2022-11-14T13:59:41-06:00 2021-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2021-01-01 521841165 ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE ACMG 3017182014 7101 WISCONSIN AVENUE 1101 BETHESDA MD 20814 CHRIS PITRO CHIEF FINANCIAL OFFICER 3017182014 2022-11-14 1 CHRIS PITRO 999009999 RICHARD J LOCASTRO CPA P00288314 3019519090 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z MAXIMILIAN MUENKE 7101 WISCONSIN AVENUE 1101 BETHESDA MD 20814 2114455 0 X WWW.ACMGFOUNDATION.ORG X 1992 IL SEE PART III, LINE 1. 14 14 60 14 0 0 905422 1499648 0 0 29410 88420 47454 12096 982286 1600164 405635 244067 0 0 242948 161072 128994 147574 168404 130502 149310 908079 702023 74207 898141 3151168 4114026 1509481 1449158 1641687 2664868 X SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS. 0 0 297821 244067 SUMMER GENETICS SCHOLARS PROGRAM: IN 2021 THERE WERE 8 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- GENZYME CORPORATION FELLOWSHIP- SHIRE CORPORATION FELLOWSHIP 297821 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 1 54 0 1 60 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MD X MAXIMILIAN MUENKE 3017189603 7101 WISCONSIN AVENUE SUITE 1101 BETHESDA MD 20814 BRUCE R KORF PRESIDENT 3.00 3.00 X X 0 0 0 DAVID A WHITEMAN VICE PRESIDENT 2.00 0.00 X X 0 0 0 MADHIRI HEDGE SECRETARY/TREASURER 1.00 0.00 X X 0 0 0 ROBERT G BEST DIRECTOR 1.00 0.00 X 0 0 0 SARAH ELSEA DIRECTOR 1.00 0.00 X 0 0 0 PHILIP FEBBO DIRECTOR 1.00 0.00 X 0 0 0 NASHA FITTER DIRECTOR 1.00 0.00 X 0 0 0 EVAN JONES DIRECTOR 1.00 0.00 X 0 0 0 BRYNN LEVY DIRECTOR 1.00 0.00 X 0 0 0 MATTHEW RABINOWTIZ DIRECTOR 1.00 0.00 X 0 0 0 ALEKSANDAR RAJKOVIC DIRECTOR 1.00 0.00 X 0 0 0 MARC WILLIAMS EX-OFFICIO REPRESENTATIVE 1.00 5.00 X 0 0 0 ANTHONY GREGG EX-OFFICIO REPRESENTATIVE 1.00 3.00 X 0 0 0 LOUANNE HUDGINS EX-OFFICIO REPRESENTATIVE 1.00 0.00 X 0 0 0 MAXMILIAN MUENKE CHIEF EXECUTIVE OFFICER 8.00 29.50 X 412000 0 58835 MELANIE WELLS CHIEF OPERATING OFFICER 8.00 29.50 X 221205 0 31313 633205 0 90148 2 0 1 0 WALKER COURT ASSOCIATES LLP 426 11TH STREET SE WASHINGTON DC 20003 FUNDRAISING 147574 1 1499648 1499648 8181 8181 594530 514291 80239 80239 80239 ACMG ADMIN. FEES 900099 12000 12000 MISCELLANEOUS 900099 96 96 12096 1600164 0 0 100516 220067 220067 24000 24000 57869 21584 25071 11214 85134 7090 77362 682 4331 561 3563 207 4553 963 3324 266 9185 1709 6730 746 3907 3907 22861 22861 147574 147574 10019 10019 22141 399 21742 3267 2403 160 704 6106 1003 5103 12531 10799 1732 15522 15522 269 269 16000 16000 8643 8643 DUES/SUBSCRIPTIONS 11916 2598 9318 PAYROLL FEES 11311 11311 H.R. EXPENSES 2421 447 1798 176 MISCELLANEOUS 1380 1380 1016 1016 702023 297821 235798 168404 644495 242049 250000 1418342 2051 1732 47318 26102 18458 21216 1096463 2292450 1139701 138237 3151168 4114026 743949 533633 643467 643467 122065 272058 1509481 1449158 X -203870 313277 1845557 2351591 1641687 2664868 3151168 4114026 898141 125040 0 X 0 1 X 1 0 X X 1 THE AMERICAN COLLEGE OF MEDICAL GENETICS 521774227 10 1 0 0 1 0 0 1 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 PART IV, SECTION A, LINE 3B: ANNUALLY, ACMG FOUNDATION COMPLETES THE PUBLIC SUPPORT TEST FOR ACMG UNDER SECTION 509(A)(2) TO ENSURE IT SATISFIES THE PUBLIC SUPPORT REQUIREMENTS. PART I, LINE 11G(III): ACMG IS A 501(C)(6). FOR PURPOSES OF THE SUPPORTING ORGANIZATION CALCULATIONS, IT IS TESTED PURSUANT TO THE 509(A)(2) PUBLIC SUPPORT TEST. PART IV, SECTION A, LINE 3C: ACMG FOUNDATION SUPPORT TO ACMG WAS USED EXCLUSIVELY FOR SECTION 170(C)(2)(B) PURPOSES. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 85889 129139 22540 192488 2272 97261 13644 85889 2272 2272 1996 276 2272 1730 266 1996 0.99480 0.00520 0.00000 0 0 3330 3330 0 43988 22772 21216 21216 DUE TO RELATED PARTY 272058 272058 X 1715185 125040 125040 1590145 10019 10019 1600164 692004 0 692004 10019 10019 702023 PART V, LINE 4: CONTRIBUTIONS ARE RESTRICTED BY DONORS TO BE INVESTED IN PERPETUITY. INTEREST EARNED ON THE INVESTED BALANCE, WHEN RELEASED, IS USED TO SUPPORT THE GENERAL OPERATIONS OF THE FOUNDATION. PART X, LINE 2: FOR THE YEAR ENDED DECEMBER 31, 2021, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. X X X X X 1 WALKER COURT ASSOCIATES LLP 426 11TH ST SE WASHINGTON DC 20003 FUNDRAISING 0 0 147574 -147574 147574 -147574 MD 1 STANFORD UNIVERSITY 485 BROADWAY 3RD FL REDWOOD CITY CA 94063 941156365 501(C)(3) 42500 0 2021-2022 PFOZER FELLOWSHIP CHILDREN'S HOSPITAL CORPORATION 401 PARK DRIVE SUITE 602 BOSTON MA 02215 042774441 501(C)(3) 151250 0 2021-2022 PFIZER FELLOWSHIP, 2020-2021 TAKEDA FELLOWSHIPS, 2020-2021 GENZYME FELLOWSHIP UNIVERSITY OF NORTH CAROLINA PO BOX 402420 ATLANTA GA 30384 566001393 501(C)(3) 37500 0 2020-2021 TAKEDA FELLOWSHIP EMORY 615 MICHAEL STREET ATLANTA GA 30322 580566256 501(C)(3) 37500 0 2020-2021 TAKEDA FELLOWSHIP THE BOARD OF TRUSTEES OF THE UNIV OF ALABAMA AT BIRMINGHAM 701 20TH STREET SOUTH BIRMINGHAM AL 35294 636005396 501(C)(3) 14881 0 2020-2021 TAKEDA FELLOWSHIP 5 0 STIPEND AWARD 8 24000 PART I, LINE 2: GRANTS ARE REVIEWED ANNUALLY FOR FINANCIAL STATUS AND INCLUDED IN A GRANT SCHEDULE THAT RECONCILES INCOME VERSUS EXPENSES. GRANTEES FOR PFIZER AND GENZYME AWARDS HAVE TO SUBMIT REPORTS MIDWAY INTO THE REPORTING YEAR AND AT THE END OF EACH OF THE REPORTING YEARS. X X X X 0 0 0 0 0 0 0 0 0 MAXMILIAN MUENKE CHIEF EXECUTIVE OFFICER 412000 0 0 0 0 0 24721 0 34114 0 470835 0 0 0 MELANIE WELLS CHIEF OPERATING OFFICER 221205 0 0 0 0 0 12067 0 19246 0 252518 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE CHIEF FINANCIAL OFFICER. A COPY OF THE FORM 990 WAS SENT TO THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST FORMS ARE ANNUALLY COMPLETED BY ALL EMPLOYEES, DIRECTORS AND COMMITTEE MEMBERS. THE PRESIDENT AND COMMITTEE CHAIRS ASK FOR DISCLOSURES AT MEETINGS. IF A DIRECTOR HAS A DISCLOSURE, S/HE IS ASKED TO LEAVE THE ROOM DURING DISCUSSION OF A CONFLICTED ISSUE. FORM 990, PART VI, SECTION B, LINE 15A THE CEO'S SALARY IS REVIEWED EACH YEAR BY THE PRESIDENT OF THE ACMG, THE PRESIDENT OF THE ACMG FOUNDATION, AND THE IMMEDIATE PAST PRESIDENT OF ACMG. THEY RECOMMEND SALARY INCREASES TO THE BOARD OF DIRECTORS FOR APPROVAL. THE COO'S SALARY IS RECOMMENDED BY THE CEO, APPROVED BY THE THREE PRESIDENTS AND SENT FOR BOARD APPROVAL. THE BOARD APPROVES THE ENTIRE SALARY POOL FOR ACMG/ACMG FOUNDATION DURING THE BUDGET APPROVAL PROCESS EACH YEAR. THE CEO HAS A WRITTEN EMPLOYMENT CONTRACT WHICH IS SIGNED EVERY THREE TO FIVE YEARS. IN THE SALARY REVIEW PROCESS, THE EXECUTIVE COMMITTEE COMPARES THE CEO'S SALARY TO THOSE IN THE GENETICS INDUSTRY AS WELL AS TO SALARIES IN SIMILAR ORGANIZATIONS THROUGH SALARY REPORTS AND 990S. THE THREE PRESIDENTS ARE CHAIRS OF THEIR DEPARTMENTS AND/OR DEANS AND HAVE COMPARABLE SALARY INFORMATION FROM THEIR UNIVERSITIES THAT ARE ALSO USED. CORRESPONDENCE IS SENT TO ACMG/ACMG FOUNDATION'S HUMAN RESOURCE DEPARTMENT FOR FILING IN SALARY RECORDS. THE LAST COMPENSATION REVIEW TOOK PLACE IN JANUARY 2018. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS 7101 WISCONSIN AVENUE SUITE 1101 BETHESDA MD 20814 521774227 TO IMPROVE HEALTH THROUGH MEDICAL GENETICS IL 501(C)(6) N/A N/A 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS K 18738 ACTUAL AMOUNTS AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS O 5915820 ACTUAL AMOUNTS