2022-11-14T12:24:03-06:00 2021-12-31 366055558 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2021-01-01 136193105 CROHN'S & COLITIS FOUNDATION INC CROH 8009322423 733 THIRD AVENUE 510 NEW YORK NY 10017 MICHAEL OSSO PRESIDENT/ CEO 8009322423 2022-11-14 1 MICHAEL OSSO XXX-XX-XXXX SCOTT THOMPSETT P00741490 2125990100 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z MICHAEL OSSO 733 THIRD AVENUE NEW YORK NY 10017 89411482 0 X WWW.CROHNSCOLITISFOUNDATION.ORG X 1967 NY TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O) 24 24 376 5547 0 0 68767470 70238703 5393731 6695152 1180691 601277 878150 491890 76220042 78027022 27621536 27571371 0 0 32264832 32709531 467660 577867 5180316 15316089 17464787 75670117 78323556 549925 -296534 55619176 57664028 44552683 46264034 11066493 11399994 X FOR MORE THAN FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O). 0 0 34502229 27571371 6685311 SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $450 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 160,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD. 28528909 9841 THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF IBD PATIENTS AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL. WEBCASTS, SUPPORT GROUPS, IBD HELP CENTER, AND PRINTED MATERIALS PROVIDE ACCURATE AND UP-TO-DATE INFORMATION. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL WORKSHOPS, AND ITS ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN A RECENT IMPACT STUDY, OVER 70% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED ON SCHEDULE O)IN 2021 THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY WITH IBD, AND EDUCATE PEOPLE EXPERIENCING SYMPTOMS ABOUT THE IMPORTANCE OF SEEING A SPECIALIST TO GET DIAGNOSED FASTER AND REDUCE SUFFERING. 63031138 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 303 0 1 376 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 24 24 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI DE X X X JAIME BLANDA 6469437437 733 THIRD AVENUE NEW YORK NY 100178804 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 35.00 0.00 X X 587399 0 90617 ALESSANDRO DINELLO TREASURER (AS OF 03/2021) 1.00 0.00 X X 0 0 0 ALEX FUNDERBURG TRUSTEE 1.00 0.00 X 0 0 0 AMBER BACKHAUS TRUSTEE 1.00 0.00 X 0 0 0 REP ANDER CRENSHAW TRUSTEE 1.00 0.00 X 0 0 0 ANDREW STERN ESQ SECRETARY (THRU 03/2021) 1.00 0.00 X X 0 0 0 ANNETTE MARTINEZ TRUSTEE (AS OF 03/2021) 1.00 0.00 X 0 0 0 ARMIN RAHMANIAN TRUSTEE (AS OF 03/2021) 1.00 0.00 X 0 0 0 BRENT POLK MD CHAIRMAN (AS OF 03/2021) 1.00 0.00 X X 0 0 0 CHRISTOPHER COLLETTE TRUSTEE (THRU 03/2021) 1.00 0.00 X 0 0 0 DAVID RUBIN MD NSAC CHAIR (AS OF 03/2021) 1.00 0.00 X X 0 0 0 DEBORAH CRAWFORD TRUSTEE 1.00 0.00 X 0 0 0 DONALD KORTZ TRUSTEE (THRU 07/2021) 1.00 0.00 X 0 0 0 FRANK RUSSOMANO TRUSTEE 1.00 0.00 X 0 0 0 JASON BURR TRUSTEE (THRU 03/2021) 1.00 0.00 X 0 0 0 JEFFREY MITTLEMAN TRUSTEE (AS OF 03/2021) 1.00 0.00 X 0 0 0 JENNIFER O'NEILL TRUSTEE (THRU 03/2021) 1.00 0.00 X 0 0 0 JODI YELLEN SECRETARY 1.00 0.00 X X 0 0 0 JOE MONK TRUSTEE 1.00 0.00 X 0 0 0 JOEL ROSH MD TRUSTEE 1.00 0.00 X 0 0 0 JOHN CROSSON CHAIRMAN (THRU 03/2021) 1.00 0.00 X X 0 0 0 MARCY BETH NANUS TRUSTEE 1.00 0.00 X 0 0 0 MARK MURRAY PHD TRUSTEE 1.00 0.00 X 0 0 0 MEENA BEWTRA TRUSTEE 1.00 0.00 X 0 0 0 MICHELE KISSOUS-HUNT TRUSTEE 1.00 0.00 X 0 0 0 NOEL BROWN TRUSTEE 1.00 0.00 X 0 0 0 RHONDA BOLDING TRUSTEE 1.00 0.00 X 0 0 0 ROBERT VAN PULLEY TREASURER (THRU 03/2021) 1.00 0.00 X X 0 0 0 SEAN KELLEY TRUSTEE 1.00 0.00 X 0 0 0 TOLULOPE FALAIYE MD TRUSTEE 1.00 0.00 X 0 0 0 TROY VOLLERTSEN TRUSTEE 1.00 0.00 X 0 0 0 SHELBY MODELL CO-FOUNDER/TRUSTEE 1.00 0.00 X 0 0 0 ROBERT TERRITO CFO/COO 35.00 0.00 X 296257 0 24960 CAREN HELLER CHIEF SCIENCE OFFICER 35.00 0.00 X 388803 0 17400 ROHIT SURI CHIEF TECHNOLOGY OFFICER 35.00 0.00 X 272418 0 23637 MICHAEL ELKOW CHIEF FIELD OFFICER 35.00 0.00 X 261144 0 25085 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 35.00 0.00 X 249186 0 14319 JOHN MICHAEL MIZE EVP, BUSINESS DEVELOPMENT 35.00 0.00 X 231034 0 14027 JUDY HOFFSTEIN CHIEF MARKETING & COMMUNICATIONS OFFICER 35.00 0.00 X 238326 0 27736 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 35.00 0.00 X 181454 0 10615 LAURA WINGATE EVP, EDUCATION, SUPPORT & ADVOCACY 35.00 0.00 X 201343 0 14018 RONALD GOLDSMAN SVP, FINANCE 35.00 0.00 X 188574 0 12093 ANTHONY LEON SVP, IT 35.00 0.00 X 186532 0 25790 MARISSA MAYER CHIEF LEGAL OFFICER 35.00 0.00 X 184518 0 19931 3466988 0 320228 67 0 1 0 DELOITTE CONSULTING LLP 4022 BELLE DRIVE HERMITAGE TN 37076 IT SUPPORT FOR IBD PLEXUS 1337594 NAGARRO INC 1737 N FIRST STREET SUITE 590 SAN JOSE CA 95112 PROJECT SUPPORT 983976 BLACKBAUD PO BOX 930256 ATLANTA GA 311930256 DONOR DATABASE 914222 SALESFORCECOM INC 415 MISSION STREET 3RD FLOOR SAN FRANCISCO CA 94105 SALESFORCE PLATFORM TRANSFER 785426 CHAPMAN CUBINE AND HUSSEY INC 2000 15TH STREET NORTH SUITE 550 ARLINGTON VA 22201 MARKETING CONSULTANTS 577867 30 X 1337175 25249968 6393325 37258235 511238 70238703 IBD PLEXUS DATABASE AC 900099 6685311 6685311 EDUCATION & CAMP REGIS 900099 9841 9841 6695152 298743 298743 486445 486445 7536495 7233961 302534 302534 302534 3518883 25249968 4024176 -505293 -505293 631617 126323 505294 505294 MISCELLANEOUS INCOME 900099 5444 5444 5444 78027022 6695152 0 1093167 X 25715354 25715354 1856017 1856017 2762346 1900115 570150 292081 21896037 15061470 4519353 2315214 996413 685396 205660 105357 3325820 2287708 686451 351661 3728915 2564982 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785188 3885234 7441563 8568811 8185352 2853979 4189580 31239285 379022009 23737283 0.85920 0.82040 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GROSS INCOME FROM FUNDRAISING ACTIVITY - 2017 AMOUNT: $ 6,790,328. 2018 AMOUNT: $ 7,371,177. 2019 AMOUNT: $ 6,822,830. 2020 AMOUNT: $ 1,976,400. 2021 AMOUNT: $ 3,518,883. GROSS INCOME FROM GAMING ACTIVITY - 2017 AMOUNT: $ 335,533. 2018 AMOUNT: $ 245,140. 2019 AMOUNT: $ 493,196. 2020 AMOUNT: $ 491,848. 2021 AMOUNT: $ 631,617. MISCELLANEOUS - 2017 AMOUNT: $ 299,705. 2018 AMOUNT: $ 892,774. 2019 AMOUNT: $ 827,420. 2020 AMOUNT: $ 76,393. 2021 AMOUNT: $ 11,659. VEHICLE DONATION PROGRAM - 2017 AMOUNT: $ 13,497. 2018 AMOUNT: $ 57,422. 2019 AMOUNT: $ 41,745. 2020 AMOUNT: $ 23,225. 2021 AMOUNT: $ 27,421. CLUBS AND ORGANIZATIONS - 2017 AMOUNT: $ 2,500. 2018 AMOUNT: $ 2,298. 2019 AMOUNT: $ 161. 2021 AMOUNT: $ 0. IBD JOURNAL EDITORIAL STIPENDS - 2020 AMOUNT: $ 232,480. 2021 AMOUNT: $ 0. REBATES/REFUNDS - 2020 AMOUNT: $ 53,633. 2021 AMOUNT: $ 0. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 1 0 0 1 138155 0 1 149010 287165 0 PART II-B, LINE 1: (I) IN 2021, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2021, EXPENSES INCURRED TOTALLED $149,010. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2021 WERE $89,513. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED VIRTUALLY DURING THE CALENDAR YEAR 2021, FOR WHICH EXPENSES INCURRED WERE $48,642. EXPENDITURES OF $48,642 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $48,642 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING). 506460 357744 148716 2375157 2019989 355168 4844579 3651721 1192858 1696742 REINSURANCE CONTRACTS 227176 DEFERRED RENT 180232 PAYCHECK PROTECTION PROGRAM FORGIVABLE LOAN 2000000 2407408 X 84145523 961786 5158533 -1818 6118501 78027022 0 78027022 83812022 5158533 329933 5488466 78323556 0 78323556 PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE "CODE") AND HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED CHARITABLE ORGANIZATION UNDER SECTION 509(A)(1) OF THE CODE AND QUALIFIES FOR THE MAXIMUM CHARITABLE CONTRIBUTION DEDUCTION BY DONORS. CONTRIBUTIONS TO THE FOUNDATION ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE FOUNDATION IS ALSO EXEMPT FROM STATE AND LOCAL TAXES UNDER SIMILAR STATUTES. ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, INCLUDING ISSUES RELATING TO FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT, PROVIDES THAT THE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION CAN BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS "MORE-LIKELY-THAN-NOT" TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. THE FOUNDATION IS EXEMPT FROM INCOME TAX UNDER THE CODE, HOWEVER, IS SUBJECT TO TAX ON INCOME UNRELATED TO ITS EXEMPT PURPOSES, UNLESS THAT INCOME IS OTHERWISE EXCLUDED UNDER THE CODE. THE FOUNDATION HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS NOT RECORDED A PROVISION FOR INCOME TAXES AS IT HAS NO MATERIAL TAX LIABILITY FROM UNRELATED BUSINESS INCOME ACTIVITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN CHARITABLE REMAINDER TRUSTS VALUATIONS -1,818. PART XII, LINE 2D - OTHER ADJUSTMENTS: UNCOLLECTIBLE PLEDGES 329,933. 0 EUROPE 0 0 GRANTMAKING RESEARCH 1324095 NORTH AMERICA 0 0 GRANTMAKING RESEARCH 426407 MIDDLE EAST AND NORTH AFRICA 0 0 GRANTMAKING RESEARCH 14515 EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING RESEARCH 91000 0 0 0 0 0 0 1856017 0 1856017 EAST ASIA AND THE PACIFIC RESEARCH 26000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 38922 BANK WIRE 0 EAST ASIA AND THE PACIFIC RESEARCH 65000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 25841 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 366815 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 34980 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 57915 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 115830 BANK WIRE 0 MIDDLE EAST AND NORTH AFRICA RESEARCH 14515 BANK WIRE 0 NORTH AMERICA RESEARCH 54975 BANK WIRE 0 NORTH AMERICA RESEARCH 238916 BANK WIRE 0 NORTH AMERICA RESEARCH 99534 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 329396 BANK WIRE 0 NORTH AMERICA RESEARCH 32981 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 113000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 5763 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 25990 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 29600 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 40884 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 22000 BANK WIRE 0 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 117160 BANK WIRE 0 19 2 0 0 0 0 0 0 PART III ACCOUNTING METHOD: PART I, LINE 1: GRANTS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW SIGNIFICANT STRIDES IN THE RESEARCH, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. X X X X X X X 1 CHAPMAN CUBINE & HUSSEY INC 2000 15TH ST STE 550 ARLINGTON VA 22201 DIRECT MAIL 0 5737871 577867 5160004 5737871 577867 5160004 AK AL AR AZ CA CO CT DE FL GA HI IA IL IN KS KY LA MA MD ME MI MN MS NC ND NE NH NJ NM NY OH OK OR PA RI SC TN TX UT VA VT WA VT WA WI WV WY TAKE STEPS 8214378 7669539 544839 137840 40047 366952 TEAM CHALLENGE 1445843 1168453 277390 1144 0 276246 126 19108630 16411976 2696654 2122764 514500 564683 28768851 25249968 3518883 2261748 554547 1207881 4024176 -505293 631617 61452 64871 0 631617 61452 64871 126323 505294 AL AZ AR CA CO CT FL GA IL IN MD MA MI MN MO NE NJ NY NC OH PA TN TX VA WA WI 1 0 0 0 1.00000 RONALD GOLDSMAN 733 THIRD AVENUE SUITE 510 NEW YORK NY 10017 0 SEE PART IV NONE 0 SCHEDULE G, PART III - GAMING ACTIVITIES THE CROHN'S & COLITIS FOUNDATION, INC. ONLY PARTAKES IN GAMING ACTIVITIES TO THE EXTENT THE ORGANIZATION HOLDS A RAFFLE OR GAME OF CHANCE DURING A GALA, DINNER OR OTHER SPECIAL EVENT. EACH CHAPTER IS RESPONSIBLE FOR CONDUCTING ITS OWN EVENT ACTIVITIES AND, AS SUCH, THE ORGANIZATION DOES NOT HAVE ONE PERSON WHO OVERSEES ALL GAMING ACTIVITIES FOR PURPOSES OF SCHEDULE G, PART III, LINES 14 & 16. RAFFLES ARE CONDUCTED AS PART OF SPECIAL EVENTS AND NOT AS SEPARATE FUNDRAISING ACTIVITIES. AS A RESULT OF THE PANDEMIC, TO ENGAGE WITH ITS DONORS, THE FOUNDATION VIRTUALIZED ITS SPECIAL EVENTS THROUGH THE USE OF A FUNDRAISING PLATFORM THAT OFFERED A WIDE ARRAY OF FUNDRAISING ACTIVITIES, INCLUDING RAFFLES AND AUCTIONS. CHAPTERS, IN COLLABORATION WITH NATIONAL STAFF, ARE RESPONSIBLE FOR SECURING APPLICABLE LICENSES AND COMPLYING WITH REPORTING REQUIREMENTS. FOR THE PERIOD COVERED BY THIS RETURN, ONLY 33 CHAPTERS HELD RAFFLES IN 26 STATES: ALABAMA, ARIZONA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, PENNSYLVANIA, TENNESSEE, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN. 1 11 HEALTH AND TECHNOLOGIES INC 8 HUGHES SUITE 200 IRVINE CA 92618 371737954 501(C)3 250000 0 RESEARCH ARTIZAN BIOSCIENCES INC 150 MUNSON ST STE 210 NEW HAVEN CT 06511 813754450 501(C)3 177975 0 RESEARCH BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA HOUSTON TX 77030 741613878 501(C)3 104167 0 RESEARCH BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVE BOSTON MA 02215 042103881 501(C)3 55000 0 RESEARCH BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)3 312551 0 RESEARCH CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)3 64904 0 RESEARCH CASE WESTERN RESERVE 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TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. THE FOUNDATION ALSO SUPPORTS ORGANIZATIONS SEEKING TO ACCELERATE THE DEVELOPMENT OF RESEARCH-BASED PRODUCTS WITH POTENTIAL FOR POSITIVE IMPACT FOR PATIENTS. FUNDED PROJECTS ARE APPROXIMATELY 12 MONTHS IN DURATION, WITH SPECIFIC INTERMEDIATE AND FINAL MILESTONES IDENTIFIED AT PROJECT ONSET. PROJECT INVESTMENTS MAY BE RENEWED IN ADDITIONAL INCREMENTS IF MILESTONES ARE ACHIEVED AND IF THE APPLICANT SUBMITS A PROPOSAL FOR ADDITIONAL FUNDING. X X X X X 0 1 0 0 0 0 0 1 0 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 502399 0 85000 0 0 0 86900 0 3717 0 678016 0 0 0 CAREN HELLER CHIEF SCIENCE OFFICER 378803 0 10000 0 0 0 17400 0 0 0 406203 0 0 0 ROBERT TERRITO CFO/COO 286257 0 10000 0 0 0 17400 0 7560 0 321217 0 0 0 ROHIT SURI CHIEF TECHNOLOGY OFFICER 262418 0 10000 0 0 0 13563 0 10074 0 296055 0 0 0 MICHAEL ELKOW CHIEF FIELD OFFICER 256144 0 5000 0 0 0 15717 0 9368 0 286229 0 0 0 JUDY HOFFSTEIN CHIEF MARKETING & COMMUNICATIONS OFF 228326 0 10000 0 0 0 10558 0 17178 0 266062 0 0 0 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 239186 0 10000 0 0 0 14319 0 0 0 263505 0 0 0 JOHN MICHAEL MIZE EVP, BUSINESS DEVELOPMENT 221034 0 10000 0 0 0 7771 0 6256 0 245061 0 0 0 LAURA WINGATE EVP, EDUCATION, SUPPORT & ADVOCACY 196343 0 5000 0 0 0 11837 0 2181 0 215361 0 0 0 ANTHONY LEON SVP, IT 182532 0 4000 0 0 0 11684 0 14106 0 212322 0 0 0 MARISSA MAYER CHIEF LEGAL OFFICER 179518 0 5000 0 0 0 11259 0 8672 0 204449 0 0 0 RONALD GOLDSMAN SVP, FINANCE 184574 0 4000 0 0 0 11093 0 1000 0 200667 0 0 0 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 177454 0 4000 0 0 0 10615 0 0 0 192069 0 0 0 PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON THE MOST RECENT SURVEY AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS LAST STUDY IN 2021. PART I, LINE 4B THE FOUNDATION INSTITUTED A SECTION 457(F) NONQUALIFIED DEFERRED COMPENSATION PLAN FOR THE BENEFIT OF THE PRESIDENT/CEO, MICHAEL OSSO, IN 2018. THE AGREEMENT ALLOWS FOR ANNUAL CONTRIBUTIONS TO BE MADE BASED ON MEETING PRE-DETERMINED OBJECTIVES. IN 2021, THE FOUNDATION CREDITED $50,000 TO THE PRESIDENT/CEO WHICH HAS BEEN REFLECTED IN SCHEDULE J, PART II, COLUMN C. NO AMOUNT WAS ACTUALLY PAID TO THE CEO DURING THE YEAR UNDER THIS AGREEMENT, AS THE TERMS OF THE AGREEMENT HAVE NOT YET BEEN SATISFIED. PART I, LINE 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL, DEPARTMENTAL, AND OVERALL FOUNDATION PERFORMANCE GOALS. X 82 511238 MARKET PRICE 0 1 1 PART I, LINE 32B: TO THE EXTENT THAT THE FOUNDATION RECEIVES GIFTS OF SECURITIES OR OTHER NON-CASH INSTRUMENTS, IT UTILIZES ITS INVESTMENT BROKER TO SELL THOSE NON-CASH INSTRUMENTS TO HELP SUBSIDIZE THE FOUNDATION'S ONGOING CHARITABLE ACTIVITIES. IMPACT OF THE COVID-19 PANDEMIC ON THE CROHN'S & COLITIS FOUNDATION INC. IN EARLY 2020, AN OUTBREAK OF THE NOVEL STRAIN OF CORONAVIRUS ("COVID-19") EMERGED ON A GLOBAL SCALE. IN REACTION TO THE OUTBREAK, FEDERAL, STATE, AND LOCAL GOVERNMENTS ISSUED MANDATES THAT DISRUPTED NORMAL BUSINESS ACTIVITY IN EVERY SECTOR OF THE ECONOMY. THE PANDEMIC CAUSED THE FOUNDATION TO CLOSE OFFICES ACROSS THE COUNTRY AND SHIFT ITS OPERATIONS, EVENTS AND COMMUNITY-BASED PROGRAMS TO A VIRTUAL FORMAT, WHICH REMAINED IN EFFECT THROUGH 2021. DESPITE THE OPERATING CHALLENGES IT PRESENTED, THE FOUNDATION REMAINED FOCUSED ON DELIVERING ITS CORE MISSION. TOWARDS THE END OF THE 2021 FISCAL YEAR, OFFICES REOPENED AND THE FOUNDATION BEGAN TO HOLD SOME IN PERSON EVENTS WHEN STRICT SAFETY PROTOCOLS COULD BE FOLLOWED. THE FOUNDATION CONTINUES TO CLOSELY MONITOR THE ONGOING IMPACTS OF COVID-19 AND IS FOCUSED ON ENSURING A CAREFUL BALANCE BETWEEN DELIVERING ON ITS MISSION AND MAINTAINING A STRONG FINANCIAL POSITION. ACCORDINGLY, THE EXTENT TO WHICH COVID-19 MAY HAVE A FUTURE IMPACT ON THE FOUNDATION'S FINANCIAL POSITION IS UNCERTAIN. TO HELP SUSTAIN ITSELF DURING THE ECONOMIC DISRUPTION WROUGHT BY THE PANDEMIC, THE FOUNDATION SOUGHT ECONOMIC ASSISTANCE FROM THE GOVERNMENT. THE PAYCHECK PROTECTION PROGRAM ESTABLISHED BY THE CARES ACT PROVIDES SMALL BUSINESSES WITH FUNDS TO PAY UP TO 24 WEEKS OF CERTAIN NECESSARY EXPENDITURES, INCLUDING PAYROLL COSTS, RENT, AND UTILITIES. THE FOUNDATION RECEIVED A PAYCHECK PROTECTION PROGRAM FORGIVABLE LOAN OF $5,721,600 AND REPORTED THIS LOAN ON ITS BALANCE SHEET. THE ORGANIZATION APPLIED FOR FULL FORGIVENESS OF THE LOAN AS IT MET ALL OF THE CRITERIA REQUIRED BY THE SMALL BUSINESS ADMINISTRATION TO OBTAIN FORGIVENESS. THE LOAN WAS FULLY FORGIVEN IN JUNE OF 2021. THE FOUNDATION SOUGHT AND OBTAINED A SECOND PPP LOAN IN THE AMOUNT OF $2 MILLION IN FEBRUARY 2021; THIS LOAN IS CURRENTLY REPORTED AS A LIABILITY ON THE FOUNDATION'S BALANCE SHEET. THE FOUNDATION MET ALL THE CRITERIA REQUIRED FOR FORGIVENESS AND OBTAINED FORGIVENESS IN FEBRUARY 2022. THE FOUNDATION WILL RECORD THIS AS GOVERNMENTAL GRANT REVENUE ON THE SUCCEEDING YEAR'S FORM 990. FORM 990, PART I, LINE 1 ORGANIZATION'S MISSION (CONTINUED) AND TO IMPROVE THE QUALITY OF LIFE AND CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. FORM 990, PART III, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY A NATIONAL ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCE DEPARTMENT. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED AND REVIEWED WITH THE AUDIT COMMITTEE FOR DISCUSSION AND COMMENT. A COPY OF THE 990 IS DISTRIBUTED TO ALL BOARD OF TRUSTEES PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL OFFICERS, DIRECTORS, TRUSTEES, AND KEY EMPLOYEES OF THE CROHN'S & COLITIS FOUNDATION ARE REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE FOUNDATION. THE FOUNDATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY. FORM 990, PART VI, SECTION B, LINE 15 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON THE MOST RECENT SURVEY AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS LAST STUDY IN 2021. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS FORM 990 AVAILABLE TO THE PUBLIC BY RETAINING A COPY AT ITS PLACE OF BUSINESS AND ON ITS WEBSITE AT WWW.CROHNSCOLITISFOUNDATION.ORG. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE POSTED ON ITS WEBSITE. GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY WILL BE PROVIDED UPON REQUEST AT MANAGEMENT'S DISCRETION. PART VIII - DONATED SERVICES THE FOUNDATION RECEIVES CONSIDERABLE IN-KIND CONTRIBUTIONS IN THE FORM OF DONATED PUBLIC SERVICE ANNOUNCEMENTS ON TELEVISION AND RADIO STATEMENTS AND SERVICES RECEIVED FROM PHYSICIANS AND HEALTH PROFESSIONALS THAT HAVE MADE SIGNIFICANT CONTRIBUTIONS OF THEIR TIME IN FURTHERANCE OF THE FOUNDATION'S MISSION. THE FAIR VALUE OF SUCH IN-KIND CONTRIBUTIONS IS REFLECTED IN THE STATEMENT OF ACTIVITIES AS CONTRIBUTED SERVICES AND AIRTIME REVENUE AND HEALTH PROFESSIONAL EDUCATION AND PUBLIC INFORMATION PROGRAM SERVICE EXPENSE. SINCE DONATED SERVICES ARE NOT REPORTED ON THE FORM 990, THE FOUNDATION HAS NOT REPORTED THE CONTRIBUTED SERVICES AND AIRTIME ON SCHEDULE M OR PART VIII, LINE 1(G). FOR THE YEAR ENDING DECEMBER 31, 2021, CONTRIBUTED SERVICES AND AIRTIME AMOUNTED TO $5,158,533. FORM 990, PART IX, LINE 11G MARKETING: PROGRAM SERVICE EXPENSES 2,539,899. MANAGEMENT AND GENERAL EXPENSES 1,028,826. FUNDRAISING EXPENSES 292,081. TOTAL EXPENSES 3,860,806. TECHNOLOGY DEPARTMENT: PROGRAM SERVICE EXPENSES 2,929,608. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,929,608. EDUCATIONAL DEPARTMENT: PROGRAM SERVICE EXPENSES 1,474,276. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,474,276. FORM 990, PART XI, LINE 9: CHANGES IN REMAINDER TRUST VALUATIONS -1,818. UNCOLLECTIBLE PLEDGES -329,933.