40.00 X 129374 0 31896 RICHARD LESCARBEAU CONTROLLER 40.00 X 121847 0 37444 1553852 0 203218 17 0 1 0 BRACEWELL LLP PO BOX 207486 DALLAS TX 753207486 GOVERNMENT RELATIONS 131180 TECH SUPER POWERS 500 HARRISON AVE SUITE 108 BOSTON MA 02118 IT SUPPORT 126934 CAPVIEW ASSOCIATES LLC PO BOX 15294 WASHINGTON DC 20003 POLICY RESEARCH CONSULTING 108000 3 12821930 60496 12821930 369617 369617 RECOVERY OF GRANT EXPENSE 541700 153810 153810 OTHER INCOME 900099 4008 4008 157818 13349365 0 0 527435 2367750 2367750 50000 50000 50000 50000 928025 653388 49674 224963 3955222 3088153 313094 553975 92115 72284 7410 12421 293981 221498 31579 40904 379906 291131 28204 60571 34109 34109 47650 19034 28616 435716 435716 86 86 341867 330793 11074 303521 279108 24413 82663 40031 37801 4831 526107 382114 70014 73979 116476 62491 36514 17471 415554 387750 14787 13017 91111 78902 2486 9723 35707 20179 10352 5176 SPECIAL EVENTS 1509412 1387236 53810 68366 TRAINING AND RECRUITING 91921 11757 76871 3293 DONATED GOODS 60496 54361 6135 DUES AND SUBSCRIPTIONS 39571 35549 681 3341 1374 1374 12250340 10320599 796088 1133653 2556927 1826609 8951007 10642998 869481 473750 883108 677955 195673 280305 248875 93707 181480 155168 841915 883467 509211 709224 69455 52091 364911 260404 15423168 15961971 327199 398767 548750 364911 276374 1240860 675141 X 8867565 10148462 5314743 5138368 14182308 15286830 15423168 15961971 1099025 5497 0 X X 0 1 X 1 0 X 14128145 8855708 11743049 13242979 12821930 60791811 14128145 8855708 11743049 13242979 12821930 60791811 520303 60271508 33770 66897 46779 18168 369617 535231 157818 157818 61484860 0.98030 0.99670 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: RECOVERY OF GRANT EXPENSE - 2023 AMOUNT: $ 153,810. OTHER INCOME - 2023 AMOUNT: $ 4,008. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 497623 497623 11752717 12250340 762517 190629 0 0 507660 597421 670021 762517 2537619 3806429 477918 243345 276959 497623 1495845 126915 149355 167505 190629 634404 951606 PART II-A, LINE 1 NATIONAL BRAIN TUMOR SOCIETY ENGAGES IN A MODEST AMOUNT OF IRS DEFINITION DIRECT LOBBYING TO INFLUENCE SPECIFIC FEDERAL LEGISLATION ON AN ANNUAL BASIS. THE FEDERAL LEGISLATION SPANS THE HEALTH CARE AND LIFE SCIENCES RESEARCH POLICY ISSUES THAT MAKE UP NBTS' POLICY AGENDA. THE LOBBYING WORK IS CARRIED OUT BY NBTS PROFESSIONAL STAFF AND CONSULTANTS. NBTS DOES NOT ENGAGE IN IRS DEFINITION INDIRECT LOBBYING. 565448 565448 565448 565448 565448 565448 565448 565448 508547 56901 565448 0.00000 0.96680 0.03320 0 0 39894 8929 30965 179644 79842 99802 29337 4936 24401 155168 OPERATING LEASE OBLIGATIONS 276374 276374 X 13354776 5497 5497 13349279 86 86 13349365 12250254 0 12250254 86 86 12250340 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2023 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2023. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTMAKING 50000 0 0 0 0 0 0 50000 0 50000 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 50000 0 FMV 1 0 0 0 0 0 0 1 YALE UNIVERSITY 2 WHITNEY AVE 6TH FLOOR NEW HAVEN CT 06510 060646973 501 (C) 3 1810000 0 RESEARCH THE REGENTS OF THE UNIVERSITY OF CA 10889 WILSHIRE BLVD SUITE 700 LOS ANGELES CA 90095 956006143 501 (C) 3 280000 0 RESEARCH MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501 (C) 3 101375 0 RESEARCH MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 041564655 501 (C) 3 101375 0 RESEARCH BAPTIST HEALTH SOUTH FLORIDA FOUNDATION INC 6855 RED ROAD SUITE 600 CORAL GABLES FL 33143 591923401 501 (C) 3 25000 0 RESEARCH THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 316056230 501 (C) 3 50000 0 RESEARCH 6 1 RESEARCH GRANT 1 50000 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 269769 0 0 0 0 0 8527 0 32921 0 311217 0 0 0 KIRK TANNER CSO 213838 0 0 0 0 0 6435 0 3492 0 223765 0 0 0 KEVIN JEANS VICE PRES, DEVELOPMENT 200373 0 0 0 0 0 6006 0 1139 0 207518 0 0 0 DOROTHY WHALEN CFO 168680 0 0 0 0 0 5133 0 11712 0 185525 0 0 0 ASHLEY BRENNAN VICE PRES, DEVELOPMENT 141146 0 0 0 0 0 2975 0 33359 0 177480 0 0 0 JOHN HIGGINS MANAGING DIRECTOR, BTIF 153125 0 0 0 0 0 4217 0 12157 0 169499 0 0 0 KATIE GERMAIN CHIEF MARKETING & COMM OFFICER 155700 0 0 0 0 0 4666 0 1139 0 161505 0 0 0 MARISA PETRILLO CHIEF PEOPLE OFFICER 129374 0 0 0 0 0 4165 0 27731 0 161270 0 0 0 RICHARD LESCARBEAU CONTROLLER 121847 0 0 0 0 0 4044 0 33400 0 159291 0 0 0 X 1 7298 FMV X 89 36949 FMV X GIFT CARDS 14 3620 FMV X MEMORABILIA 6 1647 FMV X TICKETS 5 555 FMV X TRUCK RENTAL 1 258 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC BRAIN TUMOR INVESTMENT FUND LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 845100031 BRAIN TUMOR RESEARCH DE 173036 2209226 NATIONAL BRAIN TUMOR SOCIETY INC NBTS TDG LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 862578255 BRAIN TUMOR RESEARCH DE 1666666 1243 NATIONAL BRAIN TUMOR SOCIETY INC