2024-11-07T15:03:18-06:00 2023-12-31 510229493 BARBACANE THORNTON & COMPANY LLP 593 CARR ROAD SUITE 100 WILMINGTON DE 19809 990 2023-01-01 383569922 NEPHCURE KIDNEY INTERNATIONAL NEPH 8666374287 150 SOUTH WARNER ROAD 402 KIND OF PRUSSIA PA 19406 JOSHUA TARNOFF CHIEF EXECUTIVE OFFICER 8666374287 2024-11-07 0 JEFFREY A KOWALCZYK CPA P01563311 3024788940 2024-11-07 2023 2024-10-15 13:58:12Z IRVING SMOKLER 150 SOUTH WARNER ROAD 402 KIND OF PRUSSIA PA 19406 5056674 0 X WWW.NEPHCURE.ORG X 2000 MI NEPHCURE KIDNEY INTERNATIONAL IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORTING RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE OF FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME. THE ORGANIZATION IS COMMITTED TO IMPROVING TREATMENT AND FINDING A CURE FOR THIS DISEASE. 27 27 25 340 0 0 4495178 4200803 0 0 0 0 0 94287 4495178 4295090 200000 200000 0 0 1883751 2172246 0 0 516367 1641630 2468676 3725381 4840922 769797 -545832 4397686 3864219 803724 698442 3593962 3165777 X NEPHCURE KIDNEY INTERNATIONAL IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORTING RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE OF FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME. THE ORGANIZATION IS COMMITTED TO IMPROVING TREATMENT AND FINDING A CURE FOR THIS DISEASE. 0 0 1744628 200000 RESEARCH - NEPHCURE KIDNEY INTERNATIONAL IS COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL, AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE OF THIS RESEARCH IS TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTSCLINICAL TRIAL SUPPORT - NEPHCURE KIDNEY INTERNATIONAL SUPPORTSAND FACILITATES CLINICAL RESEARCH BY ACTIVELY SUPPORTING PATIENT RECRUITMENT TO ADDRESS THE GROWING DEMAND OF CLINICAL TRIALS. 2056418 HEALTH AND EDUCATION - NEPHCURE KIDNEY INTERNATIONAL FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENTS/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. NEPHCURE KIDNEY INTERNATIONAL ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES. 3801046 1 1 0 0 0 1 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 25 0 0 1 CA 0 0 0 0 0 0 0 0 0 0 X 27 27 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 AL AK AZ AR CA CO CT FL GA KS KY IL LA ME MD MA MI MN MS MO NH NJ NM NY NC OK OH OR PA RI SC TN UT VA WV WA WI X THE ORGANIZATION 8666374287 150 SOUTH WARNER ROAD 402 KIND OF PRUSSIA PA 19406 IRVING SMOKLER BOARD CHAIRMAN 5.00 X X 0 0 0 RON COHEN VICE PRESIDENT 1.00 X X 0 0 0 ANDREW SILVERMAN TREASURER 3.00 X X 0 0 0 MICHAEL LEVINE PRESIDENT 10.00 X X 0 0 0 CAROL SMOKLER SECRETARY 1.00 X X 0 0 0 ELAINE KAMIL MEMBER 1.00 X 0 0 0 DAVID KERSHAW MEMBER 1.00 X 0 0 0 WILLIAM SMOYER MEMBER 1.00 X 0 0 0 CHRIS WHITNEY VICE PRESIDENT 1.00 X 0 0 0 CHARLES DAVIS III MEMBER 1.00 X 0 0 0 CHRISTOPHER WINDISCH MEMBER 1.00 X 0 0 0 JENNIFER GEISSER MEMBER 1.00 X 0 0 0 JIM DUQUETTE MEMBER 1.00 X 0 0 0 JOSHUA ROY MEMBER 1.00 X 0 0 0 KEVIN MOTT MEMBER 1.00 X 0 0 0 KIRK CAMPBELL MEMBER 1.00 X 0 0 0 LAUREL DAMASHEK MEMBER 1.00 X 0 0 0 MANU VARMA MEMBER 1.00 X 0 0 0 MARK WINWARD MEMBER 1.00 X 0 0 0 MARTIN ZIMMERMAN MEMBER 1.00 X 0 0 0 REBECCA OAG MEMBER 1.00 X 0 0 0 SARRETTA MCDONOUGH MEMBER 1.00 X 0 0 0 STEPHEN HOLLOMON MEMBER 1.00 X 0 0 0 TROY JONES MEMBER 1.00 X 0 0 0 SCOTT GOLDSTEIN MEMBER 1.00 X 0 0 0 DANIEL SIMON MEMBER 1.00 X 0 0 0 TYLER WELLMAN MEMBER 1.00 X 0 0 0 JOSH TARNOFF CHIEF EXECUTIVE OFFICER 40.00 X 275000 0 0 REBECCA COOK DIRECTOR DEVELOPMENT 40.00 X 115150 0 0 LAUREN EVA VP PROFESSIONAL ENGAGEMENT 1.00 X 166519 0 0 KELLY HELM EXECUTIVE DIRECTOR, PATIENT ENGAGEMENT 40.00 X 126868 0 0 JESSIC MILTEN EXECUTIVE DIRECTOR, NATIONAL DEVELOPMENT 40.00 X 150000 0 0 833537 0 0 5 0 1 0 0 1619863 2580940 10551 4200803 761584 1619863 761584 0 MISCELLANEOUS REVENUE 94287 94287 94287 4295090 0 0 94287 X 200000 200000 275000 231000 2750 41250 1897246 1593687 18972 284587 109843 60414 41740 7689 713569 392463 271157 49949 274619 115549 113542 45528 330328 280779 16516 33033 146536 120160 4396 21980 270366 270366 HEALTH EQUITY 279677 279677 RESEARCH PAYMENTS 128922 128922 GATEWAY PROGRAM START U 94943 80702 4747 9494 PATIENT EDUCATION 20496 20496 99377 26831 49689 22857 4840922 3801046 523509 516367 3711799 3372669 186992 67431 89734 90552 60676 60676 0 0 389161 333567 20000 4397686 3864219 457157 480274 346567 218168 803724 698442 X 3508108 3164147 85854 1630 3593962 3165777 4397686 3864219 -545832 117647 0 X X 0 1 X 1 0 X 3765323 3022196 3910926 4495178 4200803 19394426 3765323 3022196 3910926 4495178 4200803 19394426 19394426 19394426 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 1 1 0 1 35000 1 0 60676 60676 0 0 OPERATING LEASE LIABILITY 218168 218168 X 4412737 117647 117647 4295090 0 4295090 4840922 0 4840922 0 4840922 PART X, LINE 2: NEPHCURE KIDNEY INTERNATIONAL IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ORGANIZATION'S TAX-EXEMPT PURPOSE MAY BE SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PRESCRIBE RULES FOR THE RECOGNITION, MEASUREMENT, CLASSIFICATION, AND DISCLOSURE IN THE FINANCIAL STATEMENTS OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE ORGANIZATION'S TAX RETURNS. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS OR ASSOCIATED UNRECOGNIZED BENEFITS THAT MATERIALLY IMPACT THE FINANCIAL STATEMENTS OR RELATED DISCLOSURES. SINCE TAX MATTERS ARE SUBJECT TO SOME DEGREE OF UNCERTAINTY, THERE CAN BE NO ASSURANCE THAT THE ORGANIZATION'S TAX RETURNS WILL NOT BE CHALLENGED BY THE TAXING AUTHORITIES AND THAT THE ORGANIZATION WILL NOT BE SUBJECT TO ADDITIONAL TAX, PENALTIES, AND INTEREST AS A RESULT OF SUCH CHALLENGE. COUNTDOWN FOR A CURE 1085926 625240 460686 460686 WALKS 213059 167870 45189 45189 8 1082462 826753 255709 255709 2381447 1619863 761584 761584 761584 0 1 CHOP RESEARCH INSTITUTE 3615 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 100000 0 RESEARCH GRANT EMORY UNIVERSITY 201 DOWMAN DR ATLANTA GA 30322 580566256 100000 0 RESEARCH GRANT X X 0 0 0 0 0 0 0 0 0 JOSH TARNOFF CHIEF EXECUTIVE OFFICER 275000 0 0 0 0 0 0 0 0 0 275000 0 0 0 LAUREN EVA VP PROFESSIONAL ENGAGEMENT 166519 0 0 0 0 0 0 0 0 0 166519 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 TWO BOARD MEMBERS ARE RELATED BY MARRIAGE FORM 990, PART VI, SECTION B, LINE 11B A FINAL COPY OF FORM 990 IS PROVIDED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REVIEWS COMPLETED CONFLICT OF INTEREST QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 990 AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL DEVELOPMENT SERVICES: PROGRAM SERVICE EXPENSES 44,231. MANAGEMENT AND GENERAL EXPENSES 30,560. FUNDRAISING EXPENSES 5,629. TOTAL EXPENSES 80,420. VOLUNTEER COORDINATION SERVICES: PROGRAM SERVICE EXPENSES 255,605. MANAGEMENT AND GENERAL EXPENSES 176,600. FUNDRAISING EXPENSES 32,532. TOTAL EXPENSES 464,737. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 92,627. MANAGEMENT AND GENERAL EXPENSES 63,997. FUNDRAISING EXPENSES 11,788. TOTAL EXPENSES 168,412. FORM 990 PART XII LINE 2C THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR