2023-01-23T10:36:17-06:00 2022-06-30 541487262 MATTHEWS CARTER & BOYCE 12500 FAIR LAKES CIRCLE SUITE 260 FAIRFAX VA 22033 990 2021-07-01 113485631 THE CHILDREN'S CANCER CAUSE INC CHIL 2025527392 1325 G ST NW 540 WASHINGTON DC 20005 STEVE WOSAHLA CHIEF EXECUTIVE OFFICER 2025527392 2022-12-22 1 STEVE WOSAHLA 999009999 KATHLEEN M FLAHERTY P00969957 7032183600 2022-12-22 3 AAL1 IAL1 2021 2023-03-07 01:45:13Z STEVE WOSAHLA 1325 G ST NW 540 WASHINGTON DC 20005 665681 0 X WWW.CHILDRENSCANCERCAUSE.ORG X 1999 NY CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS 18 18 5 1600 0 0 996581 615031 0 0 73851 50650 0 0 1070432 665681 10000 49000 0 0 629330 603415 0 3705 139469 263916 275956 903246 932076 167186 -266395 2003608 1516821 13156 13078 1990452 1503743 X CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 0 0 730429 49000 ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE WEBINARS, MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION WORKS TO EDUCATE LEGISLATIVE AND REGULATORY DECISIONMAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF. PUBLIC POLICY ADVOCACY: THROUGH GRASSROOTS ADVOCACY AND PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS.THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION, AN ADVOCACY TOOLKIT AND MONTHLY NEWSLETTERS TO FACILITATE ITS CAUSE. 730429 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 5 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 MD NY X X STEVE WOSAHLA 2025527392 1325 G ST NW 540 WASHINGTON DC 20005 LYNN BAYARD DIRECTOR 0.25 X 0 0 0 LORI SALLEY RING DIRECTOR 0.25 X 0 0 0 SUSAN SCHERR BOARD SECRETARY 0.50 X X 0 0 0 ADAM ROSEN TREASURER 0.50 X X 0 0 0 JENNIFER NIEDERMEYER DIRECTOR 0.25 X 0 0 0 BETH SILBER DIRECTOR 0.25 X 0 0 0 STEVEN SHAK MD DIRECTOR 0.25 X 0 0 0 SUSAN L WEINER FOUNDER 3.00 X X 0 0 0 WYLIE D CHEN DIRECTOR 0.25 X 0 0 0 LEANN JACKSON CHAIR 0.25 X X 0 0 0 MICHAEL P LINK MD DIRECTOR 0.50 X 0 0 0 LARRY HAUSNER VICE CHAIR 0.25 X X 0 0 0 LAUREN NEFF DIRECTOR 0.25 X 0 0 0 MARY MCCABE DIRECTOR 0.25 X 0 0 0 DANIEL WECHSLER MD PHD DIRECTOR 0.25 X 0 0 0 JASON YUSTEIN MD PHD DIRECTOR 0.25 X 0 0 0 MARK CORNFELD DIRECTOR 0.25 X 0 0 0 STEVE WOSAHALA CHIEF EXECUTIVE OFFICER 40.00 X 231188 0 39331 CHARLCIE STEUBLE DIGITAL MARKETING DIRECTOR 40.00 X 104790 0 14845 335978 0 54176 2 0 1 0 0 615031 615031 29792 29792 20858 0 20858 20858 20858 665681 0 0 50650 35000 35000 14000 14000 269136 201518 23216 44402 260692 195196 22487 43009 6012 4502 518 992 40781 30535 3518 6728 30499 22836 2631 5032 3705 3705 14157 14157 82994 79162 371 3461 41123 12871 3935 24317 22217 16404 1680 4133 2311 1748 285 278 6570 6570 1532 1532 2817 1829 532 456 COGS-PROGRAMS/EVENTS 88561 80683 1467 6411 DUES AND SUBSCRIPTIONS 9969 9713 6 250 932076 730429 62178 139469 327967 53217 27569 27372 108104 62263 15680 21511 9824 8124 3232 1700 1518201 1347903 2855 2855 2003608 1516821 13156 13078 13156 13078 X 1482391 1148762 508061 354981 1990452 1503743 2003608 1516821 -266395 -220314 0 X 0 1 X 0 0 X 700138 685628 841619 996581 615031 3838997 700138 685628 841619 996581 615031 3838997 157043 3681954 29917 24691 22094 20448 29791 126941 3965938 0.92840 0.92720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9824 8124 1700 1700 X 496389 -220314 51022 -169292 665681 0 665681 983098 51022 51022 932076 0 932076 PART X, LINE 2: THE ORGANIZATION HAS ADOPTED FASB ASC 740, INCOME TAXES. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. THE ORGANIZATION HAS ANALYZED ITS TAX POSITIONS, AND HAS CONCLUDED THAT NO LIABILITY SHOULD BE RECORDED RELATED TO ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION IS NOT AWARE OF ANY TAX POSITIONS WHICH IT BELIEVES WILL CHANGE MATERIALLY IN THE NEXT TWELVE MONTHS. IF THIS POSITION CHANGES, THE ORGANIZATION WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS FINANCIAL POSITION AND RESULTS OF OPERATIONS. 1 CHILDREN'S BRAIN TUMOR FOUNDATION 1460 BROADWAY NEW YORK NY 10036 133512123 501 (C)(3) 10000 0 IN RECOGNITION OF THE EXCELLENCE IN THE FIELD OF BRAIN TUMOR SURVIVORSHIP AND PROGRAMMIING TO SUPPORT THE UNIQUE CHALLENGES FACED BY SURVIVORS OF CHILDHOOD BRAIN TUMORS. AFLAC CANCER AND BLOOD DISORDERS CENTER CANCER 2015 UPPERGATE DR 4TH FLOOR ATLANTA GA 30322 582367819 501 (C)(3) 10000 0 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. VALLEY CHILDREN'S HOSPITAL CANCER SURVIVORSHIP PROGRAM 9300 VALLEY CHILDRENS PLACE MS PC 17 MADERA CA 93636 942797447 501 (C)(3) 5000 0 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. HYUNDAI CANCER INSTITUTE AT CHILDREN'S HOSPITAL OF ORANGE COUNTY (CHOC) 1201 W LA VETA AVE 2ND FLOOR ORANGE CA 92868 952321786 501 (C)(3) 5000 0 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. CHILDREN'S HOSPITAL OF NEW ORLEANS DEPARTMENT OF PEDIATRICS 200 HENRY CLAY AVENUE NEW ORLEANS LA 70118 721115391 501 (C)(3) 5000 0 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. 5 COLLEGE SCHOLARS PROGRAM 7 14000 CASH PART I, LINE 2: THE GRANT IS A RECOGNITION AWARD TO MEDICAL OR SCIENTIFIC PROFESSIONALS WHO HAVE MADE NOTEWORTHY CONTRIBUTIONS TO THE FIELD OF PEDIATRIC CANCER RESEARCH OR CARE. AWARDEES ARE SELECTED THROUGH A COMPETITIVE PROCESS AND GRANT FUNDING IS INTENDED TO SUPPORT ADDITIONAL CHILDHOOD CANCER RESEARCH OR CARE INITIATIVES. X 0 0 0 0 0 0 0 0 0 STEVE WOSAHALA CHIEF EXECUTIVE OFFICER 231188 0 0 0 0 0 6900 0 32431 0 270519 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION WILL PROVIDE A COPY OF THIS FORM 990 TO MEMBERS OF THE GOVERNING BODY BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE PROCEDURES SECTION OF THE CONFLICTS OF INTEREST POLICY PROVIDES A DUTY TO DISCLOSE REQUIRING THAT UPON FIRST KNOWLEDGE BY AN INTERESTED PERSON THAT THE BOARD OR A COMMITTEE THEREOF IS CONSIDERING OR HAS CONSIDERED A TRANSACTION OR ARRANGEMENT WITH AN ENTITY OR INDIVIDUAL WITH WHICH THE INTERESTED PERSON HAS AN INTEREST, THE INTERESTED PERSON MUST DISCLOSE THE EXISTENCE AND NATURE OF HIS OR HER INTEREST TO THE BOARD OR THE COMMITTEE OF THE BOARD CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. FURTHER, THE POLICY PROVIDES FOR PERIODIC REVIEWS TO ENSURE THAT THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSES AND THAT IT DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS STATUS AS AN ORGANIZATION EXEMPT FROM FEDERAL TAX, PERIODIC REVIEWS SHALL BE CONDUCTED THAT SHALL, AT A MINIMUM, CONSIDER WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE AND ARE THE RESULT OF ARM'S-LENGTH BARGAINING. IN ADDITION, OUTSIDE EXPERTS MAY BE USED IN CONDUCTING PERIODIC REVIEWS, BUT THEIR USE SHALL NOT RELIEVE THE BOARD OF ITS RESPONSIBILITY FOR ENSURING THAT PERIODIC REVIEWS ARE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE ORGANIZATION'S CHIEF EXECUTIVE OFFICER (CEO) IS DETERMINED BY THE ORGANIZATION'S BOARD OF DIRECTORS. THE BOARD SETS THE CEO'S COMPENSATION AND REVIEWS COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS BOARD, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE BOARD DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC.