2025-05-12T08:26:24-05:00 2024-12-31 351356555 DONOVAN PC 5151 E US HWY 36 AVON IN 46123 990 2024-01-01 842173231 PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC PEDI 9713694690 205 SE SPOKANE STREET 300 PORTLAND OR 97202 MICHAEL SIEGEL EXECUTIVE DIRECTOR 9713690373 2025-05-12 1 0 ABIGAIL HEDGES CPA P02058156 3177456411 2025-05-12 2024 2025-03-06 01:10:19Z MICHAEL SIEGEL 205 SE SPOKANE STREET 300 PORTLAND OR 97202 1819410 0 X HTTPS://PEDRARESEARCH.ORG X 2019 IN CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 15 15 7 50 1530 530 1573144 1747126 31696 29440 26805 35766 7000 3017 1638645 1815349 500970 388967 0 0 609230 591317 0 0 0 520538 680816 1630738 1661100 7907 154249 1400026 1637456 450112 487637 949914 1149819 CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 0 0 456997 13685 29440 ANNUAL CONFERENCE - PEDRA'S ANNUAL CONFERENCE WELCOMES DEDICATED SCIENTISTS, PARTNERS FROM INDUSTRY AND GOVERNMENT, PATIENTS, ADVOCATES, AND CAREGIVERS TO LEARN, SHARE, AND ADVANCE DIRECT RESEARCH THAT IMPROVES THE LIVES OF CHILDREN AND FAMILIES FACING THE BURDEN OF PEDIATRIC SKIN DISEASES. 569725 375282 DIRECT RESEARCH - PEDRA IS DEDICATED TO ACCELERATING THE PACE OF DIRECT RESEARCH AND EQUIPPING HEALTH CARE PROVIDERS WITH TREATMENT OPTIONS THAT IMPROVE PATIENTS' LIVES ON A MEANINGFUL TIMELINE. PEDRA PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WITH SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES. 326852 OUTREACH AND EDUCATION - PEDRA PROVIDES DIRECT RESEARCH-RELATED EDUCATION AND OUTREACH TO THOSE WHO TREAT CHILDHOOD SKIN DISEASE, PATIENTS, PARENTS, AND SCIENTISTS. 1353574 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 18 0 7 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 15 15 0 0 0 0 1 1 0 1 1 0 0 1 1 1 1 1 1 1 1 0 IN X X SUSAN MATLACK JONES & ASSOCIATES LLC 5032429360 200 SW MARKET STREET STE 1777 PORTLAND OR 97201 MEGHA TOLLEFSON MD PRESIDENT-ELECT 5.00 X X 0 0 0 ANNA BRUCKNER MD IMMEDIATE PAST PRESIDENT 5.00 X X 0 0 0 KEITH CHOATE MD PHD PRESIDENT 5.00 X X 0 0 0 LESLIE LAWLEY MD TREASURER 5.00 X X 0 0 0 ANDREA ZAENGLEIN MD DIRECTOR 1.00 X 0 0 0 CARRIE COUGHLIN MD DIRECTOR 1.00 X 0 0 0 COLLEEN COTTON MD DIRECTOR 1.00 X 0 0 0 HEATHER BRANDLING-BENNETT MD DIRECTOR 1.00 X 0 0 0 JEFFREY SUGARMAN MD PHD DIRECTOR 1.00 X 0 0 0 JENNIFER HUANG MD DIRECTOR 1.00 X 0 0 0 JIADE YU MD DIRECTOR 1.00 X 0 0 0 LARA WINE LEE MD PHD DIRECTOR 1.00 X 0 0 0 MEREDITH WEISS JD DIRECTOR 1.00 X 0 0 0 RAEGAN HUNT MD PHD DIRECTOR 1.00 X 0 0 0 YVONNE CHIU MD DIRECTOR 1.00 X 0 0 0 MICHAEL SIEGEL PHD EXECUTIVE DIRECTOR 40.00 X 156894 0 0 156894 0 0 1 0 1 0 0 34389 2685 74999 1635053 1747126 ANNUAL CONFRENCE 541700 29440 29440 29440 35766 35766 5548 2685 4061 1487 1487 ADVERTISING 541800 1530 1530 1530 1815349 29440 1530 37253 383967 383967 5000 5000 156894 105865 51029 334230 225523 108707 13228 8730 4498 43215 28522 14693 43750 28875 14875 79 79 29388 29388 77790 64290 13500 9871 6235 3636 119178 84310 34868 95567 89357 6210 47243 32001 15242 297251 289372 7879 4449 1527 2922 1661100 1353574 307526 0 371400 336307 732256 1013678 296370 282851 4620 1400026 1637456 77236 86749 312926 226488 59950 174400 450112 487637 X 684271 992031 265643 157788 949914 1149819 1400026 1637456 154249 45656 0 X X 0 1 X 1 0 X 1040930 1345859 1362310 1479451 1747126 6975676 1040930 1345859 1362310 1479451 1747126 6975676 2848203 4127473 3733 5122 10983 26805 35766 82409 7000 3017 10017 7068102 111140 0.58400 0.59240 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 1865066 45656 4061 49717 1815349 0 1815349 1665161 4061 4061 1661100 0 1661100 PART X, LINE 2: PEDRA IS EXEMPT FROM FEDERAL AND STATE INCOME TAX UNDER THE PROVISIONS OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE; THEREFORE, NO PROVISION FOR INCOME TAXES IS MADE IN THE FINANCIAL STATEMENTS. PEDRA IS CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) AND QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS AS PROVIDED IN SECTION 170(B)(1)(A)(VI). GENERALLY ACCEPTED ACCOUNTING PRINCIPLES IN THE UNITED STATES REQUIRE PEDRA TO EXAMINE ITS TAX POSITIONS FOR UNCERTAIN POSITIONS. PEDRA IS NOT AWARE OF ANY TAX POSITIONS THAT ARE MORE LIKELY THAN NOT TO CHANGE IN THE NEXT 12 MONTHS, OR THAT WOULD NOT SUSTAIN AN EXAMINATION BY APPLICABLE TAXING AUTHORITIES. PEDRA'S POLICY IS TO RECOGNIZE PENALTIES AND INTEREST AS INCURRED IN ITS STATEMENT OF ACTIVITIES AS A COMPONENT OF OPERATING EXPENSES, AND TOTAL $0 FOR THE YEARS ENDED DECEMBER 31, 2024 AND 2023. PEDRA'S FEDERAL AND STATE INCOME TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE APPLICABLE TAX AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THE LATER OF THE ORIGINAL OR EXTENDED DUE DATE. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 4,061. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES 4,061. 1 CHILDREN'S NATIONAL HOSPITAL 111 MICHIGAN AVE NW WASHINGTON DC 20010 530196580 40000 0 PHENOTYPING HIDRADENITIS SUPPURATIVA IN PEDIATRIC PATIENTS PHOENIX CHILDREN'S HOSPITAL 1919 E THOMAS RD PHOENIX AZ 85016 742421549 65000 0 DEVELOPING A COLLABORATIVE NETWORK AND PATIENT DRIVEN PHYSICIAN VERIFIED REGISTRY FOR FURTHERING THE SCIENCE OF CONGENITAL MELANOCYTIC NEVI (CMN) AND IMPROVING PATIENT OUTCOMES MASSACHUSETTS GENERAL 55 FRUIT ST BOSTON MA 02114 041564655 30000 0 NON-INVASIVE GENOMIC TESTING OF LARGE AND GIANT CONGENITAL NEVI JOHNS HOPKINS UNIVERSITY 3400 N CHARLES ST BALTIMORE MD 21218 520595110 25000 0 LONG-TERM MANAGEMENT OF SYSTEMIC TREATMENTS FOR PEDIATRIC ATOPIC DERMATITIS: A PILOT CLINICAL TRIAL AND MULTI-CENTER REGISTRY DEVELOPMENT ICAHN SCHOOL OF MEDICINE 1 GUSTAVE L LEVY PL NEW YORK NY 10029 136171197 25000 0 DEFINING PREDICTIVE NONINVASIVE BIOMARKERS FOR PEDIATRIC ATOPIC DERMATITIS PATIENTS UNIVERSITY OF COLORADO SCHOOL OF MEDICINE 13001 E 17TH PI AURORA CO 80045 846000555 25000 0 DEVELOPING AN ACNE PATIENT DECISION AID WITH AND FOR HISPANIC TEENAGERS EMORY UNIVERSITY 201 DOWMAN DR NE ATLANTA GA 30322 580566258 25000 0 ACNE INCIDENCE AND TREATMENT IN TRANSGENDER ADOLESCENTS: A MULTI-CENTER, VALIDATED COHORT STUDY NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 37500 0 USING DUPILUMAB TO IMPROVE CIRCADIAN FUNCTION, SLEEP AND PRURITUS IN CHILDREN WITH MODERATE/SEVERE ATOPIC DERMATITIS CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVE CINCINNATI OH 45229 131083393 10000 0 CONSENSUS STATEMENT ON PULSED-DYE LASER TREATMENT FOR PORT-WINE BIRTHMARKS DUKE UNIVERSITY 2138 CAMPUS DR DURHAM NC 27708 560532129 10000 0 DRUG SURVIVAL OF BIOLOGICS IN PEDIATRIC PATIENTS WITH HIDRADENITIS SUPPURATIVA SEEN AT DUKE, MGH AND UMASS MEMORIAL HEALTH NATIONAL INSTITUTES OF HEALTH 9000 ROCKVILLE PIKE BETHESDA MD 20892 521847251 7500 0 INVESTIGATING THE PREVALENCE OF INBORN ERRORS OF IMMUNITY AND TREATMENT RESPONSES IN PEDIATRIC ALOPECIA AREATA: A MULTI-SITE STUDY WASHINGTON UNIVERSITY IN ST LOUIS 1 BROOKINGS DR STLOUIS MO 63130 430653611 7500 0 MAPPING THE CONGENITAL MELANOCYTIC NEVUS (CMN) REMOVAL JOURNEY: INSIGHTS FROM PATIENTS, FAMILIES, AND CLINICIANS DARTMOUTH HITCHCOCK HEALTH 1 MEDICAL CENTER DR LEBANON NH 03766 264812335 6500 0 AN ANALYSIS OF LOCAL TREATMENT AVENUES FOR CUTANEOUS AND MUCOCUTANEOUS LEISHMANIASIS: A SYSTEMATIC REVIEW & META-ANALYSIS PART I, LINE 2 - PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS THE BOARD RECEIVES FINANCIAL REPORTS RELATED TO ALL ACTIVITY AND IS OVERSEEN BY AN EXECUTIVE DIRECTOR. X X X 0 0 0 0 0 0 0 0 0 MICHAEL SIEGEL PHD EXECUTIVE DIRECTOR 156894 0 0 0 0 0 0 0 0 0 156894 0 0 0 AMY PALLER FORMER BOARD MEMBER 50000 GRANT CONSENSUS GRANT ALBERT YAN FORMER BOARD MEMBER 5000 GRANT RESEARCH FELLOWSHIP JOYCE TENG FORMER BOARD MEMBER 5000 GRANT RESEARCH FELLOWSHIP, RESEARCH GRANT COLLEEN COTTON BOARD MEMBER 80000 GRANT CONSENSUS GRANT CARRIE COUGHLIN BOARD MEMBER 7500 GRANT RESEARCH GRANT ELENA HAWRYLUK BOARD MEMBER 5000 GRANT RESEARCH GRANT LESLIE CASTELO-SOCCIO BOARD MEMBER 7500 GRANT RESEARCH GRANT BETH DROLET FORMER BOARD MEMBER 5000 GRANT RESEARCH FELLOWSHIP JIADE YU BOARD MEMBER 25000 GRANT RESEARCH FELLOWSHIP FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A ORGANIZATION HAS MEMBERS THAT HAVE LIMITED VOTING AUTHORITY ACCORDING TO THE BYLAWS, INLCUDING ELECTION OF OFFICERS. FORM 990, PART VI, SECTION B, LINE 11B DRAFT OF THE RETURN IS REVIEWED BY THE EXECUTIVE DIRECTOR AND SHARED WITH THE BOARD BEFORE BEING FINALIZED AND FILED. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF DIRECTORS (BOARD) REVIEWS THE FINANCIAL STATEMENTS. THE BOARD IS PROVIDED COPIES OF THE FINANCIAL STATEMENTS AT THE TIME OF REVIEW AND AT YEAR-END. FORM 990, PART VI, SECTION B, LINE 12C PEDRA REQUIRES ALL BOARD MEMBERS AND STAFF TO REVIEW THE CONFLICT OF INTEREST POLICY, EVALUATE ACTIVITIES WITH RESPECT TO THE POLICY, AND COMMUNICATE ANY POTENTIAL CONFLICTS TO THE PRESIDENT OR EXECUTIVE DIRECTOR ON AN ANNUAL BASIS. THE IDENTIFICATION, EVALUATION AND RESOLUTION OF THOSE ISSUES ARE DISCUSSED WITH THE APPROPRIATE INDEPENDENT MEMBERS OF MANAGEMENT AND THE EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 PEDRA'S KEY EMPLOYEES ARE PROVIDED A FORMAL EVALUATION AT LEAST ONCE EVERY FIVE YEARS. THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS AND APPROVES COMPENSATION PRIOR TO THE ANNUAL EVALUATION. COMPENSATION IS DETERMINED BASED ON COMPARABLE DATA, COMPILED FROM INDEPENDENT SOURCES, AND EVALUATED AGAINST THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS AVAILABLE UPON REQUEST AND SHARED ON THE WEBSITE FOR PUBLIC ACCESS. FORM 990, PART XII, LINE 2C: THE ORGANIZATION'S BOARD OF DIRECTORS ASSUMES THE OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THE SELECTION AND REVIEW PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR.