2025-04-25T09:41:16-05:00 2024-12-31 333709623 COHNREZNICK ADVISORY LLC 14 SYLVAN WAY PARSIPPANY NJ 070543801 990 2024-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 3122605900 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 JON VAN COTT VP OF FINANCE/CONTROLLER 3122605900 2025-04-24 1 1 LORI ROTHE YOKOBOSKY P01273422 9732283500 2025-04-23 2024 2025-03-06 01:10:19Z DR DONALD S WOOD 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 87469956 0 X WWW.MDA.ORG X 1950 NY SEE SCHEDULE O 20 20 269 1696 621545 0 56761618 54195181 0 0 2236376 5248735 439898 912328 59437892 60356244 14912477 16658993 0 0 26112512 29117549 349000 33625 14339511 20753781 20155219 62127770 65965386 -2689878 -5609142 66561388 57971496 58167552 54536026 8393836 3435470 X MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. 0 0 22891350 7822907 PLEASE SEE SCHEDULE O FOR FURTHER DISCUSSION OF PPP LOAN FORGIVENESS AS IT PERTAINS TO TOTAL CONTRIBUTION REVENUE.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O) EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. 11248191 8710305 RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES. 14259987 125781 PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS. 48399528 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 91 0 1 269 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MO MT NE NV NJ NM NY NC ND OH OK OR PA PR RI SC SD TN UT VA WA WV WI WY X X JON VAN COTT VP OF FINANCECONTROLLER 6467132020 1016 W JACKSON BLVD 1073 CHICAGO IL 60607 ANJAN ARALIHALLI DIRECTOR 1.00 X 0 0 0 BARRY BYRNE MD PHD DIRECTOR 1.00 X 0 0 0 BENJAMIN CUMBO III DIRECTOR 1.00 X 0 0 0 CHARLES D SCHOOR ESQ DIRECTOR 1.00 X 0 0 0 CHRIS ROSA PHD VICE CHAIRMAN 5.00 X X 0 0 0 DAN FRIES DIRECTOR 1.00 X 0 0 0 ELIZABETH MCNALLY MD PHD DIRECTOR 1.00 X 0 0 0 GOVERNOR BRAD HENRY CHAIRMAN 5.00 X X 0 0 0 HON ROBERT E PIPIA DIRECTOR 1.00 X 0 0 0 JENNIFER GOTTLIEB DIRECTOR 1.00 X 0 0 0 JOHN COSTANTINO DIRECTOR 1.00 X 0 0 0 JOHN E HOWELL DIRECTOR 1.00 X 0 0 0 LILIAN WU PHD DIRECTOR 1.00 X 0 0 0 LOUIS KUNKEL PHD DIRECTOR 1.00 X 0 0 0 MARK SMITH DIRECTOR 1.00 X 0 0 0 MATT PLUMMER DIRECTOR 1.00 X 0 0 0 MIKE ROWLETT DIRECTOR 1.00 X 0 0 0 NANCY KINDELAN DIRECTOR 1.00 X 0 0 0 STEVE FURNARY DIRECTOR 1.00 X 0 0 0 TOM SIMON DIRECTOR 1.00 X 0 0 0 DONALD WOOD PRESIDENT & CEO 50.00 X 634139 0 33459 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 50.00 X 372458 0 31094 MICHAEL KENNEDY TREASURER & CFO 50.00 X 445354 0 65017 MARY ROTH CHIEF MARKETING OFFICER 50.00 X 241889 0 48436 NORA CAPOCCI VP, HEALTHCARE SERVICES 50.00 X 235784 0 23594 PERIPEDES GONDIM VP, HUMAN RESOURCES & VOLUNTEERS 50.00 X 268301 0 31071 RUTH DAILEY CHIEF DEVELOPMENT OFFICER 50.00 X 279285 0 28857 SHARON HESTERLEE CHIEF RESEARCH OFFICER 50.00 X 285786 0 62493 2762996 0 324021 62 0 1 0 MOORE A SERIES LLC (CX MARKETING LLC) 4200 PARLIAMENT PLACE 3RD FLOOR LANHAM MD 20703 DONOR CARE SERVICES 811619 GLC (GENERAL LEARNING COMMUNICATIONS LL PO BOX 7443046 ATLANTA GA 30371 CONTENT MARKETING AGENCY 623105 YES & HOLDINGS LLC 1700 DIAGONAL ROAD SUITE 700 ALEXANDRIA VA 22314 MARKETING SERVICES 541164 1ST DEGREE LLC 755 GRAND BOULEVARD SUITE B-105 25 MIRAMAR BEACH FL 32550 MARKETING SERVICES 189585 4 255025 33838247 319214 19782695 758754 54195181 1428427 1428427 746785 746785 49660 0 49660 49660 49660 27139177 23318869 3820308 3820308 3820308 3289181 33838247 3794843 -505662 -505662 QUEST ADVERTISING 541800 621545 621545 621545 60356244 0 621545 5539518 14629142 14629142 2029851 2029851 1581521 1058144 54003 469374 21109703 14123819 720819 6265065 367411 245823 12546 109042 4375115 2927248 149394 1298473 1683799 1126575 57496 499728 312646 79369 59975 173302 115390 53017 15593 46780 998305 998305 33625 33625 174986 174986 1429423 1295620 82809 50994 2512310 1737159 38932 736219 2306909 1098503 140417 1067989 2583712 1148107 834570 601035 227187 709 189991 36487 3077542 2016425 356836 704281 542863 542863 661520 303941 89395 268184 645340 535102 110238 391416 179839 52894 158683 EVENT EXPENSES 3013730 1249275 1764455 PRODUCTION COSTS 912819 912819 249121 107873 85453 55795 65965386 48399528 3226347 14339511 X 1666170 666468 0 999702 3683724 4374392 5439147 1562462 4099385 4089647 1783069 2604547 5562800 4548501 1385357 1014299 49996486 44214583 76213 76213 73096 10442 24911 24911 66561388 57971496 7034528 7831569 2040021 1079496 3550230 4618055 9375467 10768117 36167306 30238789 58167552 54536026 X 4593741 -1508923 3800095 4944393 8393836 3435470 66561388 57971496 X -5609142 370489 280287 X 0 1 X 1 0 X 51829703 60181680 59144929 56761618 54195181 282113111 51829703 60181680 59144929 56761618 54195181 282113111 4778195 277334916 1042846 968429 1684474 2629877 2224872 8550498 10004 10004 2950 2950 290676563 0.95410 0.97240 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GAMING EVENTS - 2020 AMOUNT: $ 2,950. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 998305 998305 47401223 48399528 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 486336 869855 847575 998305 3202071 250000 250000 250000 250000 1000000 1500000 816802 77476 104045 790233 982396 24380 133867 312379 11462 816802 1191057 -195884 12777 982396 1077753 126644 13340 1191057 929020 160235 11502 1077753 1.00000 0 0 5562800 4548501 1014299 1014299 ACCRUED PENSION COST 30234092 OPERATING LEASE LIABILITY 4697 30238789 X 61883434 370489 1209500 171847 1751836 60131598 174986 49660 224646 60356244 66841800 1209500 -49660 1159840 65681960 174986 108440 283426 65965386 PART V, LINE 4: THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED TO SUPPORT DUCHENNE MUSCULAR DYSTROPHY RESEARCH THAT HAS BEEN APPROVED FOR FUNDING BY THE ASSOCIATION. THE ASSOCIATION MANAGES THIS ENDOWMENT IN ACCORDANCE WITH THE NEW YORK PRUDENT MANAGEMENT OF INSTITUTIONAL FUNDS ACT (NYPMIFA). THE ASSOCIATION HAS INTERPRETED NYPMIFA AS ALLOWING IT TO APPROPRIATE FOR FUTURE EXPENDITURE OR TO ACCUMULATE SO MUCH OF DONOR-RESTRICTED ENDOWMENT FUNDS AS IS PRUDENT FOR THE USES, BENEFITS, PURPOSES AND DURATION FOR WHICH THE ENDOWMENT FUND IS ESTABLISHED, SUBJECT TO THE INTENT OF THE DONOR AS EXPRESSED IN THE GIFT INSTRUMENT AND ABSENT EXPLICIT DONOR STIPULATIONS TO THE CONTRARY. PER THE DONOR'S DESIGNATION, THE ASSOCIATION IS TO DISBURSE APPROXIMATELY 85% OF ANNUAL NET INCOME OF ITS ENDOWED FUND AND THE REMAINING 15% RETURNS TO PRINCIPAL. PART X, LINE 2: U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2024, 2023, 2022, 2021 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2024, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 280,287. FUNDRAISING EXPENSES -108,440. PART XI, LINE 4B - OTHER ADJUSTMENTS: SUBLEASE RENTAL 49,660. PART XII, LINE 2D - OTHER ADJUSTMENTS: SUBLEASE RENTAL -49,660. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 108,440. 1 EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES RESEARCH GRANT 322240 EUROPE 0 0 PROGRAM SERVICES RESEARCH GRANT 838815 NORTH AMERICA 0 0 PROGRAM SERVICES RESEARCH GRANT 816052 0 0 0 0 0 0 1977107 0 1977107 EAST ASIA AND THE PACIFIC RESEARCH 322240 CHECK/WIRE 0 EUROPE RESEARCH 838815 CHECK/WIRE 0 NORTH AMERICA RESEARCH 868796 CHECK/WIRE 0 0 25 0 0 0 0 0 0 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. 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AVENUE BOX 89 NEW YORK NY 10065 131623978 501(C)(3) 100000 0 RESEARCH WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION 886 CHESTNUT RIDGE ROAD MORGANTOWN WV 26506 550665758 501(C)(3) 30000 0 MEDICAL DIAGNOSIS WONDERLAND CAMP & CONFERENCE CENTER 9241 CAMP LAKE ROAD SALEM WI 53168 362167909 CHURCH 24182 0 MED YALE UNIVERSITY PO BOX 208087 NEW HAVEN CT 065208087 060646973 501(C)(3) 197592 0 MEDICAL DIAGNOSIS AND RESEARCH YMCA CAMP SEYMOUR 9725 CRAMER RD NW GIG HARBOUR WA 98329 910565562 501(C)(3) 42808 0 MEDICAL DIAGNOSIS AND RESEARCH 169 3 PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. X X X X X 0 0 0 0 0 0 0 1 0 DONALD WOOD PRESIDENT & CEO 529139 0 105000 0 0 0 0 0 33459 0 667598 0 0 0 MICHAEL KENNEDY TREASURER & CFO 370354 0 75000 0 0 0 30500 0 34517 0 510371 0 0 0 HENRY LANMAN SEC. & CHIEF LEGAL OFFICER 371458 0 0 0 1000 0 30500 0 594 0 403552 0 0 0 SHARON HESTERLEE CHIEF RESEARCH OFFICER 245982 0 39804 0 0 0 28417 0 34076 0 348279 0 0 0 RUTH DAILEY CHIEF DEVELOPMENT OFFICER 279285 0 0 0 0 0 27940 0 917 0 308142 0 0 0 PERIPEDES GONDIM VP, HUMAN RESOURCES & VOLUNTEERS 232482 0 35819 0 0 0 30500 0 571 0 299372 0 0 0 MARY ROTH CHIEF MARKETING OFFICER 228089 0 13800 0 0 0 30500 0 17936 0 290325 0 0 0 NORA CAPOCCI VP, HEALTHCARE SERVICES 199800 0 30784 0 5200 0 23000 0 594 0 259378 0 0 0 PART I, LINE 7 INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL. X 1865 117215 FMV X AUCTION ITEMS 640 641539 FMV 0 0 0 PART I, COLUMN (B): COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS. FORM 990, PART I, LINE 1 MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE. FORM 990, PART XI, LINE 9: CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 280,287.