2022-12-14T10:21:36-06:00 2022-02-28 873707167 CBIZ MARKS PANETH LLC 685 THIRD AVENUE NEW YORK NY 10017 990 2021-03-01 237191992 TOURETTE ASSOCIATION OF AMERICA INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 SONJA MASON-VIDAL VICE PRESIDENT, FINANCE 7182242999 2022-12-13 1 SONJA MASON-VIDAL 999009999 MAGDALENA M CZERNIAWSKI P00535099 2125038800 2022-12-13 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z SONJA MASON-VIDAL 42-40 BELL BOULEVARD BAYSIDE NY 11361 6734411 0 X TOURETTE.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 20 20 29 120 0 0 3462232 3971216 109853 67535 128371 397601 3229 17668 3703685 4454020 783533 491804 0 0 2243548 2027138 0 0 490737 1305922 1592951 4333003 4111893 -629318 342127 11623666 11736131 1681674 1455370 9941992 10280761 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. THE TOURETTE ASSOCIATION IS DEDICATED TO MAKING LIFE BETTER FOR ALL PEOPLE AFFECTED BY TOURETTE AND TIC DISORDERS. 0 0 1485660 87854 PUBLIC EDUCATION - PROVIDE EDUCATION AND AWARENESS BY RAISING PUBLIC AWARENESS AND FOSTERING SOCIAL ACCEPTANCE. EDUCATING PROFESSIONALS TO BETTER SERVE THE NEEDS OF CHILDREN, ADULTS AND FAMILIES CHALLENGED BY TOURETTE AND TIC DISORDERS. ADVOCATING FOR PUBLIC POLICIES AND SERVICES THAT PROMOTE POSITIVE SCHOOL, WORK AND SOCIAL ENVIRONMENTS. PROVIDING HELP, HOPE AND A SUPPORTIVE COMMUNITY ACROSS THE NATION. EMPOWERING OUR COMMUNITY TO DEAL WITH THE COMPLEXITIES OF THIS SPECTRUM OF DISORDERS. 868248 CENTERS OF DISEASE CONTROL PARTERSHIP- THE ASSOCIATION AND THE CDC WORK TOGETHER TO PROVIDE EXPERT EDUCTION ABOUT TOURETTE SYNDROME TO PHYSICANS AND ALLIED PROFESSIONALS AND TO ENCOURAGE PHYSICANS TO APPLY TO THE ASSOCIATION'S REFERRAL LISTS. INCLUDES PROGRAMS TO EDUCATE SCHOOLS AND COMMUNITIES ABOUT TOURETTE SYNDROME. 772777 491804 RESEARCH AND MEDICAL PROGRAMS - WORKING TO ADVANCE SCIENTIFIC UNDERSTANDING, TREATMENT OPTIONS AND CARE OPTIONS FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES, GENETICS, BEHAVIORIAL THERAPY, CLINICAL TRIALS. 19024 THE TOURETTE SYNDROME BEHAVIOR TRAINING INSTITUTE ( "TS- BTI") WAS CREATED TO EXPAND THE NUMBER OF HEALTHCARE PROFESSIONALS COMPETENTLY TRAINED IN BEHAVIOR THERAPY FOR TOURETTE SYNDROME AND OTHER TIC DISORDERS. PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 19024 3145709 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 36 0 1 29 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 0 1 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X SONJA MASON-VIDAL VP SEC & TREAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 ALICE KANE FOURTH VICE CHAIR 2.00 X X 0 0 0 AZAD ANAND MD DIRECTOR 2.00 X 0 0 0 BRUCE D OCHSMAN DIRECTOR 2.00 X 0 0 0 CHERI G DAVID CPA CVA DIRECTOR 2.00 X 0 0 0 CINDY KURTZ DIRECTOR 2.00 X 0 0 0 DANIEL MCGARVEY DIRECTOR 2.00 X 0 0 0 DAVID SCHOENHAAR FIRST VICE CHAIR 2.00 X X 0 0 0 FRED COOK DIRECTOR 2.00 X 0 0 0 JASMINE TARKOFF SECOND VICE CHAIR 2.00 X X 0 0 0 JEFFREY KRAMER THIRD VICE CHAIR 2.00 X X 0 0 0 JERRY GIDNER DIRECTOR 2.00 X 0 0 0 JOHN WALKUP MD DIRECTOR 2.00 X 0 0 0 JULIE MOELIS DIRECTOR 2.00 X 0 0 0 MONTE REDMAN DIRECTOR 2.00 X 0 0 0 PAUL S DEVORE DIRECTOR 2.00 X 0 0 0 PETER HOLLENBECK PHD DIRECTOR (OUTGOING) 2.00 X 0 0 0 RANDI ZEMSKY DIRECTOR 2.00 X 0 0 0 REID ASHINOFF DIRECTOR (OUTGOING) 2.00 X 0 0 0 ROVENA SCHIRLING DIRECTOR 2.00 X 0 0 0 SIDNEY KOCH DIRECTOR 2.00 X 0 0 0 STEPHEN BARRON CHAIR 4.00 X X 0 0 0 SUSAN COUREY PHD DIRECTOR 2.00 X 0 0 0 AMANDA TALTY PRESIDENT & CEO 40.00 X 267725 0 15688 CLAUDE SCHOFIELD VP. RESEARCH & MED (OUTGOING) 40.00 X 77079 0 16670 DIANA FELNER VICE PRES., PUBLIC POLICY 40.00 X 119817 0 49128 KARON WILLIAMS VP. RESOURCE DEV & MARKETING 40.00 X 52622 0 4855 SONJA MASON-VIDAL VP OF FINANCE & ADM. 40.00 X 132341 0 17086 TRACEY ALEXANDER VP. RESOURCE DEV (OUTGOING) 40.00 X 54314 0 6934 703898 0 110361 3 0 1 0 0 146121 1263335 2561760 3665 3971216 CONFERENCE INCOME 900099 67535 67535 67535 150754 150754 38 38 2463254 2216407 246847 246847 246847 61295 146121 63984 -2689 -2689 MISCELLANEOUS INCOME 900099 20319 20319 20319 4454020 87854 0 394950 343623 343623 148181 148181 836374 589259 145780 101335 1029367 758795 131493 139079 4617 3680 8 929 33247 17675 1763 13809 123533 91542 13767 18224 40208 40208 244351 188260 33776 22315 343986 245150 98836 440788 385106 22235 33447 54453 35557 13098 5798 153714 92935 38277 22502 28396 12629 759 15008 59176 53122 6054 14825 8388 4406 2031 48493 25443 20354 2696 RECRUITMENT & TRAINING 25723 14612 7258 3853 CHAPTER SUPPORT 24826 24826 MISCELLANEOUS 24153 23251 52 850 REGISTRATION FEES 21155 18429 993 1733 68704 65246 1220 2238 4111893 3145709 475447 490737 284017 286413 5773159 3064439 952108 662482 14184 7637 80359 117999 166004 130043 35159 35961 4434398 7512894 50282 48306 11623666 11736131 181452 284352 1079053 1151316 25992 19702 395177 1681674 1455370 X 8539124 9063123 1402868 1217638 9941992 10280761 11623666 11736131 342127 -3358 0 X X 0 1 X 1 1 1 X 6229710 4228564 3607075 3462232 3971216 21498797 6229710 4228564 3607075 3462232 3971216 21498797 2035664 19463133 144102 178745 124391 120737 150792 718767 284562 123370 101125 3185 81614 593856 22811420 521937 0.85320 0.83450 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: FUNDRAISING INCOME - 2017 AMOUNT: $ 284,562. 2018 AMOUNT: $ 123,370. 2019 AMOUNT: $ 101,125. 2021 AMOUNT: $ 61,295. MISCELLANEOUS INCOME - 2020 AMOUNT: $ 3,185. 2021 AMOUNT: $ 20,319. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 128761 0 0 1 88370 0 0 217131 0 PART I-A, LINE 1: TAA ADVOCATES TO ENSURE GOVERNMENT OFFICIALS UNDERSTAND TOURETTE SYNDROME (TS) AND TIC DISORDERS (TD) AND TO ENSURE POLICIES AND REGULATIONS BEING DRAFTED, RELEASED AND FINALIZED OR SIGNED INTO LAW ARE IN THE BEST INTERESTS OF THOSE WITH TS OR TD. WE ALSO ADVOCATE TO ENSURE ADEQUATE GOVERNMENT FUNDING IS PROVIDED FOR THE CDC TOURETTE SYNDROME PUBLIC HEALTH EDUCATION AND RESEARCH PROGRAM AND AT THE NATIONAL INSTITUTES OF HEALTH'S NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE NATIONAL INSTITUTE OF MENTAL HEALTH. 334000 140000 5146 5146 474000 334000 5518 5518 334000 334000 6521 6521 334000 326000 8000 6701 6701 334000 326000 6521 6521 326000 1.00000 1 0 166004 130043 35961 35961 X 4561570 -3358 237573 -86457 147758 4413812 40208 40208 4454020 4222801 237573 237573 3985228 40208 86457 126665 4111893 PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE PUBLIC EDUCATION (INFORMATION & REFERRAL SERVICE) PROGRAM. PART X, LINE 2: THE ASSOCIATION BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2022 AND FEBRUARY 28, 2021 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSE -86,457. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSE 86,457. 1 MIDDLE EAST AND NORTH AFRICA 0 0 PROGRAM SERVICES RESEARCH GRANT TO FURTHER TOURETTE'S MISSION 148181 0 0 0 0 0 0 148181 0 148181 MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, RESEARCH GRANT TO FURTHER RESEARCH 148181 WIRE 0 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEE IS REQUIRED TO SUBMIT ANNUAL PROGRESS REPORTS. PART III ACCOUNTING METHOD: GOLF-IL 148837 108917 39920 43741 1410 GOLF-LI 58579 37204 21375 4975 8588 600 4670 207416 146121 61295 48716 9998 600 4670 63984 -2689 1 JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE 733 N BROADWAY BALTIMORE MD 21205 520595110 501(C)(3) 149600 0 RESEARCH NYU SCHOOL OF MEDICINE 550 1ST AVE NEW YORK NY 10016 135562308 501(C)(3) 7200 0 RESEARCH TOURETTE ASSOCIATION OF AMERICA- WISCONSIN 6333 PARKVIEW ROAD GREENDALE WI 53129 462071737 501(C)(3) 9000 0 RESEARCH UNIVERSITY OF MASSACHUSETTS AMHERST 181 PRESIDENTS DRIVE AMHERST MA 01003 542084125 501(C)(3) 149589 0 RESEARCH UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE ROCHESTER NY 14642 160743209 501(C)(3) 10000 0 RESEARCH 5 PART I, LINE 2: THE ASSOCIATION MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X X X 0 0 0 0 0 0 0 0 0 AMANDA TALTY PRESIDENT & CEO 267400 0 0 0 325 0 8088 0 7600 0 283413 0 0 0 DIANA FELNER VICE PRES., PUBLIC POLICY 119502 0 0 0 315 0 3786 0 45342 0 168945 0 0 0 FORM 990, PART VI, SECTION A, LINE 3 THE ORGANIZATION DELEGATED CONTROL OVER MANAGEMENT DUTIES TO VP OF RESOURCE DEVELOPMENT & MARKETING, KARON WILLIAMS. THE ORGANIZATION PAID MISSION LEADS, INC. $49,836 FOR HER SERVICES PERFORMED DURING 2021. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW. THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER FORMALLY APPROVES THE 990. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15A THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE FOR THE OFFICERS. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT HAS NOT CHANGED FROM THE PRIOR YEAR.