2024-08-19T08:59:44-04:00 2023-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2023-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER EXEC. DIR. & PRES. 9198096779 2024-08-16 true true SUSAN DEAN P01281194 9196621001 2024-08-19 2023 2024-08-08 14:25:15Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 7442618 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 12 11 12 80 0 4812417 7189579 0 15406 218994 58427 34045 4886250 7442618 1199415 2007102 0 1193089 1536923 0 421969 696265 1053049 3088769 4597074 1797481 2845544 7599511 11037912 1353307 1830024 6246204 9207888 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 3121913 1909372 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS. 703384 97730 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS. 3825297 true true false false false false false false false false true false false false false true true false false false true true false false false false false true true true false false false false false true false false true false false false false false false false false true 15 0 true 12 true false false false false false false false false false false false false X 12 11 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 DANIEL FREED HEAD OF TARG 40.00 X 183188 0 14807 KENNY BRIGHTON HEAD OF PHIL 40.00 X 164800 0 6505 JOSH SOMMER EXEC. DIR. & 50.00 X X 148892 0 13116 SARA NICK HEAD OF ENGA 40.00 X 123299 0 4864 TAMMY SILVERTHORNE DIRECTOR OF 40.00 X 106717 0 15336 SHANNON LOZINSKY DIRECTOR OF 40.00 X 102804 0 12704 LESLIE ADLER DIRECTOR 2.00 X 0 0 0 PAUL FELDMAN DIRECTOR 2.00 X 0 0 0 STEVEN GOLICK DIRECTOR 2.00 X 0 0 0 CHRISTOPHER HEERY DIRECTOR 2.00 X 0 0 0 ALICIA JEFFREYS DIRECTOR 2.00 X 0 0 0 SUSAN MAHONY DIRECTOR 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 SHREYASKUMAR PATEL DIRECTOR 2.00 X 0 0 0 DAVID SANDAK CHAIR 4.00 X 0 0 0 MEGAN STEWART DIRECTOR 2.00 X 0 0 0 JOHN THERIEN DIRECTOR 2.00 X 0 0 0 829700 67332 6 false true false 7189579 4175241 7189579 218994 218994 11567 11567 11567 11567 CONFERENCE REGISTRATION 17250 17250 OTHER INCOME 5228 5228 22478 7442618 22478 230561 1559497 1559497 97730 97730 349875 349875 531307 406218 22338 102751 812035 620852 34141 157042 15162 11593 637 2932 85082 65051 3577 16454 93337 71362 3924 18051 103969 103969 10096 10096 60732 53254 2654 4824 24488 10947 7938 5603 39721 11333 11169 17219 178530 114879 30524 33127 15818 4513 4448 6857 96846 42562 13106 41178 52167 9795 42372 25475 18411 6386 678 MEETING EXPENSES 251458 246097 5361 IN-KIND CONTRIBUTIONS 141220 131328 9892 BAD DEBT EXPENSE 52529 52529 4597074 3825297 349808 421969 267171 3639340 6102120 6083749 1123782 1064570 28107 15041 219582 74431 78331 145151 90061 7599511 11037912 573348 510650 776434 1319374 3525 1353307 1830024 X 3052256 4158191 3193948 5049697 6246204 9207888 7599511 11037912 X 2845544 102403 13737 X false true X true false X 5151081 2488341 2961128 4812417 7189579 22602546 5151081 2488341 2961128 4812417 7189579 22602546 8599131 14003415 1049 5729 26512 49598 230561 313449 2512 1775 4287 22920282 166058 0.61100 0.73010 X PART II, LINE 10 CONFERENCE REGISTRATION FEES 4,287 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 156022 53244 102778 63560 21187 42373 145151 X 7673786 102403 125124 13737 241264 7432522 10096 10096 7442618 4712102 125124 125124 4586978 10096 10096 4597074 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2023 OR 2022. SCHEDULE D, PAGE 4, PART XI, LINE 2D GAIN ON FOREIGN CURRENCY 13,737 true EUROPE GRANTS RESEARCH 200000 SOUTH ASIA GRANTS RESEARCH 94500 NORTH AMERICA GRANTS RESEARCH 55375 349875 349875 SOUTH ASIA RESEARCH 94500 WIRE TRANSFER EUROPE RESEARCH 200000 WIRE TRANSFER NORTH AMERICA RESEARCH 55375 WIRE TRANSFER 1 2 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. 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X X false false false false false false false false false DANIEL FREED HEAD OF TARGET DISCO 157517 25611 60 5480 9327 197995 KENNY BRIGHTON HEAD OF PHILANTHROPY 144296 20450 54 4929 1576 171305 JOSH SOMMER EXEC. DIR. & PRES. 134338 14500 54 4452 8664 162008 SMITH ANDERSON LLP BOARD DIRECTOR 125124 IN-KIND LEGAL SVCS false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. X 9 4034021 FMV X TECH SOLUTIONS 1 141220 FMV false true false FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR, TREASURER AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS INCLUDING ARTICLES OF INCORPORATION, BY-LAWS, POLICIES, ANNUAL AUDITS, AND 990S ARE ON FILE IN THE FINANCE OFFICE AND ARE AVAILABLE TO THE PUBLIC UPON REQUEST. SOME OF THESE DOCUMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE. FORM 990, PART XI, LINE 9 GAIN ON FOREIGN CURRENCY 13,737