2025-05-13T12:18:41-05:00 2024-12-31 362663358 PORTE BROWN LLC 9014 HERITAGE PARKWAY SUITE 308 WOODRIDGE IL 60517 990 2024-01-01 363327001 HAIRY CELL LEUKEMIA FOUNDATION HAIR 2243557201 77 VAN NESS AVENUE STE 101 PMB 1617 SAN FRANCISCO CA 94102 ANNA LAMBERTSON EXECUTIVE DIRECTOR 2243557201 2025-05-08 1 0 MEGAN ANGLE P00850733 7084291040 2024 2025-03-06 01:10:19Z ANNA LAMBERTSON 77 VAN NESS AVENUE STE 101 PMB 1617 SAN FRANCISCO CA 94102 2774852 0 X WWW.HAIRYCELLLEUKEMIA.ORG X 1984 IL DEDICATED TO IMPROVING OUTCOMES FOR PATIENTS BY ADVANCING RESEARCH INTO THE CAUSES AND TREATMENT OF HAIRY CELL LEUKEMIA, AS WELL AS EDUCATIONAL RESOURCES AND COMFORT. 11 11 3 20 0 0 2348464 2577721 0 0 125170 197131 0 0 2473634 2774852 974418 1400241 0 0 169105 209518 0 0 52224 159277 183369 1302800 1793128 1170834 981724 3928090 4910812 2981 3979 3925109 4906833 THE HAIRY CELL LEUKEMIA FOUNDATION IS DEDICATED TO IMPROVING OUTCOMES FOR PATIENTS BY ADVANCING RESEARCH INTO THE CAUSES AND TREATMENT OF HAIRY CELL LEUKEMIA, AS WELL AS BY PROVIDING EDUCATIONAL RESOURCES AND COMFORT TO ALL THOSE AFFECTED BY HAIRY CELL LEUKEMIA. 0 0 164274 164274 GRANTS TO THE OHIO STATE UNIVERSITY AND OTHER INSTITUTIONS FOR REGISTRY IMPLEMENTATION. 1549116 1235967 ANNUAL CONFERENCE EACH FALL FOR DOCTORS, AS WELL AS EDUCATIONAL WEBINARS AND FORUMS FOR PATIENTS THROUGHOUT THE YEAR. FACILITATION OF REGIONAL SUPPORT NETWORKS FOR PATIENTS. RESPONDING TO PATIENT INQUIRIES AND REFERRALS TO HCL CENTERS OF EXCELLENCE. FACILITATION OF SCIENTIFIC ADVISORY GROUPS AND PEER-TO-PEER DOCTOR SUPPORT. ADMINISTRATIVE, EDITORIAL AND TECHNICAL SUPPORT IN THE PREPARATION AND SUBMISSION OF RELEVANT MANUSCRIPTS. 1713390 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 3 1 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 IL X ANNA LAMBERTSON 2243557201 77 VAN NESS AVENUE STE 101 PMB 1617 SAN FRANCISCO CA 94102 KEITH MARKBREITER PRESIDENT 1.50 X X 0 0 0 ADI WEBER VICE PRESIDENT 1.50 X X 0 0 0 MICHAEL MARGOLIN VICE PRESIDENT 2.00 X X 0 0 0 MARC STADTMAUER SECRETARY 3.00 X X 0 0 0 KEN JENSEN TREASURER 12.00 X X 0 0 0 BRIAN FRIEDMAN BOARD MEMBER 1.00 X 0 0 0 TIM MAHER BOARD MEMBER 1.00 X 0 0 0 SCOTT SVOBODA BOARD MEMBER 1.50 X 0 0 0 KIRK ZACHARY BOARD MEMBER 1.50 X 0 0 0 BOBBY PATRICK BOARD MEMBER 1.00 X 0 0 0 SARAH NAPERALA BOARD MEMBER 1.00 X 0 0 0 ANNA LAMBERTSON EXECUTIVE DIRECTOR 40.00 X 144375 0 0 144375 0 0 1 0 0 0 0 2577721 2577721 197131 197131 2774852 0 0 197131 1070524 1070524 329717 329717 144375 115500 7219 21656 49746 39797 2487 7462 15397 12318 770 2309 33536 1516 16395 15625 2565 2565 9934 7947 497 1490 3768 525 3243 1591 1591 129049 129049 2926 2341 146 439 1793128 1713390 27514 52224 130929 69126 3797161 4841686 3928090 4910812 2981 3979 2981 3979 X 611595 831205 3313514 4075628 3925109 4906833 3928090 4910812 981724 0 X 0 1 X 1 0 X 737170 2371903 2220466 2348464 2577721 10255724 737170 2371903 2220466 2348464 2577721 10255724 1820962 8434762 1423 533 19147 125170 197131 343404 10599128 0.79580 0.76620 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 2774852 0 2774852 0 2774852 1793128 0 1793128 0 1793128 PART X, LINE 2: THE FOUNDATION HAS ADOPTED THE PROVISION OF ASC TOPIC 740, INCOME TAXES, RELATING TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. THE FOUNDATION FILES INFORMATION RETURNS IN THE U.S. FEDERAL JURISDICTION, AND THE STATE OF ILLINOIS. MANAGEMENT IS NOT AWARE OF ANY UNCERTAIN TAX POSITIONS. 1 EUROPE (INCLUDING ICELAND AND GREENLAND) 0 0 PROGRAM SERVICES RESEARCH GRANT 298467 AUSTRALIA 0 0 PROGRAM SERVICES RESEARCH GRANT 31250 0 0 0 0 0 0 329717 0 329717 EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, RESEARCH GRANT 31250 WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESERACH GRANT 187500 WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH GRANT 187500 WIRE 0 3 0 0 0 0 0 0 PART I, LINE 2: GRANT AND FELLOWSHIP AWARD RECIPIENTS ARE REQUIRED TO PROVIDE AN INTERIM NARRATIVE REPORT AT 6 MONTHS AND A FINAL NARRATIVE AND FINANCIAL REPORT WITHIN 30 DAYS OF THE END OF THE GRANT PERIOD; THE NARRATIVE AND FINANCIAL REPORTS SHOULD INCLUDE: A NARRATIVE ACCOUNT OF WHAT WAS ACCOMPLISHED BY THE EXPENDITURE OF FUNDS AND A FINANCIAL ACCOUNTING OF GRANT EXPENDITURES INCURRED. 1 MEMORIAL SLOAN KETTERING INSTITUTE FOR CANCER RESEARCH 633 3RD AVENUE 3RD FLOOR NEW YORK NY 10017 131924236 501C3 312500 0 RESEARCH GRANT CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501C3 31250 0 RESEARCH GRANT UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 92093 952544535 501C3 312500 0 RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA PERELMAN SCHOOL OF MEDICINE 3451 WALNUT STREET 5TH FLOOR PHILADELPHIA PA 19104 231352685 501C3 250000 0 RESEARCH GRANT 4 PART I, LINE 2: GRANT AND FELLOWSHIP AWARD RECIPIENTS ARE REQUIRED TO PROVIDE AN INTERIM NARRATIVE REPORT AT 6 MONTHS AND A FINAL NARRATIVE AND FINANCIAL REPORT WITHIN 30 DAYS OF THE END OF THE GRANT PERIOD. THE NARRATIVE AND FINANCIAL REPORTS SHOULD INCLUDE: A NARRATIVE ACCOUNT OF WHAT WAS ACCOMPLISHED BY THE EXPENDITURE OF FUNDS AND A FINANCIAL ACCOUNTING OF GRANT EXPENDITURES INCURRED. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS MADE AVAILABLE TO EACH MEMBER OF THE GOVERNING BODY PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION'S CONFLICT OF INTEREST POLICY COVERS ALL OF THE ORANIZATION'S DIRECTORS AND SETS FORTH THE PROCEDURES AS FOLLOWS: (1) IN SITUATIONS WHERE A DIRECTOR OR MEMBER OF THE DIRECTOR'S IMMEDIATE FAMILY HOLDS A FIDUCIARY OR LEADING POSITION WITH A POTENTIAL GRANTEE, THAT RELATIONSHIP IS ALWAYS DISCLOSED AND EITHER THE DIRECTOR INVOLVED ABSTAINS FROM VOTING, OR THE MATTER IS DETERMINED WITHOUT CONSIDERING THE VOTE OF THE DIRECTOR. STAFF MEMBERS WHO HOLD A FIDUCIARY OR LEADING POSITION IN A GRANTEE ORGANIZATION OR A MEMBER OF WHOSE IMMEDIATE FAMILY HOLDS SUCH A POSITION MUST ALWAYS DISCLOSE THAT RELATIONSHIP. SUCH ASSOCIATION MUST BE NOTED IN ALL GRANT PRESENTATIONS AND REPORTED IN THE APPROPRIATE BOARD MINUTES. (2) DIRECTORS ALWAYS ABSTAIN FROM VOTING ON MATTERS REGARDING BUSINESS TRANSACTIONS BETWEEN HCLF AND ANY ORGANIZATION IN WHICH THE DIRECTOR OR MEMBER OF THE DIRECTOR'S IMMEDIATE FAMILY HOLDS A FIDUCIARY OR LEADING POSITION OR HAS A SIGNIFICANT FINANCIAL INTEREST. STAFF MEMBERS AND THEIR IMMEDIATE FAMILIES WHO HOLD A FIDUCIARY OR LEADING POSITION OR HAVE A SIGNIFICANT FINANCIAL INTEREST IN ANY ORGANIZATION WHICH HAS OR IS ENTERING INTO A BUSINESS ARRANGEMENT WITH HCLF MUST ALWAYS DISCLOSE THAT RELATIONSHIP. SUCH DISCLOSURE MUST BE RECORDED IN THE APPROPRIATE BOARD MINUTES. SPECIAL CARE IS TAKEN TO PREVENT ABUSE AS THE RESULT OF SUCH ARRANGEMENTS. (3) THE SECRETARY OF HCLF ANNUALLY CIRCULATES A DISCLOSURE FORM FOR DIRECTORS AND STAFF TO LIST ORGANIZATIONS IN WHICH THE DIRECTOR OR STAFF MEMBER OR SPOUSE OR CHILD PLAYS A FIDUCIARY OR LEADING ROLE. IN ADDITION, DIRECTORS AND STAFF WILL LIST THOSE ORGANIZATIONS IN WHICH THEY, A SPOUSE OR CHILD HOLD SIGNIFICANT FINANCIAL INTEREST AND WHICH HAVE A BUSINESS RELATIONSHIP WITH HCLF. ON THE SAME FORM, DIRECTORS AND STAFF ACKNOWLEDGE THAT THEY UNDERSTAND AND ADHERE TO THE HCLF'S CONFLICT OF INTEREST POLICY AND PROCEDURE DIRECTORS AND STAFF WILL INFORM THE SECRETARY OF HCLF OF ANY CHANGES OR NEW RELATIONSHIPS. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS DETERMINED BY SURVEYING DATA FROM COMPARABLE ORGANIZATIONS AND THROUGH AN ANNUAL EVALUATION PROCESS REVIEWED AND APPROVED BY THE ENTIRE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S 990 IS AVAILABLE UPON REQUEST. THE ORGANIZATION'S FORM 1023 IS AVAILABLE UPON REQUEST AND MAY BE INSPECTED AT THE OFFICE OF THE ORGANIZATION. COPIES OF THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND STATEMENT OF RECEIPTS AND DISBURSEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST AND MAY BE INSPECTED AT THE ORGANIZATION'S OFFICES.