2024-10-29T14:40:17-05:00 2024-06-30 111986323 MARCUM LLP 1601 MARKET ST 4TH FLOOR PHILADELPHIA PA 19103 990 2023-07-01 221912812 MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA INC MULT 8564884500 375 KINGS HIGHWAY NORTH CHERRY HILL NJ 08034 GINA R MURDOCH PRESIDENT AND CEO 8564884500 2024-10-29 1 0 FRANK H SMITH P00639053 2152972100 2024-10-29 2023 2024-10-15 13:58:12Z GINA R MURDOCH 375 KINGS HIGHWAY NORTH CHERRY HILL NJ 08034 16602440 0 X WWW.MYMSAA.ORG X 1970 NJ THE MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA,INC. IMPROVES LIVES TODAY FOR THE ENTIRE MS COMMUNITY THROUGH VITAL SERVICES AND SUPPORT. 12 12 34 24 105674 0 8039357 7206960 104564 66480 64033 467113 55275 108338 8263229 7848891 781650 791357 0 0 2899320 2821501 57133 57610 2773795 4633681 4564134 8371784 8234602 -108555 -385711 8324074 7425426 1625392 627569 6698682 6797857 X THE MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA, INC. (THE ASSOCIATION) IS A LEADING RESOURCE FOR THE ENTIRE MS COMMUNITY, IMPROVING LIVES TODAY THROUGH VITAL SERVICES AND SUPPORT. 0 0 2330579 791357 66480 PATIENT SERVICES: MSAA'S MRI ACCESS PROGRAM PROVIDES ASSISTANCE FOR MS PATIENTS OR INDIVIDUALS WHO HAVE A SUSPECTED MS DIAGNOSIS OR WHO HAVE AN MS DIAGNOSIS AND NEED MRI SCANS FOR THE PURPOSE OF PROVIDING A DIAGNOSIS OR TRACKING PROGRESSION. MSAA'S MRI, COOLING AND EQUIPMENT PROGRAM SERVES INDIVIDUALS WHOSE INCOME IS BELOW 300% OF THE FEDERAL POVERTY GUIDELINES AND ARE OTHERWISE UNABLE TO AFFORD MRI'S, COOLING VESTS AND SAFETY EQUIPMENT ITEMS. DURING FY24, MSAA APPROVED MORE THAN 825 ELIGIBLE INDIVIDUALS FOR MRI SCANS WITH A VALUE IN EXCESS OF $522,000. (CONTINUE IN SCHEDULE O)MSAA'S EQUIPMENT DISTRIBUTION PROGRAM HELPS INDIVIDUALS WITH MS OBTAIN EQUIPMENT ITEMS THAT THEY NEED IN ORDER TO BEST MANAGE THEIR MS. MSAA'S COOLING PROGRAM PROVIDES COOLING APPAREL THAT HELPS TO ALLEVIATE HEAT SENSITIVITY ISSUES FOR MS PATIENTS THROUGHOUT THE COUNTRY. DURING FY24 MSAA DELIVERED NEARLY 2,200 PIECES OF SAFETY, MOBILITY, AND COOLING PRODUCTS TO INDIVIDUALS AFFECTED BY MS WITH A VALUE IN EXCESS OF $269,000. DURING FY21 MSAA EXPANDED THE HOURS OF ITS NATIONAL TOLL-FREE HELPLINE AND MADE SEVERAL REVISIONS TO OUR CORE SIGNATURE SERVICES IN RESPONSE TO THE CORONAVIRUS PANDEMIC AND ITS IMPACT ON THE MS COMMUNITY. (MSAA'S EXTENDED HELPLINE HOURS CONTINUED THROUGHOUT FY24.) ALL THREE PROGRAMS NOW OFFER ONLINE APPLICATIONS WHICH CAN BE FOUND ON MYMSAA.ORG. PROGRAM APPLICATIONS ARE ALSO AVAILABLE AS PDF DOWNLOADS IN BOTH ENGLISH AND SPANISH FROM THE WEBSITE. THROUGHOUT THE FISCAL YEAR, MSAA HOSTED WELL-ATTENDED VIRTUAL EDUCATIONAL PROGRAMS TO ADDRESS VITAL TOPICS TO THE MS COMMUNITY INCLUDING WEBINARS ON HEALTH DISPARITIES AMONG THE AFRICAN AMERICAN AND HISPANIC AMERICAN POPULATIONS, MS RESEARCH, NUTRITION, AND WELLNESS, AS WELL AS OTHER IMPORTANT TOPICS. 2151303 PUBLIC EDUCATION, INFORMATION & REFERRAL: THE MSAA'S NATIONAL EDUCATIONAL PROGRAMS DELIVER HIGH-QUALITY, INFORMATIVE PROGRAMMING TO INDIVIDUALS WITH MS, CARE PARTNERS AND HEALTHCARE PROFESSIONALS NATIONWIDE. THESE PROGRAMS COVER A VARIETY OF TOPICS ALL AIMED AT IMPROVING HEALTH OUTCOMES FOR MS PATIENTS. MSAA PARTNERS WITH A NATIONAL NETWORK OF HEALTHCARE PROFESSIONALS TO PRESENT PROGRAMS OF SCIENTIFIC AND EDUCATIONAL VALUE. THESE IN-PERSON AND VIRTUAL EDUCATIONAL PROGRAMS COVER A WIDE BREADTH OF TOPICS, RANGING FROM ADVANCES IN DISEASE RESEARCH AND SYMPTOM MANAGEMENT, TO NUTRITION AND WELLNESS ACTIVITIES AS WELL AS PROGRAMS TAILORED TO INDIVIDUALS LIVING WITH MS, AS WELL AS PROGRAMS CURATED FOR UNDERSERVED POPULATIONS. (CONTINUE IN SCHEDULE O)MSAA ALSO REGULARLY OFFERS VIRTUAL AND DIGITAL PROGRAMMING FOCUSED ON SCIENTIFIC UPDATES IN DISEASE MANAGEMENT AND BEST PRACTICES IN TREATMENT PROTOCOL FOR HEALTHCARE PROFESSIONALS THAT TREAT THOSE LIVING WITH MS. IN 2019, MSAA ALSO DEVELOPED THE MS AFRICAN AMERICAN ADVISORY BOARD, AND A HISPANIC/LATINX ADVISORY BOARD COMPRISED OF MS HEALTHCARE PROFESSIONALS, PATIENTS AND CARE PARTNERS, TO DEVELOP A FIVE-YEAR PLAN OF INITIATIVES TO SERVE THE AFRICAN AMERICAN AND HISPANIC/LATINX MS PATIENT COMMUNITIES. ADDITIONALLY, MSAA CONVENED A SERIES OF ROUND TABLE DISCUSSIONS WITH LEADING MS NEUROLOGISTS AND PAYERS TO EXPLORE HOW THE HEALTHCARE SYSTEM COULD BETTER SERVE THE MS COMMUNITY AND IDENTIFY COMMON INTERESTS. THE FINDINGS FROM BOTH OF THESE INITIATIVES ARE BEING DEVELOPED AS WHITE PAPERS AND WILL BE BROADLY DISSEMINATED WITHIN THE MS COMMUNITY.THROUGH PUBLICATIONS, VIDEOS, PODCASTS, THE ORGANIZATION'S WEBSITE, A HELPLINE, AND EDUCATIONAL PROGRAMS, THE ASSOCIATION PROVIDES THE MS COMMUNITY AND THE GENERAL PUBLIC WITH VITAL INFORMATION ABOUT THE DISEASE, THE MANAGEMENT OF SYMPTOMS, AND BREAKTHROUGHS IN RESEARCH. THE ASSOCIATION PUBLISHES A NATIONAL MAGAZINE THE MOTIVATOR DISTRIBUTED BIANNUALLY WITH A CIRCULATION OF APPROXIMATELY 90,000. THE MAGAZINE IS ALSO AVAILABLE AS A DIGITAL EDITION. INDIVIDUAL CLIENT NEEDS ARE MET THROUGH THE ASSOCIATION'S NATIONAL TOLL-FREE HELPLINE. OUR TRAINED SOCIAL WORKERS RESPONDED TO MORE THAN 19,000 CLIENT INQUIRIES IN FY24 AND PROVIDED THESE CLIENTS WITH CONTACTS TO APPROPRIATE SERVICES THROUGHOUT THE NATION. MSAA'S WEBSITE HAD MORE THAN 660,000 SESSIONS DURING THE YEAR ENDED JUNE 30, 2024. THE ASSOCIATION OFFERS A MOBILE PHONE APPLICATION TO ASSIST ITS CLIENTS IN MONITORING, TRACKING, AND MANAGING THEIR MS AS WELL AS SHARING DATA WITH THEIR PHYSICIANS. THE ASSOCIATION EMPLOYS VARIOUS DIGITAL TACTICS TO COMMUNICATE WITH ITS CONSTITUENTS. THE ASSOCIATION IS ACTIVE ON 7 DIFFERENT SOCIAL MEDIA PLATFORMS. THE ASSOCIATION ALSO HOSTS A BLOG, OFFERS AN ONLINE PEER-TO-PEER COMMUNITY, AND ANSWERS QUESTIONS THROUGH ITS MS QUESTIONS EMAIL OPTION AND WEBSITE CHAT FEATURE. THE ASSOCIATION RECEIVED A GOOGLE GRANT VALUED AT $120,000 IN FY'24. THIS ALLOWED THE ASSOCIATION TO PROMOTE THE ORGANIZATION'S PROGRAMS AND SERVICES VIA KEYWORDS THROUGH GOOGLE'S SEARCH ENGINE IN AN EFFORT TO ASSIST INDIVIDUALS SEARCHING FOR INFORMATION ONLINE RELATED TO MS. MSAA RECEIVED THE FOLLOWING AWARDS DURING FY24: APEX AWARD FOR EXCELLENCE FOR THE SUMMER/FALL 2023 EDITION OF THE MOTIVATOR MAGAZINE FEATURING THE COVER STORY, "THE IMPORTANCE OF DIET AND NUTRITION IN MS;" NATIONAL HEALTH INFORMATION MERIT AWARD FOR OUR MY MSAA TODAY NEWSLETTER (MARCH 2023 EDITION); GOLD DIGITAL HEALTH AWARD FOR MSAA'S MY MS MANAGER MOBILE APP; MERIT DIGITAL HEALTH AWARD FOR MSAA'S ASK THE EXPERT SERIES FEATURED ON MSAA'S BLOG, MS CONVERSATIONS; AND MERIT DIGITAL HEALTH AWARD FOR THE SUMMER/FALL 2023 EDITION OF THE MOTIVATOR MAGAZINE. . IN ADDITION, THERE WERE 445,000 CUMULATIVE VIEWS OF MSAA'S 160 ON-DEMAND VIDEO PROGRAMS, 66,000+ TOTAL CUMULATIVE DOWNLOADS OF MSAA'S MOBILE APP, MY MS MANAGER, NEARLY 9,000 TOTAL DOWNLOADS OF EPISODES OF MSAA'S PODCAST, AND MORE THAN 9,100 CUMULATIVE MEMBERS ON MY MSAA COMMUNITY, MSAA'S ONLINE PEER-TO-PEER FORUM. IN 2022, MSAA RELEASED THE ULTIMATE MS TREATMENT GUIDE, A FIRST OF ITS KIND REFERENCE TOOL THAT AIDES THOSE LIVING WITH MS, THEIR LOVED ONES, AND COMMUNITY NEUROLOGISTS IN BETTER UNDERSTANDING THE WIDE ARRAY OF DISEASE MODIFYING THERAPIES AVAILABLE TO THE MS COMMUNITY. THE ULTIMATE MS TREATMENT GUIDE IS FULLY INTERACTIVE AND ALLOWS USERS TO FILTER AVAILABLE THERAPY OPTIONS BY TYPE OF MS, HOW IT'S TAKEN, AND BY DATE APPROVED BY THE FDA. THE ULTIMATE MS TREATMENT GUIDE ALSO INCLUDES IN-DEPTH TESTIMONIALS FROM LEADING MS SPECIALISTS AND PATIENT ADVOCATES ON EACH OF ITS PAGES, AS WELL AS A COMPARISON TOOL, ALLOWING A USER TO DIRECTLY COMPARE UP TO THREE MS THERAPIES AT ONE TIME. 2023 THE LATEST RESEARCH AND BEST PRACTICES IN MANAGING AND TREATING MS SERIES DURING THE FALL OF 2023, MSAA LAUNCHED AN EDUCATIONAL SERIES DESIGNED FOR THE MS COMMUNITY, HOSTING EIGHT IN-PERSON PROGRAMS IN HAWAII, PUERTO RICO, MONTANA, AND ALASKA. THESE SESSIONS FOCUSED ON THE UNIQUE CHALLENGES FACED BY INDIVIDUALS WITH MS AND HEALTHCARE PROVIDERS IN RURAL AND MEDICALLY UNDERSERVED AREAS. EXPERT MS NEUROLOGISTS COVERED A RANGE OF TOPICS, INCLUDING BEST PRACTICES IN MS MANAGEMENT, THE LATEST RESEARCH DEVELOPMENTS, STRATEGIES FOR BUILDING CARE TEAMS IN RURAL SETTINGS, AND WAYS TO IMPROVE ACCESS TO CARE. THE CONTENT WAS TAILORED TO MEET THE SPECIFIC NEEDS OF BOTH HEALTHCARE PROFESSIONALS AND PATIENTS, AND EACH SESSION CONCLUDED WITH INTERACTIVE Q&A DISCUSSIONS. AS PART OF THE MS ECOSYSTEMS FRAMEWORK INITIATIVE, MSAA CONDUCTED A NATIONAL UNMET NEEDS SURVEY TO IDENTIFY RESOURCE GAPS AND BARRIERS TO CARE FOR INDIVIDUALS WITH MS IN UNDERSERVED REGIONS ACROSS THE U.S. THE SURVEY GATHERED 620 RESPONSES, INCLUDING DEMOGRAPHIC AND GEOGRAPHIC DATA. RESPONDENTS IDENTIFIED LACK OF TRANSPORTATION, LIMITED ACCESS TO MS CARE, AND AFFORDABILITY AS SOME OF THE HIGHEST-RANKED CHALLENGES IN THEIR COMMUNITIES. THE FINDINGS ALSO HIGHLIGHTED THAT FACTORS SUCH AS SOCIOECONOMIC STATUS, AGE, RACE, ETHNICITY, AND COMMUNITY TYPE SIGNIFICANTLY IMPACT ACCESS TO HEALTHCARE AND RESOURCES. BUILDING ON THESE INSIGHTS, ALONG WITH FEEDBACK FROM PHASE II FOCUS GROUPS, MSAA IS NOW PREPARING TO LAUNCH PHASE III, WHICH WILL IMPLEMENT TARGETED INTERVENTIONS IN FOUR KEY REGIONS: CENTRAL TEXAS, UPSTATE NEW YORK, ATLANTA, GEORGIA, AND INLAND EMPIRE, CALIFORNIA. THE SURVEY RESULTS WERE PRESENTED AND DISCUSSED AT THE 2024 CONSORTIUM OF MULTIPLE SCLEROSIS CENTERS ANNUAL MEETING AND NEUROLOGY LIVE. 4481882 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 57 0 1 34 1 1 1 0 0 0 0 1 1 0 0 0 1 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA CT GA HI KY MA MI MN NC NH NJ NM NY OH OR PA SC UT WA WI WV X X DONNA MCFADDEN 8564884500 375 KINGS HIGHWAY NORTH CHERRY HILL NJ 08034 JENNIFER SCHWARTZ ESQUIRE CHAIRPERSON 1.00 X X 0 0 0 MERYL RAVITZ CPA TREASURER 1.00 X X 0 0 0 BARRY A SINGER MD DIRECTOR 1.00 X 0 0 0 ERIC K BOSSARD VICE CHAIRPERSON 1.00 X X 0 0 0 WENDY B SCOTT SECRETARY 1.00 X X 0 0 0 MICHAEL LUBBEN DIRECTOR (TO 08/2023) 1.00 X 0 0 0 MARTHA BAIRD SENTURIA DIRECTOR 1.00 X 0 0 0 MICHAEL SCHOENHAUT DIRECTOR 1.00 X 0 0 0 KELLY WATERS SECRETARY (TO 12/2023) 1.00 X X 0 0 0 ANDREW WOO MD PHD DIRECTOR 1.00 X 0 0 0 JULIAN GAMBOA DIRECTOR 1.00 X 0 0 0 JENNIFER SHIRLEY DIRECTOR (TO 01/2024) 1.00 X 0 0 0 AUDREY ALLSOPP DIRECTOR 1.00 X 0 0 0 ANN BAIRD BISHOP DIRECTOR 1.00 X 0 0 0 JASON SLATTERY DIRECTOR 1.00 X 0 0 0 GINA R MURDOCH PRESIDENT & CEO 37.50 X 282498 0 37992 ANDREA GRIFFIN VP OF COMMUNICATIONS & MAR 37.50 X 149222 0 16796 AMANDA MONTAGUE CHIEF MISSION OFFICER 37.50 X 201190 0 22884 WILLIAM SCRENCI VICE PRESIDENT OF FINANCE 22.50 X 69925 0 2033 MELISSA YOUNG ASSOCIATE VICE PRESIDENT MISSION DELIVERY-CLIENT I 37.50 X 105605 0 24201 MARIE LEGRAND ASSOCIATE VP OF HEALTH EDC (TO 07/23) 37.50 X 115112 0 14231 923552 0 118137 5 0 1 0 RKD GROUP 35 PARKWOOD DRIVE SUITE 160 HOPKINTON MA 01748 DIRECT MAIL 1027152 IMPACT EDUCATION 589 SKIPPACK PIKE SUITE 200 BLUE BELL PA 19422 DEVELOPMENT OF WEB BASED PROGRAMS FOR H 412799 ALLEGIANCE GROUP 3064 49TH STREET S FARGO ND 58104 DIGITAL FUNDRAISING 284898 SEQSTER PDM INC 7310 MIRAMAR RD SAN DIEGO CA 92126 SOFTWARE DEVELOPMENT 217659 ADSTRA 750 COLLEGE ROAD E SUITE 201 PRINCETON NJ 08540 DIRECT MAIL 134914 6 44891 546168 6615901 24115 7206960 PATIENT SERVICES 541900 66480 66480 66480 171309 171309 67150 0 67150 67150 67150 7191706 1507000 7191484 1211418 222 295582 295804 295804 286161 546168 350647 -64486 -64486 ADVERTISING 541800 105674 105674 105674 7848891 66480 105674 469777 791357 791357 868302 615484 151898 100920 1404959 755087 426510 223362 32645 8859 13854 9932 339866 70766 132113 136987 175729 102637 44274 28818 88138 59309 15866 12963 51144 31610 10751 8783 57610 57610 33720 20841 7088 5791 400823 170805 13775 216243 4592 2879 943 770 29213 18096 6318 4799 111144 74410 20217 16517 38145 23353 8913 5879 116337 86555 16391 13391 9019 5575 1895 1549 100077 53282 28933 17862 20091 12418 4222 3451 PATIENT ASSISTANCE 1164898 1164898 PRINTING 971129 142005 22112 807012 POSTAGE 768302 115855 18568 633879 DIRECT MAIL COST 458325 66899 10619 380807 199037 88902 23665 86470 8234602 4481882 978925 2773795 X 2182264 317698 51649 1812917 47861 67427 1345671 669939 164892 1003190 167215 570866 544127 410198 1073235 133929 5525200 4909040 0 71035 8324074 7425426 750305 559607 875087 0 67962 1625392 627569 X 4554069 5389324 2144613 1408533 6698682 6797857 8324074 7425426 -385711 484886 0 X X 0 1 X 1 0 X 7267809 7770132 8720632 8039358 7206960 39004891 7267809 7770132 8720632 8039358 7206960 39004891 4675006 34329885 91584 166382 150438 141631 238459 788494 205062 99855 83198 64261 105674 558050 40351435 480874 0.85080 0.86640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 203191 183474 19717 340936 226724 114212 133929 OPERATING LEASE LIABILITY 67962 67962 X 8650704 484886 350647 835533 7815171 33720 33720 7848891 8551529 350647 350647 8200882 33720 33720 8234602 PART X, LINE 2: MANAGEMENT OF MSAA CONSIDERS THE LIKELIHOOD OF CHANGES BY TAXING AUTHORITIES IN ITS INCOME TAX RETURNS AND RECOGNIZES A LIABILITY FOR OR DISCLOSES POTENTIAL SIGNIFICANT CHANGES THAT MANAGEMENT BELIEVES ARE MORE LIKELY THAN NOT TO OCCUR UPON EXAMINATION BY TAX AUTHORITIES, INCLUDING CHANGES TO MSAA'S STATUS AS A NOT-FOR-PROFIT ENTITY. MANAGEMENT BELIEVES MSAA MET THE REQUIREMENTS TO MAINTAIN ITS TAX-EXEMPT STATUS AND HAS NOT IDENTIFIED ANY UNCERTAIN TAX POSITIONS IN FILED INCOME TAX RETURNS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE MSAA'S FINANCIAL STATEMENTS. THERE ARE CURRENTLY NO EXAMINATIONS PENDING OR IN PROCESS. MSAA ENGAGED IN CERTAIN ACTIVITIES THAT DID NOT CONTRIBUTE DIRECTLY TO ITS EXEMPT PURPOSES. UNDER THE INTERNAL REVENUE CODE, A CORPORATE INCOME TAX IS IMPOSED ON THE NET INCOME GENERATED BY THESE UNRELATED BUSINESS ACTIVITIES. THE TAX ON UNRELATED BUSINESS INCOME WAS $0 AND $441 FOR THE YEARS ENDED JUNE 30, 2024 AND 2023, RESPECTIVELY. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT COSTS 350,647. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT COSTS 350,647. X X X X 1 BRIAN S HURWITZ LLC 10564 PALACIO RIDGE COURT BOYNTON BEACH FL 33473 FUNDRAISING EVENT MANAGEMENT 0 273430 57610 215820 273430 57610 215820 AK AL AR CA CO CT DC FL GA HI IL KS KY LA MA MD ME MI MN MS NC NH NJ NM NY OH OK OR PA RI SC TN UT WA WI WV NV 2024 GOLF CLASSIC 273430 188667 84763 60270 84763 2024 IMPROVING LIVES BENEFIT 224470 121214 103256 26044 103256 8 334429 236287 98142 76314 832329 546168 286161 86314 264333 350647 -64486 1 EQUIPMENT DISTRIBUTION PROGRAM 1068 56089 FAIR MARKET VALUE MEDICAL EQUIPMENT MRI ACCESS FUND 700 522032 FAIR MARKET VALUE MRIS COOLING PROGRAM 1375 213236 FAIR MARKET VALUE COOL SUITE DEVICE DISTRIBUTION PART I, LINE 2: THE ASSOCIATION PROVIDES ASSISTANCE TO INDIVIDUALS AFFECTED BY MULTIPLE SCLEROSIS (MS). THE EQUIPMENT, COOLING, AND MRI PROGRAMS REQUIRE APPLICANTS TO COMPLETE AN APPLICATION FORM WHICH IS SUBMITTED TO THE ASSOCIATION. THE ASSOCIATION DETERMINES IF THE INDIVIDUAL IS ELIGIBLE TO RECEIVE THE SERVICE BASED ON IF THE INCOME REQUIREMENT IS BELOW 300% OF THE FEDERAL POVERTY GUIDELINES. PAYMENTS ARE MADE DIRECTLY TO THE VARIOUS GROUPS/VENDORS THAT PROVIDE THE SERVICES TO THE INDIVIDUALS WHO MEET THE QUALIFICATIONS. NO FUNDS ARE PROVIDED DIRECTLY TO AN INDIVIDUAL PATIENT, THOUGH THE ASSOCIATION DOES PROVIDE HONORARIA TO PHYSICIANS WHO SPEAK AT THE ASSOCIATION'S EDUCATIONAL PROGRAMS. GRANT FUNDING RECEIVED BY THE ASSOCIATION IS UTILIZED TO HOST EDUCATIONAL PROGRAMMING TAILORED TO ADDRESS RELEVANT NEEDS WITHIN THE MS COMMUNITY, IN TERMS OF PATIENTS AND HEALTHCARE PROFESSIONALS. THROUGH THIS FUNDING, THE ASSOCIATION DEVELOPS A NUMBER OF NATIONAL SERIES AIMED AT ADDRESSING THE NEEDS AND CHALLENGES OF THE MS PATIENT, THEIR FAMILIES AND CARE PARTNERS, AS WELL AS DELIVERING OPPORTUNITIES TO AFFECT CHANGE IN THE CLINICAL SETTING THROUGH ITS PROFESSIONAL EDUCATION EFFORTS AIMED AT NEUROLOGISTS, NURSES AND NURSE PRACTITIONERS. THE ASSOCIATION ALSO DEVELOPS A NUMBER OF ONLINE PRESENTATIONS AS WELL AS TOOLS AND DECISION AIDES TO BENEFIT THIS COMMUNITY. THE ACCOUNTING DEPARTMENT TRACKS ALL EXPENSES AND REQUIRES RECEIPTS FOR EXPENSES. GRANTS ARE RECONCILED WITH THE FUNDER UPON THE FUNDER'S PROCEDURE OR REQUESTS. X X X X 1 0 0 0 0 0 0 0 0 GINA R MURDOCH PRESIDENT & CEO 282498 0 0 0 0 0 8434 0 29558 0 320490 0 0 0 AMANDA MONTAGUE CHIEF MISSION OFFICER 201190 0 0 0 0 0 5950 0 16934 0 224074 0 0 0 ANDREA GRIFFIN VP OF COMMUNICATIONS & MAR 149222 0 0 0 0 0 4421 0 12375 0 166018 0 0 0 PART I, LINE 4A MARIE LEGRAND, ASSOCIATE VICE PRESIDENT MISSION DELIVERY, HEALTH & EQUITY EDUCATION TO JULY 21, 2023, RECIEVED SEVERANCE PAYMENT OF $45,833. X 18 24115 PROCEEDS FROM AUCTION 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B ONCE THE ASSOCIATION'S INDEPENDENT AUDITING FIRM COMPLETES THE FEDERAL FORM 990, THE ACCOUNTING DEPARTMENT VERIFIES THE ACCURACY OF THE NUMBERS. THE FEDERAL FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FOR THEIR REVIEW AND COMMENTS. THE BOARD OF DIRECTORS HAS DESIGNATED THE AUDIT COMMITTEE TO HAVE THE FINAL APPROVAL BEFORE THE FEDERAL FORM 990 IS ELECTRONICALLY FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT-OF-INTEREST POLICY IS ADMINISTERED BY THE BOARD OF DIRECTORS. ON AN ANNUAL BASIS, BOARD OF DIRECTORS, OFFICERS AND SENIOR STAFF DESIGNATED BY THE PRESIDENT AND CEO MUST CERTIFY THAT THEY ARE IN COMPLIANCE WITH THE CONFLICT-OF-INTEREST POLICY. ANNUALLY, ALL OTHER EMPLOYEES RECEIVE A COPY OF THE POLICY FOR THEIR REVIEW. IF AN INCIDENT ARISES ABOUT A CONFLICT, IT WILL BE REFERRED TO THE BOARD OF DIRECTORS TO DETERMINE IF A CONFLICT HAS OCCURRED. ALL EMPLOYEES ARE ENCOURAGED TO BRING TO THE ATTENTION OF THE PRESIDENT AND CEO IF ANY ISSUE OF A CONFLICT OF INTEREST HAS OCCURRED. WHEN A COVERED PERSON BECOMES AWARE OF A PROPOSED OR EXISTING COVERED TRANSACTION, HE OR SHE SHALL HAVE A DUTY TO TAKE THE FOLLOWING ACTIONS: (1) IMMEDIATELY DISCLOSE THE EXISTENCE AND CIRCUMSTANCES OF SUCH COVERED TRANSACTION TO THE CHAIRPERSON OR, IN THE CASE OF AN EMPLOYEE, TO THE PRESIDENT AND CEO. (2) REFRAIN FROM USING HIS OR HER PERSONAL INFLUENCE TO ENCOURAGE THE ASSOCIATION TO ENTER INTO THE COVERED TRANSACTION AND (3) PHYSICALLY RECUSE HIMSELF OR HERSELF FROM PARTICIPATION IN ANY DISCUSSIONS REGARDING THE COVERED TRANSACTION WITH DIRECTORS, OFFICERS AND/OR EMPLOYEES OF THE ASSOCIATION AND AT MEETINGS OF THE BOARD OF DIRECTORS, EXCEPT TO RESPOND TO REQUESTS FOR INFORMATION ABOUT THE COVERED TRANSACTION. FORM 990, PART VI, SECTION B, LINE 15 ANNUAL COMPENSATION IS REVIEWED BASED ON SEVERAL FACTORS INCLUDING JOB PERFORMANCE, INFLATION, BUDGETARY CONSIDERATIONS, AND SURVEY OF THE MARKET. THE PRESIDENT AND CEO'S COMPENSATION IS BASED UPON SIMILAR CRITERIA AND IN ADDITION AN OUTSIDE CONSULTANT WAS ENGAGED DURING THE FISCAL YEAR TO ASSURE PROPER ALIGNMENT WITH THE MARKET. FINAL APPROVAL RESTS WITH THE BOARD OF DIRECTORS AND COMPENSATION COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY, FEDERAL FORM 1023, AND GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. THE AUDITED FINANCIAL STATEMENTS AS WELL AS FEDERAL FORM 990 ARE POSTED ON THE ASSOCIATION'S WEBSITE. THE ANNUAL SUMMARY OF THE ASSOCIATION'S PROGRAMS AND FINANCES ARE PUBLISHED IN AN ANNUAL REPORT WHICH IS DISTRIBUTED TO MAJOR DONORS, CORPORATE SPONSORS, FOUNDATIONS, AND THE GENERAL PUBLIC AND IS ALSO POSTED ON OUR WEBSITE. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.