2021-06-09T08:32:40-05:00 2020-07-31 410746749 CLIFTONLARSONALLEN LLP 420 SOUTH ORANGE AVENUE SUITE 500 ORLANDO FL 32801 990 2019-08-01 593124673 CENTRAL FLORIDA DOWN SYNDROME ASSOCIATION INC CENT 4074785621 204 N WYMORE ROAD WINTER PARK FL 32789 BYRON M LAWSON JR CHAIR 4074785621 2021-06-07 1 AMY CHAPMAN P00843460 4078021200 2021-06-02 2019 2022-09-23 18:48:47Z DOWN SYNDROME ASSOC OF CNTRL FL BYRON M LAWSON JR 204 N WYMORE ROAD WINTER PARK FL 32789 1242470 0 X WWW.DSACF.ORG X 1992 FL TO CHANGE WHAT IS POSSIBLE FOR PEOPLE WITH DOWN SYNDROME THROUGH PROGRAMS, RESOURCES, AND ADVOCACY. 7 7 6 50 0 0 652593 571793 28248 0 25539 15897 -35532 -38562 670848 549128 71430 56557 0 0 203282 197501 0 0 121502 353983 311066 628695 565124 42153 -15996 1379642 1574196 210728 394344 1168914 1179852 X SEE SCHEDULE OTO BE THE LEADING VOICE FOR ALL INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES. WE OFFER HOPE, ENCOURAGEMENT AND ACCEPTANCE THROUGH ADVOCACY, EDUCATION, AND AWARENESS AS WE GUIDE INDIVIDUALS WITH DOWN SYNDROME THROUGH LIFE'S TRANSITIONS. TOGETHER, WE CREATE A CENTRAL FLORIDA COMMUNITY COMPOSED OF AND DEDICATED TO INDIVIDUALS WITH DOWN SYNDROME AND THOSE WHO LOVE THEM SO THAT EACH MAY REALIZE THEIR POTENTIAL. 0 0 206443 ADVOCACY/OUTREACH:SEE SCHEDULE O FOR FURTHER DETAILS ONA. LOW DOWN ON LAWB. STEP UP WALKC. SPECIAL CLINIC FOR SPECIAL NEEDS: YOUTH AND ADULT CLINICSD. FAMILY FUN DAYS AT UNIVERSAL, SEAWORLD, LEGOLAND 66416 56557 SCHOLARSHIPS AND EMERGENCY ASSISTANCE DSACF OFFERS A WIDE VARIETY OF SCHOLARSHIPS TO COVER EXPENSES THAT TRADITIONAL INSURANCE MY NOT COVER, INCLUDING: SWIM LESSONS, THERAPIES, SPECIAL ASSESSMENTS, MEDICAL BILLS, ADAPTIVE EQUIPMENT, ETC. DSACF ALSO OFFERS EMERGENCY ASSISTANCE TO FAMILIES THAT HAVE AN UN-PLANNED NEED THAT CANNOT BE MET. FOR THE 2019-2020 FISCAL YEAR, DSACF RECEIVED 100K IN GRANT DOLLARS TO FUND ADDITIONAL SCHOLARSHIPS, FOR ONE YEAR ONLY. 29558 EDUCATIONSEE SCHEDULE O FOR FURTHER DETAILS ONA. NEW PARENT KIT AND WELCOME CELEBRATIONB. THERAPIES AND WORKSHOPSC. PRE-SCHOOL READINESS CAMPSD. START WITH HELLO 19738 OTHER PROGRAMSA. JOB SUPPORT - ENTREPRENEUR ACADEMYB. GENERAL1. BUDDY UP TENNIS2. FRIENDSHIPCLUB 19738 322155 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 1 13 0 6 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 X X HEATHER BARNES 4074785621 204 N WYMORE ROAD WINTER PARK FL 32789 BYRON LAWSON CHAIR 10.00 X X 0 0 0 DIANE LEVINE VICE CHAIR 10.00 X X 0 0 0 CATHERINE DAVEY SECRETARY 10.00 X X 0 0 0 TROY CULLEY TREASURER 10.00 X X 0 0 0 SEAN DIMERCURIO DIRECTOR/FORMER TREASURER 10.00 X 0 0 0 COREY ASPELETIER DIRECTOR 5.00 X 0 0 0 ALLISON SALAMONE DIRECTOR/FORMER SECRETARY 5.00 X 0 0 0 RYAN RAPOLTI DIRECTOR 5.00 X 0 0 0 PATRICIA LEWIS DIRECTOR 5.00 X 0 0 0 ORYZA QUILES DIRECTOR 5.00 X 0 0 0 CYNTHIA WILLIAMS THROUGH 720 INTERIM EXECUTIVE DIRECTOR 20.00 X 34425 0 0 HEATHER BARNES FROM 720 EXECUTIVE DIRECTOR 40.00 X 0 0 0 34425 0 0 0 0 0 0 0 5449 217265 349079 167006 571793 20788 20788 649889 654780 -4891 -4891 -4891 0 217265 38562 -38562 -38562 549128 0 0 -22665 X 56557 56557 76577 16102 16065 44410 111182 50646 49332 11204 1436 301 1070 65 61 61 8245 3634 3562 1049 4613 4613 24928 24928 4580 4580 6812 6812 7534 21 7513 12136 12136 5849 104 5745 10460 10460 11903 11903 5182 5182 IN-KIND ATTRACTION 167006 167006 PROGRAM COSTS 26630 26630 OTHERS 15443 279 5613 9551 SERVICE CHARGES AND FEE 6407 4767 1640 1583 1000 583 565124 322155 121467 121502 935666 219053 4000 2000 559735 146081 425557 413654 873642 14419 65847 1379642 1574196 12997 27909 197731 366435 210728 394344 X 259516 218084 909398 961768 1168914 1179852 1379642 1574196 -15996 26934 0 X 0 1 X 1 0 X 439855 392286 540201 652593 568643 2593578 439855 392286 540201 652593 568643 2593578 133061 2460517 20026 11099 11663 19025 20788 82601 2676179 0.91940 0.80550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 864618 23621 888239 865368 -750 864618 12955 667 13622 11550 1405 12955 11605 -55 11550 0.01640 0.98360 0.00000 1 0 83600 83600 476135 146081 330054 413654 PAYCHECK PROTECTION PROGRAM LOAN 28200 MORTGAGE LOAN PAYABLE 338235 366435 X 571482 26934 26934 544548 4580 4580 549128 560544 0 560544 4580 4580 565124 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER PROVISIONS OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. IN ADDITION, THE ORGANIZATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE CODE. CONSEQUENTLY, NO PROVISION FOR INCOME TAXES HAS BEEN INCLUDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ORGANIZATION EVALUATES ITS TAX POSITIONS FOR UNCERTAINTIES ON A REGULAR BASIS AND HAS DETERMINED THAT IS HAS NO MATERIAL UNCERTAIN TAX POSITIONS AS OF JULY 31, 2020. THE ORGANIZATION RECOGNIZES THE ACCRUED INTEREST AND PENALTIES, IF ANY, ASSOCIATED WITH UNCERTAIN TAX POSITIONS IN MANAGEMENT AND GENERAL EXPENSES IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ORGANIZATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. THE ORGANIZATION IS NOT AWARE OF ANY ACTIVITIES THAT WOULD JEOPARDIZE ITS TAX-EXEMPT STATUS. THE ORGANIZATION IS NOT AWARE OF ANY ACTIVITIES THAT ARE SUBJECT TO TAX ON UNRELATED BUSINESS OR EXCISE TAXES. PART V LINE 4 - INTENDED USES FOR ENDOWNMENT FUNDS BRONSTEIN FAMILY MEMORIAL ENDOWMENT FUND: ONCE THE ENDOWMENT'S PRINCIPAL REACHES ITS ORIGINAL VALUE OF $1,089,910, THEN EARNED INCOME WILL PRIMARILY BE USED FOR SUSTAINING THE DOWN SYNDROME ASSOCIATION AND THE HEALTH, EDUCATION AND SUPPORT OF CENTRAL FLORIDA RESIDENTS WITH DOWN SYNDROME. FUNDS HELD WITH THE CENTRAL FLORIDA FOUNDATION: THE ORGANIZATION MAY RECOMMEND DISTRIBUTION FROM CERTAIN FUNDS AT ANYTIME; HOWEVER, ALL RECOMMENDATIONS ARE SOLELY ADVISORY AND MAY BE ACCEPTED OR REJECTED BY THE FOUNDATION AS THE ORGANIZATION GRANTED VARIANCE POWER TO THE FOUNDATION. PART XIII - SUPPLEMENTAL FINANCIAL INFORMATION AUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED JULY 31, 2019 INCLUDE THIS NOTE: "THE ORGANIZATION LEARNED THAT A GIFT RECEIVED FROM A DONOR SEVERAL YEARS EARLIER AND ACCOUNTED FOR AS AN UNRESTRICTED GIFT, WAS AN ENDOWMENT GIFT. A PRIOR PERIOD ADJUSTMENT HAS BEEN MADE TO APPROPRIATELY REFLECT THIS GIFT AS ENDOWMENT FUND, A NET ASSET WITH DONOR RESTRICTION." STEP UP FOR DOWN SYNDROME WALK 217265 217265 648 12664 5255 3089 16906 217265 217265 648 12664 5255 3089 16906 38562 -38562 0 THERAPHY/MEDICAL/EMERGENCY 194 56557 N/A N/A PART I, LINE 2 - PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS DSACF HAD TWO SEPARATE FUNDS FOR SCHOLARSHIPS: FAMILY FUND (WHICH CONSISTED OF UNRESTRICTED EVENT CONTRIBUTIONS, WHICH WERE INTERNALLY ALLOCATED FOR THIS PURPOSE) AND THE MAGICAL DINING SCHOLARSHIP (GRANT FUNDS, RESTRICTED FOR THIS PURPOSE). BOTH FUNDS WERE MONITORED BY SEPARATE TRACKING MECHANISMS. SCHOLARSHIPS COULD BE UTILIZED FOR THERAPIES, TUTORING, MEDICAL/DENTAL BILLS, EQUIPMENT, OR EMERGENCY USE, SUCH AS RENT, ELECTRICITY, ETC. FAMILIES REQUESTING FUNDS PROVIDED A COPY OF THE BILL OR INVOICE AND DSACF PAID THE VENDOR DIRECTLY, ONCE THE SCHOLARSHIP REQUEST WAS APPROVED. JANET CARAMELLO FORMER EXEC DIR 2971 SCHOLARSHIP/EMERGENCY ASSISTANCE CATHERINE DAVEY BOARD MEMBER 800 SCHOLARSHIP & BEHAVIOR THERAPY FOR DAUGTHER X THEME PARK TICKETS 0 166748 SALES PRICE X EVENT GOODS 0 118 COMPARABLE SALES 0 0 0 PART III LINE 4A ADVOCACY/OUTREACH: 1. LOW DOWN ON LAW: IN PARTNERSHIP WITH THE LAW FIRM OF CATHERINE E DAVEY, P.A., THE DOWN SYNDROME ASSOCIATION OF CENTRAL FLORIDA IS ABLE TO PROVIDE TWO LOW DOWN ON LAW DAY WORKSHOPS EACH YEAR. EXPERT LAWYERS, JUDGES, AND OFFICIALS IN THE CENTRAL FLORIDA COMMUNITY COME TOGETHER TO BREAK DOWN THE LEGAL COMPLEXITIES FAMILIES WITH SPECIAL NEEDS MUST NAVIGATE FOR THEIR LOVED ONES. 2. STEP UP FOR DOWN SYNDROME WALK: A DAY OF COMMUNITY CELEBRATION, FAMILIES GET TOGETHER AND CELEBRATE THEIR LOVED ONE WITH DOWN SYNDROME. FAMILIES SET UP WALK TEAMS, RAISE FUNDS, FOR THE ORGANIZATION, AND ON THE DAY OF THE WALK, COME OUT TO WALK AND CELEBRATE THE ABILITIES OF THEIR LOVED ONE. COMMUNITY MEMBERS LEARN ABOUT DOWN SYNDROME AND COMMUNITY PARTNERS CAN SHOWCASE THEIR SERVICES, WARES, ETC. 3. SPECIAL CLINIC FOR SPECIAL NEEDS: ADULT AND YOUTH CLINICS. FOR THE YOUTH CLINIC, PARENTS HAVE THE ABILITY TO MEET WITH, INTERVIEW AND SOURCE PROVIDERS FOR A RANGE OF SPECIALTIES THAT CHILDREN WITH DOWN SYNDROME OFTEN ENCOUNTER. FOR THE ADULT CLINIC, MEDICAL SCREENINGS, NOT OFFERED ELSEWHERE ARE PROVIDED, FREE OF COST. 4. FAMILY FUN DAY: IN PARTNERSHIP WITH OUR LOCAL THEME PARKS, DSACF IS PERIODICALLY ABLE TO PROVIDE COMPLIMENTARY TICKETS TO THEME PARKS SO THAT FAMILIES CAN ENJOY A DAY OF CAMARADERIE AND PAMPERING, WHILE CELEBRATING THEIR FAMILY MEMBERS WITH DOWN SYNDROME. TICKETS ARE RESERVED FOR MEMBERS WHO HAVE AN ACTIVE, PAID MEMBERSHIP AND CAPACITY LIMITS ARE DICTATED BY EACH THEME PARK PART III LINE 4B EDUCATION 1. NEW PARENT KIT AND WELCOME CELEBRATION: DSACF WELCOMES ANY NEW PARENTS, WHO'VE RECENTLY RECEIVED A DOWN SYNDROME DIAGNOSIS OR DELIVERED A CHILD WITH DOWN SYNDROME, TO OUR COMMUNITY BY BRINGING THEM A WELCOME BASKET AND NEW BABY KIT. BASKETS INCLUDE BOTH BABY BASICS ITEMS, ITEMS PROCURED FROM OUR ADULT ENTREPRENEURS, AND VALUABLE RESOURCES ON DOWN SYNDROME. TWICE A YEAR WE HOST OUR NEW FAMILY CELEBRATION & BRUNCH! AT THE NEW FAMILY CELEBRATION, FAMILIES WILL HAVE THE OPPORTUNITY TO MEET OTHER NEW PARENTS OF A BABY WITH DOWN SYNDROME, PARENTS A LITTLE FURTHER DOWN THE ROAD, AND GET LOTS OF INFORMATION ABOUT DOWN SYNDROME. 2. THERAPIES AND WORKSHOPS: DSACF OFFERS A WIDE VARIETY OF THERAPIES AND WORKSHOPS. POPULAR YEARLY OFFERINGS INCLUDE: SIGNING TIME, MUSIC WITH MAR, JOYFUL MUSIC, BABY BASICS OCCUPATIONAL THERAPY, AND BABY PLAYGROUP. 3. PRESCHOOL READINESS CAMP: THIS THREE-WEEK LONG CAMP PROVIDES AN AUTHENTIC SCHOOL EXPERIENCE FOR CHILDREN (AGES 3-5) WITH DOWN SYNDROME DURING THE MONTH OF JULY IN A SUPPORTIVE AND FUN ENVIRONMENT. THIS IS ESPECIALLY IMPORTANT FOR CHILDREN WHO MAY BE GOING TO A NEW SCHOOL IN THE FALL OR GOING TO PRESCHOOL FOR THE VERY FIRST TIME, SO THAT THEY ARE BETTER PREPARED AND EXCITED TO LEARN. 4. START WITH HELLO: SIX-WEEK PROGRAM IN WHICH TEENS WILL LEARN AND PRACTICE COMMUNICATION SKILLS, APPROPRIATE SOCIAL INTERACTIONS, BOUNDARIES, AND MORE THAT WILL HELP THEM BUILD FRIENDSHIPS, SUCCEED IN SCHOOL, AND PREPARE FOR FUTURE EMPLOYMENT. FORM 990, PART VI, SECTION B, LINE 11B THE 990 WILL FIRST BE REVIEWED BY THE FINANCE COMMITTEE FOR ACCURACY AND THEN FINANCE PROVIDES A RECOMMENDATION TO THE BOARD OF DIRECTORS TO APPROVE THE 990. BOARD OF DIRECTORS ULTIMATELY APPROVED THE 990. FORM 990, PART VI, SECTION B, LINE 12C ALL CONFLICT OF INTEREST STATEMENTS ARE REVIEWED AND ANY POSSIBLE CONFLICTS ARE IDENTIFIED. ANY POTENTIAL CONFLICT OF INTEREST WOULD GO TO THE GOVERNANCE COMMITTEE FOR REVIEW AND DECISION. ALL DOCUMENTATION AND RECORDS OF DECISION WOULD BE RETAINED FOR DISCLOSURE. FORM 990, PART VI, SECTION B, LINE 15 IF AN EXISTING OR INTERIM EXECUTIVE DIRECTOR IS IN PLACE, THAT PERSON WOULD PULL COMPENSATION FOR SIMILAR POSITIONS IN CENTRAL FLORIDA AND PROVIDE THIS TO THE BOARD OF DIRECTORS. IF NO INTERIM OR EXISTING EXECUTIVE DIRECTOR IS IN PLACE AT THE TIME OF THE SEARCH, A MEMBER OF THE HIRING COMMITTEE WOULD PULL THIS DATA FOR REVIEW BY THE BOARD OF DIRECTORS. BOARD OF DIRECTORS ESTABLISHED AN AGREED UPON SALARY RANGE, HOWEVER, SALARY IS THEN NEGOTIATED AT THE TIME OF A JOB OFFER AND ANY SUBSEQUENT RAISES, BONUS, OR ANNUAL INCREASES ARE ALSO APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC VIA SUNBIZ.ORG, GUIDESTAR.ORG AND CENTRAL FLORIDA FOUNDATION NONPROFIT SEARCH. ALSO, THE AUDITED FINANCIAL STATEMENTS ARE POSTED IN THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 24E DUES AND MEMBERSHIP: PROGRAM SERVICE EXPENSES 1,000. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 583. TOTAL EXPENSES 1,583.