2024-11-15T07:05:21+00:00 2023-12-31 346565596 ERNST & YOUNG US LLP 1101 NEW YORK AVENUE NW Washington DC 20005 990 2023-01-01 853776266 Alzheimers Disease Data Initiative Inc ALZH 4254974300 4110 Carillon Point Kirkland WA 98033 HILLARY BOUNDS SECRETARY 4254974300 2024-11-15 true Amber N Doane P01391011 2023276000 2024-11-15 2023 2024-10-15 13:58:12Z Hillary Bounds 4110 Carillon Point Kirkland WA 98033 19341248 false X https://www.alzheimersdata.org/ X 2020 DE THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS 2 2 0 0 0 0 1651341 12920879 0 0 4015 42409 0 0 1655356 12963288 3486940 3438180 0 0 0 0 0 0 7677301 7819594 11164241 11257774 -9508885 1705514 3293505 5319702 604778 430464 2688727 4889238 THE ORGANIZATION IS DEDICATED TO ADVANCING SCIENTIFIC BREAKTHROUGHS IN THE DIAGNOSIS, PREVENTION & TREATMENT OF ALZHEIMERS DISEASE AND RELATED DEMENTIAS false false 7375328 2186442 0 DEVELOPMENT AND TESTING OF THE AD WORKBENCH, WHICH WILL SYSTEMATIZE AND CLASSIFY THE BODY OF SCIENTIFIC KNOWLEDGE RELATED TO ALZHEIMER'S DISEASE AND RELATED DEMENTIAS IN ORDER TO PRESENT IT IN A USEFUL FORM. THE AD WORKBENCH HAS PERMISSIONED ACCESS TO 64 DATASETS; IT WILL ALLOW RESEARCHERS TO MORE EASILY UTILIZE THIS DATA AND PROVIDE RESOURCES AND TOOLS AT NO COST TO THE RESEARCHERS. 1758971 756741 0 USE OF THE AD WORKBENCH AND RELATED ACTIVITY TO CONDUCT AD RESEARCH AND SUPPORT OTHERS' RESEARCH BY PROVIDING A DATA SHARING TOOLS AND RESOURCES. APPOXIMATELY 4,438 ALZHEIMER'S AND RELATED DEMENTIA RESEARCHERS FROM 114 COUNTRIES HAVE REGISTERED FOR AN ACCOUNT TO USE THE AD WORKBENCH TO DISCOVER, ACCESS, AND ANALYZE ALZHEIMER'S DISEASE AND RELATED DEMENTIAS DATASETS. APPROXIMATELY 1,362 WORKSPACES HAVE BEEN COMMISSIONED, AND 534 REQUESTS MADE TO ACCESS DATASETS ON THE AD WORKBENCH. 1330721 0 0 COMMUNICATIONS AND EXTERNAL ENGAGEMENT REGARDING THE IMPORTANCE OF AD RESEARCH AND THE DATA SOURCES, RESOURCES AND METHODOLOGIES. 10465020 true true false false false false false false false false false false false false false false false false false true true false false false false false true false false false false false false false false false false true false false false false true true false false false true 5 0 true 0 false false false false false false false false false false false false X 2 2 false false false false true true true true true false false true true true true false false false false false X HILLARY BOUNDS 4254974300 4110 CARILLON POINT KIRKLAND WA 98033 X Niranjan Bose DIRECTOR 5.0 0.0 X 0 0 0 PAUL RAMSEY DIRECTOR 1.0 0.0 X 0 0 0 HILLARY BOUNDS SECRETARY 10.0 0.0 X 0 0 0 TETSUYUKI MARUYAMA EXECUTIVE DIRECTOR 40.0 0.0 X 0 0 0 TONY POUND TREASURER 1.0 0.0 X 0 0 0 0 0 0 0 false false false Aridhia Informatics Limited 163 Bath Street Glasgow UK G24SQ Research and Development 3094678 Evalueserve Inc 2010 Crow Canyon Place Suite 100 San Ramon CA 94583 Research and Development 1351875 FINGERS Brain Health Institute Box 12230 102 26 Stockholm SW Research and Development 1000000 The Institute for Health Metrics and Evaluation 3980 15TH AVE NE 351615 Seattle WA 98195 Research and Development 910000 Formative 821 2nd Avenue Suite 600 Seattle WA 98104 Communications & Mktg Support 906227 15 12920879 6380210 12920879 0 0 0 0 0 149231 149231 0 0 6271138 6377960 -106822 0 -106822 -106822 0 0 0 0 0 12963288 0 0 42409 1107269 1107269 2330911 2330911 424876 0 424876 212808 28228 184580 151691 151691 921477 920970 507 0 861171 861171 0 10688 0 10688 5216471 5216471 0 20412 0 20412 0 0 0 0 11257774 10465020 792754 0 1222956 1749999 369090 3518066 1650000 0 0 0 0 51459 51637 0 0 0 0 0 0 0 0 3293505 5319702 604778 430464 0 0 0 0 604778 430464 X 2688727 4889238 2688727 4889238 3293505 5319702 X 1705514 494997 X false false false X university of washington medical center seattle WA RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe (Including Iceland and Greenland) 0 8 Grantmaking 2187720 Europe (Including Iceland and Greenland) 0 12 Program Services Data Support, Research & Development, Conference Sponsorship 3235658 East Asia and the Pacific 0 2 Grantmaking 100000 East Asia and the Pacific 0 1 Program Services TRAVEL AND CONFERENCE FEES 5573 North America (Canada & Mexico only) 0 1 Program Services TRAVEL AND CONFERENCE FEES 49521 0 24 0 0 0 24 5578472 0 5578472 Europe (Including Iceland and Greenland) Data Support 1000000 WIRE Europe (Including Iceland and Greenland) Data Support 619285 WIRE Europe (Including Iceland and Greenland) Data Support 274742 WIRE Europe (Including Iceland and Greenland) Data Support 102563 WIRE Europe (Including Iceland and Greenland) Data Support 75610 WIRE Europe (Including Iceland and Greenland) Fellow Research Support 50000 WIRE Europe (Including Iceland and Greenland) Fellow Research Support 50000 WIRE East Asia and the Pacific Fellow Research Support 50000 WIRE East Asia and the Pacific Fellow Research Support 50000 WIRE Europe (Including Iceland and Greenland) Data Support 43191 WIRE Europe (Including Iceland and Greenland) Data Support 15520 WIRE 0 11 false false false false false false Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds ADDI MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI'S SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. Schedule F, Part I, Line 3 Method used to account for expenditures on org's financial statements EAST ASIA AND THE PACIFIC-Accrual; EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual; NORTH AMERICA (CANADA & MEXICO ONLY)-Accrual Schedule F, Part II, Line 1 Method used to account for expenditures on org's financial statements EAST ASIA AND THE PACIFIC-Accrual; EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual true Boston University 1 silber way Boston MA 02215 042103547 501(c)(3) 365766 To support data analysis and other research conducted as well as the Framingham Heart Study project (for accelerating discovery for AD treatment and prevention through a novel data accessibility strategy) BANNER ALZHEIMERs INSTITUTE 2901 N central ave Phoenix AZ 85012 450233470 501(c)(3) 295500 To support activities to make the anonymized API Generation datasets available to the scientific community via the Laboratory of Neuroimaging (LONI) Answer ALS ONE GALLERIA BLVD METAIRIE LA 70001 471643994 501(c)(3) 150000 To support the Answer ALS/ADDI Interoperability Project University of Washington Foundation 407 gerberding hall searrle WA 981951210 943079432 501(c)(3) 91253 To support the Computational Ophthalmology Research Fund in research being conducted in computational ophthalmology Vivli Inc 14 Story Street 4th Floor Cambridge MA 02138 814368586 501(c)(3) 54750 To support the Maintain Vivli ADDI Platform Connection Project Alleo Labs Corporation 415 Mission St San Francisco CA 94105 923005693 50000 To support fellow research through the William H. Gates Sr. Fellowship program State of Maryland University of Maryland Baltimore 620 W Lexington St BLTIMORE MD 21201 526002033 GOV 50000 To support fellow research through the William H. Gates Sr. Fellowship program Washington University in St Louis 1 brookings dr Saint Louis MO 63130 430653611 501(c)(3) 50000 To support fellow research through the William H. Gates Sr. Fellowship program 7 1 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds. ADDI MAINTAINS RECORDS INCLUDING GRANT PROPOSALS AND OTHER INFORMATION USED TO EVALUATE GRANTEES, GRANT AGREEMENTS, REPORTS FROM GRANTEES ON THEIR USE OF FUNDS AND PROJECT STATUS, AND FOLLOW-UP INFORMATION OBTAINED WHILE INVESTIGATING ANY AT-RISK GRANTS. ADDI'S SELECTION PROCESS MAY VARY, BUT IN ANY EVENT THE ORGANIZATION WILL ONLY MAKE A GRANT UPON A WRITTEN DETERMINATION THAT THE RECIPIENT IS A SUITABLE GRANTEE AND THE GRANT WILL FURTHER THE ORGANIZATION'S CHARITABLE PURPOSES. IF ADDI RECEIVES INFORMATION INDICATING THAT A DIVERSION OF GRANT FUNDS HAS TAKEN PLACE, ADDI WILL WITHHOLD ANY FURTHER FUNDS AND WILL INVESTIGATE. IF ADDI DETERMINES THAT A DIVERSION OCCURRED, IT WILL TAKE APPROPRIATE STEPS TO SECURE REPAYMENT AND WITHHOLD FUTURE PAYMENTS UNTIL IT IS SATISFIED FUTURE DIVERSIONS WON'T OCCUR AND THE GRANTEE IS TAKING APPROPRIATE PRECAUTIONS. X 1 6380210 Other - FMV 0 false false false Schedule M, Part I Explanations of reporting method for number of contributions Securities - Publicly traded - THE AMOUNT BEING REPORTED IS THE NUMBER OF CONTRIBUTIONS. Form 990, Part VI, Line 6 Classes of members or stockholders ALZHEIMERS DISEASE DATA INITIATIVE INC HAS TWO MEMBERS. Form 990, Part VI, Line 7a Members or stockholders electing members of governing body THE MEMBERS OF THE ORGANIZATION HAVE THE RIGHT TO APPOINT AND REMOVE THE DIRECTORS OF THE ORGANIZATION. Form 990, Part VI, Line 7b Decisions requiring approval by members or stockholders MEMBERS HAVE THE POWER TO APPOINT SUCCESSOR MEMBERS. Form 990, Part VI, Line 11b Review of form 990 by governing body THE DRAFT RETURN IS REVIEWED BY THE FINANCE AND LEGAL FUNCTIONS AND APPROVED BY THE SECRETARY AND TREASURER. A FINAL VERSION OF THE FORM IS MADE AVAILABLE TO THE BOARD BEFORE FILING WITH THE IRS. Form 990, Part VI, Line 12c Conflict of interest policy THE CONFLICT OF INTEREST POLICY APPLIES TO DIRECTORS, OFFICERS AND KEY EMPLOYEES. THEY ARE REQUIRED TO DISCLOSE POTENTIAL CONFLICTS WITH RESPECT TO ANY TRANSACTION TO THE BOARD OF DIRECTORS, OR A COMMITTEE THEREOF, WHICH DETERMINES IF THERE IS A CONFLICT. IF THERE IS A CONFLICT, THE PERSON WITH THE CONFLICT MUST REFRAIN FROM ATTEMPTING TO INFLUENCE DECISIONS REGARDING THE TRANSACTION AND IS NOT PERMITTED TO PARTICIPATE IN DISCUSSIONS OF THE TRANSACTION EXCEPT TO RESPOND TO REQUESTS FOR INFORMATION ABOUT THE TRANSACTION. DIRECTORS, OFFICERS AND KEY EMPLOYEES ARE REQUIRED TO ANNUALLY COMPLETE STATEMENTS DISCLOSING FAMILY MEMBERS AND RELATED ENTITIES WHO MAY DO BUSINESS WITH THE ORGANIZATION. THESE STATEMENTS ARE REVIEWED BY THE ORGANIZATION'S LEGAL COUNSEL AND ARE AVAILABLE FOR INSPECTION BY MEMBERS OF THE BOARD OF DIRECTORS. Form 990, Part VI, Line 19 Required documents available to the public These documents are not available for public inspection Form 990, Part XI, Line 9 Other changes in net assets or fund balances RETURN OF PREVIOUSLY REPORTED GRANTS - 494997; BREAKTHROUGH ENERGY CATALYST FOUNDATION PO BOX 563 KIRKLAND WA 98083 853677542 SCIENTIFIC DE 501(c)(3) 7 NA true BREAKTHROUGH ENERGY ACTION INC PO BOX 563 KIRKLAND WA 98083 853694865 ADVOCACY DE 501(c)(4) NA true BREAKTHROUGH ENERGY FOUNDATION PO BOX 563 KIRKLAND WA 98083 853672460 SCIENTIFIC DE 501(c)(3) 7 NA true BREAKTHROUGH ENERGY CATALYST EUROPE SARL 981758246 OTHER FINANCIAL VEHICLES LU NA C Corporation false false false false false false false false false false false false false false false false false false false