2022-11-14T08:33:24-08:00 2021-12-31 990 2021-01-01 161569293 CARDIO-FACIO-CUTANEOUS INTERNATIONAL CARD 16716 Cory Cactus Drive Austin TX 78738 Glenda Hux President 2022-11-14 Glenda Hux 999009999 2 AAL1 IAL1 FAL1 2021 2022-09-23 18:48:47Z 16716 Cory Cactus Drive Austin TX 78738 247285 false X www.cfcsyndrome.org X NY TO IMPROVE THE QUALITY OF LIFE THROUGH FAMILY SUPPORT, RESEARCH, AND EDUCATION. 11 11 3 15 0 133459 149749 0 2468 83 9759 60281 145686 210113 0 0 93150 112370 0 0 56558 82911 149708 195281 -4022 14832 602818 647650 30000 602818 617650 WE ARE A RARE DISEASE ADVOCACY ORGANIZATON THAT PROVIDES EDUCATION AND LITERATURE TO FAMILIES AND AGENCIES WHO ASSIST CHILDREN BORN WITH THE RARE CARDIO-FACIO-CUTANEOUS SYNDROME. WE HOST A WEBSITE, BINNIAL INTERNATIONAL FAMILY CONFERENCES, AND A PRIVATE FAMILY COMPUTER LISTSERVE AND FACEBOOK PAGE. WE SUPPORT RESEARCHERS AND THEIR PROJECTS SO THE FAMILIES CAN CONTINUE TO LEARN MORE ABOUT THIS RARE CONDITION AND HOPEFULLY OBTAIN TREATMENTS FOR THEIR AFFECTED FAMILY MEMBER(S). false false 71182 FAMILY SERVICES PROGRAM: INCLUDES A ROBUST WEBSITE WHICH ALLOWS USERS TO ACCESS THE LATEST RESOURCES; FAMILY OUTREACH SERVICES TO ENCOURAGE AFFECTED FAMILIES TO CONNECT; AN EMAIL LISTSERV AND PRIVATE FACEBOOK GROUP WHERE FAMILIES SUPPORT ONE ANOTHER, AS WELL AS PERSONAL PHONE CALLS TO FAMILIES IN CRISIS AND TO OFFER NON-MEDICAL SUPPORT WHEN NEEDED. TRAINED VOLUNTEER FAMILY LIAISONS ARE OFFERED TO NEW FAMILIES TO PROVIDE SUPPORT AND INFORMATION. NEW FAMILIES THAT REGISTER ON THE CFC INTERNATIONAL WEBSITE RECEIVE A WELCOME PACKET, INCLUDING A LETTER, BROCHURE AND GUIDE TO CFC SYNDROME. CARDIO-CUTANEOUS INTERNATIONAL ALSO OFFERS MICRO-GRANTS TO FAMILITIES IN NEED. NEWSLETTERS ARE MAILED/EMAILED TO OVER 1600 FAMILIES AND SUPPORTERS. WE MAINTAIN A WEB PRESENCE AT WWW.CFCSYNDROME.ORG. 71182 true true false false false false false false false false true false false false true false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 0 0 false 3 true false false false false false false false 0 false false false false false false false X 11 11 false false false false false false false true true false false true false false false false false false NY X Jeff Kohler 6317569500 4921 Forer Oaks Ct Saint Petersburg FL 33702 Tuesdi Dyer Executive Dir. 5.00 0.00 X X 80591 0 0 Libby Airhart Program Coord. 5.00 0.00 X X 19730 0 0 Beth McHale Executive Asst. 5.00 0.00 X 4452 0 0 Alexis Nash Officer 5.00 0.00 X 0 0 0 Jeff Kohler Treasurer 5.00 0.00 X X 0 0 0 Cara Borian Board Member 5.00 0.00 X 0 0 0 Richard Boyce Board Member 5.00 0.00 X 0 0 0 Leslie Rogers Board Member 5.00 0.00 X 0 0 0 Glenda Hux President 5.00 0.00 X 0 0 0 Pilar Magoulas Board Member 5.00 0.00 X 0 0 0 Betsy Rosenbaum Outgoing Pres. 5.00 0.00 X 0 0 0 CJ Mortimer Secretary 5.00 0.00 X 0 0 0 104773 0 false false false 0 34452 115297 149749 0 83 83 0 0 0 0 97453 37172 60281 60281 0 0 0 210113 60364 0 0 0 0 104773 104773 0 0 0 1679 1679 5918 5918 0 1310 1310 0 0 0 0 1262 1262 761 761 866 866 866 866 0 0 1153 1153 0 24835 24835 0 0 0 1951 1951 Research Expense 30000 30000 Sub-Contractors 10000 10000 E-Tapestry 3305 3305 Emergency Fund 2315 2315 4287 2118 2169 195281 71182 124099 0 602818 647647 0 0 0 0 0 0 0 0 4695 4695 0 0 0 0 0 3 602818 647650 30000 0 30000 X 508464 519284 94354 98366 602818 617650 602818 647650 14832 X false false false X 161192 119647 241297 133459 149749 805344 86661 14197 10481 97453 208792 0 0 0 247853 133844 241297 143940 247202 1014136 0 0 1014136 197 1112 355 2468 58 4190 0 197 1112 355 2468 58 4190 0 0 248050 134956 241652 146408 247260 1018326 0.99590 0.99360 0.00410 0.00640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4695 4695 Research Expense Payable 30000 30000 false Family Fundraising 85819 85819 16592 Lillian's Legacy 11634 11634 97453 97453 16592 16592 80861 Form 990, Part VI, Line 11b: Form 990 Review Process The organization circulates the 990 to the board of directors for comment prior to the filing of the form. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts THE ORGANIZATION REQUIRED OFFICERS, BOARD OF DIRECTIONS AND EXECUTIVE DIRECTOR TO ANNUALLY VERIFY THAT THEY HAVE READ THE CONFLICT OF INTEREST POLICY AND TO SIGN A CONFLICT OF INTEREST DISCLOSURE STATEMENT INDICATING ANY CONFLICTS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available All governing documents are available to the public upon request.