2025-08-14T13:09:58+00:00 2024-09-30 350921680 CROWE LLP 701 13th St NW Suite 852 Washington DC 20005 990 2023-10-01 136093337 CEREBRAL PALSY FOUNDATION INC CERE 2125201686 3 COLUMBUS CIRCLE SUITE 15TH FLOOR NEW YORK NY 10019 RACHEL JORDAN EXECUTIVE DIRECTOR 2025-08-14 true Steve Lenivy P01635350 2026245555 2025-08-14 2023 2025-03-06 01:10:19Z RACHEL JORDAN 3 COLUMBUS CIRCLE SUITE 15TH FLOOR NEW YORK NY 10019 6979273 false X WWW.YOURCPF.ORG X 1955 NY THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION. 13 12 7 37 0 0 3811008 4191716 208807 489336 57617 66921 -56159 -61828 4021273 4686145 2237407 2763136 0 0 870167 873746 0 0 52447 791439 1047529 3899013 4684411 122260 1734 2675260 2792533 242871 258325 2432389 2534208 THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION. false false 4474666 2763136 489336 THE FOUNDATION PROVIDES FINANCIAL SUPPORT TO RIGOROUSLY REVIEWED, SCIENTIFICALLY IMPORTANT RESEARCH RELEVANT TO CEREBRAL PALSY AND OTHER DEVELOPMENTAL DISABILITIES. THE FOUNDATION ALSO PROVIDES MEDICAL EXPERTISE AS REQUESTED BY OTHER ORGANIZATIONS AND SERVES AS A RESOURCE FOR THE INTERNATIONAL PUBLIC, CLINICIANS AND POLICY-MAKERS ABOUT BEST HEALTH CARE PRACTICES, PREVENTION AND CURATIVE STRATEGIES FOR CEREBRAL PALSY. THE FOUNDATION IS ALSO FOCUSING ITS ATTENTION ON RESEARCH DIRECTED AT ISSUES OF EARLY DIAGNOSIS, MECHANISMS OF NERVOUS SYSTEM INJURY AND REPAIR, REGENERATIVE TREATMENTS, NEUROLOGICAL REHABILITATION, ORTHOPEDIC REHABILITATION AND ENGINEERING SOLUTIONS AS WELL AS RESEARCH TO PREVENT THE SECONDARY NEUROMUSCULAR, MUSCULOSKELETAL AND CARDIOVASCULAR COMPLICATIONS SEEN IN ADULTS WITH CEREBRAL PALSY. THERE ARE APPROXIMATELY 1 MILLION CHILDREN AND ADULTS IN THE USA WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES, MORE CLINICAL AND BASIC BIOMEDICAL RESEARCH IS URGENTLY NEEDED FOR IMPROVING NEUROLOGICAL FUNCTIONS, PREVENTING MEDICAL COMPLICATIONS, AND OPTIMIZING QUALITY OF LIFE IN THESE INDIVIDUALS FROM INFANCY THROUGH ADULTHOOD. 4474666 true true false false false false false false true true false false true false true true false false true true true false false true false false true false true false false false false false false false false false false false false false false false false false true 19 0 true 7 true false false false false false true true false false false false false false X 13 12 false false false false true true false true true false false true true true true true true true false false CA FL GA AL HI IL KS KY MD MA MI MN MS NH NJ NM NY NC ND OR PA RI SC TN UT VA AR WV WI X REBECCA LAM 2125201686 3 COLUMBUS CIRCLE SUITE 15TH FLOOR NEW YORK NY 10019 ILA ECKHOFF CHAIRMAN 1.0 X X 0 0 0 JAMES P VOLCKER V.P & SECRETARY 1.0 X X 0 0 0 PATRICK DOWNES TREASURER 1.0 X X 0 0 0 RACHEL JORDAN EXECUTIVE DIRECTOR 37.5 X X 239313 0 13350 DR ANDREA DUNCAN DIRECTOR 1.0 X 0 0 0 DR DEBORAH GAEBLER-SPIRA DIRECTOR 1.0 X 0 0 0 EILEEN FOWLER DIRECTOR 1.0 X 0 0 0 GERALD DUNDON DIRECTOR 1.0 X 0 0 0 KARA BUCKLEY DIRECTOR 1.0 X 0 0 0 LEVEE BROOKS DIRECTOR 1.0 X 0 0 0 LILY COLLISON DIRECTOR 1.0 X 0 0 0 MICHELLE KASSNER DIRECTOR 1.0 X 0 0 0 PETER W SHAPIRO DIRECTOR 1.0 X 0 0 0 WENDY GARFINKEL DIRECTOR (UNTIL 11/2023) 1.0 X 0 0 0 CYNTHIA FRISINA VICE PRESIDENT OF PARTNERSHIPS 37.5 X 142917 0 7146 DEBORAH FINK VP OF EDUCATION AND INCLUSION 37.5 X 109482 0 20074 REBECCA LAM VP OF PROGRAMS AND OPERATIONS 37.5 X 118927 0 20245 610639 0 60815 4 false true false 0 14459 249440 3927817 4191716 Training Fees 611430 489336 489336 0 0 0 0 489336 66921 66921 0 0 2210000 2210000 0 0 0 0 21300 249440 83128 -61828 -61828 0 0 0 0 0 4686145 489336 0 5093 1251724 1251724 1511412 1511412 232387 209149 11619 11619 512411 486322 8615 17474 26598 25228 473 897 46563 44625 1415 523 55787 52395 1417 1975 10500 10500 110228 110228 277661 268427 937 8297 249206 248951 191 64 25195 13596 548 11051 23433 23361 54 18 10410 9944 349 117 143048 142761 215 72 157995 157950 34 11 2352 2247 79 26 6742 3605 3095 42 MISCELLANEOUS EXPENSE 30759 22969 7529 261 0 0 0 0 4684411 4474666 157298 52447 129881 251611 1625006 1382369 325040 450614 0 0 0 0 11077 32876 26283 8945 6593 4376 9329 0 0 582012 680940 2675260 2792533 160111 98325 75000 150000 7760 10000 0 0 0 0 242871 258325 X 252691 -14367 2179698 2548575 2432389 2534208 2675260 2792533 X 1734 1157 98928 X false true X true false X 1545921 1867379 1916963 3811008 4191716 13332987 0 0 1545921 1867379 1916963 3811008 4191716 13332987 3513961 9819026 3684 2010 5085 30134 66921 107834 0 0 0 0 0 0 27750 0 0 27600 21300 76650 13517471 1217577 0.7264 0.7213 X Schedule A, Part II, Line 10 Other Income DESCRIPTION - GROSS FUNDRAISING INCOME, COLUMN A - 27750.0, COLUMN B - 0.0, COLUMN C - 0.0, COLUMN D - 27600.0, COLUMN E - 21300.0, COLUMN F - 76650.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 179400 7432 7432 179400 179400 2490 2490 179400 179400 531 531 179400 179400 72 72 179400 179400 242 242 179400 0.0 1.0 0.0 false false 32876 26283 6593 6593 BENEFICIAL INTEREST IN TRUSTS 680940 680940 0 X 4991542 1157 221112 0 222269 4769273 -83128 -83128 4686145 4988651 221112 83128 304240 4684411 0 0 4684411 Schedule D, Part V, Line 4 Intended uses of endowment funds THE FOUNDATION'S ENDOWMENT IS INTENDED TO FUND VARIOUS RESEARCH ENDEAVORS FOR PREVENTION AND TREATMENT OF CEREBRAL PALSY. THE FOUNDATION INTENDS THAT THE ENDOWMENT PRINCIPAL SHALL BE HELD IN PERPETUITY UNTOUCHED, THE EARNINGS SHALL BE USED FOR DAILY OPERATIONS/ACTIVITIES. TO THE EXTENT THE ENDOWMENT HOLDS ANY TEMPORARILY RESTRICTED NET ASSETS, THOSE ASSETS WILL BE USED IN ACCORDANCE WITH DONORS' INTENT (WITH THAT INTENT TO COINCIDE WITH THE MISSION OF THE FOUNDATION). Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote The Foundation follows guidance that establishes criterion that an individual tax position must meet for some or all of the benefits of that position to be recognized in an entity's financial statements. This standard requires the Foundation to determine whether a tax position is more likely than not to be sustained upon examination by the applicable taxing authority, including resolution of any related appeals or litigation processes, based on the technical merits of the position. The Foundation has processes presently in place to ensure the maintenance of its tax-exempt status; to identify and report unrelated income; determine its filing and tax obligations in jurisdictions for which it has nexus; and, to review other matters that may be considered tax positions. As of September 30, 2024, and 2023, management does not believe the Foundation has any material uncertain tax positions. Schedule D, Part XI, Line 4(b) Other revenues in form 990 not in audited financial statements FUNDRAISING EXPENSE - -83128 Schedule D, Part XII, Line 2(d) Other expenses in audited financial statements not in form 990 FUNDRAISING EXPENSE - 83128 true Europe (Including Iceland and Greenland) 0 0 Grantmaking GRANTS TO INSITITUTIONS 1511412 Europe (Including Iceland and Greenland) 0 3 Program Services CONTRACTOR FEES - COMMUNITY ENGAGEMENT COORDINATOR 16776 0 3 0 0 0 3 1528188 0 1528188 Europe (Including Iceland and Greenland) RESEARCH 527285 WIRE 0 N/A N/A Europe (Including Iceland and Greenland) RESEARCH 28021 WIRE 0 N/A N/A Europe (Including Iceland and Greenland) RESEARCH 539074 WIRE 0 N/A N/A Europe (Including Iceland and Greenland) RESEARCH 368831 WIRE 0 N/A N/A Europe (Including Iceland and Greenland) RESEARCH 27924 WIRE 0 N/A N/A Europe (Including Iceland and Greenland) RESEARCH 20277 WIRE 0 N/A N/A 6 0 false false false false false false Schedule F, Part I, Line 2 Procedures for monitoring use of grant funds All grantees are required to submit quarterly progress reports before receiving a following payment. Each progress report also includes a detailed financial report showing proper usage of the funds. Schedule F, Part I, Line 3 Method used to account for expenditures on org's financial statements EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual Schedule F, Part II, Line 1 Method used to account for expenditures on org's financial statements EUROPE (INCLUDING ICELAND AND GREENLAND)-Accrual Gala 270740 249440 21300 32930 26896 16354 6948 0 0 270740 249440 21300 32930 26896 16354 6948 83128 -61828 true HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER 716 N BROADWAY BALTIMORE MD 21205 521524967 501(c)(3) 66154 RESEARCH UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE SALT LAKE CITY UT 48112 876000525 GOVT 49036 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10920 WILSHIRE BLVD LOS ANGELES CA 90024 956006143 501(c)(3) 422059 RESEARCH THE CHILDREN'S HOSPITAL OF PHILADELPHIA RESEARCH INSTITUTE 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(c)(3) 55293 RESEARCH ANN & ROBERT LURIE CHILDREN'S HOSPITAL OF CHICAGO 225 E CHICAGO AVENUE CHICAGO IL 60611 362170833 501(c)(3) 37500 RESEARCH UNIVERSITY OF MICHIGAN 500 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 GOVT 40000 RESEARCH UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS BLDG LOS ANGELES CA 90089 951642394 501(c)(3) 35000 RESEARCH COLUMBIA UNIVERSITY 615 131ST STREET NEW YORK NY 10027 135598093 501(c)(3) 50000 RESEARCH EMORY UNIVERSITY 201 DOWMAN DRIVE ATLANTA GA 30322 580566256 501(c)(3) 326682 RESEARCH Gillette Children's Healthcare 200 University Ave E St Paul MN 55101 363379150 501(c)(3) 150000 RESEARCH Johns Hopkins Univerisity 1101 E 33rd Street BALTIMORE MD 21218 520595110 501(c)(3) 20000 RESEARCH 11 0 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds. PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS IN THE US - THE FOUNDATION SPONSORS PROGRAM GRANTS. EACH GRANTEE IS REQUIRED TO UPDATE THE FOUNDATION ABOUT THE STATUS OF THE PROJECT. THE FOUNDATION REQUIRES PERIODIC FINANCIAL AND PROGRESS REPORTS FROM THE GRANTEE ORGANIZATIONS. THE FOUNDATION SPECIFICALLY OUTLINES THE TERMS OF THE GRANT IN A DETAILED GRANT AWARD AGREEMENT. X X X false false false false false false false true false RACHEL JORDAN EXECUTIVE DIRECTOR 202313 0 37000 0 0 0 11184 0 2166 0 252663 0 0 0 CYNTHIA FRISINA VICE PRESIDENT OF PARTNERSHIPS 140000 0 2917 0 0 0 7146 0 0 0 150063 0 0 0 Schedule J, Part I, Line 7 Non-fixed payments During the tax year, the individuals reported on Part VII, Section A received a non-fixed discretionary bonus that was approved by the chair. Form 990, Part III, Line 1 ORGANIZATION'S MISSION SINCE OUR FOUNDING IN 1955, THE FOUNDATION HAS CONTRIBUTED MORE THAN $40 MILLION FOR RESEARCH GRANTS TO SUPPORT APPROXIMATELY 500 RESEARCH PROJECTS IN THE BIOMEDICAL AND CLINICAL SCIENCES AND IN BIOENGINEERING. THE FOUNDATION HAS PROVIDED GUIDANCE, FUNDS AND OTHER RESOURCES TO RESEARCH PROGRAMS IN THE UNITED STATES, THE MIDDLE EAST, CANADA, THE UK, AUSTRALIA, AND GREECE AS PART OF ITS GLOBAL COMMITMENT TO RESEARCH AND MEDICAL DISCOVERIES. OUR WEBSITE OFFERS ACCESS TO OVER 160 "RESEARCH FACT SHEETS", WEB CASTS OF SCIENTIFIC WORKSHOPS, CURRENT AND PAST RESEARCH PROJECTS AS WELL AS DISCUSSION FORUMS REGARDING TREATMENTS CURRENTLY AVAILABLE FOR CP. THE FOUNDATION ALSO CONTRIBUTES TO NATIONAL AND INTERNATIONAL MEETING AND ORGANIZES SCIENTIFIC WORKSHOPS DESIGNED TO IDENTIFY RESEARCH OPPORTUNITIES AND PROVIDE STATE OF THE ART KNOWLEDGE CONCERNING CP PREVENTION, CURE AND CARE. Form 990, Part VI, Line 15b Compensation of Officers or Key Employees This is answered "no" in accordance with the instructions since there are no other officers or key employees. Form 990, Part VI, Line 1a Delegate broad authority to a committee The Executive Committee is made up of the Chairman, V.P/Secretary, Treasurer, and a director. All Executive Committee members are members of the organization who are authorized to appoint individuals to the Board of Directors. During the intervals between meetings of the Board of Directors, the Executive Committee shall have and exercise the powers and functions of the Board of Directors in the management and direction of the affairs of the Corporation. Notwithstanding the foregoing, the Executive Committee shall have no authority to (i) take any action which is prohibited by Section 712 of the Not-for- Profit Corporation Law, (ii) hire or terminate the President, any executive officer or the medical director of the Corporation, (iii) approve the merger of or sale or transfer of all or substantially all of the assets of the Corporation, (iv) approve the liquidation or dissolution of the Corporation, or (v) appoint or remove any member of the Executive Committee. Form 990, Part VI, Line 6 Classes of members or stockholders THE FOUNDATION IS COMPRISED OF MEMBERS WHO ARE AUTHORIZED TO APPOINT INDIVIDUALS TO THE BOARD OF DIRECTORS. THE FOUNDATION'S MEMBERS DO NOT HAVE THE AUTHORITY TO OVERSEE, SUPERVISE OR CHANGE ANY GOVERNING DECISIONS MADE BY THE BOARD OF DIRECTORS. Form 990, Part VI, Line 7a Members or stockholders electing members of governing body THE FOUNDATION IS COMPRISED OF MEMBERS WHO ARE AUTHORIZED TO APPOINT INDIVIDUALS TO THE BOARD OF DIRECTORS. THE FOUNDATION'S MEMBERS DO NOT HAVE THE AUTHORITY TO OVERSEE, SUPERVISE OR CHANGE ANY GOVERNING DECISIONS MADE BY THE BOARD OF DIRECTORS. Form 990, Part VI, Line 11b Review of form 990 by governing body THE FOUNDATION'S FORM 990 WAS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM IN CONJUNCTION WITH THE ORGANIZATION'S FINANCIAL CONSULTANTS. A COPY OF THE DRAFT FORM 990 WAS CIRCULATED TO THE BOARD OF DIRECTOR'S AUDIT AND FINANCE COMMITTEES BY THE EXECUTIVE OFFICER FOR DISCUSSION AND COMMENT AND THEN SUBSEQUENTLY DISTRIBUTED TO THE BOARD PRIOR TO FILING. EACH BOARD MEMBER WAS PROVIDED AMPLE OPPORTUNITY TO COMMENT ON THE INFORMATION CONTAINED IN THE 990 PRIOR TO ITS FILING WITH THE INTERNAL REVENUE SERVICE. Form 990, Part VI, Line 12c Conflict of interest policy EACH OFFICER, DIRECTOR, TRUSTEE AND KEY EMPLOYEE OF THE ORGANIZATION IS REQUIRED TO ANNUALLY DISCLOSE ANY CONFLICTS OF INTEREST THAT ARISE BY VIRTUE OF EMPLOYMENT, BOARD SERVICE, OR POSITION WITH THE ORGANIZATION. THE ORGANIZATION MONITORS COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY THROUGH AN ANNUAL QUESTIONNAIRE/DISCLOSURE STATEMENT THAT IS DISTRIBUTED TO THESE INDIVIDUALS. POTENTIAL CONFLICTS ARE INVESTIGATED IMMEDIATELY. Form 990, Part VI, Line 15a Process to establish compensation of top management official THE EXECUTIVE DIRECTOR'S COMPENSATION WAS DETERMINED BY THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS. RESEARCH WAS DONE TO COMPARE SALARY TO INDUSTRY STANDARDS. COMPENSATION IS REVIEWED ANNUALLY BY THE EXECUTIVE COMMITTEE AND DOCUMENTED. Form 990, Part VI, Line 19 Required documents available to the public The Audited Financial Statements and Form 990 are available ON THE FOUNDATION'S OWN WEBSITE, HTTP://YOURCPF.ORG/. THE FOUNDATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT ORDINARILY MADE AVAILABLE TO THE PUBLIC, BUT, IF REQUESTED, WILL BE PROVIDED AT MANAGEMENT'S DISCRETION. Form 990, Part XI, Line 9 Other changes in net assets or fund balances Change in Fair Value of beneficial interest in trusts held by third-parties - 98928;