2021-05-05T09:21:32-05:00 2020-12-31 824812448 PGM LLC 319 Main Street Biddeford ME 04005 990 2020-01-01 475555752 THE CHAMP FOUNDATION CHAM 7278712667 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 JEFFREY REYNOLDS PRESIDENT 7278712667 2021-04-02 1 JEFFREY REYNOLDS XXX-XX-XXXX P01200943 2074155714 0 AAL1 IAL1 2020 2022-09-23 18:48:47Z X JEFFREY REYNOLDS 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 636554 0 X WWW.THECHAMPFOUNDATION.ORG X 2015 NC The Champ Foundation supports research toward better treatments and a cure for diseases casued by mitochondrial DNA deletions, such as Pearson syndrome. These diseases are rare. For example, there have only been around 100 reported cases of Pearson syndrome. 5 5 0 10 0 0 147023 636543 0 0 114 11 0 0 147137 636554 237500 228393 0 0 0 0 0 0 1361 840 27154 238340 255547 -91203 381007 81829 467336 0 4500 81829 462836 The Champ Foundation supports research toward better treatments and a cure for diseases casued by mitochondrial DNA deletions, such as Pearson syndrome. These diseases are rare. For example, there have only been around 100 reported cases of Pearson syndrome. 0 0 251743 228393 In 2020, The Champ Foundation continued to fund research projects at Boston Children's Hospital, University of Miami, and Children's Hospital of Philadelphia. The Champ Foundation received a grant to establish a SLSMDS Research Network. To establish the Research Network, we hosted a virtual international conference, established a biospecimen repository, began developing a multi-site Natural History Study, and launched the Champ Foundation Registry, a research study of individuals with single large-scale mitochondrial DNA deletions (SLSMDS). 251743 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 5 1 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 0 0 0 X JEFFREY REYNOLDS 7278712667 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 X Walker Cole Arledge Director 1.00 X 0 0 0 Jeffrey Reynolds President 20.00 X 0 0 0 Elizabeth Reynolds Vice President 10.00 X 0 0 0 Elizabeth Malkin Secretary 1.00 X 0 0 0 Tyler Albright Treasurer 1.00 X 0 0 0 0 0 0 0 0 0 0 0 636543 636543 11 11 636554 0 0 11 228393 228393 1800 1800 182 182 Registry costs 23350 23350 Fundraising 890 890 PayPal fees 471 471 Bank charges and fees 461 461 255547 251743 2443 1361 81829 467336 81829 467336 4500 0 4500 X 81829 462836 81829 462836 81829 467336 381007 0 X 0 0 0 X 110214 161972 103849 147023 186543 709601 110214 161972 103849 147023 186543 709601 151576 558025 102 295 114 11 522 710123 0.78580 X Schedule A, Part VI, List of Unusual Grants: Description: capacity building grant Date: 02/03/20 Amount: 450000. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 Boston Children's Hospital 300 Longwood Avenue Boston MA 02115 042774441 501(c)3 112451 Research; Biospecimen Bank Children's Hospital of Philadelphia 3401 Civic Center Blvd Philadelphia PA 19104 232237932 501(c)3 38309 Research; Natural History Study University of Miami PO Box 248106 Coral Gables FL 33124 590624458 501(c)3 25000 Research Cleveland Clinic 6801 Brecksville Rd RK1-85 Independence OH 44131 912153073 501(c)3 35000 Natural History Study University of Maastricht PO Box 616 Maastricht NL 501(c)3 17633 Research 5 5 Part I, Line 2: The Champ Foundation maintains grant letters from other organizations and tracks revenue and expenses by grant. Form 990, Part VI, Section A, line 2 JEFFREY AND ELIZABETH REYNOLDS ARE HUSBAND AND WIFE. Form 990, Part VI, Section A, line 8b THE CHAMP FOUNDATION DOES NOT FORMALLY DOCUMENT COMMITTEE MEETINGS, BUT WILL IMPLEMENT IN FY21. Form 990, Part VI, Section B, line 11b A COPY OF THE 990 WILL BE PROVIDED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO BEING FILED. Form 990, Part VI, Section B, line 12c The organization has a written policy in bylaws which outlines the regular monitoring and compliance with conflict of interest policy. Form 990, Part VI, Section C, line 19 DOCUMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.