2025-07-10T08:11:30-05:00 2024-12-31 541342298 KOSITZKA WICKS AND COMPANY 4405 COX ROAD SUITE 200 GLEN ALLEN VA 23060 990 2024-01-01 943000301 HYDROCEPHALUS ASSOCIATION HYDR 3012023811 6903 ROCKLEDGE DRIVE SUITE 740 NORTH BETHESDA MD 20817 DIANA GRAY PRESIDENT AND CEO 3012023811 2025-07-09 1 1 JENNICA JARDINE WHITFIELD CPA P01379267 8048551200 2024 2025-03-06 01:10:19Z X DIANA GRAY 6903 ROCKLEDGE DRIVE SUITE 740 NORTH BETHESDA MD 20817 3861276 0 X WWW.HYDROASSOC.ORG X 1986 DE FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION. 20 20 25 1600 0 0 3520084 3350909 0 73155 137427 180343 -29128 -45743 3628383 3558664 565398 879590 0 0 1993111 2248081 0 0 105462 1071147 1284320 3629656 4411991 -1273 -853327 4359202 3458025 612422 488203 3746780 2969822 X FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS. 1 0 1443435 866590 RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) IS DEDICATED TO ADVANCING HIGH-QUALITY RESEARCH. EACH YEAR THE HA FUNDS TALENTED SCIENTISTS THROUGH DIRECT GRANT FUNDING ENABLING THEM TO LEVERAGE THESE PROJECTS AND SECURE LARGER FEDERAL GRANTS FOR GREATER IMPACT. THE HA FUNDS RESEARCH THAT IS ALIGNED WITH PATIENT-IDENTIFIED PRIORITIES TO IMPROVE UNDERSTANDING OF THE CONDITION, IDENTIFY AND TEST NEW TREATMENTS, MOVE DISCOVERIES TOWARDS CLINICAL USE, ENHANCE DIAGNOSIS, IMPROVE ACCESS TO CARE, AND ULTIMATELY ELEVATE THE QUALITY OF LIFE OF THOSE LIVING WITH HYDROCEPHALUS. GRANT PROGRAMS INCLUDE THE INNOVATOR AWARD, ACCELERATOR AWARD, NEUROPSYCHOLOGY AND COGNITION AWARD, ENGINEERING PRIZE, AND THE NEXT GENERATION AWARD. HA'S IMPACT IS AMPLIFIED THROUGH THE MANY RESEARCH NETWORKS THAT WE SUPPORT: THE HA PATIENT-POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS WITH ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE RESEARCH, WHILE THE PEDIATRIC-FOCUSED HCRN AND ADULT- FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY FUNDING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE. 1472850 13000 SUPPORT AND EDUCATION THE HYDROCEPHALUS ASSOCIATION IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY HYDROCEPHALUS BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, HA STAFF PROVIDED ONE-ON-ONE SUPPORT THROUGH PHONE CALLS, EMAILS, AND INTERACTIONS ON SOCIAL MEDIA TOTALING OVER 5,100 TOUCHES. HA CONDUCTED A TOTAL OF 201 VIRTUAL SOCIAL GATHERINGS AND/OR EDUCATIONAL MEETINGS WITH MEDICAL AND OTHER PROFESSIONALS JOINING AS GUEST SPEAKERS IN OUR LOCAL SUPPORT GROUPS - COMMUNITY NETWORKS. THESE EVENTS PROVIDED OUR COMMUNITY WITH THE OPPORTUNITY TO FIND FRIENDSHIP AND RECEIVE EDUCATION. OUR PEER SUPPORT VOLUNTEERS MADE 82 CONNECTIONS TO PROVIDE FIRST-HAND KNOWLEDGE AND EXPERIENCE ON LIVING WITH HYDROCEPHALUS. NEW NATIONAL LEVEL GROUP EMERGED, ONE FOR MEN WITH HYDROCEPHALUS. THE ASSOCIATION CONTINUES TO SUPPORT OUR YOUNG ADULTS' ACADEMIC PURSUITS THROUGH OUR SCHOLARSHIP PROGRAM. ESTABLISHED IN 1994, HA HAS AWARDED 252 SCHOLARSHIPS TO DESERVING FUTURE LEADERS OF THE HYDROCEPHALUS COMMUNITY. IN 2024, HA OFFERED 13 EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS LIVING WITH HYDROCEPHALUS WHO EXHIBIT PROMISING LEADERSHIP SKILLS AND ARE INVOLVED IN THEIR COMMUNITIES. 208244 ADVOCACY THE HYDROCEPHALUS ASSOCIATION ADVOCACY COMMITTEE HAS CONTINUED TO MONITOR AND SUPPORT KEY LEGISLATION THAT WILL BENEFIT THE HYDROCEPHALUS COMMUNITY. HYDROCEPHALUS WAS ONCE AGAIN INCLUDED ON THE LIST OF ELIGIBLE CONDITIONS TO RECEIVE FUNDING UNDER THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) AND ADMINISTERED BY THE DEPARTMENT OF DEFENSE (DOD). THE CDMRP HAS APPROPRIATIONS OF $15.61 BILLION, WHICH ARE USED TO FUND THE BEST SCIENTIFIC AND MEDICAL RESEARCH. WE ARE PROUD OF THIS CONTINUED ACCOMPLISHMENT. HA CONTINUES TO CO-LEAD WITH THE SPINA BIFIDA ASSOCIATION A COALITION FOCUSED ON ISSUES AROUND CHILDREN WITH CHRONIC MEDICAL CONDITIONS TRANSITIONING TO ADULT MEDICAL CARE AND SERVICES. HA ALSO CONTINUES TO BE ACTIVE IN ADVOCACY MEETINGS AND SIGN-ON LETTERS PUT TOGETHER AS PART OF THE NATIONAL HEALTH COUNCIL (NHC), AMERICAN BRAIN COALITION (ABC), NATIONAL ORGANIZATION FOR RARE DISEASE (NORD), RESEARCH!AMERICA, AND THE NATIONAL HEATH DEFENSE CONSORTIUM (DHRC). 672925 73155 CONFERENCESTHE 18TH NATIONAL CONFERENCE ON HYDROCEPHALUS, HA CONNECT, WAS HELD IN TAMPA FLORIDA JULY 14-16, 2024. THE NATIONAL CONFERENCE ATTRACTED PARTICIPANTS FROM 46 STATES. 552 INDIVIDUALS ATTENDED THE THREE-DAY EVENT. THE CONFERENCE FEATURED EDUCATIONAL TRACKS FOR PARENTS, TEENS, ADULTS, AND INDIVIDUALS LIVING WITH NORMAL PRESSURE HYDROCEPHALUS. THERE WERE OVER 70 EDUCATIONAL SESSIONS HELD WITH OVER 80 SPEAKERS. THE CONFERENCE FEATURED AN INTERACTIVE EXHIBIT HALL TO ENGAGE ATTENDEES. ADDITIONAL EVENTS WERE HOSTED AROUND INNOVATION AND RESEARCH. 6824 MERCHANDISE SALES, NET 672925 79979 3797454 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 1 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 4 0 1 25 1 0 0 0 0 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AR CA CT FL GA IL KS KY ME MD MA MI MN MS NH NJ NM NY NC OH OK OR PA RI SC TN UT VA WV WI CO WA DC X X DIANA GRAY 3012023811 6903 ROCKLEDGE DRIVE SUITE 740 NORTH BETHESDA MD 20817 JASON PRESTON CHAIR 4.50 X X 0 0 0 TERESA MASTRANGELO VICE CHAIR 3.50 X X 0 0 0 LYDIA VALADEZ-MCSTAY VICE CHAIR 3.50 X X 0 0 0 TESSA VAN DER WILLIGEN VICE CHAIR 3.50 X X 0 0 0 BRETT WEITZ PAST CHAIR 3.50 X X 0 0 0 HUGH ALLEN FINANCE COMMITTEE CHAIR 3.50 X X 0 0 0 RAYMOND R MOSER JR JD DIRECTOR 3.50 X 0 0 0 SALLY DUNKELBERGER DANIEL DIRECTOR 3.50 X 0 0 0 PAM FINLAYSON DIRECTOR 3.50 X 0 0 0 MICHAEL SIEGEL PHD DIRECTOR 3.50 X 0 0 0 DAVID LIMBRICK MD DIRECTOR 3.50 X 0 0 0 MIKE MUHONEN MD DIRECTOR 3.50 X 0 0 0 STEPHANIE VOGT DIRECTOR 3.50 X 0 0 0 MICHAEL WILLIAMS MD DIRECTOR 3.50 X 0 0 0 DEITRA MATTHEWS MPA DIRECTOR 3.50 X 0 0 0 SHERYL ROSENBERG JD DIRECTOR 3.50 X 0 0 0 KIPP COCO DIRECTOR 3.50 X 0 0 0 TAMMY LEE DIRECTOR 3.50 X 0 0 0 PETER FINLAYSON DIRECTOR 3.50 X 0 0 0 TIM HARRIS DIRECTOR 3.50 X 0 0 0 DIANA GRAY PRESIDENT AND CEO 45.00 X 240680 0 22619 AMANDA GARZON CHIEF OPERATING OFFICER 45.00 X 141772 0 14247 BRIAN SAPHIER TREASURER AND CFO 45.00 X 141557 0 12399 LINDA RILEY NATIONAL DIRECTOR OF DEVELOPMENT 40.00 X 138921 0 16517 MONICA CHAU NATIONAL DIRECTOR OF RESEARCH 40.00 X 131153 0 7521 JUDITH FROEHLICH NATIONAL DIRECTOR OF MARKETING 40.00 X 130796 0 14357 924879 0 87660 6 0 1 0 0 1887584 1463325 54182 3350909 CONFERENCE FEES 900099 73155 73155 73155 124449 124449 193907 750 138104 659 55803 91 55894 55894 0 1887584 159876 -159876 -159876 57595 0 57595 57595 10797 3973 6824 6824 MISCELLANEOUS REVENUE 900099 40623 40623 RETURNED GRANT AWARD 900099 9091 9091 49714 3558664 79979 0 127776 823833 823833 13000 13000 42757 42757 573273 410337 159274 3662 1375768 1200762 131360 43646 38087 34066 2680 1341 119735 77576 38735 3424 141218 117459 20229 3530 8075 3823 4140 112 20151 71 20080 3000 3000 115818 98742 12672 4404 22685 1969 20716 358035 336133 11074 10828 260283 242632 13929 3722 124773 105602 15691 3480 179760 176008 4 3748 3778 3778 33416 28282 4202 932 12483 1159 11286 38 SERVICE CHARGES 49639 85 49551 3 SITE EXPENSES 38478 38478 DUES AND SUBSCRIPTIONS 28120 24485 2023 1612 PRIZES AND AWARDS 14413 14413 11413 2782 8367 264 4411991 3797454 509075 105462 1206278 656749 254386 210018 4263 40324 39471 97903 120089 235950 220544 15330 15406 2529577 2282221 51627 49674 163777 80134 4359202 3458025 280022 236776 50000 332400 201427 612422 488203 X 2532659 1936849 1214121 1032973 3746780 2969822 4359202 3458025 -853327 76369 0 X X 0 1 X 1 0 X 3399671 4038576 4093067 3260063 3350909 18142286 3399671 4038576 4093067 3260063 3350909 18142286 131634 18010652 6229 2707 48407 137427 124449 319219 15129 150 15300 49714 80293 18541798 187567 0.97140 0.97860 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER MISCELLANEOUS INCOME - 2021 AMOUNT: $ 15,129. 2022 AMOUNT: $ 150. 2023 AMOUNT: $ 15,300. 2024 AMOUNT: $ 49,714. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 1 2000 0 1 1000 1 0 3000 0 PART II-B, LINE 1, LOBBYING ACTIVITIES: AS PART OF OUR PROGRAM TO EDUCATE CONGRESS AND OTHERS ABOUT THE NEEDS OF HYDROCEPHALUS PATIENTS AND THEIR FAMILIES, AND TO ADVOCATE FOR MORE FUNDING FOR HYDROCEPHALUS RESEARCH, THE HYDROCEPHALUS ASSOCIATION MET ONE-ON-ONE WITH CONGRESSIONAL OFFICES TO EDUCATE MEMBERS ON HYDROCEPHALUS AND PARTICIPATED IN A NUMBER OF COALITIONS (INCLUDING THE NATIONAL HEALTH COUNCIL, RESEARCH!AMERICA, AND THE AMERICAN BRAIN COALITION). 91318 13142 13142 91318 79544 11774 91318 91318 -11774 79544 91318 1573 1573 91318 91118 200 2973 2973 91318 1.00000 0 0 118355 102949 15406 117595 117595 0 15406 SBA LOAN 147011 OPERATING LEASE LIABILITY 54416 201427 X 3625942 76369 76369 3549573 9091 9091 3558664 4402900 0 4402900 9091 9091 4411991 PART X, LINE 2: THE ASSOCIATION IS A QUALIFYING NONPROFIT ORGANIZATION AS DEFINED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THE TAX STATUTES OF DELAWARE, AND THEREFORE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. ACCORDINGLY, THE ACCOMPANYING FINANCIAL STATEMENTS DO NOT REFLECT A PROVISION OR LIABILITY FOR FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION DOES NOT BELIEVE IT HAS ANY UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2024. FISCAL YEARS ENDING ON OR AFTER 2021 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE AUTHORITIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: RETURNED GRANT AWARD PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURNED GRANT AWARD PART V, LINE 4: THE ORGANIZATION USES ENDOWMENT FUNDS FOR EDUCATIONAL SCHOLARSHIPS TO YOUNG ADULTS WITH HYDROCEPHALUS. 1 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK 42757 0 0 0 0 0 0 42757 0 42757 NORTH AMERICA TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK 42757 CHECK 0 0 0 0 0 0 0 SOUTH FLORIDA WALK 273753 273753 5028 LONG ISLAND WALK 157452 157452 6604 42 1456379 1456379 148244 1887584 1887584 159876 159876 -159876 57595 1 1.00000 57595 57595 NC SC CO IA MI TX NY KY LA AZ FL PA 1 0 1 0 1.00000 LINDA RILEY 6903 ROCKLEDGE DRIVE SUITE 740 NORTH BETHESDA MD 20817 0 LINDA RILEY NATIONAL DIRECTOR OF DEVELOPMENT AND MANAGES THE WALK PROGRAM WHOSE VOLUNTEERS CONDUCT THE RAFFLES. 1 1 CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE DESK JJ36 CLEVELAND OH 44195 912153073 501(C)(3) 46211 0 TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK PRIMARY CHILDREN'S FOUNDATION 36 SOUTH STATE STREET SUITE 1600 SALT LAKE CITY UT 84111 870453633 501(C)(3) 75000 0 TO FUND THE CLINICAL RESEARCH SITE FOR THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK UNIVERSITY OF UTAH 75 SOUTH 2000 EAST RAB 211 SALT LAKE CITY UT 84108 876000525 501(C)(3) 173222 0 TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 881343469 501(C)(3) 85000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS UNIVERSITY OF CALIFORNIA SAN FRANCISCO FOUNDATION 2001 THE EMBARCADERO 3RD FLOOR SAN FRANCISCO CA 94133 942829914 501(C)(3) 75000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS CHILDREN'S HOSPITAL LOS ANGELES 4650 W SUNSET BLVD LOS ANGELES CA 90027 951690977 501(C)(3) 50000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS JOHNS HOPKINS UNIVERSITY 3400 N CHALRES ST BALTIMORE MD 212182683 475649093 501(C)(3) 85000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS UMASS CHAN MEDICAL SCHOOL FOUNDATION 55 N LAKE AVE WORCESTER MA 01655 043108190 501(C)(3) 85000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS UNIVERSITY OF COLORADO FOUNDATION 1800 GRANT STREET SUITE 725 DENVER CO 80203 846049811 501(C)(3) 49400 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS VIRGINIA COMMONWEALTH UNIVERSITY FOUNDATION 910 W FRANKLIN ST RICHMOND VA 23220 540757884 501(C)(3) 50000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS YALE UNIVERSITY 38 HILLHOUSE AVENUE NEW HAVEN CT 06520 060646973 501(C)(3) 50000 0 MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS 11 0 SCHOLARSHIP 13 13000 PART I, LINE 2: MANAGEMENT OBTAINS PERIOD REPORTING FROM GRANTEES IN ACCORDANCE WITH TERMS OF THE GRANT AGREEMENT TO MONITOR TO USE OF GRANT FUNDS. 1 X X X X 0 0 0 0 0 0 0 0 0 DIANA GRAY PRESIDENT AND CEO 240680 0 0 0 0 0 10293 0 12326 0 263299 0 0 0 AMANDA GARZON CHIEF OPERATING OFFICER 141772 0 0 0 0 0 5743 0 8504 0 156019 0 0 0 LINDA RILEY NATIONAL DIRECTOR OF DEVELOPMENT 138921 0 0 0 0 0 5646 0 10871 0 155438 0 0 0 BRIAN SAPHIER TREASURER AND CFO 141557 0 0 0 0 0 5719 0 6680 0 153956 0 0 0 X 6 47087 FMV X PROGRAM MATERIALS 3 7095 FMV 0 0 0 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS REPRESENTS THE NUMBER OF TRANSACTIONS WHERE DONORS CONTRIBUTED TO THE ASSOCIATION THROUGH STOCK DONATIONS. FORM 990, PART III, LINE 2 THE 18TH NATIONAL CONFERENCE ON HYDROCEPHALUS, HA CONNECT, WAS HELD IN TAMPA FLORIDA JULY 14-16, 2024. THE NATIONAL CONFERENCE ATTRACTED PARTICIPANTS FROM 46 STATES. 552 INDIVIDUALS ATTENDED THE THREE-DAY EVENT. THE CONFERENCE FEATURED EDUCATIONAL TRACKS FOR PARENTS, TEENS, ADULTS, AND INDIVIDUALS LIVING WITH NORMAL PRESSURE HYDROCEPHALUS. THERE WERE OVER 70 EDUCATIONAL SESSIONS HELD WITH OVER 80 SPEAKERS. THE CONFERENCE FEATURED AN INTERACTIVE EXHIBIT HALL TO ENGAGE ATTENDEES. ADDITIONAL EVENTS WERE HOSTED AROUND INNOVATION AND RESEARCH. FORM 990, PART VI, SECTION A, LINE 1A ACCORDING TO OUR BYLAWS, THE EXECUTIVE COMMITTEE, UNLESS LIMITED IN A RESOLUTION OF THE BOARD, SHALL HAVE AND MAY EXERCISE ALL OF THE AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE BUSINESS AND AFFAIRS OF THE CORPORATION BETWEEN MEETINGS OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS RECEIVE AN ELECTRONIC OR PAPER COPY OF THE IRS FORM 990 PRIOR TO ITS SUBMISSION. BOARD MEMBERS MUST SUBMIT ANY QUESTIONS OR CHANGES TO THE PRESIDENT & CHIEF EXECUTIVE OFFICER, WHO SUBMITS THE CHANGES TO THE TAX PREPARER. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR BOARD MEMBERS GET A COPY OF THE CONFLICT OF INTEREST POLICY AND A DISCLOSURE FORM TO FILL OUT WITH DETAILS OF ANY POSSIBLE CONFLICTS THAT MAY EXIST. FORM 990, PART VI, SECTION B, LINE 15A THE PROCESS FOR DETERMINING THE COMPENSATION FOR THE PRESIDENT & CHIEF EXECUTIVE OFFICER (WHO IS ALSO IN CHARGE OF FINANCIAL MANAGEMENT OF THE ORGANIZATION) POSITION INCLUDES THE FOLLOWING STEPS: 1) THE BOARD CHAIR AND PRESIDENT & CHIEF EXECUTIVE OFFICER EACH COLLECT COMPARABLE SALARY INFORMATION (E.G., SALARY STUDIES). 2) THE BOARD CHAIR MAKES A RECOMMENDATION FOR PRESIDENT & CEO COMPENSATION TO THE EXECUTIVE COMMITTEE. 3) EXECUTIVE COMMITTEE MEMBERS (WITHOUT A CONFLICT OF INTEREST) VOTE ON THE RECOMMENDATION BY THE BOARD CHAIR FOR PROPOSED CEO COMPENSATION, AND A RECORD OF THE VOTE IS RECORDED IN EXECUTIVE COMMITTEE MINUTES. FORM 990, PART VI, SECTION C, LINE 18 FORM 990 IS AVAILABLE ON THE HYDROCEPHALUS ASSOCIATION WEBSITE AT WWW.HYDROASSOC.ORG/ANNUAL-REPORTS-AND-FINANCIALS FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE OR ON THE ORGANIZATION'S WEBSITE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE AUDIT COMMITTEE SELECTS AND OVERSEES AN INDEPENDENT ACCOUNTING FIRM TO CONDUCT THE AUDIT. NO CHANGE IN THE SELECTION METHOD OCCURRED THIS YEAR.