2022-11-10T08:07:27-06:00 2022-06-30 420714325 RSM US LLP 1861 INTERNATIONAL DRIVE SUITE 400 MCLEAN VA 22102 990 2021-07-01 521638207 CHILDREN'S INN AT NIH INC CHIL 3014965672 7 WEST DR BETHESDA MD 20814 JENNIE LUCCA CHIEF EXECUTIVE OFFICER 3014965672 2022-11-07 1 JENNIE LUCCA XXX-XX-XXXX FREDERICK LONGWOOD P00439715 7033366400 2022-11-07 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z THE CHILDREN'S INN AT NIH INC JENNIE LUCCA 7 WEST DR BETHESDA MD 20814 137979928 0 X WWW.CHILDRENSINN.ORG X 1988 MD TO KEEP FAMILIES TOGETHER DURING ILLNESS IN A SUPPORTIVE, THERAPEUTIC & EDUCATIONAL ENVIRONMENT 20 20 57 169 0 0 5485072 6240906 734694 799310 3843531 10383460 40649 -276747 10103946 17146929 31191 15816 0 0 4217223 4344275 64800 66420 1697381 4080441 5853116 8393655 10279627 1710291 6867302 74253988 60358506 1495875 910079 72758113 59448427 X THE CHILDREN'S INN AT NIH, INC. (THE INN) IS A PRIVATE, NONPROFIT RESIDENCE FOR FAMILIES AND THEIR CHILDREN WHO ARE PARTICIPATING IN PEDIATRIC RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH'S (NIH) CLINICAL CENTER. THE INN'S MISSION IS TO FULLY AND CONSISTENTLY MEET THE NEEDS OF CHILDREN AND FAMILIES PARTICIPATING IN GROUNDBREAKING RESEARCH AT NIH, BY:- RESPONDING TO EVOLVING FAMILY SUPPORT NEEDS FROM PEDIATRIC RESEARCH AND CLINICAL CARE- PROVIDING A FREE FAMILY-CENTERED "PLACE LIKE HOME"- REDUCING THE BURDENS OF ILLNESS THROUGH THERAPEUTIC, EDUCATIONAL AND RECREATIONAL PROGRAMMING. 0 0 4556938 799310 HOUSING -THE CHILDREN'S INN AT NIH WAS FOUNDED 32 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" AT NO COST TO FAMILIES WITH CHILDREN PARTICIPATING IN CLINICAL RESEARCH STUDIES FOR THE TREATMENT OF RARE AND SEVERE DISEASES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). TODAY, THE INN SERVES CHILDREN, TEENS AND YOUNG ADULTS UP TO 30 YEARS OLD, AS WELL AS THEIR FAMILIES, ENSURING ACESS TO POTENTIALLY LIFESAVING RESEARCH AND RELATED CLINICAL CARE AT THE NIH CLINICAL CENTER. FOR MANY FAMILIES, THE COSTS OF LODGING IN THE WASHINGTON, D.C. METRO AREA WOULD BE A BARRIER TO PARTICIPATING IN CLINICAL RESEARCH WITHOUT THE INN'S FREE HOUSING. NIH SCIENTISTS WORK WITH YOUNG RESEARCH PARTICIPANTS TO PIONEER MEDICAL INNOVATIONS THAT IMPROVE THE LIVES AND SURVIVAL RATES OF YOUNG PEOPLE WORLDWIDE. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH.THE CHILDREN'S INN FEATURES ACCOMMODATIONS FOR 60 FAMILIES. WHILE MOST FAMILIES SPEND BETWEEN 1-5 NIGHTS AT THE INN PER VISIT, MANY STAY FOR WEEKS, MONTHS OR YEARS TO RECEIVE TREATMENTS SUCH AS GENE THERAPY, IMMUNE THERAPY OR BONE MARROW TRANSPLANTS THAT REQUIRE LENGTHY PREPARATION AND RECUPERATION TIMES. IN AN AVERAGE YEAR, MORE THAN 1,500 FAMILIES WILL STAY AT THE INN. FAMILIES HAVE COME FROM EVERY US STATE AND 105 FOREIGN COUNTRIES.AS A "PLACE LIKE HOME," THE INN MAKES IT POSSIBLE FOR FAMILIES TO ENGAGE IN TYPICAL EVERY DAY ACTIVITIES EASILY AND COMFORTABLY-MEAL PREPARATION, HOMEWORK, LAUNDRY, EXERCISE, AND TIME TOGETHER AS A FAMILY-WHILE ALSO PROVIDING AMPLE SPACE TO PLAY, RELAX, AND PARTICIPATE IN FUN AND EDUCATIONAL ACTIVITIES. FAMILIES HAVE ACCESS TO THREE FULLY EQUIPPED KITCHENS WITH SEPARATE REFRIGERATOR/FREEZERS AND CABINET SPACE, SHARED LIVING AND DINING ROOMS AND LAUNDRY ROOMS. COMMUNITY PANTRIES ARE STOCKED WITH FREE, NON-PERISHABLE FOODS FOR SIMPLE MEALS, AND TRANSPORTATION TO GROCERY STORES IS PROVIDED THREE TIMES A WEEK. IN ADDITION, EVERY FAMILY IS ELIGIBLE FOR GROCERY GIFT CARDS. THE CHILDREN'S INN HAS MULTIPLE INDOOR PLAY SPACES, A COMPUTER ROOM, AN EDUCATION CENTER, AND AN ART ROOM TO PLAY, LEARN, MAKE FRIENDS AND PARTICIPATE IN THE INN'S WIDE ARRAY OF RECREATIONAL, WELLNESS, AND EDUCATIONAL ACTIVITIES.THE INN'S EXERCISE ROOM PROVIDES THE CHANCE TO WORK OUT ALONE OR AS PART OF INSTRUCTOR-LED GROUP EXERCISE CLASSES. A REFLECTION SPACE PROVIDES FAMILIES A QUIET ROOM TO PRAY OR ENGAGE IN SPIRITUAL ACTIVITIES. WHEN THE WEATHER ALLOWS, THE INN'S LARGE PLAYGROUND IS THE PERFECT PLACE FOR CHILDREN TO MEET OTHER CHILDREN, WHILE THE SPORTS COURT PROVIDES THE OPPORTUNITY TO PRACTICE A VARIETY OF SPORTS. COMMUNITY BIKES, TRIKES, SCOOTERS AND OTHER EQUIPMENT ARE AVAILABLE, AND WALKING PATHS ALLOW FAMILIES TO STROLL. THE INN'S WELCOMING PHYSICAL SPACE AND ITS MANY FAMILY-CENTERED ACTIVITIES MAKE IT EASY FOR FAMILIES TO GET TO KNOW ONE ANOTHER AND FORM DEEP CONNECTIONS THAT LEAD TO LASTING, SUPPORTIVE FRIENDSHIPS REGARDLESS OF AGE OR BACKGROUND. ARRIVING AT THE INN, MAY BE THE FIRST TIME A CHILD OR TEEN MAY MEET SOMEONE WITH A SIMILAR RARE DISEASE. IN JUNE 2018, THE INN LAUNCHED ITS MULTIYEAR STRATEGIC PLAN, "#INN2025." THE PLAN'S THREE MAIN GOALS ARE:- TO IMPROVE OUR FACILITY TO BETTER SERVE FAMILIES - TO ENHANCE OUR ABILITY TO SUPPORT FAMILIES AND NIH'S RESEARCH STUDIES, AND - TO DIVERSIFY AND STRENGTHEN OUR FISCAL SUSTAINABILITY. OVER THE PAST YEAR, BOARD AND STAFF HAVE WORKED CLOSELY WITH ARCHITECTS FROM PERKINS & WILL TO ENVISION THE INN OF THE FUTURE. CONSTRUCTION IS EXPECTED TO COMMENCE IN 2024. CURRENT COST ESTIMATES ARE BETWEEN $35,000,000 AND $45,000,000. A CAPITAL CAMPAIGN IS CURRENTLY BEING LAUNCHED TO HELP FUND THE PROJECT.WHILE THE FULL IMPLEMENTATION OF THE RENOVATION AND EXPANSION ENVISIONED IN THE STRATEGIC PLAN IS STILL SEVERAL YEARS AWAY, THE INN HAS CONTINUED TO FOCUS ON THE COMFORT AND SAFETY OF THE FAMILIES CURRENTLY VISITING. DURING FY22, SEVERAL GUEST ROOMS AND THE CHILDREN'S PLAYROOM RECEIVED NEW PAINT, FLOORING, FIXTURES AND TOYS. THESE UPDATES WILL BRIDGE THE GAP FOR ROOMS SHOWING THE WEAR AND TEAR OF MANY YEARS OF USE, AND THE RENOVATION OF ALL THE GUEST ROOMS WHICH IS EXPECTED TO BE COMPLETE WITHIN 5 YEARS. DURING FY22:657 PEDIATRIC, TEEN AND YOUNG ADULT PATIENTS AND THEIR FAMILIES VISITED THE INN AND STAYED FOR 9,111 NIGHTS. DUE TO THE COVID-19 PANDEMIC, THIS IS LOWER THAN OUR TYPICAL YEAR WHEN WE SERVE MORE THAN 1,500 FAMILIES. -HOUSING COSTS TO SUPPORT THESE FAMILIES TOTALED $4,556,938. -ADDITIONAL IN-KIND SUPPORT THROUGH PARTNERSHIPS WITH THE NIH, CORPORATE SPONSORS, AND INDIVIDUALS TOTALED $2,424,258. -THE INN WAS SUPPORTED BY A DEDICATED GROUP OF VOLUNTEERS WHO GAVE519 HOURS OF SERVICE WITH AN ESTIMATED VALUE OF $15,544 -THE TOTAL COSTS OF HOUSING SERVICES WAS $6,996,740.ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. WHILE WE ARE CONTINUING TO RETURN TO PRE-COVID ACTIVITIES, THROUGH FY22 THE INN HAS MAINTAINED MANY OF THE CHANGES THAT WERE PREVIOUSLY PUT IN PLACE. THESE CHANGES INCLUDE:-MANDATORY MASK USAGE, SOCIAL DISTANCING AND HEALTH SCREENING.-LIMITED ONSITE VOLUNTEERS AND VISITORS ARE ALLOWED BASED ON ORGANIZATIONAL NEEDS.-SUSPENSION OF GROCERY STORE TRIPS -INSTEAD, INN STAFF CONTINUE TO COORDINATE GROCERY DELIVERIES FOR FAMILIES. -TO REPLACE THE MEALS DONATED TO FAMILIES WEEKLY BY COMMUNITY GROUPS, THE INN CONTINUES TO PURCHASE AND COORDINATE THE DELIVERY OF INDIVIDUALLY PACKAGED MEALS DAILY.-FAMILIES RESERVE A TIME TO COOK IN EACH OF THE KITCHENS TO PRACTICE SAFE DISTANCING.-IN FY2022 ADDITONAL SOCIALLY DISTANCED OFFSITE ACTIVITIES WERE RE-INSTATED ALLOWING FAMILIES TO PARTICIPATE. THE INN ALSO HOLDS OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS.-THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED. 2294953 15816 RESIDENT SERVICES - IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH. THROUGH THE FAMILY SUPPORT PROGRAM, THE INN AIMS TO MEET THE VARIOUS NEEDS OF FAMILIES WHO ARE STAYING WITH US BY DEVELOPING AND IMPLEMENTING THERAPEUTIC, RECREATIONAL AND EDUCATIONAL PROGRAMS. KEEPING FAMILIES TOGETHER IS CRUCIAL FOR THEIR HEALTH AND WELL-BEING, ESPECIALLY WHEN FACED WITH A CHILD'S RARE AND SERIOUS ILLNESS. THESE ACTIVITIES NOT ONLY PROVIDE ENTERTAINMENT BUT ALSO HELP FOSTER LASTING RELATIONSHIPS WITH OTHER FAMILIES, CREATING THE INN'S UNIQUE NURTURING AND SUPPORTIVE COMMUNITY.THE INN'S ENVIRONMENT SUPPORTS FAMILY LIFE AND MEETS EVERYDAY NEEDS SUCH AS COOKING A CHILD'S FAVORITE MEAL, SPENDING QUALITY TIME TOGETHER OUTSIDE THE HOSPITAL, AND PARTICIPATING IN RECREATIONAL ACTIVITIES TOGETHER. IN THIS ERA OF PHYSICAL DISTANCING DUE TO THE COVID-19 PANDEMIC, THE HEALTH AND SAFETY OF OUR FAMILIES REMAINS OUR TOP PRIORITY. ALL ACTIVITIES ARE DESIGNED TO BE INCLUSIVE, SO THAT EACH RESIDENT FEELS A SENSE OF BELONGING, SAFETY, CARE AND, MOST IMPORTANTLY, HAS FUN. WHETHER IT BE THROUGH A RELAXING YOGA SESSION, MOVIE NIGHT ON THE PLAYGROUND, OR A SAILING TRIP AROUND CHESAPEAKE BAY, OUR WIDE RANGE OF ACTIVITIES OFFER FAMILIES A CHANCE TO SIMPLY ENJOY THEMSELVES.THE INN'S EDUCATIONAL PROGRAMS SUPPORT THE PATIENT AND THEIR SIBLINGS WITH SCHOOLWORK AND GROUP ACTIVITIES. CHILDREN CAN BE MATCHED WITH INDIVIDUAL TUTORS BASED ON THEIR EDUCATIONAL NEEDS AND LANGUAGE PREFERENCES. EDUCATIONAL ACTIVITIES INCLUDE LEARNING ABOUT TECHNOLOGY OR MEETING CHILDREN'S BOOK AUTHORS WHO LEAD LIVELY DISCUSSIONS ABOUT THE FUN OF READING AND WRITING STORIES. SPECIAL ACTIVITIES FOR PATIENTS AND THEIR SIBLINGS INCLUDE:- CAMP INNCREDIBLE: ALLOWS CHILDREN TO PARTICIPATE IN TYPICAL CAMP ACTIVITIES DURING THE SUMMER MONTHS. RECENTLY, THE INN ADDED CAMP ACTIVITIES FOR TEENS ANDACTIVITIES DURING SPRING AND WINTER SCHOOL BREAKS. - SIBLING DAY: PROVIDES THE CHANCE FOR SIBLINGS TO LEARN ABOUT THE MEDICAL PROCEDURES THEIR SICK SIBLING MAY UNDERGO AND RECOGNIZES THEM AS "SUPER SIBS" FOR THEIR MANY IMPORTANT CONTRIBUTIONS TO THEIR FAMILIES.THE CHILDREN'S INN PROVIDES SUPPORT AND ACTIVITIES FOR OUR TEEN AND YOUNG ADULT RESIDENTS. THE TEEN AND YOUNG ADULT LOUNGE IS DESIGNED FOR AGES 13 AND OLDER TO HAVE THEIR OWN SPACE TO PLAY BOARD AND VIDEO GAMES, READ, STUDY, PARTICIPATE IN ORGANIZED GROUP DISCUSSIONS OR GATHER BEFORE OUTINGS TO LOCAL RESTAURANTS, LIVE CONCERTS AND SHOWS. THE CHANCE TO GET TO KNOW, SOCIALIZE AND MAKE FRIENDS WITH PEERS OF THE SAME AGE FACED WITH CHRONIC OR LIFE-THREATENING DISEASES IS WELCOMED BY OUR YOUNG PEOPLE WHO TYPICALLY HAVE NEVER HAD THE CHANCE TO MEET OTHERS FACED WITH SIMILAR, RARE HEALTH CHALLENGES. EACH YEAR, THE INN PROVIDES TWO DAYS OF SPECIAL ACTIVITIES FOR OUR TEEN RESIDENTS PARTICIPATING IN THE "TEEN RETREAT."THE CHILDREN'S INN IS EXPANDING PROGRAMS AND ACTIVITIES FOR OUR YOUNG ADULTS WHO OFTEN HAVE NOT HAD THE CHANCE TO DEVELOP INDEPENDENT LIVING SKILLS TO THE SAME DEGREE AS THEIR HEALTHY PEERS.. IN 2024, THE INN PLANS TO OPEN A SECOND BUILDING LOCATED DIRECTLY ACROSS THE STREET, WHICH WILL PROVIDE HOUSING DESIGNED FOR OUR YOUNG ADULTS, AGES 18-30. CAREGIVER GATHERINGS LED BY THE CLINICAL CENTER'S NON-DENOMINATIONAL CHAPLAIN PROVIDE PARENTS, GRANDPARENTS AND OTHERS WITH THE CHANCE TO ENGAGE IN DISCUSSIONS, SING SONGS TOGETHER AND EXPLORE THEIR SPIRITUALITY. MANY CAREGIVERS REPORT THEY FIND SOLACE AND INSPIRATION IN CONVERSATIONS WITH THE CHAPLAIN AND OTHER FAMILIES. HAVING THE OPPORTUNITY TO EXPRESS AND DISCUSS THE DIFFICULTIES OF THEIR SITUATION STRENGTHENS FAMILIES' BONDS AND THE INN'S NURTURING COMMUNITY. EXERCISE IS ANOTHER MEANINGFUL WAY FOR CAREGIVERS TO PRACTICE SELF-CARE. THE INN'S EXERCISE ROOM PROVIDES WEIGHTS AND CARDIAC EQUIPMENT FOR AN EASY WAY TO STAY IN SHAPE AND DE-STRESS. THE INN OFFERS FREE FITNESS CLASSES TAUGHT BY CERTIFIED TRAINERS THREE TIMES A WEEK. THE INN'S STAFF PROVIDES A WIDE RANGE OF RECREATIONAL FIELD TRIPS TO TOURIST ATTRACTIONS, LOCAL MUSEUMS, ART STUDIOS, SPORTING EVENTS, RESTAURANTS, CONCERTS, MUSICALS AND OTHER FAMILY-FRIENDLY PERFORMANCES. ACTIVITIES FOR THE ENTIRE FAMILY INCLUDE: - CHRISTMAS IN JULY IS A SPECIAL SUMMERTIME VISIT FROM SANTA WHO BRINGS GIFTS AND SURPRISES FOR THE WHOLE FAMILY. -HOLIDAY DECORATIONS AND VISITS FROM SANTA AND THE ELVES, TRANSFORM THE INN INTO A MAGICAL PLACE DURING DECEMBER. EVERY CHILD AND FAMILY MEMBER CAN WRITE SANTA A WISH LIST, AND SANTA AND HIS ELVES ENSURE WISHES ARE FILLED TO THE BEST EXTENT POSSIBLE. MEALS SERVED BY VOLUNTEERS OR INN STAFF ALLOW FAMILIES THE CHANCE TO FOCUS ON THEIR CHILD AND THEIR HEALTH RATHER THAN COOK AFTER LONG DAYS OF TRAVEL OR MEDICAL APPOINTMENTS. TO SUPPORT FAMILIES, VOLUNTEERS AND COMMUNITY GROUPS SERVE BREAKFAST MOST DAYS AND DINNERS MOST NIGHTS OF THE WEEK, AS WELL AS SUNDAY BRUNCH. RECENTLY, THE INN BEGAN SERVING LUNCH TO SUPPORT FAMILIES FURTHER AND OFFER THEM AN ADDITIONAL MEAL, FREE OF CHARGE. WE ALSO INCLUDE MEAL OPTIONS FOR VARIOUS DIETARY RESTRICTIONS AND MEET STRICT FOOD STANDARDS FOR OUR TRANSPLANT PATIENTS. THE EXPANDED OPTIONS INCLUDE GLUTEN-FREE, FAT-FREE AND DAIRY-FREE MEALS, FRESH FRUIT AND VEGETABLES AND VEGETARIAN OPTIONS. SHARED MEALS BRING FAMILIES TOGETHER WHERE THEY CAN MEET ONE ANOTHER AND BOND. INTERNATIONALLY THEMED DINNERS ORGANIZED BY OUR STAFF PROVIDE THE OPPORTUNITY FOR FAMILIES FROM DIFFERENT COUNTRIES AND CULTURES TO SHARE THEIR NATIONAL DISHES AND CELEBRATE THEIR CULTURES WITH OUR COMMUNITY OF RESIDENTS.FOR FAMILIES WISHING TO COOK, NON-PERISHABLE ITEMS FOR QUICK MEALS ARE PROVIDED FREE OF CHARGE IN OUR KITCHENS' COMMUNITY PANTRIES. OUR TEAM ORGANIZES TRIPS TO THE GROCERY STORE THREE TIMES A WEEK AND PROVIDES GROCERY GIFT CARDS TO FAMILIES. OUR KITCHENS HAVE INDIVIDUAL REFRIGERATORS/FREEZERS AND PANTRY SPACE FOR EASY, HYGIENIC FOOD STORAGE.TO HELP NON-ENGLISH-SPEAKING FAMILIES, TUTORING IS AVAILABLE FREE OF CHARGE. MULTILINGUAL STAFF AND PHONE-ACCESSIBLE TRANSLATION SERVICES ARE ALWAYS AVAILABLE TO HELP FAMILIES COMMUNICATE. A GROUP OF DEDICATED VOLUNTEERS SUPPORTS THE INN'S STAFF BY MANAGING THE WELCOME DESK, CHECKING FAMILIES IN AND OUT OF THE INN, STOCKING THE KITCHENS, ORGANIZING IN-KIND DONATIONS AND OFFERING INFORMATION TO FAMILIES ABOUT LOCAL CULTURE AND TOURIST ATTRACTIONS, PUBLIC TRANSPORTATION AND MORE. IN FY2022, -1,085 RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES FOR CHILDREN, TEENS, YOUNG ADULTS AND THEIR CAREGIVERS WERE OFFERED - RESIDENT SUPPORT SERVICES COSTS TOTALED:$2,294,953 - ADDITIONAL IN-KIND SUPPORT TOTALED: $548,467 - VOLUNTEERS PROVIDED 3,076 HOURS OF SERVICE, VALUED AT: $92,126 - TOTAL MANAGED EFFORT RESIDENT SERVICES AND FAMILY PROGRAMS WAS: $2,935,546. 6851891 1 1 0 0 0 0 0 0 0 1 1 1 0 0 0 1 1 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 28 0 1 57 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OK OR PA RI SC TN UT VA WV WI ND X X JEAN BUERGLER 3014965672 7 WEST DR BETHESDA MD 20814 SUSAN PENFIELD CHAIR 4.00 X X 0 0 0 PORTER SHIFFLETT VICE CHAIR 2.00 X X 0 0 0 PRACHEE DEVADAS SECRETARY 2.00 X X 0 0 0 LIZ WURSTER TREASURER 2.00 X X 0 0 0 BRIAN KELLY DIRECTOR 1.00 X 0 0 0 MATT BELL PHD DIRECTOR 1.00 X 0 0 0 BETH MALONEY DIRECTOR 1.00 X 0 0 0 LOIS ALPERSTEIN DIRECTOR 1.00 X 0 0 0 DIANA ARAOZ-FRASER DIRECTOR 1.00 X 0 0 0 TIMOTHY J ATKIN DIRECTOR THRU 10/7/21 1.00 X 0 0 0 LATESE BRIGGS DIRECTOR THRU 2/17/22 1.00 X 0 0 0 WILLIAM L DAHUT PHD DIRECTOR 1.00 X 0 0 0 ERIN DARLING JD DIRECTOR 1.00 X 0 0 0 CHRISTINE GRADY MSN PHD DIRECTOR 1.00 X 0 0 0 PHILIPIA HILLMAN PHD DIRECTOR 1.00 X 0 0 0 BETH MEAGHER DIRECTOR 1.00 X 0 0 0 KAMAL NARANG DIRECTOR 1.00 X 0 0 0 JILL OLMSTEAD DIRECTOR 1.00 X 0 0 0 KRISTINE RIBAS DIRECTOR 1.00 X 0 0 0 RYAN A RIEL DIRECTOR THRU 10/7/21 1.00 X 0 0 0 SCOTT ROYAL PH D DIRECTOR 1.00 X 0 0 0 SCOTT VOGEL DIRECTOR 1.00 X 0 0 0 DANIEL L WEAVER CPA DIRECTOR 1.00 X 0 0 0 JENNIFER LUCCA CHIEF EXECUTIVE OFFICER 40.00 X 279185 0 53898 VEDA BUERGLER SR. DIRECTOR OF FINANCE 40.00 X 143201 0 23204 FERN STONE CHIEF DEVELOPMENT & COMMUNICATIONS OFFICER 40.00 X 239428 0 33874 TAMMY PINSON CHIEF OPERATING OFFICER 40.00 X 170496 0 48051 CATHY MORALES CHIEF PROGRAM & SVCS OFFICER 40.00 X 150964 0 14478 AMIR BAHMANI DIRECTOR, INFORMATION TECHNOLOGY 40.00 X 145020 0 5913 LIZA COLE DIR, LEADERSHIP & LEGACY GIVING 40.00 X 121807 0 42935 RICHARD SAUNDERS INFORMATION TECHNOLOGY MANAGER 40.00 X 121566 0 13008 ANNE MANDEVILLE SR. DIR, STRATEGIC P'ASHIP & DEV. OPS THRU 2/28/22 40.00 X 119585 0 12797 BRYNE OWEN-DEATRY DIR, MKTG & COMMUNICATIONS THRU 5/25/22 40.00 X 106356 0 23809 1597608 0 271967 10 0 1 0 CROTHALL HEALTHCARE 13028 COLLECTION CENTER DRIVE CHICAGO IL 60693 HOUSEKEEPING SERVICES 746599 ANTHONY WILDER DESIGN BUILD 7913 MACARTHUR BLVD CABIN JOHN MD 20818 ARCHITECTURAL & CONSTRUCTION SERVICES 580561 CALLISONRTKL INC 901 SOUTH BOND ST BALTIMORE MD 21231 ARCHITECTURAL & CONSTRUCTION 385702 RSM US LLP 5155 PAYSPHERE CIRCLE CHICAGO IL 60674 PROFESSIONAL SERVICES & AUDIT 234209 FUSE FUNDRAISING 12110 SUNSET HILLS ROAD STE 600 RESTON VA 20190 FUNDRAISING SERVICES 184707 9 89408 1520500 660840 3970158 317052 6240906 PATIENT LODGING 900099 799310 799310 799310 409769 409769 130409854 120421150 15013 9988704 -15013 9973691 9973691 116840 1520500 396836 -279996 -279996 OTHER REVENUE 900099 3249 3249 3249 17146929 799310 0 10106713 15816 15816 1182581 452909 409151 320521 2367439 1325070 515703 526666 204501 108485 47805 48211 351087 193681 82252 75154 238667 123093 61309 54265 6981 6981 33000 33000 66420 66420 193734 193734 391914 360193 27141 4580 529469 121165 22127 386177 132575 11860 45826 74889 365756 161571 138143 66042 56704 55343 454 907 4610 2492 1040 1078 801885 698714 72202 30969 36936 9242 23654 4040 FACILITIES & EQUIP MAIN 1432491 1419237 4418 8836 CLEANING 785586 767606 5993 11987 RESIDENT FAMILY PROGRAM 726574 726574 RESIDENT SUPPLIES & EXP 283821 282423 769 629 71080 16417 38653 16010 10279627 6851891 1730355 1697381 X 245123 96174 22319 126630 12633 3958 4985089 2961538 214877 338175 128181 51430 14229 35116 99418 74860 15471181 11180626 4490830 4290555 64308731 3738443 48864431 74253988 60358506 835035 910079 660840 0 1495875 910079 X 31010208 23147114 41747905 36301313 72758113 59448427 74253988 60358506 6867302 -20176988 0 X 0 1 X 1 0 X 5267008 5094027 6256363 5731328 6240906 28589632 2778247 2796161 2823175 2862113 3157919 14417615 8045255 7890188 9079538 8593441 9398825 43007247 43007247 1666624 3020976 1361082 899033 409769 7357484 196 526361 9049 4483 3249 543338 50908069 4018020 0.84480 0.82940 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2017 AMOUNT: $ 196. 2018 AMOUNT: $ 5,222. 2019 AMOUNT: $ 9,049. 2020 AMOUNT: $ 4,483. 2021 AMOUNT: $ 3,249. INSURANCE CLAIMS - 2018 AMOUNT: $ 521,139. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 39018355 1507 -4431516 34588346 32377872 194789 6445694 39018355 30854553 468814 1054505 32377872 28852173 186660 1850865 35145 30854553 26494725 928217 1452751 23520 28852173 0.82110 0.17890 0 0 11178143 8276924 2901219 3866598 2864384 1002214 426440 39318 387122 4290555 ALTERNATIVE 48864431 F 48864431 X 330962 -20176988 3157919 -17019069 17350031 193734 -396836 -203102 17146929 13640648 3157919 396836 3554755 10085893 193734 193734 10279627 PART V, LINE 4: THE INN HOLDS VARIOUS PERMANENTLY RESTRICTED ENDOWMENTS, WHICH ARE DESCRIBED AS FOLLOWS: SANOFI AVENTIS LEGACY FUND - THIS FUND WAS ESTABLISHED IN 2008 TO SUPPORT THE NEEDS OF CHILDREN AND FAMILIES RECEIVING MEDICAL CARE AT THE NIH. THE MERCK COMPANY FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1996 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. THE WEINBERG FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1993 THROUGH RESTRICTED CONTRIBUTIONS FROM DONORS TO SUBSIDIZE VARIOUS PROGRAMS AND SERVICES FOR TEMPORARY RESIDENTS AND VISITORS OF THE INN. THE JOYCE A. JENKINS ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2006 TO SUPPORT THE NEEDS OF CHILDREN AND THEIR FAMILIES RECEIVING MEDICAL CARE AT THE NIH. GENERAL ENDOWMENT FUND - THE PURPOSE OF THIS FUND IS TO PROVIDE INVESTMENT INCOME TO BE USED FOR OPERATING EXPENSES. ROBERT JAMES FITZGERALD ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. AFCEA ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO ENSURE THAT CHILDREN AND THEIR FAMILIES RECEIVE THE UTMOST CARE AND COMFORT DURING THEIR STAY AT THE INN. ROSE AND HAROLD KRAMER ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2007 TO RAISE FUNDS TO PROVIDE SERVICES TO CHILDREN AND/OR FOR RESEARCH PURPOSES. OTHER - USED FOR DESIGNATED PURPOSE OR, IF NO SPECIAL PURPOSE WAS SPECIFIED, FOR GENERAL OPERATING EXPENSES. PART X, LINE 2: THE INN IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE (IRC) SECTION 501(A) AS AN ORGANIZATION DESCRIBED IN IRC SECTION 501(C)(3) AND, THEREFORE, QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION. THE INN HAS BEEN DETERMINED NOT TO BE A PRIVATE FOUNDATION UNDER IRC SECTIONS 509(A)(1) AND 170(B)(1)(A)(VI). THE INN IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) WITH THE INTERNAL REVENUE SERVICE (IRS). IN ADDITION, THE INN IS SUBJECT TO INCOME TAX ON NET INCOME DERIVED FROM BUSINESS ACTIVITIES THAT ARE UNRELATED TO ITS EXEMPT PURPOSE. HOWEVER, MANAGEMENT HAS DETERMINED THAT THE INN IS NOT SUBJECT TO UNRELATED BUSINESS INCOME TAX. THEREFORE, THAT HAS NOT FILED AN EXEMPT ORGANIZATION BUSINESS INCOME TAX RETURN (FORM 990-T) WITH THE IRS. PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED IN PART VIII LINE 8 -396,836. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED IN PART VIII LINE 8 396,836. X 1 FUSE FUNDRAISING 12110 SUNSET HILLS RD STE 600 RESTON VA 20190 PLANNING/PROGRAM MGMT OF FUNDRAISING CAMPAIGNS & DIRECT MAIL 0 1226553 66420 1160133 1226553 66420 1160133 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY HOPE GALA 1403873 1342223 61650 770 126786 84698 5910 78127 GOLF TOURNAMENT 162870 128670 34200 1200 6638 598 15965 25010 16075 1 70597 49607 20990 4777 19481 4698 1082 5021 1637340 1520500 116840 1200 12185 146865 105361 32002 99223 396836 -279996 1 TUITION 8 10867 EMERGENCY ASSISTANCE TO RESIDENTS 3 4949 PART I, LINE 2: GENERALLY, THE INN PAYS EXPENSES DIRECTLY TO GOODS AND SERVICE PROVIDERS ON BEHALF OF THE RECIPIENTS, AND THEREFORE, DOES NOT NEED TO MONITOR THE USE OF GRANT FUNDS. IF A GRANT IS MADE DIRECTLY TO A RESIDENT OR FAMILY MEMBER, THE RECIPIENT MUST PROVIDE PROOF OF PAYMENT FOR THE GOODS OR SERVICES FOR WHICH THE GRANT WAS INTENDED. X X X X X 0 0 0 0 0 0 0 1 0 JENNIFER LUCCA CHIEF EXECUTIVE OFFICER 237616 0 41299 0 270 0 26156 0 28974 0 334315 0 0 0 FERN STONE CHIEF DEVELOPMENT & COMMUNICATIONS O 230142 0 7000 0 2286 0 23612 0 11494 0 274534 0 0 0 TAMMY PINSON CHIEF OPERATING OFFICER 162506 0 7000 0 990 0 17559 0 31724 0 219779 0 0 0 VEDA BUERGLER SR. DIRECTOR OF FINANCE 129239 0 4000 0 9962 0 13442 0 10863 0 167506 0 0 0 CATHY MORALES CHIEF PROGRAM & SVCS OFFICER 142356 0 7000 0 1608 0 14478 0 1154 0 166596 0 0 0 LIZA COLE DIR, LEADERSHIP & LEGACY GIVING 118552 0 3075 0 180 0 12443 0 31561 0 165811 0 0 0 AMIR BAHMANI DIRECTOR, INFORMATION TECHNOLOGY 142215 0 2000 0 805 0 2345 0 4581 0 151946 0 0 0 PART I, LINE 7 ALL BONUSES RECEIVED BY OFFICERS, KEY EMPLOYEES AND HIGHEST COMPENSATED EMPLOYEES LISTED IN FORM 990, PART VII WERE BASED ON AN APPRAISAL OF HIS/HER PERFORMANCE. 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