2024-11-06T08:39:26-06:00 2023-12-31 390859910 BAKER TILLY ADVISORY GROUP LP 1570 FRUITVILLE PIKE SUITE 400 LANCASTER PA 17601 990 2023-01-01 203169071 PEDIATRIC SPINE FOUNDATION PEDI 4844106413 PO BOX 1072 LAYTON UT 84041 JACK FLYNN PRESIDENT 4844106413 2024-10-23 1 1 KERRI N BOGDA CPA P00760402 7177404863 2024-10-23 2023 2024-10-15 13:58:12Z JACK FLYNN PO BOX 1072 LAYTON UT 84041 1750769 0 X WWW.PEDIATRICSPINEFOUNDATION.ORG X 2005 UT TO HELP CHILDREN WITH SPINE PROBLEMS LIVE LONGER, BETTER LIVES. 13 12 5 6 0 0 1554390 1329993 198450 246835 65 22195 129865 151746 1882770 1750769 102520 128989 0 0 592595 641571 0 0 5534 834158 764710 1529273 1535270 353497 215499 6005970 6941374 73003 49924 5932967 6891450 X PROVIDE STRUCTURE AND FUNDING TO SUPPORT EDUCATION, PROVIDE FAMILY SUPPORT, AND CONDUCT PROSPECTIVE AND RETROSPECTIVE STUDIES BY SURGEONS AND RESEARCHERS STUDYING COMPLEX CHEST WALL AND SPINE DEFORMITIES IN THE GROWING CHILD. 0 0 1480637 128989 246835 THE PEDIATRIC SPINE FOUNDATION LEADS A COMMUNITY OF INDIVIDUALS DEDICATED TO IMPROVING THE QUALITY OF CARE AND THE OUTCOME OF TREATMENT FOR YOUNG PATIENTS AND FAMILIES DEALING WITH COMPLEX SPINE DEFORMITY. THE PEDIATRIC SPINE FOUNDATION FOCUSES ITS EFFORTS IN THREE AREAS: RESEARCH, EDUCATION, AND PATIENT ACCESS TO CARE. IN 2023, THE FOUNDATION SUPPORTED MULTIPLE RESEARCH STUDIES ON NEW TREATMENTS, QUALITY OF LIFE, AND COMPLICATIONS, INCLUDING TWO RANDOMIZED CONTROLLED CLINICAL TRIALS. THE FOUNDATION ALSO SUPPORTS 14 RESEARCH INTEREST GROUPS TO FACILITATE, DISCUSS, AND PRIORITIZE RESEARCH PROJECTS. THE FOUNDATION HOSTED MULTIPLE FORUMS FOR CLINICIANS TO DISCUSS BEST PRACTICES AND TO DISSEMINATE FINDINGS, INCLUDING THE INTERNATIONAL CONGRESS ON EARLY ONSET SCOLIOSIS. THE FOUNDATION SUPPORTED MULTIPLE FAMILIES TRAVEL TO OBTAIN ACCESS TO QUALITY CARE. 1480637 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 12 0 5 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 UT X TRICIA ST HILAIRE 4844106413 PO BOX 397 VALLEY FORGE PA 19481 STEVE SCHWARTZ CHAIRMAN 3.00 0.00 X X 0 0 0 JACK FLYNN MD PRESIDENT 3.00 0.00 X X 0 0 0 PAUL SPONSELLER MD PRESIDENT-ELECT 3.00 0.00 X X 0 0 0 MICHAEL VITALE MD MPH VICE PRESIDENT 3.00 0.00 X X 0 0 0 MUHARREM YAZICI MD SECRETARY 3.00 0.00 X X 0 0 0 LAUREL BLAKEMORE TREASURER 3.00 0.00 X X 0 0 0 DAVID SKAGGS MD MEMBER 3.00 0.00 X X 0 0 0 RON EL-HAWARY MD MEMBER 3.00 0.00 X 0 0 0 JOHN SMITH MD MEMBER 3.00 0.00 X 0 0 0 JEFF SAWYER MD MEMBER 3.00 0.00 X 0 0 0 AMER SAMDANI MD MEMBER 3.00 0.00 X 0 0 0 BEHROOZ AKBARNIA MD MEMBER 3.00 0.00 X 0 0 0 TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR 40.00 0.00 X X 177519 0 5325 REGINA WOON RESEARCH MANAGER 40.00 X 120622 0 3619 298141 0 8944 2 0 1 0 0 1329993 11191 1329993 MEETINGS REVENUE 611430 246835 246835 246835 22195 22195 SERVICE INCOME 900099 111681 111681 MEETING SPONSORS 541800 38663 38663 MISCELLANEOUS 900099 1402 1402 151746 1750769 246835 0 173941 X 110234 110234 123 123 18632 18632 182844 182844 369966 369966 8799 8799 35156 35156 44806 44806 10438 10438 19000 19000 235375 235375 763 763 13079 13079 137 137 412189 412189 1875 1875 REGISTRY EXPENSES 62051 62051 FUNDRAISING DONATION FE 5534 5534 DUES & SUBSCRIPTIONS 3807 3807 EDUCATION EXPENSES 462 462 1535270 1480637 49099 5534 1304448 713887 99690 469817 145397 75347 29250 1000 4427185 5681323 6005970 6941374 73003 49924 73003 49924 X 5932967 6891450 5932967 6891450 6005970 6941374 215499 742984 0 X 0 0 0 X UNIVERSITY OF UTAH HEALTH SCIENCES CENTER SALT LAKE CITY UT RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 EAST ASIA AND THE PACIFIC GRANTS 4895 NORTH AMERICA GRANTS 13737 0 0 0 0 0 0 18632 0 18632 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES RESEARCH PROJECT SUPPORT 13737 0 1 0 0 0 0 0 0 PART I, LINE 2: FUNDS WERE PAID TO ORGANIZATIONS FOR PARTICIPATION IN ONE OF THE FOUNDATION'S PROSPECTIVE STUDIES. 1 MAYO CLINIC 201 BUILDING 4OOM 4-60 200 FIRST ST SW ROCHESTER MN 55905 416011702 501(C)(3) 5500 0 N/A N/A RESEARCH PROJECT SUPPORT DAYTON CHILDREN'S HOSPITAL 1 CHILDRENS PLAZA DAYTON OH 45404 310672132 501(C)(3) 22500 0 N/A N/A RESEARCH PROJECT SUPPORT THE NEMOURS FOUNDATION 1600 ROCKLAND RD WILMINGTON DE 19803 590634433 501(C)(3) 5825 0 N/A N/A RESEARCH PROJECT SUPPORT WCG IRB 212 CARNEGIE CENTER SUITE 301 PRINCETON NJ 08540 300717648 9295 0 N/A N/A RESEARCH PROJECT SUPPORT SANFORD RESEARCH 2301 EAST 60TH ST N SIOUX FALLS SD 57104 460450378 501(C)(3) 27250 0 N/A N/A RESEARCH PROJECT SUPPORT 4 1 PART I, LINE 2: GRANT RECIPIENTS ARE REQUIRED TO PROVIDE QUARTERLY PROGRESS REPORTS TO ENSURE FUNDS ARE BEING USED FOR THEIR INTENDED PURPOSE. X X 0 0 0 0 0 0 0 0 0 TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR 177519 0 0 0 0 0 5325 0 0 0 182844 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS THE FORM 990 PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS THEN SENT TO ALL BOARD MEMBERS PRIOR TO FILING THE TAX RETURN WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS AND OFFICERS OF THE FOUNDATION ARE REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST VIA COMPLETION OF A CONFLICTS FORM. THOSE INDIVIDUALS ARE ALSO REQUIRED TO DISCLOSE ANY AND ALL ONGOING ISSUES THAT ARISE DURING THE COURSE OF THE YEAR. CONFLICT OF INTEREST DISCLOSURES ARE REVIEWED BY THE EXECUTIVE DIRECTOR. ANY INDIVIDUAL WITH A CONFLICT OF INTEREST MUST ABSTAIN FROM VOTING ON THE MATTER. FORM 990, PART VI, SECTION B, LINE 15A THE COMPENSATION FOR THE EXECUTIVE DIRECTOR IS APPROVED ANNUALLY BY THE BOARD BASED UPON REVIEW OF COMPARATIVE FINANCIAL INDICATORS AND MARKET TRENDS TO ENSURE COMPENSATION IS WITHIN FAIR MARKET RANGE FOR THE INDUSTRY. BOARD LEVEL DISCUSSIONS REGARDING COMPENSATION ARE RECORDED IN THE MINUTES OF THE BOARD MEETINGS. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION WILL MAKE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND INTERNALLY-PREPARED FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G MEASURER: PROGRAM SERVICE EXPENSES 88,822. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 88,822. OTHER CONTRACTED SERVICES: PROGRAM SERVICE EXPENSES 140,022. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 140,022. PAYROLL ADMIN FEES: PROGRAM SERVICE EXPENSES 4,851. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,851. STATISTICIAN: PROGRAM SERVICE EXPENSES 1,680. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,680.