2025-06-30T11:35:23-04:00 2024-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2024-01-01 813557785 RUNX1 Foundation dba RUNX1 Research Program % Katrin Ericson RUNX 8058804105 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 KATRIN ERICSON President Executive Director 8058804105 2025-06-27 true true JOHN MULLINS P01429307 2027706371 2025-06-30 2024 2025-03-06 01:10:19Z Katrin Ericson 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 2402192 false X www.runx1-fpd.org X 2016 CA See Schedule O. 3 2 6 57 0 0 1542823 2394842 0 6189 7350 0 1549012 2402192 815318 1101158 0 971170 919068 0 159222 283258 332111 2069746 2352337 -520734 49855 1031227 319651 926248 164817 104979 154834 X See Schedule O. false false 1081014 592408 RUNX1 Research Program: 2024 Independent grants include continued support of researchers at U Penn: Dr. Nancy Speck ($175,000) in the optimization of RUNX1-FPD CHIP mouse models, and Dr. Ximena Jordan-Bruno, Biobanking Lead ($60,000), as well as the support of three clinical studies at MD Anderson Cancer Center ($109,058) and Childrens Hospital of Philadelphia ($148,750) - one testing low dose sirolimus in RUNX1-FPD patients and the other two assessing the safety and feasibility of harvesting and banking blood stem cells from RUNX1-FPD patients. Other Recipients include Oregon Health & Sciences ($62,296), Univ of Mass ($46,875) and various small grants ($16,051) 472162 258750 RUNX1-ALSF: Sponsored Research. 2024 co-funding partnership with Alexs Lemonade Stand Foundation (ALSF) continued, a wide array of ground breaking research projects spanning basic science honing in on gene regulatory networks affected by RUNX1 mutations, classification of RUNX1 variants via novel saturation mutagenesis methods, modeling clonal evolution driven by common secondary somatic mutations, development of clinical consensus guidelines for RUNX1-FPD and defining the role of NLRP3 inflammasome in RUNX1 deficiency. 456195 250000 American Cancer Society: RRP launched a co-funding partnership with ACS to fund both team awards and individual awards to support early clinical trials and/or translational research aimed at preventing the onset of blood cancers in RUNX1-FPD. The application deadline was in 2024 and the announcements for these 4 year grants will be made in 2025. 2009371 true true false false false false false false false false false false false false true true true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false true 9 0 true 6 true false false false false false false false false false false false false X 3 2 true false false false false false false true true false false false false false false false false false CA X The Organization 8058804105 1482 E Valley Rd Ste 137 Santa Barbara CA 93108 Katrin Ericson President Executive Director 55.00 0.00 X X 450023 0 0 Amanda Eggen Director of Patient Engagement 50.00 0.00 X 147966 0 11837 Alex Gonzalez Director of Development 40.00 0.00 X 139473 0 6448 Timothy Babich Chairperson 5.00 0.00 X X 0 0 0 Monica Babich Secretary Treasurer CFO 5.00 0.00 X X 0 0 0 737462 0 18285 3 false true false 2394842 2394842 7350 7350 0 2402192 0 0 7350 1101158 1101158 450023 360019 67503 22501 344204 198205 34421 111578 22933 17418 2293 3222 68526 52046 6853 9627 33382 25354 3338 4690 33957 23956 10001 700 700 41125 41125 3567 3567 25324 20259 3799 1266 55415 44332 8312 2771 6531 6531 92892 92892 5399 5399 Program Research 67201 67201 2352337 2009371 183744 159222 157941 315433 869068 4218 4218 1031227 319651 83032 24444 699068 144148 140373 926248 164817 X 104979 154834 104979 154834 1031227 319651 49855 0 X false true X true false X 1431309 5335888 670719 1542823 2394842 11375581 1431309 5335888 670719 1542823 2394842 11375581 1259400 10116181 671 201 6189 7350 14411 11389992 0.88820 0.72310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED EIDL Note Payable 140373 140373 X 2402192 2402192 2402192 2352337 2352337 2352337 Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) The Organization has adopted the Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) FASB ASC 740-10, Income Taxes, which prescribes measurement and disclosure requirements for current and deferred income tax provisions. The interpretation provides for a consistent approach in identifying and reporting uncertain tax provisions. It is managements belief that The Organization does not hold any uncertain tax positions. true Boston Childrens Hospital 300 Longwood Ave Boston MA 02115 042774441 501c3 7384 Research University of Washington Medicine 1959 NE Pacific St Seattle WA 98195 916001534 501c3 30000 Early Career Investigator ALSF Childrens Hospital of Philadelphia 3615 Civic Center Philadelphia PA 19101 232237932 501c3 148750 Independent RRP Grant Dana Farber Cancer Institute 450 Brookline Ave Boston MA 02215 042263030 501c3 15000 Early Career Investigator ALSF Albert Einstein College of Medicine 1300 Morris Park Ave Bronx NY 10461 830621846 501c3 30000 Early Career Investigator ALSF St Jude Childrens Research 262 Danny Thomas Place Memphis TN 381053678 620646012 501c3 30000 Early Career Investigator ALSF Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 340714585 501c3 30000 ECI Clinical Researcher Regents of University of CA Med Sch 1855 Folsom St Ste 425 San Francisco CA 941034249 946036493 501c3 30000 Early Career Investigator ALSF University of Mass Medical School 55 Lake Avenue Worcester MA 01655 043108190 501c3 46875 Familial RUNX1 Research ALSF University of Pennsylvania 338 South 19th Street Philadelphia PA 19103 231352685 501c3 328750 RUNX1 Foundation - Independent Grants University of Texas MD Anderson 1515 Holcome Blvd Houston TX 77030 746001118 501c3 109058 RUNX1 Foundation - Independent Grants American Cancer Society 270 Peachtree St NW Ste 1300 Atlanta GA 303031246 131788491 501c3 250000 Grants 12 X X false false false false false false false false false Katrin Ericson President Executive Director 322395 127628 450023 Amanda Eggen Director of Patient Engagement 147966 11837 159803 Officer directors etc family relationship Part VI line 2 Timothy and Monica Babich, the two co-directors, are married. Form 990 governing body review Part VI line 11 The Voting Members of the Organization have reviewed the form 990 and all schedules and have unanimously agreed on its accuracy. All members have received a copy for their records. Governing documents etc available to public Part VI line 19 The Organization will publish financial information, governing documents and conflict of interest policy on the Organizations website. Part III response or note to any other line in Part III Part I - Summary and Part III - Organizations Mission StatementTo provide grants for relevant research projects to find a cure for RUNX1-FPD, to raise public awareness, and to strengthen the community by providing a forum to help connect, inform and educate RUNX1-FPD patients and their families.