2022-10-12T10:53:44-05:00 2022-05-31 363168081 SIKICH LLP 3051 HOLLIS DRIVE 3RD FLOOR SPRINGFIELD IL 62704 990 2021-06-01 770324654 NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES NORT 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 2176980800 2022-10-07 1 CHARLIE BLACKBURN 999009999 HEATHER BONIFAS CPA P01711657 2177933363 2022-10-07 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z CHARLIE BLACKBURN 2050 W ILES STE A SPRINGFIELD IL 62704 3923202 0 X WWW.NAACCR.ORG X 1987 IL DEVELOPMENT/APPLICATION OF CANCER REGISTRATION 10 9 13 422 0 0 2981764 3198319 334363 540137 43491 83804 11089 37759 3370707 3860019 272250 236100 0 0 1610519 1784280 0 0 0 1198823 1417375 3081592 3437755 289115 422264 2964795 3268072 384192 455156 2580603 2812916 X NAACCR INC. IS A COLLABORATIVE UMBRELLA ORGANIZATION FOR CANCER REGISTRIES, GOVERNMENTAL AGENCIES, PROFESSIONAL ASSOCIATIONS AND PRIVATE GROUPS IN NORTH AMERICA INTERESTED IN ENHANCING THE QUALITY AND USE OF CANCER REGISTRY DATA. 0 0 1082228 225696 NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS. 712623 236100 148615 NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S. 370330 77231 CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION. 605873 126354 NACDDTHE PURPOSE OF THIS PROJECT IS TO ASSIST NACDD IN IDENTIFYING AND IMPLEMENTING BEST PRACTICES FOR REGISTRY OPERATIONS. THE NAACCR WILL ADVISE ON THE TECHNICAL ASPECTS OF THE STATISTICAL COMPLETENESS ESTIMATE REVIEW AND THE IMPLEMENTATION OF BEST PRACTICES. NAACCR WILL UTILIZE IT/DATA SERVICE CONTRACTORS TO PROVIDE PROGRAMMING SUPPORT TO THE EXPERT PANEL ADDRESSING THE STATISTICAL ASPECTS OF THE COMPLETENESS ESTIMATE. NAACCR WILL ALSO INSTITUTE AN APPLICATION PROCESS FOR CANCER REGISTRIES WHO HAVE NOT MET THE NPCR 12MONTH COMPLETENESS STANDARDS.BATTELLETO ASSIST ATSDR AND BATTELLE IN ASSESSING WHETHER THERE IS AN ASSOCIATION BETWEEN EXPOSURE TO THE CONTAMINATED DRINKING WATER AT CAMP LEJEUNE AND THE INCIDENCE OF SPECIFIC CANCERS IN OVER 460,000 COHORT MEMBERS. THE STUDY WILL REQUIRE THAT VITAL STATUS AND CAUSE OF DEATH FOR DECEDENTS BE OBTAINED FOR OVER 425,000 OF THE COHORT MEMBERS WHO HAD NOT DIED PRIOR TO JANUARY 1, 2009 BEFORE ACCESSING CANCER REGISTRY DATA FROM UP TO 55 STATES, TERRITORIAL, AND FEDERAL CANCER REGISTRIESVIRTUAL POOLED REGISTRY THE PURPOSE OF THE VPR PROJECT IS TO DESIGN A PROCESS BY WHICH RESEARCH DATA FILES CAN BE LINKED WITH MULTIPLE STATE CANCER REGISTRIES WITH A SIGNIFICANTLY LOWER INVESTMENT IN COST AND TIME FOR THE PUPOSE OF PROVIDING CANCER DIAGNOSIS AND FOLLOW-UP INFORMATION ON PATIENTS THAT MAY EXIST IN A CENTRAL CANCER REGISTRY'S DATABASE. A "ONE STOP SHOP" WILL BE CREATED THROUGH WITH AN INTERESTED RESEARCHER COULD SUBMIT A SINGLE RESEARCH APPLICATION AND ONE RESERCH FILE WHICH WOULD UNDERGO ONE STANDARDIZED LINKAGE SIMULTANEOUSLY AT MULTIPLE REGISTRIES. SYSTEM WILL BE TESTED TO DE-DUPLICATE CASE REPORTS BETWEEN STATES AND SHARE FOLLOW UP AND TREATMENT INFORMATION. 605873 126354 2771054 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 21 0 13 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 9 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 IL X X ADELE HILEMAN 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 WENDY ALDINGER REPRESENTATIVE - AT- LARGE 1.00 X 1688 0 0 WINNY ROSHALA PRESIDENT 1.00 X X 0 0 0 KEVIN WARD TREASURER 1.00 X X 0 0 0 RANDI RYCROFT PAST-PRESIDENT 1.00 X X 0 0 0 MONIQUE HERNANDEZ REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 MARY JANE KING REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 SARAH NASH REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 ANGELA MEISNER REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LORRAINE SHACK REPRESENTATIVE - AT- LARGE 1.00 X 0 0 0 LORI SWAIN REPRESENTATIVE, SPONSORING 1.00 X 0 0 0 BETSY A KOHLER EXECUTIVE DIRECTOR 37.50 X 220084 0 18765 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 37.50 X 149707 0 20893 STEPHANIE HILL ASSOCIATE DIRECTOR 37.50 X 148586 0 18525 JIM HOFFERKAMP PROGRAM MANAGER 37.50 X 124680 0 19495 ADELE HILEMAN CONTROLLER 37.50 X 119518 0 21150 CASTINE CLERKIN PROGRAM MANAGER 37.50 X 117670 0 24160 LORI HAVENER PROGRAM MANAGER 37.50 X 115296 0 24050 997229 0 147038 7 0 1 0 INFORMATION MANAGEMENT SYSTEMS 6110 EXECUTIVE BOULEVARD SUITE 310 ROCKVILLE MD 20852 PROJECT MANAGEMENT, SYSTEMS DEVELOPMENT 340728 TEXAS A&M 400 HARVEY MITCHELL PKY S STE 300 COLLEGE STATION TX 77845 GEOCODER APPLICATION CONSULTANT 250301 NIMBLEUSER 3003 TASMAN DR SANTA CLARA CA 95054 SERVICE SOFTWARE DEVELOPMENT 230290 3 3191319 7000 3198319 WEBINAR 611710 283977 283977 CONFERENCE REGISTRATIO 611710 136350 136350 MEMBERSHIP DUES 611710 97950 97950 COURSE REGISTRATION 611710 21860 21860 540137 59558 59558 87429 63183 24246 24246 24246 CONSULTING 611710 37659 37659 MISCELLANEOUS 611710 100 100 37759 3860019 577896 0 83804 236100 236100 586667 386815 199852 920342 816016 104326 50063 42014 8049 118003 102199 15804 109205 86013 23192 12789 12789 13146 13146 342958 301568 41390 4581 4581 165094 54638 110456 43208 43208 44534 42131 2403 30128 28587 1541 27880 623 27257 7684 7684 CONTRACTED SERVICES 639026 639026 BANK CHARGES 44588 13146 31442 SUPPLIES 14237 5013 9224 DUES AND MEMBERSHIP 10183 8948 1235 17339 8217 9122 3437755 2771054 666701 0 608310 195212 453837 460496 261636 737249 54278 58299 418512 193672 54559 224840 1532175 1591976 2964795 3268072 219890 288896 164302 166260 384192 455156 X 2580603 2812916 2580603 2812916 2964795 3268072 422264 -189951 0 X 0 1 X 1 0 X 1531483 1974088 2623376 2981764 3198319 12309030 676674 607713 667346 345452 577896 2875081 2208157 2581801 3290722 3327216 3776215 15184111 0 0 0 15184111 76884 43326 45579 31645 59558 256992 76884 43326 45579 31645 59558 256992 2285041 2625127 3336301 3358861 3835773 15441103 0.98340 0.98250 0.01660 0.01750 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 418512 193672 224840 224840 X 3656922 -189951 -189951 3846873 13146 13146 3860019 3424609 0 3424609 13146 13146 3437755 PART X, LINE 2: THE ASSOCIATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE. THE ASSOCIATION IS NOT CONSIDERED TO BE A PRIVATE FOUNDATION. 1 ARKANSAS DEPT OF HEALTHHEALTH STATISTICS 4815 W MARKHAM SLOT 19 LITTLE ROCK AR 722053867 710847443 GOV 7000 0 CONTRIBUTION CURATORS OF THE UNIVERSITY OF MISSOURI PO BOX 807012 KANSAN CITY MO 641807012 436003859 GOV 7000 0 CONTRIBUTION FLORIDA CANCER DATA SYSTEMUNIVERSITY OF MIAMI ORA PO BOX 405803 ATLANTA GA 303845803 GOV 18000 0 CONTRIBUTION ALASKA CANCER REGISTRYHAVRS PO BOX 110675 JUNEAU AK 998110675 926001185 GOV 7000 0 CONTRIBUTION INDIANA STATE CANCER REGISTRY 2 N MERIDIAN ST INDIANAPOLIS IN 46204 356000158 GOV 7000 0 CONTRIBUTION TREASURER STATE OF MAINEMAINE CANCER REGISTRY 220 CAPITOL ST 11 STATE HOUSE AUGUSTA ME 043330011 016000001 GOV 7000 0 CONTRIBUTION MT DPHHS 1400 BROADWAY RM C317 HELENA MT 596202952 810302402 GOV 7000 0 CONTRIBUTION NORTH CAROLINA CENTRAL CANCER REGISTRY 1908 MAIL SERVICE CENTER RALEIGH NC 276991908 562033116 GOV 7000 0 CONTRIBUTION NEBRASKA DEPT OF HEALTH & HUMAN SERVICES PO BOX 95026 LINCOLN NE 68509 470491233 GOV 7000 0 CONTRIBUTION NV DIVISION OF PUBLIC & BEHAVIORAL HEALTH 4150 TECHNOLOGY WAY STE 300 CARSON CITY NV 89706 886000022 GOV 7000 0 CONTRIBUTION TRUSTEES OF DARTMOUTH COLLEGENH STATE CANCER REGISTRY PO BOX 186 HANOVER NH 03755 020222111 GOV 7000 0 CONTRIBUTION ND STATEWIDE CANCER REGISTRY 1301 N COLUMBIA RD STOP 9037 GRAND FORKS ND 58202 456002491 GOV 7000 0 CONTRIBUTION OHIO DEPARTMENT OF HEALTH PO BOX 15278 COLUMBUS OH 43215 311334820 GOV 18000 0 CONTRIBUTION OKLAHOMA STATE DEPT OF HEALTH 123 ROBERT S KERR AVE STE 1702 OKLAHOMA CITY OK 731026406 GOV 7000 0 CONTRIBUTION OREGON STATE CANCER REGISTRY 800 NE OREGON ST STE 730 PORTLAND OR 97232 930576060 GOV 7000 0 CONTRIBUTION PUERTO RICO CENTRAL CANCER REGISTRY PMB 315 PO BOX 70344 SAN JUAN PR 009368344 660654313 GOV 13700 0 CONTRIBUTION RHODE ISLAND GENERAL TREASURER 3 CAPITOL HILL RM 409 PROVIDENCE RI 02908 056000522 GOV 7000 0 CONTRIBUTION SC DEPT OF HEALTH & ENVIRONMENTAL 2600 BULL ST COLUMBIA SC 29201 576000286 GOV 7000 0 CONTRIBUTION MI DEPT OF HEALTH AND HUMAN SERVICES PO BOX 30437 LANSING MI 48909 386000134 GOV 18000 0 CONTRIBUTION TENNESSEE CANCER REGISTRYTDH 710 J ROBERTSON PRKWY 2ND FLR NASHVILLE TN 37243 626001445 GOV 18000 0 CONTRIBUTION TEXAS DEPARTMENT OF STATE HEALTH SERVICES PO BOX 149347 AUSTIN TX 787149347 320113843 GOV 17700 0 CONTRIBUTION THE REGENTS OF UC DAVIS PO BOX 741816 LOS ANGELES CA 900741816 946036494 GOV 7000 0 CONTRIBUTION VIRGINIA CANCER REGISTRY 109 GOVERNOR ST 10TH FLR RICHMOND VA 23219 546001775 GOV 13700 0 CONTRIBUTION OEPS DIVISION OF CANCER EPIDEMIOLOGY 350 CAPITOL ST RM 125 CHARLESTON WV 253013715 556000810 GOV 7000 0 CONTRIBUTION 24 PART I, LINE 2: THE EXECUTIVE DIRECTOR (ED), AS PRINCIPAL INVESTIGATOR OF COOPERATIVE AGREEMENTS, CONTRACTS, OR GRANTS SHALL HAVE FULL AUTHORITY OF ALL APPROVED EXPENSES. THE ED SHALL INFORM THE BOARD OF ANY SIGNIFICANT CHANGES TO FUNDING LEVELS OF AT THE FOLLOWING BOARD MEETING. X 0 0 0 0 0 0 0 0 0 BETSY A KOHLER EXECUTIVE DIRECTOR 220084 0 0 0 0 0 13020 0 5745 0 238849 0 0 0 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 149707 0 0 0 0 0 9039 0 11854 0 170600 0 0 0 STEPHANIE HILL ASSOCIATE DIRECTOR 148586 0 0 0 0 0 9039 0 9486 0 167111 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS FULL MEMBERS AND SPONSORING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS WHO ELECT THE GOVERNING BODY ARE COMPRISED OF REPRESENTATIVES FROM FULL MEMBERS AND SPONSORING MEMBERS. FULL MEMBER ORGANIZATIONS ARE CENTRAL REGISTRIES, WHICH ARE, OR HAVE THE POTENTIAL TO BECOME POPULATION-BASED REGISTRIES. SPONSORING MEMBER ORGANIZATIONS ARE NATIONAL PROFESSIONAL OR NATIONAL GOVERNMENTAL ORGANIZATIONS PRIMARILY INVOLVED IN ANY OF THE FOLLOWING AREAS: CANCER EPIDEMIOLOGY, PATIENT CARE, CANCER CONTROL, CANCER REGISTRATION, PROFESSIONAL EDUCATION, RESEARCH, OR BIOSTATISTICS. FORM 990, PART VI, SECTION A, LINE 7B THE ONLY DECISIONS THAT REQUIRE APPROVAL BY MEMBERS ARE AMENDMENTS TO THE BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT FIRM PRESENTS THE COMPLETE AUDIT AND 990 ANNUALLY AT THE OCTOBER BOARD MEETING. THE 990 IS SENT TO THE BOARD ELECTRONICALLY FOR THEIR REVIEW PRIOR TO THE MEETING. ADDITIONALLY, THE 990 IS POSTED TO THE NAACCR WEB SITE FOR BOARD AND PUBLIC REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED ANNUALLY BY THE BOARD. THE POLICY IS AVAILABLE FOR REVIEW AT ANYTIME ON THE NAACCR SECURE BOARD WEB SITE AS WELL AS THE PUBLIC WEB SITE UNDER "POLICIES" ON THE "GOVERNANCE" WEB PAGE. THE BOARD SELF-ENFORCES THE POLICY WITH ASSISTANCE FROM THE BOARD SECRETARY, THE NAACCR EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY PERSONNEL IS DETERMINED BY SEVERAL FACTORS. THESE INCLUDE CONSIDERATION OF THE CURRENT SALARY RANGE OF THE POSITION. BUDGET FOR THE POSISTION; EXPERIENCE OF THE INDIVIDUAL; EDUCATIONAL QUALIFICATIONS; MARKET CONDITIONS FOR ATTRACTING AND RETAINING THE POSITION HELD BY THE PERSON; AND OVERALL PERFORMANCE OF THE INDIVIDUAL IF THEY ARE A CURRENT EMPLOYEE. SALARY RANGES FOR ALL POSITIONS ARE APPROVED BY THE NAACCR BOARD. THE NAACCR BOARD APPROVES THE COMPENSATION OF THE EXECUTIVE DIRECTOR. ALL OTHER POSITION'S COMPENSATIONS ARE DETERMINED BY THE EXECUTIVE DIRECTOR. COMPENSATION FOR ALL EMPLOYEES IS REVIEWED BY THE NAACCR BOARD. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS SUCH AS POLICIES, BYLAWS, STANDING RULES, AND THE 990 FORM ARE PUBLICALLY POSTED ON THE NAACCR WEB SITE. THEY ARE CLEARLY MARKED AND AVAILABLE ON OUR GOVERNANCE WEB PAGE. THE NAACCR MONTHLY FINANCIAL STATEMENT PRESENTATIONS TO THE BOARD ARE RECORDED IN THE MONTHLY MINUTES. THESE ARE AVAILABLE PUBLICALLY ON THE NAACCR BOARD WEB PAGE. THE ANNUAL BUSINESS MEETING AGENDA IS ALSO PUBLICALLY AVAILABLE ON THE NAACCR WEB SITE.