2023-09-21T12:16:11-07:00 2022-12-31 Crosby & Kaneda CPAs LLP 548 Market St PMB 97503 San Francisco CA 94104 990 2022-01-01 680087234 Scleroderma Research Foundation SCLE 4158349444 220 Montgomery St Ste 484 San Francisco CA 94104 Luke Evnin PhD Chairman 2023-09-21 true Luke Evnin PhD 999009999 true Felix Gorrindo P01658413 5108352727 2 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z Luke Evnin PhD 220 Montgomery St Ste 484 San Francisco CA 94104 6134816 false X www.sclerodermaresearch.org X 1987 CA The SRF is laser-focused on finding a cure for scleroderma by raising critical funds for research investments, fostering collaboration among the worlds top scientists and institutions to drive innovation, and raising awareness about this rare disease. 11 10 6 355 0 3549644 5376802 15000 170531 411284 116754 -206959 228651 3768969 5892738 2253391 2442093 0 668337 675017 0 603144 765575 1541492 3687303 4658602 81666 1234136 9819469 11143637 346825 1240870 9472644 9902767 X The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma. true false 3280087 2442093 170531 The mission of the Scleroderma Research Foundation (SRF) is to find, fund, and facilitate the most promising, highest-quality research to cure scleroderma. We recruit the best and the brightest researchers to understand the causes, discover treatments, and ultimately eradicate this disease . At the SRF, research is at the center of all we do. Our Research Program is governed by the Board of Directors and supported by a volunteer Scientific Advisory Board comprised of some of the world's most highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing improved therapies to help patients live longer, fuller lives - and, ultimately, to find a cure for scleroderma. 460013 The SRF Research Program: Led by a Scientific Advisory Board comprised of some of the most highly regarded scientists in the nation, the SRFs research program actively seeks out and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as, experts in cutting-edge technologies to join the scleroderma research community. With an intense focus on identifying projects and investigators likely to move scleroderma research forward, the SRF funds a diverse portfolio of projects led by top-tier investigators. SRF Education & Awareness Program: Many patients hear the word scleroderma for the first time when they are diagnosed.We strive to raise awareness and provide educational resources because lack of awareness about scleroderma often causes delays in treatment or misdiagnosis. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with this disease, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research through our website, webinars, annual patient forum, and monthly eNewsletter. And we deliver stories of impact that connect and inspire patients, as well as address issues related to diversity, equity, and inclusion that patients may encounter as they navigate diagnosis, treatment, and living with the disease. 3740100 true true false false false false false false false false true false false false true true true false false false true true false false true false false true false true false false false false false false false false true false false false false false false false false true 17 0 true 6 true false false false false false true true false 0 false false false false false false false X 11 10 true false false false false false false false false false false true true true true true true true true false CA X X X Kathie Lee 4158349444 220 Montgomery St Ste 484 San Francisco CA 94104 Joanne Gold Executive Dir. 40.00 0.00 X X 193724 0 12308 Gloria Blecha Development Mngr 40.00 0.00 104973 0 9926 Luke Evnin PhD Chairman 5.00 0.00 X X 0 0 0 Bob Smith Treasurer 2.00 0.00 X X 0 0 0 Deann Wright Secretary 2.00 0.00 X X 0 0 0 Bob Saget Board Member 2.00 0.00 X 0 0 0 Susan Feniger Board Member 2.00 0.00 X 0 0 0 Sharon Dobie MD Board Member 2.00 0.00 X 0 0 0 Eric Kau MD Board Member 2.00 0.00 X 0 0 0 David Knoller Board Member 2.00 0.00 X 0 0 0 Violetta Merin Board Member 2.00 0.00 X 0 0 0 Caryn Zucker Board Member 2.00 0.00 X 0 0 0 Regina Hall Board Member 2.00 0.00 X 0 0 0 298697 22234 2 false true false Ravix Financial Inc 226 Airport Pkwy Ste 400 San Jose CA 95110 Finance & HR 144045 Browne Inc dba BrowneMusser 10 Rice Lane Larkspur CA 94939 Marketing & Outreach 124776 2 837642 4539160 1899656 5376802 Research collaboration 900099 170531 170531 170531 116754 116754 0 0 0 0 454200 837642 242078 212122 0 0 Other income 900099 16529 16529 16529 5892738 170531 133283 2417093 2417093 0 25000 25000 0 223638 111819 44728 67091 0 374035 237588 38331 98116 0 34961 18551 6026 10384 42383 25075 5319 11989 0 47564 47564 144045 144045 0 0 30815 30815 399955 339722 9082 51151 249070 162499 13193 73378 94861 57685 8137 29039 74184 39743 3111 31330 0 81047 48505 8084 24458 33338 9438 1263 22637 0 360283 184199 232 175852 0 0 17369 10421 1737 5211 8961 5198 1255 2508 0 4658602 3740100 315358 603144 538650 1489493 174 174 1491312 1207075 9653 0 11000 0 0 0 0 28972 38910 88950 43343 62976 45607 7676732 8215407 0 0 0 146971 9819469 11143637 167129 775777 179696 20000 287435 157658 346825 1240870 X 7232642 8984292 2240002 918475 9472644 9902767 9819469 11143637 1234136 -804013 X false true X true false X 5422421 2892050 3743217 3549644 5376802 20984134 0 0 5422421 2892050 3743217 3549644 5376802 20984134 7931027 13053107 100237 74912 347227 98683 116754 737813 0 16529 16529 21738476 185531 0.60050 0.59520 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 88950 43343 45607 45607 Operating lease liability 157658 157658 X 4867382 -804013 -190528 -994541 5861923 30815 30815 5892738 4437259 4437259 30815 190528 221343 4658602 Part X : FIN48 Footnote The Internal Revenue Service and the California Franchise Tax Board have determined that the Organization is exempt from federal and state income taxes under IRC 501(c)(3) and California RTC 23701(d). The Organization has evaluated its current tax positions as of December 31, 2022 and is not aware of any significant uncertain tax positions for which a reserve would be necessary. The Organizations tax returns are generally subject to examination by federal and state taxing authorities for three and four years, respectively, after they are filed. Part XII, Line 4b: Other revenue amounts included on 990 but not included in F/S Event presentation $190528 true Europe 0 0 Grants - Scleroderma Research 25000 25000 25000 Europe Research 25000 ACH 1 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. false Cool Comedy 1291842 837642 454200 56974 185104 1291842 837642 454200 56974 185104 242078 212122 true Boston Childrens Hospital Co 410 Park Dr Ste 602 Boston MA 02215 042774441 501c3 95651 0 Research Columbia University PO Box 29789 Gen Post Office New York NY 10087 135598093 501c3 29847 0 Research Duke University PO Box 602651 Charlotte NC 28260 560532129 501c3 13606 0 Research Georgetown Univ Medical Ctr PO Box 571164 Washington DC 20057 522218584 501c3 42989 0 Research Hospital for Special Surgery 535 E 70th St New York NY 10021 131624135 501c3 141516 0 Research John Hopkins University 12529 Collections Center Dr Chicago IL 60693 520595110 501c3 236469 0 Research Mayo Clinic PO Box 860334 Minneapolis MN 55486 416011702 501c3 13606 0 McGovern Med SchoolUT Health 6431 Fannin Houston TX 77030 741761309 501c3 79456 0 Research Medical Univ of SouthCarolina 19 Hagood Ave Ste 805 MSC 804 Charleston SC 29425 576028985 501c3 5214 0 Research Northwestern University 633 N St Clair 18-041 Chicago IL 60611 362167817 501c3 21382 0 Research Regents of Univ of CA-UCSF PO Box 748872 Loa Angeles CA 90074 946036493 501c3 46130 0 Research Regents of Univ of Michigan Box 223131 Pittsburgh PA 15251 386006309 501c3 66603 0 Research Stanford School of Medicine PO Box 44253 San Francisco CA 94144 941156365 501c3 719797 0 Research Trustees of Dartmouth College 11 Rope Ferry Rd Ste 6210 Hanover NH 03755 651199443 501c3 116033 0 Research Trustees of the Univ of PA PO Box 785541 Philadelphia PA 19178 231352685 501c3 68916 0 Research Univ of TX Health Science Ctr PO Box 301418 Dallas TX 75303 741761309 501c3 125201 0 Research University of Pittsburgh 3100 Cathedral of Learning Pittsburgh PA 15260 250965591 501c3 175000 0 Research University of Utah PO Box 581374 Salt Lake City UT 84158 876000525 501c3 233012 0 Research Vanderbilt University Med Ctr PO Box 121236 Dallas TX 75312 352528741 501c3 58875 0 Yale University PO Box 208011 TAC 5669 New Haven CT 06520 060646973 501c3 125000 0 Research 20 0 Grantmaker's Description of How Grants are Used As part of the extensive continuing grant application process, grantees are required to provide a summary accounting of the grant from the prior funding year along with any remaining balances. This information, along with the proposed budget for the next funding cycle is reviewed by our Scientific Advisory Board (SAB) during the annual scientific workshop. The Board of Directors meets to discuss the SAB recommendations and funding decisions are agreed upon. X X false false false false false false false false false Joanne Gold Executive Dir. 193724 12308 206032 X 6 1832446 FMV X Auction items 12 67210 FMV false false false Form 990, Part III, Line 2 In FY22 the SRF launched our inaugural Patient Forum; a half-day broadcast of educational sessions and live Q&A provided free of charge for all people living with scleroderma and those who care about them.The Forum provide the scleroderma community with relevant information about the disease, updates on the current research including new initiatives, and opportunities to learn how to participate in research. We also established a new Bob Saget Memorial Scleroderma Research Fund in honor of the SRF's beloved Board Member who passed away tragically and unexpectedly on January 9, 2022. Gifts made to his memorial fund directly support the SRFs core research programs and will support all efforts to drive research forward until we find a cure. Form 990, Part VI, Section A, Line 1a A separate Finance Committee reviews monthly financial performance and previews audit and tax returns prior to full Board review. Form 990, Part VI, Section A, Line 2 Luke Evnin (Chairman) is married to Deann Wright (Secretary). Form 990, Part VI, Section B, Line 11b A draft will be sent to the Finance Committee and once it clears their review, it will go to the full Board for approval. Form 990, Part VI, Section B, Line 12c Conflict of interest policy is discussed with all BOD members in annual review of Bylaws, members are asked to disclose any updates or changes that may conflict with the stated policy. Form 990, Part VI, Section B, Line 15a Market comparisons were done during initial recruitment, Recommendations for bonus/salary increases were based on industry standards and discussed/voted on during an executive session of the Jan. 2022 BOD meeting Form 990, Part VI, Section B, Line 15b Process included review of publicly available compensation data, discussions with BOD to set salary max and bonus allowances as part of annual budgeting. If there is a request to exceed budgeted salary, BOD approval is required by vote. Form 990, Part VI, Section C, Line 19 Financial statements, bylaws, and conflict of interest policy are available on website.