2022-11-11T08:09:32-08:00 2021-12-31 364025026 Wieland & Company Inc 232 S Batavia Avenue Batavia IL 60510 990 2021-01-01 364378232 FOUNDATION FOR SARCOIDOSIS RESEARCH FOUN 3123410500 1820 W WEBSTER 304 CHICAGO IL 60614 Louise M Perkins PhD President 2022-11-11 true Louise M Perkins PhD 999009999 PAUL H WIELAND CPA P00326532 6304064490 0 AAL1 IAL1 FAL1 2021 2022-09-23 18:48:47Z Louise M Perkins PhD 1820 W WEBSTER 304 CHICAGO IL 60614 3038413 false X WWW.STOPSARCOIDOSIS.ORG X 2000 IL The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $6 million in sarcoidosis-specific research efforts. 12 12 11 0 1264681 1943444 73522 188396 446799 253123 470 320 1785472 2385283 343000 367055 0 575251 825887 0 246683 470946 536025 1389197 1728967 396275 656316 5212815 6004041 508376 350532 4704439 5653509 The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $6 million in sarcoidosis-specific research efforts. false false 623452 367055 188396 RESEARCH - FSR'S SMALL GRANT PROGRAM FOCUSES ON AWARDING FUNDS TO NEW OR EARLY STAGE RESEARCH ON SARCOIDOSIS. FSR'S CLINICAL STUDIES NETWORK(CSN) AND SARCONNECT PROGRAMS CONTINUED TO ENGAGE AND PARTNER WITH PHARMACEUTICAL COMPANIES THROUGH PATIENT OUTREACH AND RECRUITMENT FOR LARGE MULTI- CENTER TRIALS. BOTH PROGRAMS HELP CARRY OUT MULTIPLE STUDIES WITH FOCUS IN CARDIAC AND PULMONARY SARCOIDOSIS. FSR CONTINUED GROWING THE PATIENT REGISTRY AND MADE SIGNIFICANT PROGRESS ON THE SCOUTENDPOINTS PROJECT, IN ADDITION TO PROVIDING SERVICES AND SUPPORT TO ADVANCE SARCOIDOSIS RESEARCH AND THE MISSION OF THE ORGANIZATION. 562012 The organization approaches their mission of finding a cure for sarcoidosis and improving care for sarcoidosis patients through following major program areas: Patient Outreach and Education Programs, Physician Outreach Program and Scientific Research Agenda. In these programs, various resources and education are providing to the patient and their loved ones, navigation and network are built up to connect patients, physicians and peers of both communities. 1185464 true true false false false false false false false false true false false false true false true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false true 0 0 false 11 true false false false false false false false 0 false false false false false false false X 12 12 false false false false false false false false false false false true true true true true true true false false IL X JIM DAVIS JR 3123410500 1820 W WEBSTER CHICAGO IL 60614 Mary E McGowan CEO 40.00 0.00 X 225000 0 0 Louise M Perkins PhD President 10.00 0.00 X X 0 0 0 Craig Lipset Vice President 5.00 0.00 X X 0 0 0 Mary Cobb Secretary 5.00 0.00 X X 0 0 0 Jim Davis Jr Treasurer 5.00 0.00 X 0 0 0 Yvette Cozier Dsc MPH Director 1.00 0.00 X 0 0 0 Heidi Junk Director 1.00 0.00 X 0 0 0 Emerson Hall Jr PhD Director 1.00 0.00 X 0 0 0 Michael Kaplan Director 1.00 0.00 X 0 0 0 Jeffrey Raich Director 1.00 0.00 X 0 0 0 Leslie Serchuck MD Director 1.00 0.00 X 0 0 0 Rev Michael Walrond Jr Director 1.00 0.00 X 0 0 0 225000 1 false true false 0 1943444 1943444 Service Provided 541700 188396 188396 188396 154644 154644 0 0 0 751609 653130 98479 98479 98479 0 0 0 Merchandise Sold 453000 320 320 320 2385283 441839 367055 367055 0 0 0 225000 144620 32176 48204 0 543705 349469 77752 116484 0 0 57182 36754 8177 12251 0 22561 22561 87125 87125 0 0 26123 26123 0 510 510 6954 6954 55155 23598 12391 19166 0 53411 28842 12819 11750 1750 550 1200 0 63133 63133 0 0 10176 5495 2442 2239 5293 2858 1270 1165 Contract Services 93981 93981 Bank and Transaction Fees 31761 1162 189 30410 Printing and Publications 28879 27277 1602 Research Programs 27245 27245 21968 12915 4039 5014 1728967 1185464 296820 246683 731824 803346 0 550352 551531 0 0 0 0 0 33964 23315 30876 24078 12974 6798 3879033 4618383 0 0 4668 668 0 5212815 6004041 99880 186866 125000 112500 161492 122004 51166 508376 350532 X 3436477 3990562 1267962 1662947 4704439 5653509 5212815 6004041 656316 292754 X false true X true false X 2065871 3812061 1958614 1137781 1943444 10917771 188396 188396 0 0 0 2065871 3812061 1958614 1137781 2131840 11106167 27025 16000 34000 47062 124087 1374904 2900655 1015240 721336 6012135 1401929 2916655 1049240 768398 6136222 4969945 53630 217975 113633 446799 154644 986681 0 53630 217975 113633 446799 154644 986681 0 11027 5440 470 320 17257 2119501 4041063 2077687 1585050 2286804 12110105 0.41040 0.31310 0.08150 0.08030 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 24033 19605 4428 6843 4473 2370 6798 Agency Funds Due 51166 51166 2385283 2385283 2385283 1728967 1728967 1728967 true ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVE ALBANY NY 12208 141338310 8950 0 RESEARCH AMERICAN LUNG ASSOCIATION 55 W WACKER DRIVE CHICAGO IL 60601 131632524 24000 0 RESEARCH CLEVELAND CLINIC 6801 BRECKSVILLE RD INDEPENDENCE OH 44131 340714585 28650 0 RESEARCH JOHNS HOPKINS UNIVERSITY 3400 N Charles Street Baltimore MD 21218 520595110 150000 0 RESEARCH NATIONAL JEWISH HEALTH 1400 JACKSON STREET DENVER CO 80206 742044647 16550 0 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 29900 0 RESEARCH UNIVERSITY OF CINCINNATI 2600 CLIFTON AVENUE CINCINNATI OH 45220 316000989 17750 0 RESEARCH UNIVERSITY OF IOWA 118 S CLINTON ST IOWA CITY IA 52242 426004813 9250 0 RESEARCH UNIVERSITY OF LIVERPOOL 2nd Floor Foundation Building Liverpool UK L69 7ZX 986001335 53455 0 RESEARCH UNIVERSITY OF MINNESOTA NW 5957 PO Box 1450 Minneapolis MN 55485 416007513 25000 0 RESEARCH 11 0 Grantmaker's Description of How Grants are Used FSR HAS A WELL DOCUMENTED, THOROUGH PROGRAM FOR SOLICITATING AND EVALUATING REQUESTS FOR RESEARCH AND RESEARCH FELLOWSHIP GRANTS. THE PROCESS IS OVERSEEN BY FSR'S SCIENTIFIC ADVISORY BOARD. THEIR EVALUATIONS OF RESEARCH APPLICATIONS AND RECOMMENDATIONS FOR FUNDING ARE PRESENTED TO THE FSR GOVERNING BOARD OF DIRECTORS WHICH DETERMINES WHICH REQUESTS WILL BE FUNDED. FOR ALL MULTIYEAR FUNDING, THE COMMITMENT BEYOND THE INITIAL YEAR(S) IS CONTINGENT UPON RECEIPT AND EVALUATION BY FSR OF A SATISFACTORY ANNUAL PROGRESS REPORT. FSR REQUIRES ONGOING REPORTING PROGRESS OF RECRUITMENT/ENROLLMENT IN RESEARCH STUDIES. false false false false false false false false false Mary E McGowan CEO Form 990, Part VI, Line 11b: Form 990 Review Process THE 990 IS DISTRIBUTED TO THE BOARD FOR REVIEW AND APPROVE BEFORE BEING FILED. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts THE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED ON AN ANNUAL BASIS AS PART OF THE ORGANIZATION'S DUE DILIGENCE. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management THE BOARD OF DIRECTORS SHALL ANNUALLY REVIEW IN WRITING, THE PERFORMANCE OF THE CHIEF EXECUTIVE OFFICER (CEO) AGAINST PERFORMANCE CRITERIA THAT ARE LINKED TO THE ORGANIZATION'S LONG-TERM PLAN. THE CEO SHALL PARTICIPATE IN THE EVALUATION PROCESS AND REVIEWS, SIGNS AND RESPONDS TO THE EVALUATION BEFORE IT IS ENTERED INTO HIS OR HER RECORD. THE BOARD OF DIRECTORS SHALL ALSO REVIEW THE FAIRNESS OF THE CEO'S COMPENSATION AND BENEFITS IN RELATIONSHIP TO INDUSTRY PRACTICES AND FEDERAL REQUIREMENTS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.