2021-11-12T09:26:15-06:00 2020-12-31 366055558 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2020-01-01 136193105 CROHN'S & COLITIS FOUNDATION INC CROH 8009322423 733 THIRD AVENUE 510 NEW YORK NY 10017 MICHAEL OSSO CFO/COO 8009322423 2021-11-12 1 MICHAEL OSSO XXX-XX-XXXX SCOTT THOMPSETT P00741490 2125990100 3 AAL1 IAL1 2020 2022-09-23 18:48:47Z MICHAEL OSSO 733 THIRD AVENUE NEW YORK NY 10017 79704927 0 X WWW.CROHNSCOLITISFOUNDATION.ORG X 1967 NY TO CURE CROHN'S DISEASE AND ULCERATIVE COLITIS (CONTINUED ON SCHEDULE O) 28 28 350 5299 0 0 66405320 68767470 5275500 5393731 958595 1180691 1285835 878150 73925250 76220042 25099238 27621536 0 0 31959212 32264832 463544 467660 4954085 18201536 15316089 75723530 75670117 -1798280 549925 45274249 55619176 36455900 44552683 8818349 11066493 X FOR MORE THAN FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O). 0 0 32960260 27621536 5347081 SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $400 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 25,000 PATIENTS, INCLUDING 160,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING. 27565825 0 279130 THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE ESTIMATED 3.1 MILLION IBD PATIENTS AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL. WEBCASTS, SUPPORT GROUPS, IBD HELP CENTER, AND PRINTED MATERIALS PROVIDE ACCURATE AND UP-TO-DATE INFORMATION. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL WORKSHOPS, AND ITS ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN A RECENT IMPACT STUDY, OVER 70% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY WITH IBD, AND EDUCATE PEOPLE EXPERIENCING SYMPTOMS ABOUT THE IMPORTANCE OF SEEING A SPECIALIST TO GET DIAGNOSED FASTER AND REDUCE SUFFERING. 60526085 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 236 0 1 350 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 28 28 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI DE X X RONALD GOLDSMAN 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 35.00 0.00 X X 456915 0 90818 ALESSANDRO DINELLO TRUSTEE 1.00 0.00 X 0 0 0 ALEX FUNDERBURG TRUSTEE 1.00 0.00 X 0 0 0 AMBER BACKHAUS TRUSTEE 1.00 0.00 X 0 0 0 REP ANDER CRENSHAW TRUSTEE 1.00 0.00 X 0 0 0 ANDREW STERN ESQ SECRETARY 1.00 0.00 X X 0 0 0 BRENT POLK MD TRUSTEE/NSAC CHAIR 1.00 0.00 X X 0 0 0 CHRISTOPHER COLLETTE TRUSTEE 1.00 0.00 X 0 0 0 CINDI ROTH TRUSTEE (THRU 03/2020) 1.00 0.00 X 0 0 0 DAVID RUBIN MD TRUSTEE 1.00 0.00 X 0 0 0 DEB CRAWFORD TRUSTEE (AS OF 03/2020) 1.00 0.00 X 0 0 0 DONALD KORTZ TRUSTEE 1.00 0.00 X 0 0 0 ERIC STONE TRUSTEE (THRU 03/2020) 1.00 0.00 X 0 0 0 FRANK RUSSOMANO TRUSTEE 1.00 0.00 X 0 0 0 JASON BURR TRUSTEE 1.00 0.00 X 0 0 0 JENNIFER O'NEILL TRUSTEE 1.00 0.00 X 0 0 0 JODI YELLEN TRUSTEE 1.00 0.00 X 0 0 0 JOE MONK TRUSTEE 1.00 0.00 X 0 0 0 JOEL ROSH MD TRUSTEE 1.00 0.00 X 0 0 0 JOHN CROSSON CHAIRMAN 1.00 0.00 X X 0 0 0 MARCY BETH NANUS TRUSTEE 1.00 0.00 X 0 0 0 MARIA OLIVA-HEMKER MD TRUSTEE (THRU 03/2020) 1.00 0.00 X 0 0 0 MARK MURRAY PHD TRUSTEE 1.00 0.00 X 0 0 0 MEENA BEWTRA TRUSTEE (AS OF 03/2020) 1.00 0.00 X 0 0 0 MICHELE KISSOUS-HUNT TRUSTEE 1.00 0.00 X 0 0 0 NOEL BROWN TRUSTEE 1.00 0.00 X 0 0 0 PAULA HILBERT TRUSTEE (THRU 03/2020) 1.00 0.00 X 0 0 0 RHONDA BOLDING TRUSTEE (AS OF 03/2020) 1.00 0.00 X 0 0 0 ROBERT VAN PULLEY TREASURER 1.00 0.00 X X 0 0 0 SEAN KELLEY TRUSTEE (AS OF 03/2020) 1.00 0.00 X 0 0 0 TOLU FALAIYE TRUSTEE (AS OF 03/2020) 1.00 0.00 X 0 0 0 TROY VOLLERTSEN TRUSTEE 1.00 0.00 X 0 0 0 SHELBY MODELL CO-FOUNDER/TRUSTEE 1.00 0.00 X 0 0 0 ROBERT TERRITO CFO/COO 35.00 0.00 X 274772 0 23986 CAREN HELLER CHIEF SCIENCE OFFICER 35.00 0.00 X 371116 0 16207 ROHIT SURI CHIEF TECHNOLOGY OFFICER 35.00 0.00 X 257632 0 21807 MICHAEL ELKOW CHIEF FIELD OFFICER 35.00 0.00 X 250494 0 22332 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 35.00 0.00 X 216215 0 12701 JOHN MICHAEL MIZE SENIOR VICE PRESIDENT, BUSINESS DEVELOPMENT 35.00 0.00 X 207502 0 9028 JUDY HOFFSTEIN CHIEF MARKETING OFFICER 35.00 0.00 X 195790 0 24621 JENNIFER FAGERSTROM VP, CHAPTER GROWTH AND DEV 35.00 0.00 X 193037 0 17484 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 35.00 0.00 X 175660 0 9084 KRISTIN KAPLAN SVP, SPECIAL EVENTS 35.00 0.00 X 173508 0 19856 LAURA WINGATE EXECUTIVE VICE PRESIDENT, EDUCATION, SUPPORT & ADV 35.00 0.00 X 174840 0 16044 JACK MATARASSO VP DIGITAL MARKETING 35.00 0.00 X 172401 0 8470 3119882 0 292438 59 0 1 0 DELOITTE CONSULTING LLP 4022 BELLE DRIVE HERMITAGE TN 37076 INFRASTRUCTURAL COSTS FOR IBD PLEXUS 2315386 SRIJAN TECHNOLOGIES USAINC 2430 HWY 34 BUILDING B SUITE 22 MANASQUAN NJ 08736 WEBSITE DEVELOPMENT COSTS 1017424 GENEWIZ LLC 115 CORPORATE BOULEVARD SOUTH PLAINFIELD NJ 07080 IBD PLEXUS LABORATORY COSTS 922627 BLACKBAUD PO BOX 930256 ATLANTA GA 311930256 DONOR DATABASE 908396 DIVERSIGEN INC 2450 HOLCOMBE BLVD SUITE BCMA HOUSTON TX 77021 IBD PLEXUS DATA ANALYSIS 750885 28 X 1148015 22172765 593693 44852997 449027 68767470 IBD PLEXUS DATABASE AC 900099 5347081 5347081 EDUCATION & CAMP REGIS 900099 46650 46650 5393731 576560 576560 492419 492419 1620768 1016637 604131 604131 604131 1976400 22172765 2369878 -393478 -393478 491848 98370 393478 393478 IBD JOURNAL EDITORIAL 900099 232480 232480 REBATES/REFUNDS 900099 53633 53633 VEHICLE DONATION PROGR 900099 23225 23225 76393 76393 385731 76220042 5626211 0 1826361 26180290 26180290 1441246 1441246 2451934 1682087 518006 251841 23064484 15822806 4872700 2368978 992032 680558 209581 101893 3867452 2653168 817054 397230 1888930 1295853 399063 194014 91405 66021 17084 8300 127305 127305 516063 516063 467660 467660 6241763 4790668 1245814 205281 572291 348317 150705 73269 399776 245257 103971 50548 1317050 951233 246147 119670 1939113 1180215 510639 248259 424016 260861 109782 53373 295202 295032 114 56 798436 490213 207394 100829 417200 262156 104324 50720 PUBLICATIONS 553767 340598 143435 69734 LIST RENTAL FEES 30777 19339 7696 3742 1591925 1004104 399133 188688 75670117 60526085 10189947 4954085 3316951 15661625 13522713 8811867 744033 935112 3600532 2657962 7053323 5293582 2175003 1759741 19552807 24949673 468887 530666 1893323 312530 45274249 55619176 4791819 5978234 25547248 26005220 5552232 6346010 564601 6223219 36455900 44552683 X -5307068 408647 14125418 10657846 8818349 11066493 45274249 55619176 X 549925 1621801 76418 X 0 1 X 1 0 X 68702957 71431094 67009903 66405320 68767470 342316744 68702957 71431094 67009903 66405320 68767470 342316744 30282231 312034513 718756 685976 615382 729709 1068979 3818802 295805 0 0 0 0 295805 6852687 7441563 8568811 8185352 2853979 33902392 380333743 17729831 0.82040 0.78920 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: GROSS INCOME FROM FUNDRAISING ACTIVITY - 2016 AMOUNT: $ 6,455,755. 2017 AMOUNT: $ 6,790,328. 2018 AMOUNT: $ 7,371,177. 2019 AMOUNT: $ 6,822,830. 2020 AMOUNT: $ 1,976,400. GROSS INCOME FROM GAMING ACTIVITY - 2016 AMOUNT: $ 341,557. 2017 AMOUNT: $ 335,533. 2018 AMOUNT: $ 245,140. 2019 AMOUNT: $ 493,196. 2020 AMOUNT: $ 491,848. MISCELLANEOUS - 2016 AMOUNT: $ 37,283. 2017 AMOUNT: $ 299,705. 2018 AMOUNT: $ 892,774. 2019 AMOUNT: $ 827,420. 2020 AMOUNT: $ 76,393. VEHICLE DONATION PROGRAM - 2016 AMOUNT: $ 12,744. 2017 AMOUNT: $ 13,497. 2018 AMOUNT: $ 57,422. 2019 AMOUNT: $ 41,745. 2020 AMOUNT: $ 23,225. CLUBS AND ORGANIZATIONS - 2016 AMOUNT: $ 5,348. 2017 AMOUNT: $ 2,500. 2018 AMOUNT: $ 2,298. 2019 AMOUNT: $ 161. 2020 AMOUNT: $ 0. IBD JOURNAL EDITORIAL STIPENDS - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 232,480. REBATES/REFUNDS - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 53,633. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 1 0 0 1 169970 0 1 144538 314508 0 PART II-B, LINE 1: (I) IN 2020, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2020, EXPENSES INCURRED TOTALLED $144,538. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2020 WERE $121,942. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED VIRTUALLY DURING THE CALENDAR YEAR 2020, FOR WHICH EXPENSES INCURRED WERE $40,500. EXPENDITURES OF $40,500 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $40,500 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING). 486754 322612 164142 2130823 1846834 283989 4435746 3124136 1311610 1759741 REINSURANCE CONTRACTS 235315 DEFERRED RENT 266304 PAYCHECK PROTECTION PROGRAM FORGIVABLE LOAN 5721600 6223219 X 80797986 1621801 2936025 20118 4577944 76220042 0 76220042 78549842 2936025 -56300 2879725 75670117 0 75670117 PART X, LINE 2: THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (THE "CODE") AND HAS BEEN CLASSIFIED AS A PUBLICLY SUPPORTED CHARITABLE ORGANIZATION UNDER SECTION 509(A)(1) OF THE CODE AND QUALIFIES FOR THE MAXIMUM CHARITABLE CONTRIBUTION DEDUCTION BY DONORS. CONTRIBUTIONS TO THE FOUNDATION ARE TAX DEDUCTIBLE WITHIN THE LIMITATIONS PRESCRIBED BY THE CODE. THE FOUNDATION IS ALSO EXEMPT FROM STATE AND LOCAL TAXES UNDER SIMILAR STATUTES. ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, INCLUDING ISSUES RELATING TO FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT, PROVIDES THAT THE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION CAN BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS "MORE-LIKELY-THAN-NOT" TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. THE FOUNDATION IS EXEMPT FROM INCOME TAX UNDER THE CODE, HOWEVER, IS SUBJECT TO TAX ON INCOME UNRELATED TO ITS EXEMPT PURPOSES, UNLESS THAT INCOME IS OTHERWISE EXCLUDED UNDER THE CODE. THE FOUNDATION HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS NOT RECORDED A PROVISION FOR INCOME TAXES AS IT HAS NO MATERIAL TAX LIABILITY FROM UNRELATED BUSINESS INCOME ACTIVITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: CHANGES IN CHARITABLE REMAINDER TRUSTS VALUATIONS 20,118. PART XII, LINE 2D - OTHER ADJUSTMENTS: UNCOLLECTIBLE PLEDGES 493,700. GRANTS REFUNDED/RESCINDED -550,000. 1 EUROPE 0 0 GRANTMAKING RESEARCH 1029023 NORTH AMERICA 0 0 GRANTMAKING RESEARCH 285308 MIDDLE EAST AND NORTH AFRICA 0 0 GRANTMAKING RESEARCH 87915 EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING RESEARCH 39000 0 0 0 0 0 0 1441246 0 1441246 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 129870 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 25323 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 57114 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 23964 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 16680 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 30113 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 55278 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 58671 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 81000 BANK WIRE MIDDLE EAST AND NORTH AFRICA RESEARCH 87915 BANK WIRE EAST ASIA AND THE PACIFIC RESEARCH 39000 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 27953 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 87586 BANK WIRE NORTH AMERICA RESEARCH 79639 BANK WIRE NORTH AMERICA RESEARCH 205670 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 35968 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 38985 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 155097 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 26005 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 32940 BANK WIRE EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 146475 BANK WIRE 21 0 0 0 0 0 0 PART III ACCOUNTING METHOD: PART I, LINE 1: GRANTS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW SIGNIFICANT STRIDES IN THE RESEARCH, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. X X X X X X X 1 CHAPMAN CUBINE & HUSSEY INC 2000 15TH ST STE 550 ARLINGTON VA 22201 DIRECT MAIL 0 5566041 467660 5098381 5566041 467660 5098381 AK AL AR AZ CA CO CT DE FL GA HI IA IL IN KS KY LA MA MD ME MI MN MS NC ND NE NH NJ NM NY OH OK OR PA RI SC TN TX UT VA VT WA WI WV WY TAKE STEPS 7478062 7061657 416405 88361 3066 324977 TEAM CHALLENGE 1472395 1247643 224752 17362 0 207391 110 15198708 13863465 1335243 1021907 68997 637817 24149165 22172765 1976400 1127630 72063 1170185 2369878 -393478 491848 98370 0 491848 98370 98370 393478 1 0 0 0 1.00000 RONALD GOLDSMAN 733 THIRD AVENUE SUITE 510 NEW YORK NY 10017 0 SEE PART IV NONE 0 SCHEDULE G, PART III - GAMING ACTIVITIES THE CROHN'S & COLITIS FOUNDATION, INC. ONLY PARTAKES IN GAMING ACTIVITIES TO THE EXTENT THE ORGANIZATION HOLDS A RAFFLE OR GAME OF CHANCE DURING A GALA, DINNER OR OTHER SPECIAL EVENT. EACH CHAPTER IS RESPONSIBLE FOR CONDUCTING ITS OWN EVENT ACTIVITIES AND, AS SUCH, THE ORGANIZATION DOES NOT HAVE ONE PERSON WHO OVERSEES ALL GAMING ACTIVITIES FOR PURPOSES OF SCHEDULE G, PART III, LINES 14 & 16. RAFFLES ARE CONDUCTED AS PART OF SPECIAL EVENTS AND NOT AS SEPARATE FUNDRAISING ACTIVITIES. AS A RESULT OF THE PANDEMIC, TO ENGAGE WITH ITS DONORS, THE FOUNDATION VIRTUALIZED ITS SPECIAL EVENTS THROUGH THE USE OF A FUNDRAISING PLATFORM THAT OFFERED A WIDE ARRAY OF FUNDRAISING ACTIVITIES, INCLUDING RAFFLES AND AUCTIONS. CHAPTERS, IN COLLABORATION WITH NATIONAL STAFF, ARE RESPONSIBLE FOR SECURING APPLICABLE LICENSES AND COMPLYING WITH REPORTING REQUIREMENTS. FOR THE PERIOD COVERED BY THIS RETURN, ONLY 36 CHAPTERS HELD RAFFLES IN 25 STATES: ALABAMA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, PENNSYLVANIA, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN. 1 ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVE ALBANY NY 12208 141338310 501(C)(3) 6285 RESEARCH ARTIZAN BIOSCIENCES INC 150 MUNSON ST SUTIE 210 NEW HAVEN CT 06511 813754450 501(C)(3) 177975 RESEARCH AURORA RESEARCH INSTITUTELLC PO BOX 341880 MILWAUKEE WI 53234 464361213 501(C)(3) 70418 RESEARCH BAYLOR RESEARCH INSTITUTE DBA BAYLOR SCOTT AND WHITE RESEARCH IN 2001 BRYAN STREET SUITE 2200 DALLAS TX 75201 751921898 501(C)(3) 38944 RESEARCH BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVENUE BOSTON MA 02215 042103881 501(C)(3) 50458 RESEARCH BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)(3) 84200 RESEARCH BOARD OF TRUSTEES OF MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD ROOM 360 EAST LANSING MI 48824 386005984 501(C)(3) 58250 RESEARCH BOSTON MEDICAL CENTER ONE BOSTON MEDICAL CENTER PLACE BOSTON MA 02118 043314093 501(C)(3) 88870 RESEARCH CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 293446 RESEARCH CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 501(C)(3) 181250 RESEARCH CHILDRENS HOSPITAL BOSTON 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)(3) 252088 RESEARCH CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BOULEVARD MAIL STOP 97 LOS ANGELES CA 90027 195612191 501(C)(3) 178888 RESEARCH CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 272689 RESEARCH CURATORS OF THE UNIVERSITY OF MISSOURI 118 UNIVERSITY HALL COLUMBIA MO 65211 436003859 501(C)(3) 56415 RESEARCH CURTIS HUTTENHOWER 31 MT VERNON STREET 4 BOSTON MA 02108 188625023 501(C)(3) 28050 RESEARCH DANA-FARBER CANCER INSTITUTE INC 450 BROOKLINE AVENUE BP418 BOSTON MA 02215 042263040 501(C)(3) 29125 RESEARCH DARTMOUTH-HITCHCOCK CLINIC ONE MEDICAL CENTER DRIVE LEBANON NH 03756 222519596 501(C)(3) 256398 RESEARCH DUKE UNIVERSITY BOX 104132 DURHAM NC 27708 560532129 501(C)(3) 57915 RESEARCH EMORY UNIVERSITY 1599 CLIFTON ROAD NE ATLANTA GA 30322 580566256 501(C)(3) 137754 RESEARCH GEORGIA STATE UNIVERSITY RESEARCH FOUNDATION INC 30 COURTLAND STREET NE SUITE 217 ATLANTA GA 30303 581845423 501(C)(3) 165677 RESEARCH GLYCOMINDSLLC 4685 RUNWAY ST STE J SIMI VALLEY CA 93063 371762895 501(C)(3) 27500 RESEARCH ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1 GUSTAVE L LEVY PLACE NEW YORK NY 10029 136171197 501(C)(3) 1099178 RESEARCH IMPROVECARENOW INC N-213 GIVEN COURTYARD UVM COLLEGE OF MEDICINE BURLINGTON VT 05405 203200488 501(C)(3) 20000 RESEARCH INDIANA UNIVERSITY 400 E 7TH STREET POPLARS RM 501 BLOOMINGTON IN 47405 356001673 501(C)(3) 33594 RESEARCH JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 1300 YORK AVENUE NEW YORK NY 10065 131623978 501(C)(3) 829403 RESEARCH JOHNS HOPKINS UNIVERSITY 733 N BROADWAY SUITE 117 BALTIMORE MD 21211 520595110 501(C)(3) 579919 RESEARCH KOUTIF THERAPEUTICS LLC 20600 CHAGRIN BLVD STE 210 SHAKER HEIGHTS OH 44122 821873076 501(C)(3) 125000 RESEARCH LA JOLLA INSTITUTE FOR IMMUNOLOGY 9420 ATHENA CIRCLE LA JOLLA CA 92037 330328688 501(C)(3) 58250 RESEARCH MASSACHUSETTS GENERAL HOSPITAL - BOSTON 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)(3) 92663 RESEARCH MASSACHUSETTS GENERAL HOSPITAL 7 CAMBRIDGE CENTER CAMBRIDGE MA 02241 042697983 501(C)(3) 1491090 RESEARCH MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)(3) 152392 RESEARCH MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)(3) 117825 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 131924236 501(C)(3) 28958 RESEARCH NEW ENGLAND RESEARCH INSTITUTESINC 480 PLEASANT STREET SUITE A100 WATERTOWN MA 02472 042919509 501(C)(3) 118512 RESEARCH NEW YORK UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 133971298 501(C)(3) 555785 RESEARCH NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 60208 362167817 501(C)(3) 120330 RESEARCH PRESIDENT AND FELLOWS OF HARVARD COLLEGEHARVARD UNIVERSITY 1033 MASSACHUSETTS AVE 2ND FLOOR CAMBRIDGE MA 02138 042103580 501(C)(3) 58205 RESEARCH REGENTS OF THE UNIVERSITY OF COLORADO DENVER AMC AND DC 12631 EAST 17TH AVENUE C-305 AURORA CO 80045 846000555 501(C)(3) 213852 RESEARCH REGENTS OF THE UNIVERSITY OF MICHIGAN 5082 WOLVERINE TOWER 3003 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 781737 RESEARCH RUTGERS THE STATE UNIVERSITY 33 KNIGHTSBRIDGE ROAD PISCATAWAY NJ 08854 226001086 501(C)(3) 22500 RESEARCH STANFORD UNIVERSITY 485 BROADWAY 3RD FLOOR MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501(C)(3) 27000 RESEARCH STONY BROOK UNIVERSITY PO BOX 9 ALBANY NY 122010009 141368361 501(C)(3) 44861 RESEARCH SYRACUSE UNIVERSITY 640 SKYTOP ROAD SKYTOP OFFICE BUILDING ROOM 122 SYRACUSE NY 132445300 150532081 501(C)(3) 88000 RESEARCH TEMPLE UNIVERSITY 1852 NORTH 10TH STREET PHILADELPHIA PA 19122 231365971 501(C)(3) 34218 RESEARCH THE ADMINISTRATORS OF THE TULANE EDUCATION FUND DBA TULANE UNIVERSITY 6823 ST CHARLES AVE NEW ORLEANS LA 70118 720423889 501(C)(3) 57915 RESEARCH THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY 485 BROADWAY 3RD FLOOR MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501(C)(3) 57575 RESEARCH THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVENUE M/C 551 CHICAGO IL 60612 376000511 501(C)(3) 115830 RESEARCH THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 042312909 501(C)(3) 529589 RESEARCH THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 513368 RESEARCH THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 237575 RESEARCH THE PENNSYLVANIA STATE UNIVERSITY 408 OLD MAIN UNIVERSITY PARK PA 16802 246000376 501(C)(3) 90000 RESEARCH THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 45000 RESEARCH THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA OFFICE OF SPONSORED PROGRAMS PO BOX 400195 CHARLOTTESVILLE VA 22904 546001796 501(C)(3) 41822 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 10920 WHILSHIRE BOULEVARD 5TH FLOOR FLOOR LOS ANGELES CA 90024 943067788 501(C)(3) 12338 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET BOX 0815 SAN FRANCISCO CA 94143 946036493 501(C)(3) 57915 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS CA 95616 946036494 501(C)(3) 150579 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 11000 KINROSS AVENUE SUITE 211 LOS ANGELES CA 90095 956006143 501(C)(3) 345000 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA RIVERSIDE 200 UNIVERSITY OFFICE BUILDING RIVERSIDE CA 92521 956006142 501(C)(3) 48600 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 920930953 956006144 501(C)(3) 238296 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 94143 946036493 501(C)(3) 294451 RESEARCH THE RESEARCH FOUNDATION OF SUNY - SUNY AT STONY BROOK PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 18400 RESEARCH THE SALK INSTITUTE FOR BIOLOGICAL STUDIES-SAN DIEGO-CALIFORNIA 10010 NORTH TORREY PINES ROAD LA JOLLA CA 92037 952160097 501(C)(3) 82915 RESEARCH THE SCRIPPS RESEARCH INSTITUTE 10550 NORTH TORREY PINES ROAD LA JOLLA CA 90237 330435954 501(C)(3) 57915 RESEARCH THE UNIVERSITY OF CHICAGO 5801 S ELLIS AVENUE CHICAGO IL 60637 362177139 501(C)(3) 161582 RESEARCH THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD MC 9029 DALLAS TX 75235 756002868 501(C)(3) 58250 RESEARCH THE UNIVERSITY OF TOLEDO 2801 WEST BANCROFT STREE TOLEDO OH 43606 346401483 501(C)(3) 55674 RESEARCH THETIS PHARMACEUTICALS LLC 23 BUSINESS PARK DR BRANFORD CT 06405 274940990 501(C)(3) 76500 RESEARCH TISSIUM SA 23 BUSINESS PARK DRIVE BRANFORD CT 06405 274940990 501(C)(3) 141250 RESEARCH TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER NH 03755 020222111 501(C)(3) 238616 RESEARCH TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR PHILADELPHIA PA 19104 231352685 501(C)(3) 1694259 RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH AB 990 BIRMINGHAM AL 35294 636005396 501(C)(3) 361671 RESEARCH UNIVERSITY OF CINCINNATI (SPARC IBD) 260 STETSON ST SUITE 4263 CINCINNATI OH 45267 316000989 501(C)(3) 28662 RESEARCH UNIVERSITY OF FLORIDA 720 SW 2ND AVENUE GAINESVILLE FL 32601 596002052 501(C)(3) 7054 RESEARCH UNIVERSITY OF HOUSTON PO BOX 988 HOUSTON TX 77001 746001399 501(C)(3) 115830 RESEARCH UNIVERSITY OF MARYLAND BALTIMORE 220 ARCH STREET 2ND LEVEL BALTIMORE MD 21201 526002033 501(C)(3) 63379 RESEARCH UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 016550002 043167352 501(C)(3) 29125 RESEARCH UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DRIVE SUITE 2200 CB 1350 CHAPEL HILL NC 27599 566001393 501(C)(3) 1249295 RESEARCH UNIVERSITY OF PITTSBURGH 200 LOTHROP STREET PITTSBURGH PA 15213 232919472 501(C)(3) 98954 RESEARCH UNIVERSITY OF PITTSBURGH-COMMONWEALTH SYSTEM OF HIGHER EDUCATION 200 LOTHROP STREET PITTSBURGH PA 15213 250965591 501(C)(3) 111366 RESEARCH UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS SUITE 205 LOS ANGELES CA 900898006 951642394 501(C)(3) 140689 RESEARCH UNIVERSITY OF TEXAS AT DALLAS 800 W CAMPBELL ROAD RICHARDSON TX 75080 751305566 501(C)(3) 125000 RESEARCH UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON 301 UNIVERSITY BLVD GALVESTON TX 77555 746000949 501(C)(3) 60090 RESEARCH VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVENUE SOUTH D3300MCN NASHVILLE TN 37232 162047682 501(C)(3) 331104 RESEARCH WASHINGTON UNIVERSITY IN ST LOUIS 660 S EUCLID AVENUE ST LOUIS MO 63110 430653611 501(C)(3) 680095 RESEARCH YALE UNIVERSITY 2 WHITNEY AVENUE 6TH FLOOR NEW HAVEN CT 06510 060646973 501(C)(3) 45000 RESEARCH 85 PART I, LINE 2: THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") IS A NON-PROFIT ORGANIZATION DEDICATED TO FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS. TO ACCOMPLISH THIS, THE FOUNDATION SUBSIDIZES RESEARCH INTO BOTH DISEASES. GRANTS ARE AWARDED FOR SPECIFIC PROJECTS FOR SPECIFIC RESEARCH AND THE FOUNDATION REQUIRES THE RESEARCHER TO ISSUE PROGRESS REPORTS ANNUALLY AS THE PROJECT IS BEING COMPLETED. MOST AWARDS ARE GIFTED FOR A PERIOD OF 3 YEARS WITH AN ANNUAL PROGRESS REPORT PRESENTED TO THE CHIEF SCIENTIFIC OFFICER AND THE NATIONAL SCIENTIFIC ADVISORY COMMITTEE FOR REVIEW AND APPROVAL. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. THE FOUNDATION ALSO SUPPORTS ORGANIZATIONS SEEKING TO ACCELERATE THE DEVELOPMENT OF RESEARCH-BASED PRODUCTS WITH POTENTIAL FOR POSITIVE IMPACT FOR PATIENTS. FUNDED PROJECTS ARE APPROXIMATELY 12 MONTHS IN DURATION, WITH SPECIFIC INTERMEDIATE AND FINAL MILESTONES IDENTIFIED AT PROJECT ONSET. PROJECT INVESTMENTS MAY BE RENEWED IN ADDITIONAL INCREMENTS IF MILESTONES ARE ACHIEVED AND IF THE APPLICANT SUBMITS A PROPOSAL FOR ADDITIONAL FUNDING. X X X X X 0 1 0 0 0 0 0 1 0 MICHAEL OSSO PRESIDENT/CEO(NON-VOTING) 431915 0 25000 0 0 0 86600 0 4218 0 547733 0 0 0 CAREN HELLER CHIEF SCIENCE OFFICER 364116 0 7000 0 0 0 16207 0 0 0 387323 0 0 0 ROBERT TERRITO CFO/COO 269772 0 5000 0 0 0 16426 0 7560 0 298758 0 0 0 ROHIT SURI CHIEF TECHNOLOGY OFFICER 252632 0 5000 0 0 0 10938 0 10869 0 279439 0 0 0 MICHAEL ELKOW CHIEF FIELD OFFICER 247994 0 2500 0 0 0 12964 0 9368 0 272826 0 0 0 ALLISON COFFEY CHIEF DEVELOPMENT OFFICER 212215 0 4000 0 0 0 12701 0 0 0 228916 0 0 0 JUDY HOFFSTEIN CHIEF MARKETING OFFICER 191790 0 4000 0 0 0 7071 0 17550 0 220411 0 0 0 JOHN MICHAEL MIZE SENIOR VICE PRESIDENT, BUSINESS DEVE 204002 0 3500 0 0 0 2625 0 6403 0 216530 0 0 0 JENNIFER FAGERSTROM VP, CHAPTER GROWTH AND DEV 191037 0 2000 0 0 0 9819 0 7665 0 210521 0 0 0 KRISTIN KAPLAN SVP, SPECIAL EVENTS 173508 0 0 0 0 0 10899 0 8957 0 193364 0 0 0 LAURA WINGATE EXECUTIVE VICE PRESIDENT, EDUCATION, 170840 0 4000 0 0 0 9742 0 6302 0 190884 0 0 0 ANGELA DOBES VICE PRESIDENT, IBD PLEXUS 172160 0 3500 0 0 0 9084 0 0 0 184744 0 0 0 JACK MATARASSO VP DIGITAL MARKETING 170401 0 2000 0 0 0 8470 0 0 0 180871 0 0 0 PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS NEXT STUDY IN 2021. PART I, LINE 4B THE FOUNDATION INSTITUTED A SECTION 457(F) NONQUALIFIED DEFERRED COMPENSATION PLAN FOR THE BENEFIT OF THE PRESIDENT/CEO, MICHAEL OSSO, IN 2018. THE AGREEMENT ALLOWS FOR ANNUAL CONTRIBUTIONS TO BE MADE BASED ON MEETING PRE-DETERMINED OBJECTIVES. IN 2020, THE FOUNDATION CREDITED $50,000 TO THE PRESIDENT/CEO WHICH HAS BEEN REFLECTED IN SCHEDULE J, PART II, COLUMN C. NO AMOUNT WAS ACTUALLY PAID TO THE CEO DURING THE YEAR UNDER THIS AGREEMENT, AS THE TERMS OF THE AGREEMENT HAVE NOT YET BEEN SATISFIED. PART I, LINE 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. THE FOUNDATION ACKNOWLEDGES ALL OF ITS OTHER EMPLOYEES THROUGH ANNUAL LUMP-SUM INCENTIVE AWARDS BASED ON MEETING INDIVIDUAL, DEPARTMENTAL, AND OVERALL FOUNDATION PERFORMANCE GOALS. X 85 449027 MARKET PRICE 0 1 1 IMPACT OF THE COVID-19 PANDEMIC ON THE CROHN'S & COLITIS FOUNDATION INC. IN EARLY 2020, AN OUTBREAK OF THE NOVEL STRAIN OF CORONAVIRUS ("COVID-19") EMERGED ON A GLOBAL SCALE. IN REACTION TO THE OUTBREAK, FEDERAL, STATE, AND LOCAL GOVERNMENTS ISSUED MANDATES THAT DISRUPTED NORMAL BUSINESS ACTIVITY IN EVERY SECTOR OF THE ECONOMY. DESPITE THE OPERATING CHALLENGES IT PRESENTED, THE FOUNDATION REMAINED FOCUSED ON DELIVERING ITS CORE MISSION. IN EARLY MARCH, THE PANDEMIC CAUSED THE FOUNDATION TO CLOSE OFFICES ACROSS THE COUNTRY AND SHIFT ITS OPERATIONS, SPECIAL EVENTS AND COMMUNITY-BASED PROGRAMS TO A VIRTUAL FORMAT, WHICH REMAINED IN EFFECT THROUGH THE END OF 2020 AND INTO 2021. THE FOUNDATION CONTINUES TO CLOSELY MONITOR THE ONGOING IMPACTS OF COVID-19 AND IS FOCUSED ON ENSURING A CAREFUL BALANCE BETWEEN DELIVERING ON ITS MISSION AND MAINTAINING A STRONG FINANCIAL POSITION. ACCORDINGLY, THE EXTENT TO WHICH COVID-19 MAY HAVE A FUTURE IMPACT ON THE FOUNDATION'S FINANCIAL POSITION IS UNCERTAIN. ON APRIL 22, 2020, THE FOUNDATION WAS GRANTED A LOAN IN THE AGGREGATE AMOUNT OF $5,721,600, PURSUANT TO THE SMALL BUSINESS ADMINISTRATION PAYCHECK PROTECTION PROGRAM (THE "PPP") UNDER DIVISION A, TITLE I OF THE CARES ACT, WHICH WAS ENACTED MARCH 27, 2020. THE LOAN MATURES ON APRIL 22, 2022 AND BEARS INTEREST AT A RATE OF ONE PERCENT PER ANNUM. PRINCIPAL PAYMENTS OF $322,157 WERE EXPECTED TO COMMENCE ON NOVEMBER 22, 2020. UNDER THE TERMS OF THE PPP, THE LOAN MAY BE FORGIVEN IF THE FUNDS ARE USED FOR QUALIFYING EXPENSES, CONSISTING OF PAYROLL COSTS, RENT, AND UTILITIES. ON DECEMBER 21, 2020, THE FOUNDATION APPLIED FOR LOAN FORGIVENESS; THE FOUNDATION RECEIVED FULL FORGIVENESS ON JUNE 25TH, 2021. THE PPP LOAN, RECORDED AS A LIABILITY ON THE CURRENT YEAR FORM 990 WILL BE RELEASED FROM DEBT AND RECORDED AS INCOME IN NEXT YEAR'S FORM 990. FORM 990, PART I, LINE 1 ORGANIZATION'S MISSION (CONTINUED) AND TO IMPROVE THE QUALITY OF LIFE AND CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. FORM 990, PART III, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY A NATIONAL ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCE DEPARTMENT. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED AND REVIEWED WITH THE AUDIT COMMITTEE FOR DISCUSSION AND COMMENT. A COPY OF THE 990 IS DISTRIBUTED TO ALL BOARD OF TRUSTEES PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C ALL OFFICERS, DIRECTORS, TRUSTEES, AND KEY EMPLOYEES OF THE CROHN'S & COLITIS FOUNDATION ARE REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE FOUNDATION. THE FOUNDATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY. FORM 990, PART VI, SECTION B, LINE 15 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, MISSION EXPENDITURES, GEOGRAPHIC LOCATION, TENURE, AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD WITH APPROVAL BY THE COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION COMMISSIONED ITS NEXT STUDY IN 2021. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS FORM 990 AVAILABLE TO THE PUBLIC BY RETAINING A COPY AT ITS PLACE OF BUSINESS AND ON ITS WEBSITE AT WWW.CROHNSCOLITISFOUNDATION.ORG. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE POSTED ON ITS WEBSITE. GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY WILL BE PROVIDED UPON REQUEST AT MANAGEMENT'S DISCRETION. PART VIII, LINE 1G, NONCASH CONTRIBUTIONS THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS UTILIZED THE SERVICES OF CAR PROGRAM, INC., AN ORGANIZATION THAT RECEIVES DONATED VEHICLES, SELLS THEM AND REMITS THE NET PROCEEDS TO SEVERAL CHARITABLE ORGANIZATIONS. THE VEHICLES ARE NOT DONATED DIRECTLY TO THE FOUNDATION NOR DOES THE FOUNDATION HAVE OWNERSHIP RIGHTS TO THEM. IN 2020, THE FOUNDATION RECEIVED $23,225 IN REVENUES FROM THIS PROGRAM. ADDITIONALLY, THE FOUNDATION RECEIVES CONSIDERABLE IN-KIND CONTRIBUTIONS IN THE FORM OF DONATED PUBLIC SERVICE ANNOUNCEMENTS ON TELEVISION AND RADIO STATEMENTS AND SERVICES RECEIVED FROM PHYSICIANS AND HEALTH PROFESSIONALS THAT HAVE MADE SIGNIFICANT CONTRIBUTIONS OF THEIR TIME IN FURTHERANCE OF THE FOUNDATION'S MISSION. THE FAIR VALUE OF SUCH IN-KIND CONTRIBUTIONS IS REFLECTED IN THE STATEMENT OF ACTIVITIES AS CONTRIBUTED SERVICES AND AIRTIME REVENUE AND HEALTH PROFESSIONAL EDUCATION AND PUBLIC INFORMATION PROGRAM SERVICE EXPENSE. SINCE DONATED SERVICES ARE NOT REPORTED ON THE FORM 990, THE FOUNDATION HAS NOT REPORTED THE CONTRIBUTED SERVICES AND AIRTIME ON SCHEDULE M OR PART VIII, LINE 1(G). FOR THE YEAR ENDING DECEMBER 31, 2020, CONTRIBUTED SERVICES AND AIRTIME AMOUNTED TO $2,936,025. FORM 990, PART XI, LINE 9: CHANGES IN GIFT ANNUITIES 20,118. PROVISION FOR BAD DEBT -493,700. GRANTS REFUNDED/RESCINDED 550,000.