2024-10-18T08:58:03-04:00 2023-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2023-01-01 462829156 Cure LBSL CURE 3520 S Wakefield St Arlington VA 22206 Elizabeth A McGinn Director 2024874235 2024-10-18 true true John Mullins P01429307 2027706371 2024-10-18 2023 2024-10-15 13:58:12Z Elizabeth A McGinn 1852552 false X www.curelbsl.org X 2013 VA Provide funding to rare disease research & support affected families 8 8 1 8 0 0 1410137 1850787 0 1 1765 0 1410138 1852552 1144010 1502459 0 11196 84131 0 0 164727 75075 1319933 1661665 90205 190887 535129 739400 0 535129 739400 Provide funding to rare disease research & support affected families false false 1660343 1502459 We provided $1,502,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland. The research seeks to create a treatment for the rare disease, Leukodystrophy - LBSL. This years research continued building cells with disease attributes, building animal models, testing therapeutics, and expanded a natural history study with a sample of known patients. 1660343 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 3 0 true 1 true false false false false true true false false false false false false false X 8 8 true false false false false false false true true false false true true true true false false false false false VA X X Elizabeth A McGinn 2024874235 3520 S Wakefield St Arlington VA 22206 X Morgan Stern Director 1.00 0.00 X 0 0 0 Lance Stern Director 1.00 0.00 X 0 0 0 Megan Mitchell Director 1.00 0.00 X 0 0 0 Chris Gulugian Director 1.00 0.00 X 0 0 0 Edward Blakely Director 1.00 0.00 X 0 0 0 Michael McGinn until 724 Director 1.00 0.00 X 0 0 0 Elizabeth A McGinn Director 15.00 0.00 X X 0 0 0 Elizabeth Gulugian Board Chair 5.00 0.00 X X 0 0 0 0 0 0 0 false false false 1850787 1850787 1765 1765 1852552 0 0 1765 1502459 1502459 61279 61279 22852 22852 2626 2626 1790 1790 16787 16787 10114 9498 616 4436 4436 4726 4726 2512 2512 Program Supplies 10032 10032 Development 1062 356 706 Research Supplies 20990 20990 1661665 1660343 1322 0 531701 734935 3428 3433 1032 535129 739400 0 0 X 535129 739400 535129 739400 535129 739400 190887 13384 0 X false false false X 308281 659411 599293 1410137 1850787 4827909 308281 659411 599293 1410137 1850787 4827909 2660651 2167258 1765 1765 4829674 0.44870 0.63590 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Kennedy Krieger Institute 707 North Broadway Baltimore MD 21205 521524965 501c3 1502000 NA NA Research 1 1 Officer directors etc family relationship Part VI line 2 The Board has members with family relationships. Form 990 governing body review Part VI line 11 The form will be emailed to The Board once it is complete and available for print. Conflict of interest policy compliance Part VI line 12c There is little room for a conflict of interest within Cure LBSL but all potential conflicts are to be raised to The Board for review. Form 990 availability to public Part VI line 18 The 990 is available on Guidestar which is accesible to the public. Governing documents etc available to public Part VI line 19 We do not make our policies public but they are available upon request.