2024-09-19T09:53:01-05:00 2023-12-31 BDO USA 200 OTTAWA AVE NW STE 300 GRAND RAPIDS MI 49503 990 2023-01-01 270270731 The Assistance Fund Inc % STEVE ALSENE ASSI 8772454412 8427 South Park Circle Bldg D 100 Orlando FL 32819 STEVE ALSENE cfo/treasurer 8772454412 2024-09-05 true true JACOB COOK P01240455 6167747000 2024-05-08 2023 2024-08-08 14:25:15Z STEVE ALSENE 8427 South Park Cir Bldg D 100 Orlando FL 32819 322620635 false X WWW.TAFCARES.ORG X 2009 DE TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. 7 7 98 7 0 0 284392657 268292695 0 0 3965277 10673180 0 0 288357934 278965875 253725841 298583310 0 0 9356626 10271260 283062 61012 2066796 5922632 5548275 269288161 314463857 19069773 -35497982 391103788 363685624 11748050 18671166 379355738 345014458 X OUR MISSION IS TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. false false 303891651 298583310 0 The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. TAF assisted 40,070 patients in 2023 and added 11 new disease programs, increasing our total offering from 85 to 96 IN 2023. (CONTINUED ON SCHEDULE O) 303891651 true true false true false false false false false false true false false false true true true false false false false false false true false false false false true true false false false false false false false false false false false false false false false false false true 29 0 true 98 true false false false false false false false false false false false false X 7 7 false false false false false false false true true false false true true true true true true true true false AL AR CA CT DC FL GA HI IL IA KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X STEVE ALSENE 8558453663 8427 SOUTH PARK CIRCLE BLDG D ST orlando FL 32819 X GERALD LAURIA CHIEF DEVELOPMENT OFFICER 40.0 0.0 X 396567 0 56977 DANIELLE VIZCAINO CHIEF EXECUTIVE OFFICER 40.0 0.0 X 373798 0 50959 STEVEN ALSENE CHIEF FINANCIAL OFFICER 40.0 0.0 X 358769 0 55364 ELLEN JENKINS VP, EXTERNAL AFFAIRS 40.0 0.0 X 268530 0 17118 JOHN D' ANGELO SR. VP, BUSINESS INTELLIGENCE 40.0 0.0 X 253641 0 20769 JUDITH FOX CCO (THRU 08/2023) 40.0 0.0 X 269670 0 0 MARGARET FIGLEY SR. DIRECTOR, COMMUNICATIONS 40.0 0.0 X 208432 0 50090 DILIP PARIHAR SOLUTIONS ARCHITECT 40.0 0.0 X 147910 0 46327 JAN WIGINGTON SR. DIRECTOR, OPERATIONS 40.0 0.0 X 152539 0 38260 ALYSSA O'DRISCOLL SR. DIRECTOR, PHILANTHROPY 40.0 0.0 X 143860 0 26022 STEPHANIE MARSHALL DIRECTOR, PATIENT ADVOCACY 40.0 0.0 X 147876 0 18052 JEFF MILFORD CHAIRMAN, BOARD OF DIRECTORS 0.0 0.0 X 0 0 0 JUSTIN ARONSON VICE-CHAIR, BOARD OF DIRECTORS 0.0 0.0 X 0 0 0 LAWRENCE HATCH BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 KRISTIN MORRIS BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 JULIE JUDGE BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 ELLEN FEINSTEIN BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 BRETT KOPELAN BOARD OF DIRECTORS MEMBER 0.0 0.0 X 0 0 0 2721592 0 379938 17 false true false SALESFORCE 50 FREMONT SUITE 300 SAN FRANCISCO CA 94105 DEVELOPMENT SERVICES 657959 LIGHTHOUSE WORKS INC 2500 KUNZE AVENUE ORLANDO FL 32806 TEMPORARY STAFFING 565432 ALPHASCRIPT INC 4647 N 32ND STREET SUITE 125 PHOENIX AZ 85018 DEVELOPMENT SERVICES 489847 HINCKLEY ALLEN SNYDER LLP 28 STATE STREET BOSTON MA 021091775 LEGAL SERVICES 462257 AYODIA LLC 5 INDEPENDENCE WAY SUITE 300 PRINCETON NJ 08554 DEVELOPMENT SERVICES 456000 23 955162 267337533 268292695 0 10276631 10276631 0 0 0 0 0 44051309 43654760 396549 396549 396549 0 0 0 0 0 0 0 0 0 0 278965875 10673180 0 298583310 298583310 0 0 2113233 167842 1113866 831525 0 5134190 2438136 2319047 377007 423880 88514 238583 96783 2117086 1402652 605770 108664 482871 206251 214527 62093 0 667323 665572 1751 133120 133120 243050 243050 61012 61012 122524 122524 538982 18313 520669 178459 177253 1206 14830 164 14532 134 2359480 560395 1773462 25623 0 626279 248719 377560 247170 13339 136328 97503 0 40851 1611 10416 28824 0 0 130593 17058 30583 82952 40128 40128 PAYROLL PROCESSING FEES 74690 74690 POSTAGE AND SHIPPING 70378 55140 13926 1312 MEMBERSHIP DUES 26298 1261 8019 17018 CHARITABLE CONTRIBUTIONS 18000 18000 16120 88946 -85165 12339 314463857 303891651 8505410 2066796 0 0 263598138 271992862 77745000 46744673 0 0 0 0 0 0 0 0 0 0 1212021 1480848 4951655 2044635 2098713 2907020 45999196 39170210 0 0 0 0 0 0 450720 1390011 391103788 363685624 1075709 1541261 0 0 0 0 0 0 0 0 0 0 0 0 0 0 10672341 17129905 11748050 18671166 X 65475997 80921172 313879741 264093286 379355738 345014458 391103788 363685624 -35497982 1156702 X false true X true false X 371261409 380949124 293276162 284392657 268292695 1598172047 0 0 371261409 380949124 293276162 284392657 268292695 1598172047 1018208813 579963234 2684403 2560824 2129075 3934794 10276631 21585727 0 0 1619757774 0.35806 0.35981 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 243050 243050 314220807 314463857 1000000 250000 1000000 1000000 1000000 1000000 4000000 6000000 240000 243050 483050 250000 250000 250000 250000 1000000 1500000 Schedule C, Part I-A, Line 1: Federal insight and advocacy. 960263 58232 902031 11787 7268 4519 3979605 1979135 2000470 2907020 0 CLAIMS PAYABLE 15082915 OPERATING LEASE LIABILITIES 2046990 17129905 X 280000053 1156702 1156702 278843351 122524 122524 278965875 314341333 314341333 122524 122524 314463857 SCHEDULE D, PART X, LINE 2: TAF IDENTIFIES AND EVALUATES UNCERTAIN TAX POSITIONS, IF ANY, AND RECOGNIZES THE IMPACT OF UNCERTAIN TAX POSITIONS FOR WHICH THERE IS A LESS THAN MORE-LIKELY-THAN-NOT PROBABILITY OF THE POSITION BEING UPHELD WHEN REVIEWED BY THE RELEVANT TAXING AUTHORITY. SUCH POSITIONS ARE DEEMED TO BE UNRECOGNIZED TAX BENEFITS AND A CORRESPONDING LIABILITY IS ESTABLISHED ON THE STATEMENT OF FINANCIAL POSITION. TAF HAS NOT RECOGNIZED ALIABILITY FOR UNCERTAIN TAX POSITIONS. IF THERE WERE AN UNRECOGNIZED TAX BENEFIT, TAF WOULD RECOGNIZE INTEREST ACCRUED RELATED TO UNRECOGNIZED TAX BENEFITS IN INTEREST EXPENSE AND PENALTIES IN OPERATING EXPENSES. TAF'S REMAINING OPEN TAX YEARS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE (IRS) GENERALLY REMAIN OPEN FOR THREE YEARS FROM THE DATE OF FILING. X X true FAIRCOM NEW YORK INC 12 WEST 27TH STREET 13TH FLOOR NEW YORK NY 10001 CONSULTING false 110550 48634 61916 110550 48634 61916 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VA WA WV WI WY true COPAY & PREMIUM INS PYMTS TO UNDERINSURED PATIENTS 39546 298583310 SCHEDULE I, PART I, LINE 2: ANNUALLY, INDIVIDUALS GO THROUGH THE APPLICATION AND APPROVAL PROCESS. UPON RECEIPT OF A COMPLETED APPLICATION, A FINAL DETERMINATION IS MADE AND FUNDS ARE MADE PAYABLE DIRECTLY TO THE PHARMACY, SITE OF CARE OR HEALTHCARE PROVIDER FOR THE DISPENSING OF THE APPROVED THERAPY. THE ASSISTANCE FUND ELECTRONICALLY MONITORS UTILIZATION OF SAID FUNDS DOWN TO THE PATIENT LEVEL ON A DAILY BASIS AND RECONCILES AND AUDITS PAYMENTS WEEKLY. X true true X X false true false false false false false false false DANIELLE VIZCAINO CHIEF EXECUTIVE OFFICER 281254 0 89544 0 3000 0 13782 0 37177 0 424757 0 0 0 STEVEN ALSENE CHIEF FINANCIAL OFFICER 284706 0 71063 0 3000 0 18187 0 37177 0 414133 0 0 0 GERALD LAURIA CHIEF DEVELOPMENT OFFICER 313529 0 80038 0 3000 0 19800 0 37177 0 453544 0 0 0 JUDITH FOX CCO (THRU 08/2023) 269670 0 0 0 0 0 0 0 0 0 269670 0 0 0 JOHN D' ANGELO SR. VP, BUSINESS INTELLIGENCE 208821 0 41820 0 3000 0 10470 0 10299 0 274410 0 0 0 ELLEN JENKINS VP, EXTERNAL AFFAIRS 231862 0 33668 0 3000 0 8142 0 8976 0 285648 0 0 0 MARGARET FIGLEY SR. DIRECTOR, COMMUNICATIONS 192932 0 12500 0 3000 0 12913 0 37177 0 258522 0 0 0 STEPHANIE MARSHALL DIRECTOR, PATIENT ADVOCACY 134876 0 10000 0 3000 0 7753 0 10299 0 165928 0 0 0 JAN WIGINGTON SR. DIRECTOR, OPERATIONS 137039 0 12500 0 3000 0 9469 0 28791 0 190799 0 0 0 DILIP PARIHAR SOLUTIONS ARCHITECT 132410 0 12500 0 3000 0 9150 0 37177 0 194237 0 0 0 ALYSSA O'DRISCOLL SR. DIRECTOR, PHILANTHROPY 128360 0 12500 0 3000 0 8728 0 17294 0 169882 0 0 0 SCHEDULE J, PART I, LINE 1: TAF'S VP OF EXTERNAL AFFAIRS HAS A CAPITAL HILL CLUB MEMBERSHIP USED FOR BUSINESS MEETING PURPOSES. IN ADDITION, ALL EMPLOYEES RECEIVE WIFI COMPENSATION TO ACCOMMODATE A HYBRID WORK SCHEDULE. SCHEDULE J, PART I, LINE 4B: TAF HAS A NON-QUALIFIED DEFERRED COMPENSTION PLAN UNDER IRC SECTION 457(F) FOR CERTAIN KEY EMPLOYEES. THERE ARE NO EMPLOYEE CONTRIBUTIONS ALLOWED UNDER THE 457(F) PLAN, WHICH IS FULLY FUNDED BY TAF. THE FOLLOWING INDIVIDUALS RECEIVED CONTRIBUTIONS TO THEIR 457(F) PLAN DURING 2023: DANIELLE VIZCAINO $70,000 THIRTY PERCENT (30%) OF THESE AWARD AMOUNTS VEST AT THE END OF THREE YEARS FROM THE DATE OF ISSUANCE, WITH THE REMAINING SEVENTY PERCENT (70%) VESTING AT THE END OF FIVE YEARS FROM THE DATE OF ISSUANCE. INDIVIDUALS MUST BE CONTINUOUSLY EMPLOYED THROUGH THE VESTING DATE TO EARN THE RESPECTIVE AWARD AMOUNTS. FORM 990, PART III, LINE 4A CONTINUED: IN 2023, TAF HAD A GUIDESTAR PLATINUM SEAL OF TRANSPARENCY, A FIVE-STAR GREATNONPROFITS RATING, A PERFECT RATING FROM CHARITY NAVIGATOR, ACCREDITATION FROM THE BETTER BUSINESS BUREAU WISE GIVING ALLIANCE, WAS LISTED IN THE NONPROFIT TIMES' NPT 100 CHARITIES, AND WAS RANKED NUMBER 63 IN FORBES' TOP CHARITIES FOR 2023 LIST. IN 2023, TAF'S VIRTUAL ASSISTANT, VIOLET, HANDLED 18,000 ONLINE CHATS, WORKING 24 HOURS A DAY, 7 DAYS A WEEK TO ANSWER PATIENTS' FREQUENTLY ASKED QUESTIONS. TAF'S LIVE AGENT CONTACT CENTER HANDLED 140,000 CALLS IN 2023. THE RESULTS OF THE 2023 AFTER-CALL SURVEY SHOW A NET PROMOTER SCORE OF 94.8%, WHERE CALLERS INDICATED THAT THEY WOULD RECOMMEND THE ASSISTANCE FUND TO A FRIEND OR FAMILY MEMBER IN NEED. IN 2023, TAF'S PATIENT ADVOCACY TEAM EXHIBITED AT EIGHT IN-PERSON PATIENT ADVOCACY CONFERENCES, REACHING MORE THAN 3,500 PATIENTS, CAREGIVERS, PROVIDERS, AND ADVOCATES WITH INFORMATION ABOUT TAF AND THE ROLE OF INDEPENDENT CHARITABLE PATIENT ASSISTANCE. THE TEAM ALSO PARTICIPATED IN SEVEN PATIENT EDUCATION WEBINARS SPONSORED BY PATIENT ADVOCACY ORGANIZATIONS TO HELP PATIENTS AND CAREGIVERS ACCESS FINANCIAL ASSISTANCE TO SUPPORT THEIR CARE AND TREATMENT NEEDS. TAF ACTIVELY SUPPORTED LEGISLATION IN CONGRESS TO GUARANTEE THAT COPAYMENTS MADE ON BEHALF OF AN PATIENT ARE COUNTED TOWARD THEIR ANNUAL OUT-OF-POCKET MAXIMUMS. TAF ALSO SUPPORTED THE ROLLOUT OF THE IRA IN 2023, REDUCING OUT OF-POCKET COSTS EVEN FURTHER. THE PHILANTHROPY TEAM LED EFFORTS IN DIVERSIFYING TAF'S REVENUE STREAMS TO INCREASE THE STABILITY OF OUR FUNDING FOR YEARS TO COME. IN 2023, THE PHILANTHROPY TEAM SAW AN INCREASE OF 17%. IN 2023, TAF APPROVED 72% OF THE REENROLLMENT APPLICATIONS WE RECEIVED FOR 2024 FINANCIAL ASSISTANCE. FORM 990, PART VI, SECTION B, LINE 11: THE BOARD OF DIRECTORS IS PROVIDED WITH A COPY OF THE COMPLETED FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C: THE SECRETARY OF THE CORPORATION SHALL DISTRIBUTE ANNUALLY TO ALL DIRECTORS, OFFICERS AND KEY EMPLOYEES (AS IDENTIFIED BY THE CORPORATION), A FORM SOLICITING THE DISCLOSURE OF ALL CONFLICTS OF INTEREST, INCLUDING SPECIFIC INFORMATION CONCERNING THE TERMS OF ANY CONTRACT OR TRANSACTION WITH THE CORPORATION AND WHETHER THE PROCESS FOR APPROVAL SET FORTH IN THIS POLICY WAS USED. SUCH DISCLOSURE FORM MAY REQUIRE DISCLOSURE OF OTHER RELATIONSHIPS THAT MAY NOT CONSTITUTE AN ACTUAL CONFLICT OF INTEREST, BUT WHICH ARE REQUIRED TO BE DISCLOSED IN ORDER FOR THE CORPORATION TO COMPLY WITH ITS ANNUAL REPORTING REQUIREMENTS. AN EMPLOYEE OF THE CORPORATION WITH A POTENTIAL CONFLICT OF INTEREST IN A PARTICULAR MATTER SHALL PROMPTLY AND FULLY DISCLOSE THE POTENTIAL CONFLICT TO HIS SUPERVISOR. THE EMPLOYEE SHALL THEREAFTER REFRAIN FROM PARTICIPATING IN DELIBERATIONS AND DISCUSSION, AS WELL AS ANY DECISIONS, RELATING TO THE MATTER AND FOLLOW THE DIRECTION OF THE SUPERVISOR AS TO HOW THE CORPORATION DECISIONS WHICH ARE THE SUBJECT OF THE CONFLICT WILL BE DETERMINED. THE BOARD CHAIR SHALL BE RESPONSIBLE FOR DETERMINING THE PROPER WAY FOR THE CORPORATION TO HANDLE CORPORATION DECISIONS WHICH INVOLVE UNRESOLVED EMPLOYEE CONFLICTS OF INTEREST. IN MAKING SUCH DETERMINATIONS, THE BOARD CHAIR MAY CONSULT WITH LEGAL COUNSEL. THE BOARD CHAIR SHALL REPORT TO THE BOARD AT LEAST ANNUALLY CONCERNING EMPLOYEE CONFLICTS OF INTEREST WHICH HAVE BEEN DISCLOSED AND CONTRACTS AND TRANSACTIONS INVOLVING EMPLOYEE CONFLICTS WHICH THE BOARD CHAIR HAS APPROVED. FORM 990, PART VI, SECTION B, LINE 15: IT IS THE POLICY OF THE CORPORATION TO PAY NO MORE THAN REASONABLE COMPENSATION FOR PERSONAL SERVICES RENDERED TO THE CORPORATION BY OFFICERS AND EMPLOYEES. THE DIRECTORS OF THE CORPORATION SHALL NOT RECEIVE COMPENSATION FOR FULFILLING THEIR DUTIES AS DIRECTORS, ALTHOUGH DIRECTORS MAY BE REIMBURSED FOR ACTUAL OUT-OF-POCKET EXPENSES WHICH THEY INCUR IN ORDER TO FULFILL THEIR DUTIES AS DIRECTORS. EXPENSE OF SPOUSES WILL NOT BE REIMBURSED BY THE CORPORATION UNLESS THE EXPENSES ARE NECESSARY TO ACHIEVE A CORPORATION PURPOSE. THE BOARD OF DIRECTORS MUST APPROVE IN ADVANCE THE AMOUNT OF ALL COMPENSATION FOR OFFICERS OF THE CORPORATION. BEFORE APPROVING THE COMPENSATION OF AN OFFICER, THE BOARD SHALL DETERMINE THAT THE TOTAL COMPENSATION TO BE PROVIDED BY THE CORPORATION TO THE OFFICER IS REASONABLE IN AMOUNT IN LIGHT OF THE POSITION, RESPONSIBILITY AND QUALIFICATION OF THE OFFICER FOR THE POSITION HELD, INCLUDING THE RESULT OF AN EVALUATION OF THE OFFICER'S PRIOR PERFORMANCE FOR THE CORPORATION, IF APPLICABLE. IN MAKING THE DETERMINATION, THE BOARD SHALL CONSIDER TOTAL COMPENSATION TO INCLUDE THE SALARY AND THE VALUE OF ALL BENEFITS PROVIDED BY THE CORPORATION TO THE INDIVIDUAL IN PAYMENT FOR SERVICES. AT THE TIME OF THE DISCUSSION AND DECISION CONCERNING AN OFFICER'S COMPENSATION, THE OFFICER SHOULD NOT BE PRESENT IN THE MEETING. THE BOARD SHALL OBTAIN AND CONSIDER APPROPRIATE DATA CONCERNING COMPARABLE COMPENSATION PAID TO SIMILAR OFFICERS IN LIKE CIRCUMSTANCES. THE BOARD SHALL SET FORTH THE BASIS FOR ITS DECISIONS WITH RESPECT TO COMPENSATION IN THE MINUTES OF THE MEETING AT WHICH THE DECISIONS ARE MADE, INCLUDING THE CONCLUSIONS OF THE EVALUATION AND THE BASIS FOR DETERMINING THAT THE INDIVIDUAL'S COMPENSATION WAS REASONABLE IN LIGHT OF THE EVALUATION AND THE COMPARABILITY DATA. FOR OTHER KEY EMPLOYEES, COMPENSATION IS DETERMINED BY THE CHIEF EXECUTIVE OFFICER AFTER REVIEW OF COMPARABILITY DATA, INCLUDING A SALARY SURVEY. THE INFORMATION GATHERED AND FACTORS CONSIDERED IN ARRIVING AT THE COMPENSATION IS DOCUMENTED IN THE EMPLOYEES' PERSONNEL FILE. THIS PROCESS IS PERFORMED ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION C, LINE 19: THERE SHALL BE KEPT AT THE OFFICE OF THE CORPORATION: (1) CORRECT AND COMPLETE BOOKS AND RECORDS OF ACCOUNT; (2) MINUTES OF THE PROCEEDINGS OF THE BOARD OF DIRECTORS AND THE EXECUTIVE COMMITTEE; (3) A CURRENT LIST OF THE DIRECTORS AND OFFICERS OF THE CORPORATION AND THEIR RESIDENCE ADDRESSES; (4) A COPY OF THESE BY-LAWS; (5) A COPY OF THE CORPORATION'S APPLICATION FOR RECOGNITION OF EXEMPTION WITH THE INTERNAL REVENUE SERVICE; AND (6) COPIES OF THE PAST THREE (3) YEARS' INFORMATION RETURNS TO THE INTERNAL REVENUE SERVICE. ANY OF THE BOOKS, MINUTES AND RECORDS OF THE CORPORATION MAY BE IN WRITTEN FORM OR IN ANY OTHER FORM CAPABLE OF BEING CONVERTED INTO WRITTEN FORM WITHIN A REASONABLE TIME. THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.