2021-02-26T14:44:54-06:00 2020-06-30 541487262 MATTHEWS CARTER & BOYCE 12500 FAIR LAKES CIRCLE SUITE 260 FAIRFAX VA 22033 990 2019-07-01 113485631 THE CHILDREN'S CANCER CAUSE INC CHIL 2023368374 1325 G ST NW NO 540 WASHINGTON DC 20005 STEVE WOSAHLA CHIEF EXECUTIVE OFFICER 2023368374 2021-02-09 1 KATHLEEN M FLAHERTY P00969957 7032183600 2019 2022-09-23 18:48:47Z GEORGE DAHLMAN 1325 G ST NW NO 540 WASHINGTON DC 20005 919383 0 X WWW.CHILDRENSCAUSE.ORG X 1999 NY CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 17 17 3 1450 0 0 685628 841618 0 0 36572 77765 0 0 722200 919383 11288 10000 0 0 424265 498552 0 0 142709 366652 313430 802205 821982 -80005 97401 1547144 1753934 16549 148506 1530595 1605428 X CHILDREN'S CANCER CAUSE WORKS AS A NATIONAL CATALYST TO STIMULATE DRUG DISCOVERY AND DEVELOPMENT FOR CHILDHOOD CANCERS, TO EXPAND RESOURCES FOR RESEARCH AND TREATMENT AND TO ADDRESS THE NEEDS AND CONCERNS OF SURVIVORS. 0 0 603808 10000 ADVOCACY EDUCATION: THE ORGANIZATION LEADS SEVERAL ACTIVITIES FOCUSED ON EDUCATING PATIENTS, SURVIVORS, AND THEIR FAMILIES ABOUT THE IMPACT OF FEDERAL AND STATE HEALTH POLICY ON CHILDHOOD CANCER AND SURVIVORSHIP CARE. EDUCATIONAL PROGRAMS INCLUDE A QUARTERLY WEBINAR, MONTHLY NEWSLETTERS, EMAIL ALERTS ON PENDING LEGISLATION AND A TOOLKIT PROVIDING STRATEGIES AND TACTICS ON EFFECTIVE ADVOCACY. THE ORGANIZATION PRODUCES CONFERENCES TO EDUCATE LEGISLATIVE AND REGULATORY DECISIONMAKERS ON THE CHILDHOOD CANCER EXPERIENCE AND POLICY NEEDS. IN ADDITION, THE ORGANIZATION HAS INITIATED A 'COLLEGE SCHOLARS' PROGRAM, PROVIDING A SCHOLARSHIP TO SURVIVORS OF CHILDHOOD CANCER.EACH MONTH THE ORGANIZATION ENGAGES IN A THOUGHTFUL, ANALYTICAL PROCESS REVIEWING TIMELY AND RELEVANT POLICY ISSUES IMPACTING CHILDREN WITH CANCER. THIS INFORMATION IS DISTRIBUTED THROUGH A VARIETY OF ELECTRONIC MEDIA TO PATIENTS, SURVIVORS AND FAMILIES AND INFORMS THE POLICY AGENDA FOR THE ORGANIZATION AND OTHER CHILDHOOD CANCER FOUNDATIONS.CHILDREN'S CANCER AWARENESS AND ADVOCACY DAY: THIS DAY BRINGS TOGETHER PEDIATRIC PATIENTS, YOUNG ADULT SURVIVORS, AND FAMILIES FOR A DAY OF MOBILIZING AGAINST CHILDHOOD CANCER. THE ORGANIZATION PARTNERS WITH OTHER ORGANIZATIONS TO OFFER A TRAINING WORKSHOP FOR THE LOBBY DAY WHICH FAMILIARIZES SURVIVORS WITH THE FEDERAL LEGISLATIVE AND APPROPRIATIONS PROCESS AND INSTRUCTS ATTENDEES ON EFFECTIVE MESSAGING STRATEGIES FOR VISITS WITH CONGRESSIONAL MEMBERS AND STAFF.PUBLIC POLICY ADVOCACY: THROUGH PRESENTATIONS TO GOVERNMENT AGENCIES, POLICY MAKERS, COALITIONS, AND STAKEHOLDERS, THIS PROGRAM PROVIDES INFORMATION ON THE IMPACT OF FEDERAL POLICY ON CHILDREN WITH CANCER AND SURVIVORS. THE PURPOSE IS TO FACILITATE THE DEVELOPMENT AND APPROVAL OF MORE EFFECTIVE AND LESS TOXIC THERAPIES FOR CHILDREN WITH CANCER AND ENSURES APPROPRIATE CARE FOR SURVIVORS THROUGH EDUCATION ON THE BARRIERS TO DRUG DEVELOPMENT AND THE CONSEQUENCES OF CURRENT TREATMENTS.THE ORGANIZATION ALSO UTILIZES WEBSITE EDUCATION AND MONTHLY NEWSLETTERS TO FACILITATE THEIR CAUSE. 603808 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 3 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 MD NY X X STEVE WOSAHLA 2023368374 1325 G ST NW NO 540 WASHINGTON DC 20005 LYNN BAYARD DIRECTOR 0.25 X 0 0 0 LORI SALLEY RING DIRECTOR 0.25 X 0 0 0 SUSAN SCHERR BOARD SECRETARY 0.50 X X 0 0 0 ADAM ROSEN TREASURER 0.50 X X 0 0 0 JENNIFER NIEDERMEYER DIRECTOR 0.25 X 0 0 0 BETH SILBER DIRECTOR 0.25 X 0 0 0 STEVEN SHAK MD DIRECTOR 0.25 X 0 0 0 JOHN STEWART DIRECTOR 0.25 X 0 0 0 SUSAN L WEINER FOUNDER 3.00 X X 0 0 0 WYLIE D CHEN DIRECTOR 0.25 X 0 0 0 DAVID G POPLACK MD DIRECTOR 0.25 X 0 0 0 LEANN JACKSON CHAIR 0.25 X X 0 0 0 MICHAEL P LINK MD DIRECTOR 0.50 X 0 0 0 LARRY HAUSNER VICE CHAIR 0.25 X X 0 0 0 LAUREN NEFF DIRECTOR 0.25 X 0 0 0 MARY MCCABE DIRECTOR 0.25 X 0 0 0 DANIEL WESCHLER DIRECTOR 0.25 X 0 0 0 GEORGE DAHLMAN CHIEF EXECUTIVE OFFICER 40.00 X 232828 0 22594 232828 0 22594 1 0 1 0 0 1237 840381 841618 22094 22094 55671 0 55671 55671 55671 919383 0 0 77765 X 10000 10000 267322 196127 31773 39422 183932 112511 15810 55611 3973 2915 472 586 15244 11184 1812 2248 28081 20602 3338 4141 14902 14902 111372 108495 1010 1867 1342 1342 55390 30378 1986 23026 20061 13799 2126 4136 12092 11963 129 26869 26869 1737 1737 1960 1312 229 419 COGS-PROGRAMS/EVENTS 56054 45180 0 10874 DUES AND SUBSCRIPTIONS 11651 11131 270 250 821982 603808 75465 142709 239050 258608 56123 52564 14604 153513 10662 5447 8900 5754 1209 3146 1222641 1277801 2855 2855 1547144 1753934 16549 18306 50000 80200 16549 148506 X 1280802 1193209 249793 412219 1530595 1605428 1547144 1753934 97401 -22568 0 X 0 1 X 0 0 X 642733 566942 700138 685628 841619 3437060 642733 566942 700138 685628 841619 3437060 262760 3174300 640 7976 29917 24691 22094 85318 3522378 0.90120 0.90310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 8900 5754 3146 3146 X 896815 -22568 -22568 919383 0 919383 821982 0 821982 0 821982 PART X, LINE 2: THE ORGANIZATION HAS ADOPTED FASB ASC 740, INCOME TAXES. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. THE ORGANIZATION HAS ANALYZED ITS TAX POSITIONS, AND HAS CONCLUDED THAT NO LIABILITY SHOULD BE RECORDED RELATED TO ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION IS NOT AWARE OF ANY TAX POSITIONS WHICH IT BELIEVES WILL CHANGE MATERIALLY IN THE NEXT TWELVE MONTHS. IF THIS POSITION CHANGES, THE ORGANIZATION WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS FINANCIAL POSITION AND RESULTS OF OPERATIONS. 1 ROSEN AWARD 1 10000 0 CASH PART I, LINE 2: THE GRANT IS A RECOGNITION AWARD TO MEDICAL OR SCIENTIFIC PROFESSIONALS WHO HAVE MADE NOTEWORTHY CONTRIBUTIONS TO THE FIELD OF PEDIATRIC CANCER RESEARCH OR CARE. AWARDEES ARE SELECTED THROUGH A COMPETITIVE PROCESS AND GRANT FUNDING IS INTENDED TO SUPPORT ADDITIONAL CHILDHOOD CANCER RESEARCH OR CARE INITIATIVES. X 0 0 0 0 0 0 0 0 0 GEORGE DAHLMAN CHIEF EXECUTIVE OFFICER 232828 0 0 0 0 0 8000 0 14594 0 255422 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION WILL PROVIDE A COPY OF THIS FORM 990 TO MEMBERS OF THE GOVERNING BODY BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C THE PROCEDURES SECTION OF THE CONFLICTS OF INTEREST POLICY PROVIDES A DUTY TO DISCLOSE REQUIRING THAT UPON FIRST KNOWLEDGE BY AN INTERESTED PERSON THAT THE BOARD OR A COMMITTEE THEREOF IS CONSIDERING OR HAS CONSIDERED A TRANSACTION OR ARRANGEMENT WITH AN ENTITY OR INDIVIDUAL WITH WHICH THE INTERESTED PERSON HAS AN INTEREST, THE INTERESTED PERSON MUST DISCLOSE THE EXISTENCE AND NATURE OF HIS OR HER INTEREST TO THE BOARD OR THE COMMITTEE OF THE BOARD CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. FURTHER, THE POLICY PROVIDES FOR PERIODIC REVIEWS TO ENSURE THAT THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSES AND THAT IT DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS STATUS AS AN ORGANIZATION EXEMPT FROM FEDERAL TAX, PERIODIC REVIEWS SHALL BE CONDUCTED THAT SHALL, AT A MINIMUM, CONSIDER WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE AND ARE THE RESULT OF ARM'S-LENGTH BARGAINING. IN ADDITION, OUTSIDE EXPERTS MAY BE USED IN CONDUCTING PERIODIC REVIEWS, BUT THEIR USE SHALL NOT RELIEVE THE BOARD OF ITS RESPONSIBILITY FOR ENSURING THAT PERIODIC REVIEWS ARE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE ORGANIZATION'S BOARD OF DIRECTORS. THE BOARD SETS THE EXECUTIVE DIRECTOR'S COMPENSATION AND REVIEWS COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS BOARD, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE BOARD DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 108,495. MANAGEMENT AND GENERAL EXPENSES 1,010. FUNDRAISING EXPENSES 1,867. TOTAL EXPENSES 111,372.