2022-04-15T04:13:13-05:00 2021-12-31 390919055 RITZ HOLMAN LLP 330 E KILBOURN AVE SUITE 550 MILWAUKEE WI 53202 990 2021-01-01 541985637 INTERNATIONAL SOCIETY FOR QUALITY OF LIFE RESEARCH INTE 4149189797 555 E WELLS STREET 1100 MILWAUKEE WI 53202 CHRISTOPHER FORREST TREASURER 4149189797 2022-04-15 1 CHRISTOPHER FORREST 999009999 KATY L SOMMER P00273273 4142711451 2022-04-15 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z LORI FRANK 555 E WELLS STREET 1100 MILWAUKEE WI 53202 701339 0 X HTTP://WWW.ISOQOL.ORG/ X 2000 VA TO ADVANCE THE SCIENTIFIC STUDY OF HEALTH-RELATED QUALITY OF LIFE AND OTHER PATIENT-CENTERED OUTCOMES TO IDENTIFY EFFECTIVE INTERVENTIONS, ENHANCE THE QUALITY OF HEALTH CARE AND PROMOTE THE HEALTH OF POPULATIONS. 12 12 0 8 8500 5508 39760 55020 387254 610337 18302 23413 72302 12569 517618 701339 2200 29816 0 0 1228 0 0 0 0 692014 706356 695442 736172 -177824 -34833 1134638 1145327 107036 83207 1027602 1062120 X TO ADVANCE THE SCIENTIFIC STUDY OF HEALTH-RELATED QUALITY OF LIFE AND OTHER PATIENT-CENTERED OUTCOMES TO IDENTIFY EFFECTIVE INTERVENTIONS, ENHANCE THE QUALITY OF HEALTH CARE AND PROMOTE THE HEALTH OF POPULATIONS. 0 0 252937 1197 112500 ANNUAL CONFERENCE - THE ISOQOL ANNUAL CONFERENCE BRINGS TOGETHER RESEARCHERS, INDUSTRY REPRESENTATIVES FROM PHARMACEUTICAL, BIOTECHNOLOGY AND MOBILE HEALTH DEVICE FIELDS, CLINICIANS, PATIENT RESEARCH PARTNERS AND REGULATORY OFFICIALS FROM AROUND THE WORLD. STUDENTS, NEW INVESTIGATORS, ESTABLISHED PROFESSIONALS AND LATE-CAREER PROFESSIONALS ALL HAVE A PLACE AT ISOQOL. DURING THIS CONFERENCE ATTENDEES HAVE THE OPPORTUNITY TO ATTEND AND/OR PRESENT IN GENERAL SCIENTIFIC SESSIONS. THE NUMEROUS EDUCATIONAL, COLLABORATIVE AND NETWORKING OPPORTUNITIES ENSURE VALUE FOR ATTENDEES IN ANY CAREER STAGE. 62687 28619 310232 JOURNALS - QUALITY OF LIFE RESEARCH (QLR) AND JOURNAL OF PATIENT-REPORTED OUTCOMES (JPRO): THE QLR AND JPRO JOURNALS ARE INTERNATIONAL, MULTIDISCIPLINARY DEVOTED TO THE RAPID COMMUNICATION OF ORIGINAL RESEARCH, THEORETICAL ARTICLES AND METHODOLOGICAL REPORTS RELATED TO THE FIELD OF QUALITY OF LIFE IN ALL THE HEALTH SCIENCES. THE JOURNALS ALSO PUBLISH EDITORIALS, LITERATURE, BOOK AND SOFTWARE REVIEWS, CORRESPONDENCE AND ABSTRACTS OF CONFERENCES. 16698 42550 MEASURING WHAT MATTERS (MWM) IS A ONE AND A HALF DAY SYMPOSIUM FOCUSED ON A SPECIFIC/NICHE TOPIC SELECTED FROM MEMBER-SUBMITTED PROPOSALS. WHILE HELD ANNUALLY, THE TOPIC AND LOCATION CHANGE EACH YEAR TO ALLOW ENGAGEMENT FROM THE DIVERSE MEMBERSHIP AND PARTICIPATION FROM THE BROADER QOL COMMUNITY. MWM PROVIDES A VALUABLE SPACE FOR EXPLORATION OF ISSUES SUCH AS STANDARDIZED COLLECTION OF PATIENT OUTCOME MEASURES, HOW STAKEHOLDERS MAY INFLUENCE CLINICAL RESEARCH CARE AND MEDICAL PRODUCT DEVELOPMENT, AND OTHER ISSUES FROM A VARIETY OF PERSPECTIVES 339942 148874 OTHER PROGRAM SERVICES INCLUDE ELEARNING, WEBINARS, WEBSITE CONTENT, MEMBERSHIP NEWSLETTERS, ACTIVITIES OF THE SPECIAL INTEREST GROUPS, COMMITTEES, & THE PRESIDENT'S AWARD 339942 148874 672264 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 13 0 0 1 1 0 0 0 0 0 0 0 0 0 X 12 12 0 1 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 X EXECUTIVE DIRECTOR INC 4149189797 555 E WELLS STREET 1100 MILWAUKEE WI 53202 LORI FRANK PHD PRESIDENT 5.00 X X 0 0 0 JOANNE GREENHALGH PHD PRESIDENT ELECT 5.00 X X 3810 0 0 JOAN J BRANIN PHD SEC-TREAS 1.00 X X 0 0 0 LOTTE HAVERMAN PHD DIRECTOR 1.00 X 0 0 0 ANTONIA BENNETT PHD DIRECTOR 1.00 X 0 0 0 JAKOB BJORNER MD PHD DIRECTOR 1.00 X 0 0 0 KIM COCKS PHD DIRECTOR 1.00 X 0 0 0 KARON F COOK PHD DIRECTOR 1.00 X 0 0 0 KIRSTIE L HAYWOOD PPHIL BSC DIRECTOR 1.00 X 0 0 0 RICHARD SKOLASKY SCD DIRECTOR 1.00 X 5323 0 0 NALIN PAYAKACHAT BPHARM MS PHD DIRECTOR 1.00 X 0 0 0 I-CHAN HUANG PHD DIRECTOR 1.00 X 8500 0 0 17633 0 0 0 0 0 0 EXECUTIVE DIRECTOR INC 555 E WELLS ST STE 1100 MILWAUKEE WI 53202 MANAGEMENT SERVICES 558888 1 55020 55020 JOURNAL 541900 215681 215681 MEMBERSHIP DUES 541900 139045 139045 CONFERENCE 541900 112500 112500 ROYALTIES 541900 94551 94551 SYMPOSIUM 541900 42550 42550 6010 6010 610337 23413 23413 ADVERTISING 541900 8500 8500 JOB BOARD 541900 3593 3593 LOGO PLACEMENT 541900 250 250 226 226 12569 701339 614156 8500 23663 28619 28619 1197 1197 558888 530193 28695 6715 6715 1436 781 655 50974 45485 5489 36037 34862 1175 5375 5375 2359 2359 JOURNAL AND NEWSLETTER 30945 30945 CREDIT CARD FEES 11788 11788 UNRELATED BUSINESS INCO 1157 1157 MEMBERSHIP 500 500 182 182 736172 672264 63908 0 205999 67931 153088 153108 67833 98716 38222 55094 651064 743621 18432 26857 1134638 1145327 3836 4937 103200 78270 107036 83207 X 1009223 1035676 18379 26444 1027602 1062120 1134638 1145327 -34833 69351 0 X 0 1 X 1 0 X 141708 150043 198993 177655 194065 862464 590803 727216 746316 311627 376741 2752703 732511 877259 945309 489282 570806 3615167 16000 17000 27416 38000 24000 122416 0 16000 17000 27416 38000 24000 122416 3492751 6356 9256 15224 18302 23413 72551 6356 9256 15224 18302 23413 72551 20800 12150 15400 5000 6508 59858 6372 1653 2175 5034 4069 19303 766039 900318 978108 517618 604796 3766879 0.92720 0.93060 0.01930 0.01360 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 771771 69351 1081 70432 701339 0 701339 737253 1081 1081 736172 0 736172 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. HOWEVER, INCOME FROM CERTAIN ACTIVITIES, PRIMARILY ADVERTISING INCOME, IS NOT DIRECTLY RELATED TO THE ORGANIZATION'S TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. AS OF DECEMBER 31, 2021, THE ORGANIZATION HAD A TAX ASSET OF $727 FOR ESTIMATED PAYMENTS IN EXCESS OF ACTUAL UNRELATED BUSINESS INCOME TAX (UBIT). ESTIMATED TAX PAYMENTS AND PRIOR YEAR OVERPAYMENTS APPLIED TO 2021 TAX TOTALED $2,360. THE TOTAL UNRELATED BUSINESS INCOME TAX EXPENSE FOR THE YEAR ENDED DECEMBER 31, 2021, WAS $1,157. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS IN THE U.S. FEDERAL AND STATE JURISDICTIONS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2021, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR. 1 EUROPE 0 0 PROGRAM SERVICES JOURNAL EDITORIAL 19769 NORTH AMERICA 0 0 PROGRAM SERVICES JOURNAL EDITORIAL 1023 EAST ASIA 0 0 PROGRAM SERVICES JOURNAL EDITORIAL 9001 0 0 0 0 0 0 29793 0 29793 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION GAVE OUT SOME AWARDS/SCHOLARSHIPS RELATED TO IT'S ANNUAL CONFERENCE FOR WHICH CERTAIN STANDARDS/PREREQUISITES MUST BE MET. AWARDS ARE PROVIDED TO SELECTED POSTER & ORAL PRESENTATION WINNERS AT THE CONFERENCE JUDGED BY A PANEL. AN AWARDS COMMITTEE CHOOSES THE PRESENTERS PRIOR TO THE CONFERENCE BASED ON ABSTRACT SUBMISSIONS. A SCHOLARSHIP COMMITTEE REVIEWS THE SCHOLARSHIP APPLICATIONS AND AWARDS THE SCHOLARSHIPS BASED ON VARIOUS MERITS OF THE APPLICATION. PART III ACCOUNTING METHOD: 1 EDITOR STIPENDS 9 28619 FMV PART I, LINE 2: THE ORGANIZATION GAVE OUT SOME SCHOLARSHIPS RELATED TO ITS ANNUAL CONFERENCE FOR WHICH CERTAIN STANDARDS/PREREQUISITES MUST BE MET. FORM 990, PART VI, SECTION A, LINE 3 LINE 3 EXPLANATION - THE ORGANIZATION IS MANAGED BY EXECUTIVE DIRECTOR INCORPORATED, A FOR-PROFIT MANAGEMENT COMPANY. FORM 990, PART VI, SECTION A, LINE 6 LINE 6 EXPLANATION - THE ORGANIZATION IS A PROFESSIONAL MEMBERSHIP ORGANIZATION WITH DUES-PAYING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A LINE 7A EXPLANATION - THE MEMBERSHIP ELECTS THE BOARD OF DIRECTORS THROUGH A NOMINATION AND BALLOT PROCESS. FORM 990, PART VI, SECTION A, LINE 7B LINE 7B EXPLANATION - CHANGES OR AMENDMENTS TO THE BYLAWS MUST BE APPROVED BY OVER HALF OF THE MEMBERSHIP. FORM 990, PART VI, SECTION B, LINE 11B LINE 11B EXPLANATION - THE FORM 990 IS MADE AVAILABLE TO ALL BOARD MEMBERS ELECTRONICALLY PRIOR TO IT BEING FILED FOR ANY COMMENTS OR SUGGESTED CHANGES. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS ARE COVERED UNDER THE CONFLICT OF INTEREST POLICY. CONFLICT DETERMINATIONS CAN BE MADE AT EITHER THE MANAGEMENT OR BOARD LEVEL DEPENDING ON THE SITUATION. THE BOARD ENCOURAGES OPEN DISCUSSION OF ANY POTENTIAL CONFLICT OF INTEREST, WITH THE FIRST STEP BEING IN THE CASE OF A KNOWN CONFLICT, A BOARD MEMBER RECUSING THEMSELVES FROM VOTING ON A PARTICULAR ITEM. REFUSAL TO RECUSE MAY LEAD THE BOARD MEMBER TO DECIDE A PARTICULAR MEMBER SHOULDN'T VOTE ON A PARTICULAR DECISION. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION IS MANAGED BY EXECUTIVE DIRECTOR INCORPORATED, A FOR-PROFIT MANAGEMENT COMPANY. THE ORGANIZATION HAS NO OFFICIAL EMPLOYEES BECAUSE ALL STAFF ASSIGNED TO THE ORGANIZATION ARE EMPLOYEES OF THE MANAGEMENT COMPANY.B THE ORGANIZATION DOES NOT COMPENSATE DIRECTORS, OTHER TOP OFFICIALS, NOR HAS ANYBODY THAT FITS THE DEFINITION OF A KEY EMPLOYEE.B THE MANAGEMENT CONTRACT INCLUDES PROVIDING OFFICE FACILITIES, MANAGEMENT, RECORD-KEEPING, ACCOUNTING, STORAGE, OTHER SIGNIFICANT SERVICES, AND RELATED OVERHEAD COSTS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC EITHER AT THE ORGANIZATION'S WEBSITE OR UPON REQUEST.