2022-09-29T12:51:08-05:00 2021-12-31 BDO USA LLP 450 S Orange Ave Suite 550 Orlando FL 32801 990 2021-01-01 270270731 The Assistance Fund Inc % STEVE ALSENE ASSI 8772454412 4700 Millenia Blvd 410 Orlando FL 32839 STEVE ALSENE cfo/treasurer 8772454412 2022-09-26 true STEVE ALSENE XXX-XX-XXXX Jacob Cook P01240455 4078416930 2022-09-26 3 2021 2022-09-23 18:48:47Z STEVE ALSENE 4700 Millenia Blvd Suite 410 Orlando FL 32839 324927834 false X WWW.TAFCARES.ORG X 2009 DE TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. 7 7 108 0 0 0 380949124 293276162 0 0 2454268 2466262 0 24991 383403392 295767415 316784914 290285128 0 0 6727381 8043874 289984 258363 2152054 4943808 6171103 328746087 304758468 54657305 -8991053 388553113 376112089 17264685 12720542 371288428 363391547 X OUR MISSION IS TO PROVIDE UNDERINSURED PEOPLE LIVING WITH LIFE-THREATENING, CHRONIC, AND RARE DISEASES ACCESS TO CRITICAL TREATMENT THROUGH FINANCIAL ASSISTANCE, EDUCATION, AND ADVOCACY. false false 294374244 290285128 0 The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. In 2021, TAF assisted 55,194 patients in all 50 states, Washington, DC, and Puerto Rico, and offered 72 disease programs. TAF's in-house call center received nearly 300,000 phone calls and handled more than 23,000 online chats. In 2021, the Operations team undertook several quality initiatives to enhance our annual Reenrollment process and overall caller experience, including implementing innovative technology to reduce telephone hold times and permanently expanding call center hours. This year TAF published a comprehensive Corporate Compliance Plan and launched an employee Compliance Champions program, both of which serve to foster a culture of compliance throughout every facet of our operations. In fall 2021, the Advocacy team launched its first campaign from our new Advocacy Action Center, encouraging TAF advocates to contact their members of Congress to support Medicare Part D reforms. As a result of the campaign, TAF Advocates sent more than 1,000 letters across all 50 states and Washington, DC. 294374244 true true false true false false false false false true false false false true true true false false false false false false true false false false false true true false false false false false false false false false false false false false false false false false true 31 0 true 108 true false false false false false false false false false false false false X 7 7 false false false false false false false true true false false true true true true true true true true false AL AR CA CT DC FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X STEVE ALSENE 8558453663 4700 MILLENIA BLVD SUITE 410 orlando FL 32839 X Mark McGreevy President 40.0 0.0 X 386019 0 36977 Gerald Lauria VP of Business Development 40.0 0.0 X 326670 0 58812 Steven Alsene CFO 40.0 0.0 X 283260 0 61305 Danielle Vizcaino VP of Operations 40.0 0.0 X 208760 0 56109 John D' Angelo VP of Business Intelligence 40.0 0.0 X 203425 0 37564 Judith Fox Sr. Dir Compliance & Med 40.0 0.0 X 197120 0 35455 Margaret Figley Director of Communications 40.0 0.0 X 176418 0 49954 Christina Hartman Sr. Director of Advocacy 40.0 0.0 X 183578 0 22111 Jan Wigington Director of Operations 40.0 0.0 X 137291 0 42873 Dilip Parihar Solutions Architect 40.0 0.0 X 130558 0 40775 Stephanie Marshall Director of Patient Advocacy 40.0 0.0 X 128887 0 35415 Akhilash Pennam CRM Software Developer 40.0 0.0 X 120835 0 22820 Lawrence Hatch Chairman, Board of Directors 0.0 0.0 X 0 0 0 Jeff Milford Vice-Chair, Board of Directors 0.0 0.0 X 0 0 0 Justin Aronson Board of Directors Member 0.0 0.0 X 0 0 0 Ellen Feinstein Board of Directors Member 0.0 0.0 X 0 0 0 John Fraley Board of Directors Member 0.0 0.0 X 0 0 0 John Hawley Board of Directors Member 0.0 0.0 X 0 0 0 Julie Judge Board of Directors Member 0.0 0.0 X 0 0 0 2482821 0 500170 12 false true false AlphaScrip Inc 4647 N 32nd Street Suite 125 PHOENIX AZ 85018 Assistance Processor 658976 Hinckley Allen Snyder LLP 28 State Street BOSTON MA 021091775 Legal Services 550751 AYODIA LLC 5 INDEPENDENCE WAY SUITE 300 PRINCETON NJ 08554 DEVELOPMENT SERVICES 533000 SALESFORCE 50 FREMONT SUITE 300 SAN FRANCISCO CA 94105 DEVELOPMENT SERVICES 529960 Xtivia Inc 2035 Lincoln Highway Suite 1010 EDISON NJ 08817 Development Services 520905 16 293276162 293276162 0 2129075 2129075 0 0 0 0 0 29497606 29160419 337187 337187 337187 0 0 0 0 0 0 0 0 0 OTHER INCOME 900099 24991 24991 24991 295767415 2491253 0 290285128 290285128 0 0 1529781 169164 916518 444099 0 4295338 1860191 1855497 579650 234391 58828 129689 45874 1594576 976543 537171 80862 389788 169208 164443 56137 0 648006 644495 3511 60693 60693 240142 240142 258363 258363 127066 127066 292844 15101 146268 131475 58462 113 57480 869 89623 53816 33383 2424 2080586 470549 1571112 38925 0 431593 215962 108645 106986 310209 3798 232751 73660 0 17186 5713 11473 0 0 143788 33587 110201 33124 33124 OTHER EXPENSES 1580205 62256 1440345 77604 PAYCHEX PROCESSING FEES 57576 57576 304758468 294374244 8232170 2152054 0 0 273181427 315708788 89816676 29087500 0 0 0 0 0 0 0 0 0 0 841970 1043259 4622420 2390857 1827197 2231563 22885843 28040979 0 0 0 0 0 0 0 0 388553113 376112089 1290206 878784 0 0 0 0 0 0 0 0 0 0 0 0 0 0 15974479 11841758 17264685 12720542 X 53327696 66683632 317960732 296707915 371288428 363391547 388553113 376112089 -8991053 1094172 X false true X true false X 163074220 212089976 371261409 380949124 293276162 1420650891 0 0 163074220 212089976 371261409 380949124 293276162 1420650891 876192229 544458662 1343969 1630211 2684403 2560824 2129075 10348482 0 45658 5408 0 0 0 51066 1431050439 0.38046 0.38746 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 294374244 294374244 1000000 250000 1000000 1000000 2000000 3000000 250000 250000 500000 750000 SCHEDULE C, PART I-A LINE 1 FEDERAL INSIGHT AND ADVOCACY 554367 473325 81042 75756 62112 13644 3992297 1855420 2136877 2231563 0 CLAIMS PAYABLE 11787611 DEFERRED RENT LIABILITY 54147 11841758 X 296734521 1094172 1094172 295640349 127066 127066 295767415 304631402 304631402 127066 127066 304758468 PART X, LINE 2: THE ORGANIZATION IDENTIFIES AND EVALUATES UNCERTAIN TAX POSITIONS, IF ANY, AND RECOGNIZES THE IMPACT OF UNCERTAIN TAX POSITIONS FOR WHICH THERE IS A LESS THAN MORE-LIKELY-THAN-NOT PROBABILITY OF THE POSITION BEING UPHELD WHEN REVIEWED BY THE RELEVANT TAXING AUTHORITY. SUCH POSITIONS ARE DEEMED TO BE UNRECOGNIZED TAX BENEFITS AND A CORRESPONDING LIABILITY IS ESTABLISHED ON THE STATEMENT OF FINANCIAL POSITION. THE ORGANIZATION HAS NOT RECOGNIZED A LIABILITY FOR UNCERTAIN TAX POSITIONS. IF THERE WERE AN UNRECOGNIZED TAX BENEFIT, THE ORGANIZATION WOULD RECOGNIZE INTEREST ACCRUED RELATED TO UNRECOGNIZED TAX BENEFITS IN INTEREST EXPENSE AND PENALTIES IN OPERATING EXPENSES. THE ORGANIZATION'S REMAINING OPEN TAX YEARS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY REMAIN OPEN FOR THREE YEARS FROM THE DATE OF FILING. X X true FAIRCOM NEW YORK INC CONSULTING false 304100 244779 59321 304100 244779 59321 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY true COPAY & PREMIUM INS PYMTS TO UNDERINSURED PATIENTS 55677 290285128 PART I, LINE 2: ANNUALLY, INDIVIDUALS GO THROUGH THE APPLICATION AND APPROVAL PROCESS. UPON RECEIPT OF A COMPLETED APPLICATION, A FINAL DETERMINATION IS MADE AND FUNDS ARE MADE PAYABLE DIRECTLY TO THE PHARMACY, SITE OF CARE OR HEALTHCARE PROVIDER FOR THE DISPENSING OF THE APPROVED THERAPY. THE ASSISTANCE FUND ELECTRONICALLY MONITORS UTILIZATION OF SAID FUNDS DOWN TO THE PATIENT LEVEL ON A DAILY BASIS AND RECONCILES AND AUDITS PAYMENTS WEEKLY. X X true true X X false false false true false false false false false Mark McGreevy President 307594 0 76775 0 1650 0 36900 0 77 0 422996 0 0 0 Gerald Lauria VP of Business Development 272020 0 53000 0 1650 0 34211 0 24601 0 385482 0 0 0 Steven Alsene CFO 234090 0 47520 0 1650 0 36704 0 24601 0 344565 0 0 0 Danielle Vizcaino VP of Operations 178490 0 28620 0 1650 0 30952 0 25157 0 264869 0 0 0 John D' Angelo VP of Business Intelligence 176095 0 25680 0 1650 0 28703 0 8861 0 240989 0 0 0 Judith Fox Sr. Dir Compliance & Med 182970 0 12500 0 1650 0 26594 0 8861 0 232575 0 0 0 Margaret Figley Director of Communications 162268 0 12500 0 1650 0 25353 0 24601 0 226372 0 0 0 Christina Hartman Sr. Director of Advocacy 156428 0 25500 0 1650 0 22073 0 38 0 205689 0 0 0 Jan Wigington Director of Operations 126441 0 9200 0 1650 0 18352 0 24521 0 180164 0 0 0 Dilip Parihar Solutions Architect 118908 0 10000 0 1650 0 16174 0 24601 0 171333 0 0 0 Stephanie Marshall Director of Patient Advocacy 117237 0 10000 0 1650 0 26595 0 8820 0 164302 0 0 0 PART I, LINE 1: TAF'S CEO HAS A CITRUS CLUB MEMBERSHIP USED FOR BUSINESS MEETING PURPOSES. IN ADDITION HIS POSITION AND THAT OF THE VP OF DEVELOPMENT, RECEIVES WIFI COMPENSATION TO ACCOMMODATE A HYBRID WORK SCHEDULE DURING COVID. PART I, LINE 5: BONUSES FOR THE DIRECTOR OF BUSINESS DEVELOPMENT ARE CONTINGENT ON CERTAIN CRITERIA RELATING TO FUND AND DONOR RETENTION/GROWTH. FORM 990, PART VI, SECTION B, LINE 11: THE BOARD OF DIRECTORS IS PROVIDED WITH A COPY OF THE COMPLETED FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C: THE SECRETARY OF THE CORPORATION SHALL DISTRIBUTE ANNUALLY TO ALL DIRECTORS, OFFICERS AND KEY EMPLOYEES (AS IDENTIFIED BY THE CORPORATION), A FORM SOLICITING THE DISCLOSURE OF ALL CONFLICTS OF INTEREST, INCLUDING SPECIFIC INFORMATION CONCERNING THE TERMS OF ANY CONTRACT OR TRANSACTION WITH THE CORPORATION AND WHETHER THE PROCESS FOR APPROVAL SET FORTH IN THIS POLICY WAS USED. SUCH DISCLOSURE FORM MAY REQUIRE DISCLOSURE OF OTHER RELATIONSHIPS THAT MAY NOT CONSTITUTE AN ACTUAL CONFLICT OF INTEREST, BUT WHICH ARE REQUIRED TO BE DISCLOSED IN ORDER FOR THE CORPORATION TO COMPLY WITH ITS ANNUAL REPORTING REQUIREMENTS. AN EMPLOYEE OF THE CORPORATION WITH A POTENTIAL CONFLICT OF INTEREST IN A PARTICULAR MATTER SHALL PROMPTLY AND FULLY DISCLOSE THE POTENTIAL CONFLICT TO HIS SUPERVISOR. THE EMPLOYEE SHALL THEREAFTER REFRAIN FROM PARTICIPATING IN DELIBERATIONS AND DISCUSSION, AS WELL AS ANY DECISIONS, RELATING TO THE MATTER AND FOLLOW THE DIRECTION OF THE SUPERVISOR AS TO HOW THE CORPORATION DECISIONS WHICH ARE THE SUBJECT OF THE CONFLICT WILL BE DETERMINED. THE BOARD CHAIR SHALL BE RESPONSIBLE FOR DETERMINING THE PROPER WAY FOR THE CORPORATION TO HANDLE CORPORATION DECISIONS WHICH INVOLVE UNRESOLVED EMPLOYEE CONFLICTS OF INTEREST. IN MAKING SUCH DETERMINATIONS, THE BOARD CHAIR MAY CONSULT WITH LEGAL COUNSEL. THE BOARD CHAIR SHALL REPORT TO THE BOARD AT LEAST ANNUALLY CONCERNING EMPLOYEE CONFLICTS OF INTEREST WHICH HAVE BEEN DISCLOSED AND CONTRACTS AND TRANSACTIONS INVOLVING EMPLOYEE CONFLICTS WHICH THE BOARD CHAIR HAS APPROVED. FORM 990, PART VI, SECTION B, LINE 15: IT IS THE POLICY OF THE CORPORATION TO PAY NO MORE THAN REASONABLE COMPENSATION FOR PERSONAL SERVICES RENDERED TO THE CORPORATION BY OFFICERS AND EMPLOYEES. THE DIRECTORS OF THE CORPORATION SHALL NOT RECEIVE COMPENSATION FOR FULFILLING THEIR DUTIES AS DIRECTORS, ALTHOUGH DIRECTORS MAY BE REIMBURSED FOR ACTUAL OUT-OF-POCKET EXPENSES WHICH THEY INCUR IN ORDER TO FULFILL THEIR DUTIES AS DIRECTORS. EXPENSE OF SPOUSES WILL NOT BE REIMBURSED BY THE CORPORATION UNLESS THE EXPENSES ARE NECESSARY TO ACHIEVE A CORPORATION PURPOSE. THE BOARD OF DIRECTORS MUST APPROVE IN ADVANCE THE AMOUNT OF ALL COMPENSATION FOR OFFICERS OF THE CORPORATION. BEFORE APPROVING THE COMPENSATION OF AN OFFICER, THE BOARD SHALL DETERMINE THAT THE TOTAL COMPENSATION TO BE PROVIDED BY THE CORPORATION TO THE OFFICER IS REASONABLE IN AMOUNT IN LIGHT OF THE POSITION, RESPONSIBILITY AND QUALIFICATION OF THE OFFICER FOR THE POSITION HELD, INCLUDING THE RESULT OF AN EVALUATION OF THE OFFICER'S PRIOR PERFORMANCE FOR THE CORPORATION, IF APPLICABLE. IN MAKING THE DETERMINATION, THE BOARD SHALL CONSIDER TOTAL COMPENSATION TO INCLUDE THE SALARY AND THE VALUE OF ALL BENEFITS PROVIDED BY THE CORPORATION TO THE INDIVIDUAL IN PAYMENT FOR SERVICES. AT THE TIME OF THE DISCUSSION AND DECISION CONCERNING AN OFFICER'S COMPENSATION, THE OFFICER SHOULD NOT BE PRESENT IN THE MEETING. THE BOARD SHALL OBTAIN AND CONSIDER APPROPRIATE DATA CONCERNING COMPARABLE COMPENSATION PAID TO SIMILAR OFFICERS IN LIKE CIRCUMSTANCES. THE BOARD SHALL SET FORTH THE BASIS FOR ITS DECISIONS WITH RESPECT TO COMPENSATION IN THE MINUTES OF THE MEETING AT WHICH THE DECISIONS ARE MADE, INCLUDING THE CONCLUSIONS OF THE EVALUATION AND THE BASIS FOR DETERMINING THAT THE INDIVIDUAL'S COMPENSATION WAS REASONABLE IN LIGHT OF THE EVALUATION AND THE COMPARABILITY DATA. FOR OTHER KEY EMPLOYEES, COMPENSATION IS DETERMINED BY THE EXECUTIVE DIRECTOR AFTER REVIEW OF COMPARABILITY DATA, INCLUDING A SALARY SURVEY. THE INFORMATION GATHERED AND FACTORS CONSIDERED IN ARRIVING AT THE COMPENSATION IS DOCUMENTED IN THE EMPLOYEES' PERSONNEL FILE. THIS PROCESS IS PERFORMED ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION C, LINE 19: THERE SHALL BE KEPT AT THE OFFICE OF THE CORPORATION: (1) CORRECT AND COMPLETE BOOKS AND RECORDS OF ACCOUNT; (2) MINUTES OF THE PROCEEDINGS OF THE BOARD OF DIRECTORS AND THE EXECUTIVE COMMITTEE; (3) A CURRENT LIST OF THE DIRECTORS AND OFFICERS OF THE CORPORATION AND THEIR RESIDENCE ADDRESSES; (4) A COPY OF THESE BY-LAWS; (5) A COPY OF THE CORPORATION'S APPLICATION FOR RECOGNITION OF EXEMPTION WITH THE INTERNAL REVENUE SERVICE; AND (6) COPIES OF THE PAST THREE (3) YEARS' INFORMATION RETURNS TO THE INTERNAL REVENUE SERVICE. ANY OF THE BOOKS, MINUTES AND RECORDS OF THE CORPORATION MAY BE IN WRITTEN FORM OR IN ANY OTHER FORM CAPABLE OF BEING CONVERTED INTO WRITTEN FORM WITHIN A REASONABLE TIME. THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.