2023-02-21T07:38:08-06:00 2022-07-31 410746749 CLIFTONLARSONALLEN LLP 420 SOUTH ORANGE AVENUE SUITE 900 ORLANDO FL 32801 990 2021-08-01 593124673 CENTRAL FLORIDA DOWN SYNDROME ASSOCIATION INC CENT 4074785621 204 N WYMORE ROAD WINTER PARK FL 32789 HEATHER BARNES EXECUTIVE DIRECTOR 4074785621 2023-02-17 1 HEATHER BARNES 999009999 AMY CHAPMAN P00843460 4078021200 2023-02-17 3 AAL1 IAL1 2021 2023-03-07 01:45:13Z DOWN SYNDROME ASSOCIATION OF CENTRAL FLORIDA DIANE LEVINE 204 N WYMORE ROAD WINTER PARK FL 32789 1147010 0 X WWW.DSACF.ORG X 1992 FL TO CHANGE WHAT IS POSSIBLE FOR PEOPLE WITH DOWN SYNDROME THROUGH PROGRAMS, RESOURCES, AND ADVOCACY. 9 9 6 185 0 0 363557 721121 0 0 28983 51563 -9814 3249 382726 775933 27648 20202 0 0 193389 228139 0 0 129712 156909 179657 377946 427998 4780 347935 1636851 1975458 374345 357277 1262506 1618181 X SEE SCHEDULE OTO BE THE LEADING VOICE FOR ALL INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES. WE OFFER HOPE, ENCOURAGEMENT AND ACCEPTANCE THROUGH ADVOCACY, EDUCATION, AND AWARENESS AS WE GUIDE INDIVIDUALS WITH DOWN SYNDROME THROUGH LIFE'S TRANSITIONS. TOGETHER, WE CREATE A CENTRAL FLORIDA COMMUNITY COMPOSED OF AND DEDICATED TO INDIVIDUALS WITH DOWN SYNDROME AND THOSE WHO LOVE THEM SO THAT EACH MAY REALIZE THEIR POTENTIAL. 0 0 13664 ADVOCACY AND OUTREACH1. LOW DOWN ON LAW: IN PARTNERSHIP WITH DAVEY LAW GROUP, THE DOWN SYNDROME ASSOCIATION OF CENTRAL FLORIDA IS ABLE TO PROVIDE TWO LOW DOWN ON LAW DAY WORKSHOPS EACH YEAR. EXPERT LAWYERS, JUDGES, AND OFFICIALS IN THE CENTRAL FLORIDA COMMUNITY COME TOGETHER TO BREAK DOWN THE LEGAL COMPLEXITIES FAMILIES WITH SPECIAL NEEDS MUST NAVIGATE FOR THEIR LOVED ONES.2. STEP UP FOR DOWN SYNDROME WALK: A DAY OF COMMUNITY CELEBRATION, FAMILIES GET TOGETHER AND CELEBRATE THEIR LOVED ONE WITH DOWN SYNDROME. FAMILIES SET UP WALK TEAMS, RAISE FUNDS, FOR THE ORGANIZATION, AND ON THE DAY OF THE WALK, COME OUT TO WALK AND CELEBRATE THE ABILITIES OF THEIR LOVED ONE. COMMUNITY MEMBERS LEARN ABOUT DOWN SYNDROME AND COMMUNITY PARTNERS CAN SHOWCASE THEIR SERVICES, WARES, ETC. 3. FAMILY FUN DAY: IN PARTNERSHIP WITH OUR LOCAL THEME PARKS, DSACF IS PERIODICALLY ABLE TO PROVIDE COMPLIMENTARY TICKETS TO THEME PARKS SO THAT FAMILIES CAN ENJOY A DAY OF CAMARADERIE AND PAMPERING, WHILE CELEBRATING THEIR FAMILY MEMBERS WITH DOWN SYNDROME. TICKETS ARE RESERVED FOR MEMBERS WHO HAVE AN ACTIVE, PAID MEMBERSHIP AND CAPACITY LIMITS ARE DICTATED BY EACH THEME PARK. IN FY22 FAMILIES ENJPYED A FAMILY FUN DAY AT LEGOLAND FLORIDA, COURTESY OF THE MERLINS MAGIC WAND FOUNDATION.4. WORLD DOWN SYNDROME DAY CELEBRATIOIN: A COMMUNITY EVENT CELEBRATING ALL THAT MAKES THE DOWN SYNDROME COMMUNITY SPECIAL5. UF & UCF MEDICAL SCHOOL PRESENTATIONS: A SESSION WHERE DSACF BRINGS MULTIPLE FAMILIES TO PRESENT TO EMERGING MEDICAL STUDENTS ON THE IMPORTANCE OF HOW THEY DELIVER A DOWN SYNDROME DIAGNOSIS AFFECTS FAMILIES. STUDENTS ALSO HEAR FROM FAMILIES ON THE GOOD, BAD AND UGLY ABOUT BEING A PARENT AND NAVIGATING A WORLD THAT LARGELY DOESN'T KNOW A LOT ABOUT DOWN SYNDROME. 53179 20202 RESOURCES1. SCHOLARSHIPS AND EMERGENCY ASSISTANCE: DSACF OFFERS A WIDE VARIETY OF SCHOLARSHIPS TO COVER EXPENSES THAT TRADITIONAL INSURANCE MY NOT COVER, INCLUDING: SWIM LESSONS, THERAPIES, SPECIAL ASSESSMENTS, MEDICAL BILLS, ADAPTIVE EQUIPMENT, ETC. DSACF ALSO OFFERS EMERGENCY ASSISTANCE TO FAMILIES THAT HAVE AN UN-PLANNED NEED THAT CANNOT BE MET. FOR THE 2020-2021 FISCAL YEAR, DSACF PROVIDED OVER $20,000 IN SCHOLARSHIPS.2. EDUCATIONAL TRAININGS & SEMINARS: IT STARTS WITH HELLO (SOCIAL SKILLS TRAINING); LUNCH & LEARN MONTHLY SERIES; SPECIAL READS FOR SPECIAL NEEDS; FND PATHWAYS, FND EDUCACION ESPECIAL (FOR SPANISH SPEAKING FAMILIES), COFFE TALKS (SPANISH SPEAKING), NEW BABY WELCOME & BASKETS AND NEW FAMILY CELEBRATION (TWICE PER YEAR); SUPER SIBS (SIBLING SUPPORT GROUP WERIES THAT TAKES PLACE TWICE PER YEAR)3. SOCIAL GROUPS, OUTINGS AND EVENTS: D.A.D.S (DADS APPRECIATING DOWN SYNDROME) SUPPORT GROUP; MOM'S NIGHT OUT SUPPORT GROUP; ; FRIENDSHIP CLUB (FOR ADULTS LOOKING TO MINGLE AND INTERACT IN THE COMMUNITY WITH OTHER MEMBERS WITH DOWN SYNDROME): TRUNK OR TREAT; HOLIDAY MOVIE UNDER THE STARS, 3 KINGS DAY EVENT; SUMMER MOVIE 91447 PROGRAMS1. PROGRAMS FOR AGES 0 - 5 YEARS OLD: NEW FAMILY CELEBRATION; NEW PARENT WELCOME KIT AND VISITS; MUSIC WITH MRS. RACHEL, PRE-K READINESS CAMP2. PROGRAMS FOR AGES 5 YEARS OLD - 18 YEARS OLD: IT STARTS WITH HELLO (SOCIAL SKILLS TRAINING); BUDDY UP TENNIS; UP BEAT JR.!; SUMMER SMILES CAMP3. PROGRAMS FOR ADULTS: BUDDY UP TENNIS; FRIENDSHIP CLUB; ENTREPRENEUR ACADEMY; UP BEAT!; READY SET SIGN; 4. PROGRAMS FOR PARENTS: READY SET SIGN; POTTY TRAINING; SPECIAL READS FOR SPECIAL NEEDS; LOW DOWN ON LAW (TWICE PER YEAR) 158290 1 1 0 0 0 0 0 0 0 1 1 0 0 1 0 1 1 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 1 8 0 6 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 0 0 X X HEATHER BARNES 4074785621 204 N WYMORE ROAD WINTER PARK FL 32789 DIANE LEVINE BOARD CHAIR 10.00 X X 0 0 0 CATHERINE DAVEY VICE CHAIR 10.00 X X 0 0 0 TROY CULLEY TREASURER 10.00 X X 0 0 0 JEFF GOODMAN DIRECTOR 5.00 X 0 0 0 PATRICIA LEWIS DIRECTOR 5.00 X 0 0 0 ORYZA QUILES DIRECTOR 5.00 X 0 0 0 RYAN RAPOLDI DIRECTOR 5.00 X 0 0 0 ZAK SULTAN DIRECTOR 5.00 X 0 0 0 SEAN TRAVIS DIRECTOR 5.00 X 0 0 0 HEATHER BARNES EXECUTIVE DIRECTOR 40.00 X 84031 0 0 84031 0 0 0 0 0 0 0 3741 507981 29615 179784 61477 721121 21646 21646 309301 279384 29917 29917 29917 45546 507981 91693 -46147 -46147 EMP. RET. TAX CREDIT 900099 48470 48470 MISCELLANEOUS INCOME 900099 926 926 49396 775933 0 0 54812 20202 20202 80192 36528 11396 32268 127364 58255 18269 50840 4941 1942 613 2386 15642 7193 2142 6307 371 371 35744 35744 5119 5119 6074 1203 4871 599 249 350 15459 15459 10209 10209 4328 175 3511 642 8327 8327 11903 11903 6200 6200 PROGRAM COSTS 30580 30580 SERVICE CHARGES AND FEE 23335 15 23320 IN-KIND ATTRACTION 10070 930 9140 11339 1841 5039 4459 427998 158290 139996 129712 170435 386823 17187 51947 5952 15540 559735 169887 401751 389848 971826 954805 69700 176495 1636851 1975458 17231 40208 327499 317069 29615 0 374345 357277 X 187885 466199 1074621 1151982 1262506 1618181 1636851 1975458 347935 7740 0 X 0 1 X 1 0 X 540201 652593 568643 363557 721121 2846115 540201 652593 568643 363557 721121 2846115 70590 2775525 11663 19025 20788 16853 21646 89975 2202 49396 51598 2987688 0.92900 0.92320 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 990276 18976 971300 888239 102037 990276 864618 23621 888239 865368 -750 864618 12955 667 13622 0.01700 0.98300 1 0 83600 83600 476135 169887 306248 389848 BENEFICIAL INTEREST IN ASSETS HELD BY COMMUNITY FOUNDATION 16495 MINERAL RIGHTS 160000 176495 X 787384 7740 8830 16570 770814 5119 5119 775933 431709 8830 8830 422879 5119 5119 427998 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER PROVISIONS OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (IRC). IN ADDITION, THE ORGANIZATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE IRC. CONSEQUENTLY, NO PROVISION FOR INCOME TAXES HAS BEEN INCLUDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ORGANIZATION EVALUATES ITS TAX POSITIONS FOR UNCERTAINTIES ON A REGULAR BASIS AND HAS DETERMINED THAT IS HAS NO MATERIAL UNCERTAIN TAX POSITIONS AS OF JULY 31, 2022. THE ORGANIZATION RECOGNIZES THE ACCRUED INTEREST AND PENALTIES, IF ANY, ASSOCIATED WITH UNCERTAIN TAX POSITIONS IN MANAGEMENT AND GENERAL EXPENSES IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ORGANIZATIONS TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. THE ORGANIZATION IS NOT AWARE OF ANY ACTIVITIES THAT WOULD JEOPARDIZE ITS TAX-EXEMPT STATUS. THE ORGANIZATION IS NOT AWARE OF ANY ACTIVITIES THAT ARE SUBJECT TO TAX ON UNRELATED BUSINESS OR EXCISE TAXES. PART V LINE 4 - INTENDED USES FOR ENDOWNMENT FUNDS BRONSTEIN FAMILY MEMORIAL ENDOWMENT FUND: ONCE THE ENDOWMENT'S PRINCIPAL REACHES ITS ORIGINAL VALUE OF $1,089,910, THEN EARNED INCOME WILL PRIMARILY BE USED FOR SUSTAINING THE DOWN SYNDROME ASSOCIATION AND THE HEALTH, EDUCATION AND SUPPORT OF CENTRAL FLORIDA RESIDENTS WITH DOWN SYNDROME. FUNDS HELD WITH THE CENTRAL FLORIDA FOUNDATION: THE ORGANIZATION MAY RECOMMEND DISTRIBUTION FROM CERTAIN FUNDS AT ANYTIME; HOWEVER, ALL RECOMMENDATIONS ARE SOLELY ADVISORY AND MAY BE ACCEPTED OR REJECTED BY THE FOUNDATION AS THE ORGANIZATION GRANTED VARIANCE POWER TO THE FOUNDATION. STEP UP FOR DOWN SYNDROME WALK 251090 249418 1672 79 22026 1735 800 707 DOWN TO PARTY 255870 243470 12400 293 7678 23407 4150 330 1 46567 15093 31474 32 5676 24780 553527 507981 45546 404 29704 30818 4950 25817 91693 -46147 0 THERAPY/MEDICAL/EMERGENCY 45 20202 N/A N/A PART I, LINE 2 - PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS DSACF OFFERS SEVERAL TYPES OF SCHOLARSHIPS TO FAMILIES IN NEED, INCLUDING EXPENSES TRADITIONAL INSURANCE MAY NOT COVER, SUCH AS: SWIM LESSONS, THERAPIES, SPECIAL ASSESSMENTS, MEDICAL BILLS, ADAPTIVE EQUIPMENT, ETC. ADDITIONALLY, DSACF OFFERS EMERGENCY ASSISTANCE FOR FAMILIES THAT HAVE AN UNPLANNED NEED. FUNDS FOR THE SCHOLARSHIP PROGRAM ARE INCLUDED AS PART OF THE ANNUAL OPERATING BUDGET AND ARE TRACKED VIA AN INTERNAL FORM THAT CAPTURES ALL ANSWERS FROM THE APPLICATION. THIS FORM ALLOWS US TO TRACK ALL RECIPIENTS, DATE OF RECEIPT, ETC. CATHERINE DAVEY BOARD MEMBER 1000 SCHOLARSHIP (CATHERINE'S DAUGTHER) X AUCTION ITEMS 118 60237 COMPARABLE SALES X FOOD AND BEVERAGES 1 1240 COMPARABLE SALES 0 0 0 FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE SHALL BE COMPRISED OF THE CHAIR, VICE CHAIR, SECRETARY AND TREASURER. IN THE CASE OF AN EMERGENCY, THE CHAIR WILL FIRST ATTEMPT TO SCHEDULE A SPECIAL MEETING OF THE BOARD TO ADDRESS THE SITUATION. IF THE CHAIR IS UNABLE TO CONVENE A QUORUM OF THE BOARD IN THE TIME REASONABLY NECESSARY UNDER THE CIRCUMSTANCES, HE OR SHE MAY CONVENE THE EXECUTIVE COMMITTEE, WHICH MAY ACT WITH THE FULL AUTHORITY OF THE BOARD TO MANAGE THE ASSOCIATION, EXCEPT AS SUCH AUTHORITY IS LIMITED BY THE ARTICLES OF INCORPORATION, THESE BYLAWS, ANY RESOLUTION OF THE BOARD, OR LAW. ANY EMERGENCY ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE SHALL BE SUBMITTED TO THE BOARD AT THE NEXT MEETING OF THE BOARD FOR RATIFICATION. FORM 990, PART VI, SECTION B, LINE 11B THE 990 WILL FIRST BE REVIEWED BY THE FINANCE COMMITTEE FOR ACCURACY AND THEN FINANCE PROVIDES A RECOMMENDATION TO THE BOARD OF DIRECTORS TO APPROVE THE 990. THE BOARD OF DIRECTORS WILL THEN REVIEW AND APPROVE THE 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL CONFLICT OF INTEREST STATEMENTS ARE REVIEWED AND ANY POSSIBLE CONFLICTS ARE IDENTIFIED. ANY POTENTIAL CONFLICT OF INTEREST WOULD GO TO THE GOVERNANCE COMMITTEE FOR REVIEW AND DECISION. ALL DOCUMENTATION AND RECORDS OF DECISION WOULD BE RETAINED FOR DISCLOSURE. FORM 990, PART VI, SECTION B, LINE 15A IF AN EXISTING OR INTERIM EXECUTIVE DIRECTOR IS IN PLACE, THAT PERSON WOULD PULL COMPENSATION FOR SIMILAR POSITIONS IN CENTRAL FLORIDA AND PROVIDE THIS TO THE BOARD OF DIRECTORS. IF NO INTERIM OR EXISTING EXECUTIVE DIRECTOR IS IN PLACE AT THE TIME OF THE SEARCH, A MEMBER OF THE HIRING COMMITTEE WOULD PULL THIS DATA FOR REVIEW BY THE BOARD OF DIRECTORS. BOARD OF DIRECTORS ESTABLISHED AN AGREED UPON SALARY RANGE, HOWEVER, SALARY IS THEN NEGOTIATED AT THE TIME OF A JOB OFFER AND ANY SUBSEQUENT RAISES, BONUS, OR ANNUAL INCREASES ARE ALSO APPROVED BY THE BOARD OF DIRECTORS. THE BOARD DELIBERATION IS RECORDED IN THE MINUTES OF MEETING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC VIA SUNBIZ.ORG, GUIDESTAR.ORG, AND CENTRAL FLORIDA FOUNDATION NONPROFIT SEARCH. ALSO, THE AUDITED FINANCIAL STATEMENTS ARE POSTED ON THE ORGANIZATION'S WEBSITE.