2024-11-13T06:19:06-06:00 2024-06-30 871353108 EISNER ADVISORY GROUP LLC 130 NORTH 18TH STREET SUITE 3000 PHILADELPHIA PA 191032757 990 2023-07-01 412073220 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION ASSO 2675147221 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 2675147221 2024-11-06 1 1 HELEN M MARTIN P01330899 2158818800 2023 2024-10-15 13:58:12Z SUSAN L-J DICKINSON 2700 HORIZON DRIVE 120 KING OF PRUSSIA PA 19406 28443219 0 X WWW.THEAFTD.ORG X 2002 PA PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 18 18 55 398 0 0 8797440 12361972 2051 2204 -35633 899785 -226442 -124841 8537416 13139120 2475799 2986505 0 0 4778288 5424380 70000 70000 1066942 2339720 3046054 9663807 11526939 -1126391 1612181 47470345 53971673 2415381 3390530 45054964 50581143 X PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES. 0 0 4913453 2494999 166500 RESEARCH - EACH YEAR AFTD INVESTS IN THE SCIENCE THAT WILL DRIVE DISCOVERY AND DEVELOPMENT OF ACCURATE DIAGNOSTICS AND THE FIRST THERAPEUTICS FOR FTD. TO THAT END, AFTD AWARDED EIGHT GRANTS DURING FY23, INCLUDING TWO PILOT GRANTS AWARDED THROUGH THE AFTD PATHWAYS FOR HOPE PILOT GRANT PROGRAM.AFTD DELIVERED ONE AWARD THROUGH THE ACCELERATING DRUG DISCOVERY PROGRAM IN COLLABORATION WITH ADDF. DR. JEFFREY ROTHSTEIN OF JOHNS HOPKINS UNIVERSITY AND HIS TEAM WILL USE THE AWARD TO EVALUATE A NOVEL THERAPEUTIC TO CORRECT A PROBLEM AT THE HEART OF FTD ASSOCIATED WITH THE ACCUMULATION OF THE PROTEIN TDP-43.(CONTINUTED IN SCHEDULE O)AFTD AWARDED TWO HOLLOWAY POSTDOCTORAL FELLOWSHIPS ONE TO A RESEARCHER WORKING ON A PROJECT TARGETING TDP-43 AGGREGATION IN THE BRAIN, THE OTHER TO A RESEARCHER WORKING TO DEVELOP AND EVALUATE AN INDIVIDUALIZED, VIRTUAL REALITY SOCIAL-COGNITION GAME TO DIFFERENTIATE PRESYMPTOMATIC FTD MUTATION CARRIERS FROM NON-CARRIERS. AFTD ALSO AWARDED A CLINICAL RESEARCH TRAINING SCHOLARSHIP, FUNDED THROUGH THE GENEROUS SUPPORT OF THE HOLLOWAY FAMILY FUND, WITH ADDITIONAL SUPPORT FROM THE AMERICAN BRAIN FOUNDATION IN COLLABORATION WITH THE AMERICAN ACADEMY OF NEUROLOGY.IN FY23, BUILDING ON THE KNOWLEDGE THAT THE C9ORF72 MUTATION CAN CAUSE BOTH FTD AND ALS, AFTD PARTNERED WITH THE ALS ASSOCIATION TO LAUNCH THE DIGITAL ASSESSMENT TOOLS FOR FTD AND ALS AWARDS TO DRIVE PROGRESS IN COLLABORATIVE DIGITAL TOOL DEVELOPMENT AT THE INTERSECTION OF BOTH DISEASES. IN FY24, TWO AWARDS WERE GIVEN THROUGH THIS PROGRAM.AFTD CONTINUED TO SUPPORT THE FTD DISORDERS REGISTRY, AN ELECTRONIC DATABASE THAT COLLECTS INFORMATION ABOUT THE FTD EXPERIENCE FROM PERSONS DIAGNOSED AND FTD CARE PARTNERS. THIS ESSENTIAL SOURCE OF FIRST-HAND ACCOUNTS WILL HELP INFORM RESEARCHERS AND CLINICIANS, AND WILL SPUR INNOVATION THAT WILL LEAD TO BETTER DIAGNOSES AND THERAPIES FOR PEOPLE LIVING WITH FTD. AT THE END OF FY24, 6,704 PEOPLE HAD JOINED THE REGISTRY.IN COLLABORATION WITH THE FTD DISORDERS REGISTRY, AFTD PRESENTED THREE PERSPECTIVES IN FTD RESEARCH WEBINARS ADDRESSING TOPICS SUCH AS CLINICAL TRIALS IN PROGRESSIVE SUPRANUCLEAR PALSY AND CORTICOBASAL SYNDROME, GENE THERAPY IN FTD, AND NAVIGATING THE SOCIAL AND LEGAL CHALLENGES OF FAMILIAL FTD. 2153716 491506 2204 EDUCATION AND SUPPORTSUPPORT - AFTD UNDERSTANDS THE CHALLENGES THAT FTD PRESENTS TO PATIENTS AND THEIR FAMILIES, AND WORKS HARD TO DEVELOP UNIQUE RESOURCES AND INFORMATION THAT WILL IMPROVE QUALITY OF LIFE FOR THOSE LIVING WITH FTD. AFTD STAFF RESPONDED TO 3,927 HELPLINE INQUIRIES IN FY24 A 16 PERCENT INCREASE OVER FY23. AS OF JUNE 30, 2024, THERE ARE 104 AFTD-AFFILIATED SUPPORT GROUP FACILITATORS LEADING 84 GROUPS ACROSS THE UNITED STATES. AFTD AWARDED 753COMSTOCK GRANTS (TRAVEL, RESPITE, AND QUALITY OF LIFE GRANTS) TO FTD CAREGIVERS AND PERSONS DIAGNOSED. EDUCATION AND INFORMATION -- AFTD COLLABORATES WITH A GROWING NUMBER OF PARTNERS EACH YEAR TO EDUCATE HEALTHCARE PROFESSIONALS ABOUT FTD, WITH A GOAL OF SPEEDING OUR WAY TOWARD ACCURATE DIAGNOSIS AND EFFECTIVE DISEASE MANAGEMENT AND TREATMENT. AFTD'S 2024 EDUCATION CONFERENCE, HELD IN PERSON IN HOUSTON AND ONLINE VIA LIVESTREAM, DREW 1,061 ATTENDEES COMBINED. THE CONFERENCE FEATURED EXPERTS FAMILIAR WITH FTD AND THE AFTD COMMUNITY TO COMPREHENSIVELY DISCUSS CONTENT PERTINENT TO PEOPLE LIVING WITH OR AFFECTED BY FTD, AS WELL AS HEALTHCARE PROFESSIONALS SEEKING GREATER UNDERSTANDING OF THIS DISEASE. AFTD OFFERED 10 EXPERT-LED EDUCATIONAL WEBINARS, INCLUDING THREE WITH THE FTD DISORDERS REGISTRY AND FOUR WEBINARS THAT OFFERED CONTINUING EDUCATION CREDITS TO VIEWERS. AFTD ALSO PUBLISHED THREE ISSUES OF THE PARTNERS IN FTD CARE NEWSLETTER FOR HEALTH PROFESSIONALS AND FAMILIES. 2855025 ADVOCACY AND AWARENESS - OUR COMMUNITY IS LEADING THE WAY TO SEND THE MESSAGE THAT DEMENTIA IS A MULTI-FACETED DISEASE THAT CAN OCCUR AT A YOUNG AGE AND BEGIN WITH SYMPTOMS UNRELATED TO MEMORY. AFTD IS WORKING HARD TO ENSURE THAT THIS MESSAGE IS HEARD IN WASHINGTON DC AND OTHER SEATS OF POWER, WHERE DECISIONS ABOUT RESEARCH FUNDING AND SERVICES ARE MADE. IN FY24, AFTD LAUNCHED ITS ADVOCACY ACTION CENTER, WHICH PROVIDES GUIDANCE FOR MEMBERS OF AFTD'S COMMUNITY WHO WANT TO ADVOCATE FOR LEGISLATIVE, POLICY, AND REGULATORY CHANGES THAT WILL IMPROVE QUALITY OF CARE AND QUALITY OF LIFE FOR PEOPLE WITH FTD AND THEIR FAMILIES. 9922194 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 55 0 1 55 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DC FL GA HI IL KS KY ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI X X X MITCH APPLESON 2675147221 2700 HORIZON DRIVE STE 120 KING OF PRUSSIA PA 19406 KIM TORRES CHAIR 5.00 X X 0 0 0 RITA CHOULA VICE CHAIR 5.00 X X 0 0 0 JULIE KELLY TREASURER 4.00 X X 0 0 0 GAIL ANDERSON SECRETARY 4.00 X X 0 0 0 JILL GOLDMAN DIRECTOR (EFF 5/4/24) 2.00 X 0 0 0 HALIMA AMJAD DIRECTOR 3.00 X 0 0 0 HELEN-ANN COMSTOCK DIRECTOR 3.00 X 0 0 0 SANDRA GROW DIRECTOR (THRU 5/4/24) 3.00 X 0 0 0 KRISTIN HOLLOWAY DIRECTOR 2.00 X 0 0 0 KYLE BRIMINGHAM DIRECTOR (EFF 5/4/24) 2.00 X 0 0 0 SHOSHANA KRILOW DIRECTOR 2.00 X 0 0 0 JARY LARSEN DIRECTOR 4.00 X 0 0 0 JOSEPH MARQUEZ DIRECTOR 2.00 X 0 0 0 KATHY MELE DIRECTOR 4.00 X 0 0 0 DON NEWHOUSE DIRECTOR 2.00 X 0 0 0 KRISTIN SCHNEEMAN DIRECTOR 3.00 X 0 0 0 MARG SUTHERLAND DIRECTOR 3.00 X 0 0 0 ABRAR TANVEER DIRECTOR 2.00 X 0 0 0 VALERIE SNOW DIRECTOR (EFF 5/4/24) 2.00 X 0 0 0 DAVID PFEIFER DIRECTOR (THRU 5/4/24) 2.00 X 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 36.00 4.00 X 299604 0 27277 MITCH APPLESON CHIEF OPERATING OFFICER 38.00 2.00 X 239433 0 30583 PENNY DACKS SR. DIRECTOR OF SCIENTIFIC INITIATIVES 30.00 10.00 X 215668 0 15410 CHRISTINE ROGERS STEVENS DIRECTOR OF FINANCE (THRU 9/24) 36.00 4.00 X 182806 0 25570 BENJAMIN FREEMAN DIR OF DEV & COMM (THRU 1/24) 40.00 X 160117 0 5097 SHARON DENNY SR. DIRECTOR OF PROGRAMS 40.00 X 163623 0 23818 PETER WITZLEB DIRECTOR OF IT 40.00 X 162345 0 5177 1423596 0 132932 11 0 1 0 PRECON 11910 PARKLAWN DRIVE ROCKVILLE MD 20852 AV FOR ANNUAL EDUCATION CONFERENCE 167813 COREZ 1356 BROADWAY NEW YORK NY 10018 VENUE 155917 2 1915076 10446896 76999 12361972 EDUC & AWARENESS PRODUCT SALES 541700 2204 2204 2204 1153617 1153617 14614259 14868091 -253832 -253832 -253832 144667 1915076 436008 -291341 -291341 FTD REGISTRY 541700 166500 166500 166500 13139120 168704 0 608444 2524999 2524999 241506 241506 220000 220000 672161 405074 152817 114270 3909426 3163277 156762 589387 102877 83323 3595 15959 401820 316675 21694 63451 338096 264359 21856 51881 79464 79464 70000 70000 487251 395201 15141 76909 162297 162297 40459 21998 11041 7420 492241 395050 24008 73183 241433 177908 18620 44905 313908 244691 6907 62310 746822 734897 11255 670 9106 6511 774 1821 31466 23516 1872 6078 DUES AND SUBSCRIPTIONS 225673 217376 4792 3505 MISC ADVOCACY AND AWARE 167037 134572 32465 PRINTING AND COPYING 132282 95923 616 35743 BANK & CREDIT CARD FEES 59158 661 1056 57441 -142543 92380 5533 -240456 11526939 9922194 537803 1066942 288666 572093 6186229 2593871 5345553 7229199 16691 127647 148697 95209 76791 52237 33661 24554 34826459 42853060 624389 476040 47470345 53971673 496632 726636 1052178 1734688 198744 421417 667827 507789 2415381 3390530 X 36911305 41033313 8143659 9547830 45054964 50581143 47470345 53971673 X 1612181 3853998 60000 X X 0 1 X 1 0 X 9975434 8142577 12078806 8797440 12361972 51356229 9975434 8142577 12078806 8797440 12361972 51356229 21916245 29439984 207149 271150 400405 1186362 1153617 3218683 12211 38428 166500 217139 54792051 118719 0.53730 0.57110 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 30009 30009 11806900 11836909 741845 185461 0 0 530755 572666 645183 741845 2490449 3735674 2963 4114 14023 30009 51109 132689 143167 161296 185461 622613 933920 76791 52237 24554 24554 OPERATING LEASE LIABILITY 507789 507789 X 12579096 77993 261768 339761 12239335 899785 899785 13139120 11806700 77993 261768 339761 11466939 60000 60000 11526939 PART X, LINE 2: THE INTERNAL REVENUE SERVICE HAS CLASSIFIED THE ORGANIZATION AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTERPRISE'S FINANCIAL STATEMENTS. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION, AND HAS CONCLUDED THAT AS OF JUNE 30, 2024 AND 2023, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. THE ORGANIZATION RECOGNIZES ACCRUED INTEREST AND PENALTIES ASSOCIATED WITH UNCERTAIN TAX POSITIONS, IF ANY. THERE WERE NO INCOME TAX RELATED INTEREST OR PENALTIES RECORDED FOR EITHER OF THE YEARS ENDED JUNE 30, 2024 OR 2023. PART XI, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS EXPENSES 261,768. PART XI, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT INCOME AND REALIZED LOSSES 899,785. PART XII, LINE 2D - OTHER ADJUSTMENTS: ADDITIONAL SPECIAL EVENTS COSTS 261,768. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANTS RETURNED NETTED AGAINST EXPENSE ON FINANCIAL STATEMENTS 60,000. 1 0 0 0 0 0 0 0 0 0 ISRAEL 2024-2025 PATHWAYS FOR HOPE PILOT GRANT 110000 0 NETHERLANDS 2024-2025 WELL BEING IN FTD PILOT GRANT 110000 0 2 0 0 0 0 0 0 0 PART I, LINE 2: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. X 1 EVENT ASSOCIATES INC 162 W 56TH STREET SUITE 405 NEW YORK NY 10019 COORDINATION AND PLANNING OF EVENT -"HOPE RISING" 0 1898699 70000 1828699 1898699 70000 1828699 AL AL AR CA CO CT DC FL GA IL KS ME MD MA MI MN MS OR PA RI SC TN NV NH NJ NM NY NC ND OH OK UT VA WA WV WI HOPE RISING 1898699 1783059 115640 193576 79375 118624 DRIVING HOPE NY 125625 100785 24840 26775 2682 1 35419 31232 4187 11009 3967 2059743 1915076 144667 231360 79375 125273 436008 -291341 1 ALZHEIMER'S DRUG DISCOVERY FOUNDATION 57 WEST 57TH STREET SUITE 904 NEW YORK NY 10019 201082179 501(C)(3) 700000 0 ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT AFTD PROGRAMS FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH 11400 ROCKVILLE PIKE600 NORTH BETHESDA MD 20852 521986675 501(C)(3) 25000 0 SUPPLEMENTAL FUNDING FOR BIOMARKERS CONSORTIUM NEUROFILAMENT UCSF 490 ILLINOIS STREET 4TH FLOOR SAN FRANSCISCO CA 94143 946036493 501(C)(3) 350000 0 AFTD-ALS ASSOC. FTD DIGITAL ASSESSMENT TOOLS AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 411717098 501(C)(3) 200000 0 CLINICAL RESEARCH SCHOLARSHIPS NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE 35 CONVENT DRIVE BETHESDA MD 44106 520858115 501(C)(3) 120000 0 HOLLOWAY POSTDOCTORAL FELLOWSHIP GEORGIA STATE UNIVERSITY 33 GILMER STREET SE ATLANTA GA 30303 581845423 501(C)(3) 120000 0 HOLLOWAY POSTDOCTORAL FELLOWSHIP INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS 14305 SOUTHCROSS DR W SUITE 100 BURNSVILLE MN 55306 611581848 501(C)(3) 250000 0 INTERNATIONAL CONFERENCE SPONSORSHIP AND STRATEGIC PLANNING EMORY UNIVERSITY 1599 CLIFTON RD ATLANTA GA 30322 580566256 501(C)(3) 110000 0 PATHWAYS FOR HOPE PILOT GRANT BIOSENSICS LLC 57 CHAPEL STREET SUITE 200 NEWTON MA 02458 260547866 501(C)(3) 399999 0 AFTD-ALS ASSOC. FTD DIGITAL ASSESSMENT TOOLS THE FTD DISORDERS REGISTRY 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 501(C)(3) 250000 0 FTD PATIENT REGISTRY 10 0 TRAVEL SCHOLARSHIPS 23 10383 RESPITE CARE, TRAVEL AND QUALITY OF LIFE GRANTS 462 231123 PART I, LINE 2: RESEARCH GRANTS: GRANTEES SUBMIT INTERIM AND FINAL REPORTS WITH PROGRESS AND FINANCIAL INFORMATION. RESPITE AND TRAVEL GRANTS: GRANTEES SUBMIT A LISTING OF EXPENSES INCURRED AND PAYMENT IS MADE VIA REIMBURSEMENT. QUALITY OF LIFE GRANTS: GRANTEE EXPENDITURES ARE MONITORED THRU ON-LINE REPORTING. X X 0 0 0 0 0 0 0 0 0 SUSAN L-J DICKINSON CHIEF EXECUTIVE OFFICER 299208 0 0 0 396 0 8935 0 18342 0 326881 0 0 0 MITCH APPLESON CHIEF OPERATING OFFICER 239373 0 0 0 60 0 7478 0 23105 0 270016 0 0 0 PENNY DACKS SR. DIRECTOR OF SCIENTIFIC INITIATIV 215608 0 0 0 60 0 6462 0 8948 0 231078 0 0 0 CHRISTINE ROGERS STEVENS DIRECTOR OF FINANCE (THRU 9/24) 182577 0 0 0 229 0 5460 0 20110 0 208376 0 0 0 SHARON DENNY SR. DIRECTOR OF PROGRAMS 163227 0 0 0 396 0 4880 0 18938 0 187441 0 0 0 PETER WITZLEB DIRECTOR OF IT 162207 0 0 0 138 0 4841 0 336 0 167522 0 0 0 BENJAMIN FREEMAN DIR OF DEV & COMM (THRU 1/24) 160031 0 0 0 86 0 4776 0 321 0 165214 0 0 0 X 8 76999 HI/LOW DATE OF GIFT 0 1 0 PART I, COLUMN (B): THE COUNT ABOVE REPRESENTS THE NUMBER OF UNIQUE STOCK DONATIONS RECEIVED FROM INDIVIDUAL DONORS. FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS DON NEWHOUSE AND KATHY MELE HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE 990 WILL BE REVIEWED AND APPROVED BY AFTD'S AUDIT COMMITTEE AND PROVIDED TO THE FULL BOARD PRIOR TO SUBMISSION. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS AND CEO SIGN THE CONFLICT OF INTEREST FORM EVERY YEAR. IF AN ISSUE WERE TO ARISE IT WOULD BE ADDRESSED BY THE EXECUTIVE COMMITTEE AND THE BOARD MEMBER/CEO IN QUESTION. FORM 990, PART VI, SECTION B, LINE 15 THE PERFORMANCE REVIEW OF AFTD'S CEO WAS BASED ON THE PAST FISCAL YEAR RESULTS. IT INCLUDES INPUT THAT THE BOARD CHAIR AND VICE CHAIR OBTAINED FROM AFTD BOARD MEMBERS, AFTD STAFF AND MAJOR DONORS. THE PERFORMANCE REVIEW WAS WRITTEN BY THE CHAIR WITH INPUT FROM THE VICE CHAIR. BASED ON PERFORMANCE REVIEW AND FISCAL YEAR RESULTS, THE CHAIR RECOMMENDED A SALARY RANGE AND PROPOSED INCREASE WHICH WAS PUT FORWARD TO THE EXECUTIVE COMMITTEE FOR DISCUSSION AND ALIGNMENT. THE FINAL COMPENSATION WAS THEN APPROVED BY THE BOARD. THE SALARY RANGE AND ANNUAL INCREASE WAS DETERMINED AFTER REVIEWING SALARY COMPARABILITY DATA FOR NON PROFITS OF SIMILAR SIZE NATIONALLY AND IN THE GREATER PHILADELPHIA AREA ADJUSTED FOR COST OF LIVING INCREASES. A COMPARABILITY STUDY WAS PERFORMED DURING FY23 AND AFTD USED 3 SURVEYS FOR BENCHMARKS FOR ALL STAFF AT AFTD. IN ADDITION, AFTD DOCUMENTS ALL SALARY RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST FROM THE OFFICE. FORM 990, PART XI, LINE 9: RETURN OF PRIOR YEAR GRANT AWARDED 60,000. FORM 990, PART XII, LINE 2C THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. THE FTD DISORDERS REGISTRY LLC 2700 HORIZON DRIVE SUITE 120 KING OF PRUSSIA PA 19406 473601782 PROVIDES PATIENT REGISTRY FOR THOSE AFFECTED BY FTD DE 501(C)(3) LINE 7 THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0