2022-05-02T19:25:53-05:00 2021-12-31 Kundinger Corder & Montoya PC 475 Lincoln Street Suite 200 Denver CO 80203 990 2021-01-01 264431001 Global Down Syndrome Foundation GLOB 7205485618 3239 E 2nd Avenue Denver CO 80206 Michelle Sie Whitten President & CEO 7205485618 2022-05-02 1 Michelle Sie Whitten 999009999 Sarah Flischel P01791735 3035345953 2022-05-02 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z Michelle Sie Whitten 3239 E 2nd Avenue Denver CO 80206 3407725 0 X www.globaldownsyndrome.org X 2009 CO To improve the lives of people with Down syndrome. 10 6 30 39 0 0 3515589 3206849 10297 6540 23816 13188 37291 1551 3586993 3228128 667105 555437 0 0 1131324 1032840 0 0 350114 1125993 1080908 2924422 2669185 662571 558943 7860291 8253735 795042 631867 7065249 7621868 X To significantly improve the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. See Schedule O for continuation.An important part of this mission is to support the Linda Crnic Institute for Down syndrome to eradicate the medical and cognitive ill effects associated with Down syndrome and to ensure people with the condition live longer and healthier lives and therefore reach their true potential. 0 0 997733 500000 Research and clinical care: Down syndrome is when a person is born with three copies of chromosome 21 instead of the usual two. Because of Global's work, scientists are developing better methods to understand how the triplication leads to a higher incidence of certain diseases and protects those same individuals from other diseases. They do so in the following ways:- Creating and updating medical guidelines by conducting research on how people with Down syndrome are treated for certain condions or diseases and what interventions or medications work for people with Down syndrome.- Conducting medical or clinical research to improve the health and lifespan of people with Down syndrome, especially in areas where they are highly predisposed to disease (e.g. Alzheimer's disease and autoimmune conditions) and highly protected (e.g. solid tumors and certain types of heart attack and stroke.)- Conducting basic or laboratory research in conjunction with medical or clinical research.- Expanding awareness through education outreach, government advocacy, and public relations work in coordination with and for the Crnic Institute and Global's other affiliates. 678425 55437 8091 Outreach, education, and conferences: Global offers a variety of research and medical outreach meetings, workshops, webinars, educational programs, and classes designed to support and improve the lives of Global's self-advocates, family members and professionals serving our community. Many of our educational programs involve building skills, building self-esteem and fostering independence. 1676158 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 14 0 1 30 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 10 6 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MO X Michelle Sie Whitten 7205485618 3239 E 2nd Avenue Denver CO 80206 John J Sie Chair 1.50 1.00 X X 0 12000 19035 Anna M Sie Director 1.50 1.00 X 0 0 0 Michelle Sie Whitten Director and President 20.00 20.00 X X 128384 128834 27912 Mary Beth Wallingford Treasurer 3.00 X X 0 0 0 John C McGinley Director 1.00 X 0 0 0 Jay Mills Director 1.00 X 0 0 0 Ricki Rest Director 1.00 X 0 0 0 Tomago Collins Director 1.00 X 0 0 0 Charlie Monfort Director 1.00 X 0 0 0 Frank Stephens Director 1.00 X 0 0 0 128384 140834 46947 1 0 1 0 Williams Creative Inc 2711 W 118th Ave Denver CO 80234 Event production and marketing 150000 CliftonLarsonAllen LLP 8390 East Crescent Pkwy Greenwood Village CO 80111 Accounting services 109074 2 X 38187 1787145 613830 127077 640610 234514 3206849 Registration fees 900099 6540 6540 6540 13010 13010 178 0 178 178 178 179597 1787145 179597 0 Miscellaneous 900099 1484 1484 Premium Sales 900099 67 67 1551 3228128 8091 0 13188 555437 555437 142340 78287 28468 35585 701569 463454 179917 58198 122636 45090 65612 11934 66295 40194 17451 8650 19940 19377 563 90100 90100 100000 100000 251974 155952 66474 29548 217022 46022 138571 32429 26200 26200 23988 2274 6635 15079 149510 130524 14076 4910 Event expense 95510 95510 Advocacy 49000 49000 Public relations and co 44382 511 12368 31503 Other 9020 7000 2015 5 4262 2413 1849 2669185 1676158 642913 350114 2486110 3030193 1650148 1652499 223851 204895 1243 1243 23278 38837 2276008 472073 1953444 1803935 1522217 1522133 7860291 8253735 121284 102548 500000 500000 23858 29319 149900 0 795042 631867 X 6062432 6572412 1002817 1049456 7065249 7621868 7860291 8253735 558943 -2324 0 X X 0 0 0 X 5044441 4701935 3623958 3515589 3206849 20092772 5044441 4701935 3623958 3515589 3206849 20092772 6227298 13865474 12353 16615 26104 25177 13010 93259 -2528 1925 -2575 -3178 223 7782 12036 37291 1551 58883 20241736 124057 0.68500 0.68390 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 100000 100000 2199388 2299388 264969 66242 0 0 346761 290531 274054 264969 1176315 1764473 163278 187070 172583 100000 622931 86690 72633 68514 66242 294079 441119 2070125 332690 1737435 205883 139383 66500 1803935 Fashion Show Gala 1775153 1667789 107364 57078 912 39716 9658 AcceptAbility Gala 191589 119356 72233 47233 25000 1966742 1787145 179597 104311 912 64716 9658 179597 0 1 University of Colorado Foundation 1800 Grant St Suite 725 Denver CO 80203 846049811 501(c)(3) 500000 0 Research Grant Arc Thrift Stores 12345 W Alameda Pkwy Suite 11 Lakewood CO 80228 840515942 501(c)(3) 10500 0 COVID emergency relief 2 Part I, Line 2: University of Colorado Foundation: Quarterly reports are provided to the Global Down Syndrome Foundation from the University of Colorado Foundation to ensure that the funds are used appropriately. Prior to the release of funds from the University of Colorado Foundation to the Linda Crnic Institute, the Board of Directors for the Linda Crnic Institute must provide a 12-month operating budget outlining the specific use of the grant funds. The Linda Crnic Institute for Down Syndrome must provide periodic financial statements to the Global Down Syndrome Foundation that show use of the funds granted and any variances from the budget. Grants for COVID emergency relief were awarded in response to COVID-19 on a needs-based assessment included in the grant request. X 1 1 X X 0 0 0 0 0 0 0 0 0 Michelle Sie Whitten Director and President 128384 128834 0 0 0 0 0 0 13956 13956 142340 142790 0 0 Part I, Line 1a First-class travel is provided as a courtesy for a certain board member who has celebrity status. Part I, Line 3 The board of directors reviews compensation levels for all employees using comparability studies to determine appropriate salary ranges. X 3 45185 Subsequent selling price X Auction Items 296 187930 Selling price X Program Goods 2 1399 Replacement cost 0 0 0 Part I, Column (b): The organization is reporting the number of contributions in Part I, column b. Form 990, Part VI, Section A, line 2 Three of the members of the board of directors have a family relationship, and one board member has a business relationship with the members who have a family relationship. Form 990, Part VI, Section B, line 11b Form 990 is reviewed by senior management and distributed by email to the board prior to filing. Form 990, Part VI, Section B, line 12c The board discloses conflicts of interest on an annual basis. Form 990, Part VI, Section B, line 15 In determining the compensation of the CEO, the treasurer of Global provides annual comparability data to the Board Chair and one other board member. These individuals review the comparability data and determine the appropriate compensation amount. Approval for compensation of all other staff is delegated to the CEO. The CEO bases the compensation on comparability studies for similar positions in similarly sized non-profit organizations. Total compensation is included in the annual budget and reviewed by the board at the annual board meeting. Form 990, Part VI, Section C, line 19 The governing documents, conflict of interest policy, and financial statements are made available to the public upon request. Form 990, Part VIII Global, pursuant to its articles of incorporation and bylaws, engages in fundraising activities for its affiliates (e.g. the Linda Crnic Institute for Down Syndrome, Anna and John J. Sie Center for Down Syndrome). On occasion, Global generates donations that are gifted directly to such affiliates. These donations are not reported as contribution revenue on the Form 990, Part VIII. While these amounts are not reflected in the Form 990, it is important to note these amounts are captured in the Global annual report and footnoted in the audited financial statements. Consideration of the contributions to affiliates is important to accurately reflect the efficacy and scope of Global's efforts. The amount donated directly to affiliates in 2021 was $727,500. Form 990, Part XI, Line 2C The Board Treasurer, the President & CEO, and certain members of management meet with the external auditors on an annual basis to review the financial statements in detail. Anna and John J Sie Foundation 3239 E 2nd Ave Denver CO 80206 836058353 Grant making foundation CO 501(c)(3) PF N/A 0 0 0 1 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0