2024-11-15T07:59:33-06:00 2023-12-31 341897225 HILL BARTH & KING LLC 101 CRAWFORDS CORNER ROAD SUITE 2216 HOLMDEL NJ 07733 990 2023-01-01 201155709 THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC IGAN 7327707377 PO BOX 1322 WALL NJ 07719 LEONARD ERLANGER PRESIDENT 7327707377 2024-11-13 1 0 KATHLEEN M CLAYTON CPA P01448135 7323818887 2024-11-13 2023 2024-10-15 13:58:12Z LEONARD ERLANGER PO BOX 1322 WALL NJ 07719 3091217 0 X WWW.IGANEPHROPATHY.ORG X 2004 NJ THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 10 10 9 48 0 0 269128 3012372 1197825 43679 0 35166 0 0 1466953 3091217 59050 93672 0 0 168711 306727 0 0 631450 965753 1508955 1193514 1909354 273439 1181863 710704 1853170 3959 50510 706745 1802660 X THE IGA NEPHROPATHY FOUNDATION'S MISSION IS TO BE A PATIENT-CENTRIC ORGANIZATION FOCUSED ON FINDING A CURE FOR IGA NEPHROPATHY. USING THE POWER OF THE PATIENT COMMUNITY, WE ARE FOCUSED ON FUNDING RESEARCH, USING PATIENT ADVOCACY TO EMPOWER OUR PATIENTS, AND BUILDING A NETWORK OF SUPPORT. 0 0 439180 2465 43679 SPARK IS A TWO-DAY IN-PERSON PATIENT CONFERENCE HELD IN WASHINGTON,DC, ATTENDED BY 250 PATIENTS AND THEIR FAMILY MEMBERS. THE EVENT EDUCATES PATIENTS AND CREATES A NETWORK. 351459 8207 EDUCATION AND ADVOCACYTHE FOUNDATION PROVIDES SUPPORT AND EDUCATIONAL RESOURCES TO PATIENTS AND THEIR FAMILIES WHO ARE HANDLING IGA NEPHROPATHY, INCLUDING PATIENT AID. 83000 83000 RESEARCH GRANTS ARE PROVIDED TO THE UNIVERSITY OF ALABAMA BIRMINGHAM. 873639 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 9 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 AK AL AR CA CO CT DC DE FL GA IA IL KS KY LA MA MD ME MI MN MO MS NC ND NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV X EXECUTIVE DIRECTOR 7327707377 1608 MAXWELL DRIVE WALL NJ 07719 LEONARD ERLANGER PRESIDENT 5.00 X X 0 0 0 BRIAN PARLATO VICE PRESIDENT 5.00 X X 0 0 0 MARY KATE SCHNEIDER SECRETARY 5.00 X X 0 0 0 SUSAN SMITH TREASURER 5.00 X X 0 0 0 JODY MORSE DIRECTOR 2.00 X 0 0 0 MARGARET K WARNER BOARD MEMBER 2.00 X 0 0 0 JULIE SCROGGINS BOARD MEMBER 2.00 X 0 0 0 MICHAEL WARNER BOARD MEMBER 2.00 X 0 0 0 EDWARD SCHNEIDER BOARD MEMBER 2.00 X 0 0 0 HAROLD COTLER BOARD MEMBER 2.00 X 0 0 0 BONNIE SCHNEIDER EXECUTIVE DIRECTOR 35.00 X 130000 0 4767 130000 0 4767 1 0 0 0 CURA STRATEGIES 2011 CRYSTAL DRIVE SUITE 1005 ARLINGTON VA 20301 MARKETING 255984 AMANDA CROWE 15 ABBEY RD DARIEN CT 06820 MEDICAL WRITING, MARKETING, PLANNING 218245 2 3012372 3012372 PROGRAM REVENUE 900099 43679 43679 43679 35166 35166 3091217 43679 0 35166 X 83000 83000 10672 10672 130000 87100 31200 11700 142388 95394 33773 13221 10033 6722 2408 903 331 331 23975 16063 5754 2158 3394 3394 12750 12750 660641 425414 93777 141450 16304 1250 15054 119295 20 118479 796 96515 41731 51119 3665 288493 41044 38160 209289 EVENT PRODUCTION 231472 4279 4295 222898 PATIENT EDUCATION 69155 58634 556 9965 DUES & SUBSCRIPTIONS 10636 1985 8300 351 MISCELLANEOUS 300 300 1909354 873639 404265 631450 456894 535193 253810 1317977 710704 1853170 40040 3959 10470 3959 50510 X 0 1802660 706745 0 706745 1802660 710704 1853170 1181863 -85948 0 X 0 1 X 1 0 X 166336 248977 631853 1483121 3012372 5542659 166336 248977 631853 1483121 3012372 5542659 2800137 2742522 35166 35166 5577825 43997 0.49170 0.63030 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 PAYROLL TAXES 10470 10470 3091217 0 3091217 0 3091217 1909354 0 1909354 0 1909354 0 UNIVERSITY OF ALABAMA BIRMINGHAM 1720 UNIVERSITY BLVD BIRMINGHAM AL 35294 636005396 501C3 83000 0 RESEARCH PATIENT ASSISTANCE 15 10672 CASH VALUE FORM 990, PART VI, SECTION A, LINE 2 TWO OTHER BOARD MEMBERS, MARGARET AND MICHAEL WARNER ARE RELATED BY MARRIAGE. MARY KATE SCHNEIDER IS RELATED TO THE EXECUTIVE DIRECTOR. EDWARD SCHNEIDER IS MARRIED TO THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD PROVIDES THE FULL 990 TO THE BOARD PRIOR TO FILING FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES INFORMATION AVAILABLE FOR PUBLIC INSPECTION UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G OTHER CONSULTANTS: PROGRAM SERVICE EXPENSES 331,224. MANAGEMENT AND GENERAL EXPENSES 93,777. FUNDRAISING EXPENSES 66,205. TOTAL EXPENSES 491,206. WELLNESS CONSULTANTS: PROGRAM SERVICE EXPENSES 94,190. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 94,190. MARKETING: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 75,245. TOTAL EXPENSES 75,245.