2023-11-27T07:32:56-06:00 2023-05-31 363168081 SIKICH LLP 3051 HOLLIS DRIVE 3RD FLOOR SPRINGFIELD IL 62704 990 2022-06-01 770324654 NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES NORT 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 2176980800 2023-11-06 1 CHARLIE BLACKBURN 999009999 0 HEATHER BONIFAS CPA P01711657 2177933363 2023-11-06 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z BETSY KOHLER 2050 W ILES STE A SPRINGFIELD IL 62704 4231609 0 X WWW.NAACCR.ORG X 1987 IL DEVELOPMENT/APPLICATION OF CANCER REGISTRATION 10 10 14 420 0 0 3198319 3584970 540137 490127 83804 64159 37759 75 3860019 4139331 236100 247499 0 0 1784280 2141888 0 0 0 1417375 1978824 3437755 4368211 422264 -228880 3268072 3234313 455156 704807 2812916 2529506 X NAACCR INC. IS A COLLABORATIVE UMBRELLA ORGANIZATION FOR CANCER REGISTRIES, GOVERNMENTAL AGENCIES, PROFESSIONAL ASSOCIATIONS AND PRIVATE GROUPS IN NORTH AMERICA INTERESTED IN ENHANCING THE QUALITY AND USE OF CANCER REGISTRY DATA. 0 0 1192956 163396 NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS. 801982 187999 109845 NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S. 410805 56267 CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION. 1173238 59500 160694 NACDDTHE PURPOSE OF THIS PROJECT IS TO ASSIST NACDD IN IDENTIFYING AND IMPLEMENTING BEST PRACTICES FOR REGISTRY OPERATIONS. THE NAACCR WILL ADVISE ON THE TECHNICAL ASPECTS OF THE STATISTICAL COMPLETENESS ESTIMATE REVIEW AND THE IMPLEMENTATION OF BEST PRACTICES. NAACCR WILL UTILIZE IT/DATA SERVICE CONTRACTORS TO PROVIDE PROGRAMMING SUPPORT TO THE EXPERT PANEL ADDRESSING THE STATISTICAL ASPECTS OF THE COMPLETENESS ESTIMATE. NAACCR WILL ALSO INSTITUTE AN APPLICATION PROCESS FOR CANCER REGISTRIES WHO HAVE NOT MET THE NPCR 12MONTH COMPLETENESS STANDARDS.BATTELLETO ASSIST ATSDR AND BATTELLE IN ASSESSING WHETHER THERE IS AN ASSOCIATION BETWEEN EXPOSURE TO THE CONTAMINATED DRINKING WATER AT CAMP LEJEUNE AND THE INCIDENCE OF SPECIFIC CANCERS IN OVER 460,000 COHORT MEMBERS. THE STUDY WILL REQUIRE THAT VITAL STATUS AND CAUSE OF DEATH FOR DECEDENTS BE OBTAINED FOR OVER 425,000 OF THE COHORT MEMBERS WHO HAD NOT DIED PRIOR TO JANUARY 1, 2009 BEFORE ACCESSING CANCER REGISTRY DATA FROM UP TO 55 STATES, TERRITORIAL, AND FEDERAL CANCER REGISTRIESVIRTUAL POOLED REGISTRY THE PURPOSE OF THE VPR PROJECT IS TO DESIGN A PROCESS BY WHICH RESEARCH DATA FILES CAN BE LINKED WITH MULTIPLE STATE CANCER REGISTRIES WITH A SIGNIFICANTLY LOWER INVESTMENT IN COST AND TIME FOR THE PUPOSE OF PROVIDING CANCER DIAGNOSIS AND FOLLOW-UP INFORMATION ON PATIENTS THAT MAY EXIST IN A CENTRAL CANCER REGISTRY'S DATABASE. A "ONE STOP SHOP" WILL BE CREATED THROUGH WITH AN INTERESTED RESEARCHER COULD SUBMIT A SINGLE RESEARCH APPLICATION AND ONE RESERCH FILE WHICH WOULD UNDERGO ONE STANDARDIZED LINKAGE SIMULTANEOUSLY AT MULTIPLE REGISTRIES. SYSTEM WILL BE TESTED TO DE-DUPLICATE CASE REPORTS BETWEEN STATES AND SHARE FOLLOW UP AND TREATMENT INFORMATION. 1173238 59500 160694 3578981 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 25 0 14 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 IL X X ADELE HILEMAN 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 WENDY ALDINGER PRESIDENT ELECT 1.00 X X 0 0 0 WINNY ROSHALA PRESIDENT 1.00 X X 0 0 0 KEVIN WARD TREASURER 1.00 X X 0 0 0 RANDI RYCROFT REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 MONIQUE HERNANDEZ REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LIHUA LIU REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 SARAH NASH REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LORI KOCH REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LORRAINE SHACK REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LORI SWAIN REPRESENTATIVE, SPONSORING 1.00 X 0 0 0 BETSY A KOHLER EXECUTIVE DIRECTOR 37.50 X 233872 0 15295 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 37.50 X 156900 0 21808 STEPHANIE HILL ASSOCIATE DIRECTOR 37.50 X 155975 0 19713 JIM HOFFERKAMP PROGRAM MANAGER 37.50 X 128944 0 20209 ADELE HILEMAN CONTROLLER 37.50 X 125041 0 21609 CASNE CLERKIN PROGRAM MANAGER 37.50 X 120186 0 25843 LORI HAVENER PROGRAM MANAGER 37.50 X 117592 0 25790 KAREN KNIGHT CHIEF OF REGISTRY OPERAONS 37.50 X 114997 0 21336 1153507 0 171603 10 0 1 0 INFORMATION MANAGEMENT SYSTEMS 6110 EXECUTIVE BOULEVARD SUITE 310 ROCKVILLE MD 20852 CANCER SURVEILLANCE TECH ASSISTANCE 580967 TEXAS A&M 400 HARVEY MITCHELL PKY S STE 300 COLLEGE STATION TX 77845 GEOCODER APPLICATION CONSULTANT 316361 NIMBLEUSER 3003 TASMAN DR SANTA CLARA CA 95054 AMS SOFTWARE DEVELOPMENT 183756 3 3577970 7000 3584970 WEBINAR 611710 260760 260760 CONFERENCE REGISTRATIO 611710 144875 144875 MEMBERSHIP DUES 611710 84492 84492 490127 61636 61636 94801 92278 2523 2523 2523 MISCELLANEOUS 611710 75 75 75 4139331 490202 0 64159 X 247499 247499 631323 418277 213046 1161457 1046679 114778 68774 61813 6961 151966 132294 19672 128368 104953 23415 34980 34980 12300 12300 759333 673943 85390 3520 3520 131586 20921 110665 43083 43083 89538 73815 15723 40273 38093 2180 44925 44925 12364 2883 9481 CONTRACTED SERVICES 728455 728455 BANK CHARGES 45007 12343 32664 TELEPHONE 7697 7697 SUPPLIES 7101 2047 5054 18662 14966 3696 4368211 3578981 789230 0 195212 71396 460496 455731 737249 580092 58299 143480 554518 232104 224840 322414 1591976 1581000 0 80200 3268072 3234313 288896 299377 166260 215230 0 190200 455156 704807 X 2812916 2529506 2812916 2529506 3268072 3234313 -228880 -54530 0 X 0 1 X 1 0 X 1974088 2623376 2981764 3198319 3584970 14362517 607713 667346 345452 577896 490202 2688609 2581801 3290722 3327216 3776215 4075172 17051126 0 0 0 17051126 43326 45579 31645 59558 61636 241744 43326 45579 31645 59558 61636 241744 2625127 3336301 3358861 3835773 4136808 17292870 0.98600 0.98340 0.01400 0.01660 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 554518 232104 322414 322414 LINE OF CREDIT 80200 OPERATING LEASE 110000 190200 X 4072501 -54530 -54530 4127031 12300 12300 4139331 4355911 0 4355911 12300 12300 4368211 PART X, LINE 2: THE ASSOCIATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE. THE ASSOCIATION IS NOT CONSIDERED TO BE A PRIVATE FOUNDATION. 1 FLORIDA CANCER DATA SYSTEMUNIVERSITY OF MIAMI ORA PO BOX 405803 ATLANTA GA 303845803 590624458 GOV 18000 0 CONTRIBUTION ALASKA CANCER REGISTRYHAVRS PO BOX 110675 JUNEAU AK 998110675 926001185 GOV 8750 0 CONTRIBUTION INDIANA STATE CANCER REGISTRY 2 N MERIDIAN ST INDIANAPOLIS IN 46204 356000158 GOV 7000 0 CONTRIBUTION TREASURER STATE OF MAINEMAINE CANCER REGISTRY 220 CAPITOL ST 11 STATE HOUSE AUGUSTA ME 043330011 016000001 GOV 8750 0 CONTRIBUTION MT DPHHS 1400 BROADWAY RM C317 HELENA MT 596202952 810302402 GOV 8750 0 CONTRIBUTION NEBRASKA DEPT OF HEALTH & HUMAN SERVICES PO BOX 95026 LINCOLN NE 68509 470491233 GOV 8750 0 CONTRIBUTION ND STATEWIDE CANCER REGISTRY 1301 N COLUMBIA RD STOP 9037 GRAND FORKS ND 58202 456002491 GOV 8750 0 CONTRIBUTION OHIO DEPARTMENT OF HEALTH PO BOX 15278 COLUMBUS OH 43215 311334820 GOV 19750 0 CONTRIBUTION PUERTO RICO CENTRAL CANCER REGISTRY PMB 315 PO BOX 70344 SAN JUAN PR 009368344 660654313 GOV 8750 0 CONTRIBUTION RHODE ISLAND GENERAL TREASURER 3 CAPITOL HILL RM 409 PROVIDENCE RI 02908 056000522 GOV 7000 0 CONTRIBUTION TENNESSEE CANCER REGISTRYTDH 710 J ROBERTSON PRKWY 2ND FLR NASHVILLE TN 37243 626001445 GOV 19750 0 CONTRIBUTION VIRGINIA CANCER REGISTRY 109 GOVERNOR ST 10TH FLR RICHMOND VA 23219 546001775 GOV 8750 0 CONTRIBUTION OEPS DIVISION OF CANCER EPIDEMIOLOGY 350 CAPITOL ST RM 125 CHARLESTON WV 253013715 556000810 GOV 8750 0 CONTRIBUTION WYOMING CANCER SURVEILLANCE PROGRAM 122 WEST 25TH ST CHEYENNE WY 82002 830208667 GOV 8750 0 CONTRIBUTION COLORADO CENTRAL CANCER REGISTRY 4300 CHERRY CREEK DRIVE SOUTH DENVER CO 802461530 GOV 7000 0 CONTRIBUTION 16 PART I, LINE 2: THE EXECUTIVE DIRECTOR (ED), AS PRINCIPAL INVESTIGATOR OF COOPERATIVE AGREEMENTS, CONTRACTS, OR GRANTS SHALL HAVE FULL AUTHORITY OF ALL APPROVED EXPENSES. THE ED SHALL INFORM THE BOARD OF ANY SIGNIFICANT CHANGES TO FUNDING LEVELS OF AT THE FOLLOWING BOARD MEETING. X 0 0 0 0 0 0 0 0 0 BETSY A KOHLER EXECUTIVE DIRECTOR 223090 0 10782 0 0 0 14122 0 1173 0 249167 0 0 0 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 156900 0 0 0 0 0 9483 0 12325 0 178708 0 0 0 STEPHANIE HILL ASSOCIATE DIRECTOR 155975 0 0 0 0 0 9483 0 10230 0 175688 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS FULL MEMBERS AND SPONSORING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS WHO ELECT THE GOVERNING BODY ARE COMPRISED OF REPRESENTATIVES FROM FULL MEMBERS AND SPONSORING MEMBERS. FULL MEMBER ORGANIZATIONS ARE CENTRAL REGISTRIES, WHICH ARE, OR HAVE THE POTENTIAL TO BECOME POPULATION-BASED REGISTRIES. SPONSORING MEMBER ORGANIZATIONS ARE NATIONAL PROFESSIONAL OR NATIONAL GOVERNMENTAL ORGANIZATIONS PRIMARILY INVOLVED IN ANY OF THE FOLLOWING AREAS: CANCER EPIDEMIOLOGY, PATIENT CARE, CANCER CONTROL, CANCER REGISTRATION, PROFESSIONAL EDUCATION, RESEARCH, OR BIOSTATISTICS. FORM 990, PART VI, SECTION A, LINE 7B THE ONLY DECISIONS THAT REQUIRE APPROVAL BY MEMBERS ARE AMENDMENTS TO THE BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT FIRM PRESENTS THE COMPLETE AUDIT AND 990 ANNUALLY AT THE OCTOBER BOARD MEETING. THE 990 IS SENT TO THE BOARD ELECTRONICALLY FOR THEIR REVIEW PRIOR TO THE MEETING. ADDITIONALLY, THE 990 IS POSTED TO THE NAACCR WEB SITE FOR BOARD AND PUBLIC REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED ANNUALLY BY THE BOARD. THE POLICY IS AVAILABLE FOR REVIEW AT ANYTIME ON THE NAACCR SECURE BOARD WEB SITE AS WELL AS THE PUBLIC WEB SITE UNDER "POLICIES" ON THE "GOVERNANCE" WEB PAGE. THE BOARD SELF-ENFORCES THE POLICY WITH ASSISTANCE FROM THE BOARD SECRETARY, THE NAACCR EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY PERSONNEL IS DETERMINED BY SEVERAL FACTORS. THESE INCLUDE CONSIDERATION OF THE CURRENT SALARY RANGE OF THE POSITION. BUDGET FOR THE POSISTION; EXPERIENCE OF THE INDIVIDUAL; EDUCATIONAL QUALIFICATIONS; MARKET CONDITIONS FOR ATTRACTING AND RETAINING THE POSITION HELD BY THE PERSON; AND OVERALL PERFORMANCE OF THE INDIVIDUAL IF THEY ARE A CURRENT EMPLOYEE. SALARY RANGES FOR ALL POSITIONS ARE APPROVED BY THE NAACCR BOARD. THE NAACCR BOARD APPROVES THE COMPENSATION OF THE EXECUTIVE DIRECTOR. ALL OTHER POSITION'S COMPENSATIONS ARE DETERMINED BY THE EXECUTIVE DIRECTOR. COMPENSATION FOR ALL EMPLOYEES IS REVIEWED BY THE NAACCR BOARD. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS SUCH AS POLICIES, BYLAWS, STANDING RULES, AND THE 990 FORM ARE PUBLICALLY POSTED ON THE NAACCR WEB SITE. THEY ARE CLEARLY MARKED AND AVAILABLE ON OUR GOVERNANCE WEB PAGE. THE NAACCR MONTHLY FINANCIAL STATEMENT PRESENTATIONS TO THE BOARD ARE RECORDED IN THE MONTHLY MINUTES. THESE ARE AVAILABLE PUBLICALLY ON THE NAACCR BOARD WEB PAGE. THE ANNUAL BUSINESS MEETING AGENDA IS ALSO PUBLICALLY AVAILABLE ON THE NAACCR WEB SITE. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 673,943. MANAGEMENT AND GENERAL EXPENSES 85,390. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 759,333.