2022-01-12T14:30:20-06:00 2021-06-30 541487262 MATTHEWS CARTER & BOYCE 12500 FAIR LAKES CIRCLE SUITE 260 FAIRFAX VA 22033 990 2020-07-01 113485631 THE CHILDREN'S CANCER CAUSE INC CHIL 2025527392 1325 G STREET NW NO 540 WASHINGTON DC 20005 STEVE WOSAHLA CHIEF EXECUTIVE OFFICER 2025527392 2022-01-12 1 STEVE WOSAHLA 999009999 KATHLEEN M FLAHERTY P00969957 7032183600 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z STEVE WOSAHLA 1325 G STREET NW NO 540 WASHINGTON DC 20005 1135263 0 X WWW.CHILDRENSCAUSE.ORG X 1999 NY CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 18 18 5 1500 0 0 841618 996581 0 0 77765 73851 0 0 919383 1070432 10000 42500 0 0 498552 629330 0 0 103644 313430 231416 821982 903246 97401 167186 1753934 2003608 148506 13156 1605428 1990452 X CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 0 0 719533 42500 ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE WEBINARS, MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION WORKS TO EDUCATE LEGISLATIVE AND REGULATORY DECISIONMAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. IN ADDITION, THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM, PROVIDING A SCHOLARSHIP TO SURVIVORS OF CHILDHOOD CANCER.EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF.PUBLIC POLICY ADVOCACY: THROUGH PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS.THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION AND MONTHLY NEWSLETTERS TO FACILITATE THEIR CAUSE. 719533 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 5 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 MD NY X X STEVE WOSAHLA 2025527392 1325 G STREET NW NO 540 WASHINGTON DC 20005 LYNN BAYARD DIRECTOR 0.25 X 0 0 0 LORI SALLEY RING DIRECTOR 0.25 X 0 0 0 SUSAN SCHERR BOARD SECRETARY 0.50 X X 0 0 0 ADAM ROSEN TREASURER 0.50 X X 0 0 0 JENNIFER NIEDERMEYER DIRECTOR 0.25 X 0 0 0 BETH SILBER DIRECTOR 0.25 X 0 0 0 STEVEN SHAK MD DIRECTOR 0.25 X 0 0 0 JOHN STEWART DIRECTOR 0.25 X 0 0 0 SUSAN L WEINER FOUNDER 3.00 X X 0 0 0 WYLIE D CHEN DIRECTOR 0.25 X 0 0 0 LEANN JACKSON CHAIR 0.25 X X 0 0 0 MICHAEL P LINK MD DIRECTOR 0.50 X 0 0 0 LARRY HAUSNER VICE CHAIR 0.25 X X 0 0 0 LAUREN NEFF DIRECTOR 0.25 X 0 0 0 MARY MCCABE DIRECTOR 0.25 X 0 0 0 DANIEL WECHSLER MD PHD DIRECTOR 0.25 X 0 0 0 JASON YUSTEIN MD PHD DIRECTOR 0.25 X 0 0 0 GEORGE DAHLMAN FORMER CHIEF EXECUTIVE OFFICER 40.00 X 241428 0 35683 STEVE WOSAHALA CHIEF EXECUTIVE OFFICER 40.00 X 24493 0 5869 265921 0 41552 1 0 1 0 0 3543 80200 912838 996581 20448 20448 118234 64831 53403 53403 53403 1070432 0 0 73851 25000 25000 17500 17500 311604 249249 26726 35629 246508 197181 21143 28184 9123 7297 782 1044 25690 20552 2204 2934 36405 29120 3122 4163 15543 15543 63609 62914 314 381 46202 22515 5096 18591 19583 15462 1863 2258 361 89 272 10797 10797 2017 2017 1961 1542 187 232 COGS-PROGRAMS/EVENTS 64895 54585 82 10228 DUES AND SUBSCRIPTIONS 6448 5730 718 903246 719533 80069 103644 258608 327967 52564 27569 153513 108104 5447 15680 9824 6592 3146 3232 1277801 1518201 2855 2855 1753934 2003608 18306 13156 50000 80200 148506 13156 X 1193209 1482391 412219 508061 1605428 1990452 1753934 2003608 X 167186 167838 50000 X 0 1 X 0 0 X 566942 700138 685628 841619 996581 3790908 566942 700138 685628 841619 996581 3790908 178316 3612592 7976 29917 24691 22094 20448 105126 3896034 0.92720 0.90120 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9824 6592 3232 3232 X 1290955 167838 52685 220523 1070432 0 1070432 955931 52685 52685 903246 0 903246 PART X, LINE 2: THE ORGANIZATION HAS ADOPTED FASB ASC 740, INCOME TAXES. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. THE ORGANIZATION HAS ANALYZED ITS TAX POSITIONS, AND HAS CONCLUDED THAT NO LIABILITY SHOULD BE RECORDED RELATED TO ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION IS NOT AWARE OF ANY TAX POSITIONS WHICH IT BELIEVES WILL CHANGE MATERIALLY IN THE NEXT TWELVE MONTHS. IF THIS POSITION CHANGES, THE ORGANIZATION WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS FINANCIAL POSITION AND RESULTS OF OPERATIONS. 1 TEXAS CHILDREN'S CANCER AND HEMATOLOGY CENTERS LONG-TERM SURVIVOR PROGRAM 1102 BATES AVE STE 124007 HOUSTON TX 77030 741100555 501(C)(3) 10000 AWARDED ANNUALLY TO A GROUP, PROGRAM, OR INSTITUTION MAKING SIGNIFICANT ADVANCES IN PROGRAMS AND SERVICES TO PROVIDE LIFE-LONG HEALTH MAINTENANCE FOR SURVIVORS OF PEDIATRIC CANCERS. THE AWARD RECOGNIZES THE IMPORTANCE OF THE UNIQUE CHALLENGES ASSOCIATED WITH THE POST-TREATMENT SERVICES FOR THESE SURVIVORS, ESPECIALLY AS THEY TRANSITION TO NON-ONCOLOGY ADOLESCENT AND/OR ADULT HEALTH CARE SERVICES. HEROS CLINIC FOR CHILDHOOD CANCER SURVIVORSHIP YALE UNIVERSITY SCHOOL 35 PARK STREET STE 7TH FLOOR NEW HAVEN CT 06511 060646973 501(C)(3) 5000 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. NEXT STEPS SURVIVORSHIP PROGRAM CHILDREN'S WISCONSIN MACC FUND RESEARCH CT 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 391500075 501(C)(3) 5000 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. LITE PROGRAM RUTGERS CANCER INSTITUTE OF NEW JERSEY RUTGERS CANCER INST 195 LITTLE ALBANY STREET NEW BRUNSWICK NJ 08901 202959012 501(C)(3) 5000 DEVELOPING INITIATIVES TO ADDRESS THE MEDICAL AND PSYCHOSOCIAL CARE NEEDS OF PEDIATRIC CANCER SURVIVORS. 4 ROSEN AWARD 1 10000 0 CASH COLLEGE SCHOLARS PROGRAM 7 7500 CASH PART I, LINE 2: THE GRANTS ARE A RECOGNITION AWARD TO MEDICAL OR SCIENTIFIC PROFESSIONALS WHO HAVE MADE NOTEWORTHY CONTRIBUTIONS TO THE FIELD OF PEDIATRIC CANCER RESEARCH OR CARE. AWARDEES ARE SELECTED THROUGH A COMPETITIVE PROCESS AND GRANT FUNDING IS INTENDED TO SUPPORT ADDITIONAL CHILDHOOD CANCER RESEARCH OR CARE INITIATIVES. OUR COLLEGE SCHOLARS PROGRAM TYPICALLY AWARDS TWO SURVIVOR STUDENTS ANNUALLY BUT FOR THE SECOND YEAR IN A ROW, WE ARE THRILLED TO WELCOME SEVEN SURVIVORS INTO THE PROGRAM. THESE SURVIVORS RECEIVE A FINANCIAL SCHOLARSHIP TO HELP WITH ACADEMIC EXPENSES AND GAIN VALUABLE CANCER ADVOCACY EXPERIENCE. EACH MEMBER OF OUR COLLEGE SCHOLARS PROGRAM COMPLETES A VOLUNTEER PROJECT OF THEIR CHOOSING RELATED TO CHILDHOOD CANCER ADVOCACY, WITH SUPPORT AND MENTORSHIP FROM THE CHILDREN'S CANCER CAUSE TEAM. X 0 0 0 0 0 0 0 0 0 GEORGE DAHLMAN FORMER CHIEF EXECUTIVE OFFICER 241428 0 0 0 0 0 6907 0 28776 0 277111 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION WILL PROVIDE A COPY OF THIS FORM 990 TO MEMBERS OF THE GOVERNING BODY BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE PROCEDURES SECTION OF THE CONFLICTS OF INTEREST POLICY PROVIDES A DUTY TO DISCLOSE REQUIRING THAT UPON FIRST KNOWLEDGE BY AN INTERESTED PERSON THAT THE BOARD OR A COMMITTEE THEREOF IS CONSIDERING OR HAS CONSIDERED A TRANSACTION OR ARRANGEMENT WITH AN ENTITY OR INDIVIDUAL WITH WHICH THE INTERESTED PERSON HAS AN INTEREST, THE INTERESTED PERSON MUST DISCLOSE THE EXISTENCE AND NATURE OF HIS OR HER INTEREST TO THE BOARD OR THE COMMITTEE OF THE BOARD CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. FURTHER, THE POLICY PROVIDES FOR PERIODIC REVIEWS TO ENSURE THAT THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSES AND THAT IT DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS STATUS AS AN ORGANIZATION EXEMPT FROM FEDERAL TAX, PERIODIC REVIEWS SHALL BE CONDUCTED THAT SHALL, AT A MINIMUM, CONSIDER WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE AND ARE THE RESULT OF ARM'S-LENGTH BARGAINING. IN ADDITION, OUTSIDE EXPERTS MAY BE USED IN CONDUCTING PERIODIC REVIEWS, BUT THEIR USE SHALL NOT RELIEVE THE BOARD OF ITS RESPONSIBILITY FOR ENSURING THAT PERIODIC REVIEWS ARE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE ORGANIZATION'S BOARD OF DIRECTORS. THE BOARD SETS THE EXECUTIVE DIRECTOR'S COMPENSATION AND REVIEWS COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS BOARD, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE BOARD DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FORM 990, PART XI, LINE 9: PRIOR YEAR ADJUSTMENT DUE TO REVENUE RECOGNITION STANDARD 50,000.