2022-10-07T15:08:20-05:00 2021-12-31 390919055 RITZ HOLMAN LLP 330 E KILBOURN AVE SUITE 550 MILWAUKEE WI 53202 990 2021-01-01 464152355 CHILDHOOD ARTHRITIS AND RHEUMATOLOGY RESEARCH ALLIANCE CHIL 2027721028 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 STACY ARDOIN MD TREASURER 2027721028 2022-10-07 1 STACY ARDOIN MD 999009999 KATY L SOMMER P00273273 4142711451 2022-10-07 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z X EMILY VON SCHEVEN MD MA 1050 CONNECTICUT AVENUE NW 500 WASHINGTON DC 20036 6468070 0 X HTTPS://WWW.CARRAGROUP.ORG/ X 2014 CA CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 10 6 0 6 0 0 3005647 205868 2715047 6231027 46432 1422 66014 29753 5833140 6468070 563869 1041992 0 0 288111 263470 0 0 0 7236792 8719023 8088772 10024485 -2255632 -3556415 18697197 18755308 1166229 4780755 17530968 13974553 X CARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES. 0 0 5968690 6179527 CARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES. 241890 1000 ANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS. 1041992 1041992 29753 GRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION. 1908493 50500 OTHER PROGRAM SERVICES: INFORMATICS/PROGRAMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES. 1908493 50500 9161065 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 16 0 1 0 0 0 0 0 0 0 0 0 0 0 X 10 6 0 1 0 0 1 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X EXECUTIVE DIRECTOR INC 4142766445 555 E WELLS STREET SUITE 110 MILWAUKEE WI 53202 ROBERT FUHLBRIGGE MD PHD PAST PRESIDENT 10.00 X X 68040 0 0 CHRISTY SANDBORG MD CHAIR 3.00 X X 0 0 0 EMILY VON SCHEVEN MD MAS PRESIDENT 12.00 X X 87930 0 0 CAROL WALLACE MD DIRECTOR 1.00 X 0 0 0 HARRY SAAL PHD DIRECTOR 1.00 X 0 0 0 ROBERT COLBERT MD PHD VICE PRESIDENT 8.00 X X 40000 0 0 STACY ARDOIN MD TREASURER 10.00 X X 67500 0 0 LEIGH WHITE JD DIRECTOR 1.00 X 0 0 0 DANIEL SOLOMON MD PHD DIRECTOR 1.00 X 0 0 0 JOHN SUNDY MD PHD DIRECTOR 1.00 X 0 0 0 263470 0 0 0 0 0 0 DUKE CLINICAL RESEARCH INSTITUTE 2400 PRATT ST DURHAM NC 27705 CARRA REGISTRY MANAGEMENT 4250011 EXECUTIVE DIRECTOR INC 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 MANAGEMENT SERVICES 1354905 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 INFORMATICS SUPPORT FOR REGISTRY 322233 3 205868 205868 RESEARCH STUDIES & COL 541900 6179527 6179527 MEMBERSHIP DUES 541900 50500 50500 ANNUAL MEETING 541900 1000 1000 6231027 1422 1422 GRANT SUPPORT REFUNDS 900099 29346 29346 REBATES/COMMISSIONS 900099 407 407 29753 6468070 6260780 0 1422 X 886074 886074 5000 5000 150918 150918 263470 138980 124490 1569201 1002653 566548 33977 16000 17977 8100 8100 5651556 5649716 1840 22287 10763 11524 6511 4769 1742 572312 528111 44201 15682 14325 1357 267781 267781 4240 4240 33433 33433 BIO SAMPLE 355267 355267 SALARY SUPPORT 64053 64053 RESEARCH DISCRETIONARY 44611 44611 STAFF TRAINING AND DEVE 43245 43245 26767 22044 4723 10024485 9161065 863420 0 1829061 5149688 11023773 11025195 4333333 0 1435553 2548898 70177 30467 5300 1060 18697197 18755308 1085055 2700890 365747 81174 1714118 1166229 4780755 X 13197635 13974553 4333333 0 17530968 13974553 18697197 18755308 -3556415 0 X 0 1 X 1 0 X 10497647 6025669 7209074 3005647 205868 26943905 10497647 6025669 7209074 3005647 205868 26943905 26943905 2102 19852 167009 46432 1422 236817 46030 10269 65475 29753 151527 27332249 18772329 0.98580 0.98080 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GRANT SUPPORT REFUNDS - 2018 AMOUNT: $ 46,030. 2019 AMOUNT: $ 4,693. 2020 AMOUNT: $ 48,875. 2021 AMOUNT: $ 29,346. REBATES/COMMISSIONS - 2019 AMOUNT: $ 5,576. 2020 AMOUNT: $ 900. 2021 AMOUNT: $ 407. IRS REFUNDS - 2020 AMOUNT: $ 15,700. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 6438724 0 6438724 29346 29346 6468070 9995139 0 9995139 29346 29346 10024485 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2021, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT SUPPORT REFUNDS 29,346. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT SUPPORT REFUNDS 29,346. 1 0 0 0 0 0 0 0 0 0 NORTH AMERICA (CANADA) 149734 0 2 0 0 0 0 0 0 0 PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. PART III ACCOUNTING METHOD: 1 DUKE MEDICAL CENTER 10 DUKE MEDICINE CIR DURHAM NC 27710 560532129 3 177480 0 FMV LARGE GRANT MONTEFIORE MEDICAL CENTER 111 EAST 210TH ST NEW YORK NY 10467 131740114 3 50000 0 FMV PUBLICATION SUPPORT GRANT REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK STREET SE MINNEAPOLIS MN 55455 416007513 3 40872 0 FMV SMALL GRANT UNIVERSITY OF UTAH 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 3 99896 0 FMV LARGE GRANT BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 3 24996 0 FMV SMALL GRANT CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER 3333 BURNET AVE CINCINNATI OH 45229 316026285 3 69998 0 FMV PRECISION DECISION THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 3 5706 0 FMV TRANSDISCIPLINARY RESEARCH GRANT CHARLOTTE-MECKLENBURG HOSPITAL 560529945 3 25000 0 FMV IMPLEMENTATION GRANT HACKENSACK UMC RESEARCH 221487576 3 53034 0 FMV SMALL GRANT NEMOURS FOUNDATION 590634433 3 100000 0 FMV LARGE GRANT REGENTS OF THE UNIVERSITY OF MICHIGAN 386006309 3 98329 0 FMV LARGE GRANT RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK 141368361 3 48889 0 FMV SMALL GRANT THE UNIVERSITY OF CHICAGO 362177139 3 24999 0 FMV SMALL GRANT UNIVERSITY OF COLORADO DENVER 846000555 3 26445 0 FMV SMALL GRANT UNIVERSITY OF ALABAMA AT BIRMINGHAM 636005396 3 24940 0 FMV SMALL GRANT 13 0 PART I, LINE 2: CARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD. FORM 990, PART VI, SECTION A, LINE 3 LINE 3 EXPLANATION - CARRA CONTRACTS WITH EXECUTIVE DIRECTOR INC. (A FOR-PROFIT MANAGEMENT COMPANY) TO PROVIDE OFFICE FACILITIES, MANAGEMENT, RECORD KEEPING, ACCOUNTING, STORAGE, OTHER SIGNIFICANT SERVICES, PLUS RELATED OVERHEAD COSTS. FORM 990, PART VI, SECTION A, LINE 6 LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE. FORM 990, PART VI, SECTION C, LINE 19 THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST FORM 990, PART IX, LINE 11G BANK FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 1,840. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,840. CARRA REGISTRY DATABASE MANAGEMENT: PROGRAM SERVICE EXPENSES 3,949,675. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 3,949,675. STEERING COMMITTEE CONTRACTS: PROGRAM SERVICE EXPENSES 437,948. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 437,948. SITE PAYMENTS: PROGRAM SERVICE EXPENSES 1,262,093. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,262,093.