2021-06-15T10:25:44-04:00 2020-12-31 461517562 Simmons & Jamieson CPAs 6525 The Corners Parkway Peachtree Corners GA 30092 990 2020-01-01 760700153 AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS AMER PO BOX 29545 ATLANTA GA 30359 WENDY M BOOK PRESIDENT 7134937749 2021-05-15 true WENDY BOOK XXX-XX-XXXX James B Murphy P00847588 7704482525 2021-06-15 0 00 AAL1 IAL1 2020 2022-09-23 18:48:47Z APFED 557744 false X APFED.ORG X 2001 TX SEE SCHEDULE O 11 11 3 0 0 159978 267921 174538 224000 121 55 115503 59216 450140 551192 113855 88010 0 140083 141550 0 19777 227287 140586 481225 370146 -31085 181046 238027 419596 2974 3497 235053 416099 SEE SCHEDULE O false false 205781 EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT: APFED HOSTED ITS ANNUAL PATIENT CONFERENCE VIRTUALLY, WITH AN ENDURING COMPONENT FOR ATTENDEES. WE CELEBRATED NATIONAL EOSINOPHIL AWARENESS WEEK BY DISSEMINATING RESOURCES AND PROVIDING ONLINE SUPPORT AND EDUCATION. APFED FORMED A HEALTH SCIENCES ADVISORY COUNCIL FROM DIVERSE DISCIPLINES TO ASSIST WITH EDUCATIONAL MATERIALS FOR THE PUBLIC, PATIENTS AND PROVIDERS. APFED UPDATED AND SHARED DIGITAL PATIENT AND HEALTHCARE PROVIDER EDUCATIONAL CONTENT AND DISSEMINATED MONTHLY NEWS TO OUR COMMUNITY, CONTRIBUTED TO TWO CME PROGRAMS FOR HEALTHCARE PROVIDERS ON EGID AND EGPA AND LAUNCHED A SERIES OF EDUCATIONAL WEBINARS. APFED SERVED ON THE PLANNING COMMITTEE FOR THE RARE DISEASE DAY EVENT AT NIH CAMPUS. WE ADVOCATED AND WORKED WITH IES AND CDC ON ICD-10 CODES FOR HES, EOSINOPHILIC PNEUMONIA, EOSINOPHILIC ASTHMA, DRESS, EPISODIC ANGIOEDEMA WITH EOSINOPHILIA, AND NAME INCLUSION OF EGPA. WE ADVOCATED FOR INSURANCE REIMBURSEMENT OF MEDICAL FOODS, PRIORITIZATION OF RESOURCES TO FDA TO CARRY OUT WORK RELATED TO ALLERGEN LABELING, AND PROTECTIONS FOR RARE DISEASE/HIGH-RISK POPULATIONS DURING THE COVID-19 CRISIS 106609 RESEARCH: APFED AWARDED RESEARCH GRANTS IFOR INVESTIGATORS THROUGH OUR HOPE ON HORIZON RESEARCH GRANT PROGRAM, AND A CO-FUNDED GRANT IN COLLABORATION WITH AAAAI. WE ESTABLISHED A CO-FUNDED GRANT WITH CEGIR, WHICH PROVIDED $25,000 IN FUNDING TO RESEARCH EG. WE AWARDED ABSTRACT AWARDS FOR RESEARCH PRESENTED AT THE ANNUAL MEETING OF AAAAI. WE CONTINUE TO BE AN ACTIVE PARTICIPANT IN THE RARE CLINICAL DISEASE RESEARCH NETWORK AND THE CONSORTIUM OF EOSINOPHILIC GASTROINTESTINAL DISEASE RESEARCHERS (CEGIR), PRESENTING THE PATIENT PERSPECTIVE AT CEGIR MEETINGS. APFED CO-AUTHORED MULTIPLE SCIENTIFIC PUBLICATIONS AND RESEARCH ABSTRACTS IN COLLABORATION WITH INVESTIGATORS AROUND THE U.S. WE DISSEMINATED INFORMATION ABOUT RESEARCH ACTIVITIES RECRUITING PATIENTS, AND WE SERVED ON THE STEERING COMMITTEE FOR EGID PARTNERS PATIENT REGISTRY. 312390 true true false false false false false false false false false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 3 true false false false false false false false false X 11 11 true false false false true false false true true false false true true true false true true false false false AK AL AR CA CO CT FL GA HI KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X MICHAEL PIANSKY MD 7134937749 PO BOX 29545 ATLANTA GA 30359 MARY JO STROBEL EXECUTIVE DIRECTOR 50.00 0.00 X 82027 0 0 DAWN MCCOY DIRECTOR 10.00 0.00 X 0 0 0 KATHLEEN SABLE DIRECTOR 15.00 0.00 X 0 0 0 JULIET ROSS DIRECTOR 5.00 0.00 X 0 0 0 DONALYN DENISE MACK DIRECTOR 15.00 0.00 X 0 0 0 GERALD J GLEICH MEDICAL ADVISOR 5.00 0.00 X 0 0 0 TOM FANNING WEB COORDINATOR 15.00 0.00 X 0 0 0 ELIZABETH MCCARTY VICE PRESIDENT 5.00 0.00 X X 0 0 0 WENDY M BOOK PRESIDENT 15.00 0.00 X X 0 0 0 MICHAEL PIANSKY TREASURER 20.00 0.00 X X 0 0 0 PRADYUMNA TUMMALA CHAIRMAN 5.00 0.00 X X 0 0 0 GILES M SCHANEN SECRETARY 5.00 0.00 X X 0 0 0 82027 0 0 0 false false false 7410 260511 267921 PATIENT EDUCATION PARTN 611710 224000 224000 224000 55 55 64790 6360 58430 58430 978 192 786 786 551192 224055 0 59216 88010 88010 131539 114476 3950 13113 10011 8757 251 1003 10471 10471 150 150 2661 2610 51 12686 12686 2937 2937 STATE REGISTRATION 5610 5610 EDUCATION PROGRAMS 101147 101147 4924 4924 370146 312390 37979 19777 238027 419596 238027 419596 2974 3497 2974 3497 X 235053 416099 235053 416099 238027 419596 181046 0 X false true X true X 430110 541044 407444 322439 329612 2030649 74445 105700 101270 174538 225216 681169 1827 2112 3192 4059 978 12168 506382 648856 511906 501036 555806 2723986 2723986 369 299 155 121 55 999 369 299 155 121 55 999 506751 649155 512061 501157 555861 2724985 0.99960 0.99940 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true false false false false false false false false false 557744 557744 -6552 -6552 551192 376698 376698 -6552 -6552 370146 Other revenues included on Form 990 (Part XI, line 4b) FUND RAISING EVENTS COST AND THE COST GOOD SOLD $6552.00 Other expenses included on Form 990 (Part XII, line 4b) FUND RAISING EVENTS COST AND THE COST GOOD SOLD $6552.00 Other 33027 33027 3244 HOPE-HORIZON 31763 31763 3116 64790 64790 6360 6360 58430 false AAAAI 555 EAST WELLS ST STE 1100 MILWAUKEE WI 53202 35000 RESEARCH UT Southwestern Medical Center PO Box 841765 Dallas TX 752841765 25000 RESEARCH CINCINNATI CHILDRENS HOSPITAL MED MLC 7028 CINCINNATI OH 452293039 25000 RESEARCH 3 Officer directors etc family relationship Part VI line 2 Wendy M Book, MD - PresidentMichael Piansky, MD - TreasurerRelated by marriage Members or stockholder classes and rights Part VI line 6 The organization has members and memberships that are open to anyone who wishes to be involved in the cause. Form 990 governing body review Part VI line 11 The organizations tax return preparer provided a preliminary copy of the return to board members for review. Any necessary changes are made and the final return is presented to the president for signature and filing. Governing documents etc available to public Part VI line 19 The organization makes its governing documents, conflicts of interest statement and financial statements available to the pubic upon written request. General explanation attachment Form 990, Part III, Item 1 Organizations MissionAPFED is dedicated to patients and their families coping with eosinophilic disorders. It strives to expand education, create awareness and support research regarding these disorders while promoting advocacy among its members. The mission is accomplished by various means conferences, newsletters, pamphlets, research grants and fundraising. Form 990, Part I, Item 1 Organizations Mission or Most Significant ActivitiesEducation, awareness, advocacy, and support:APFED hosted its annual patient conference virtually, with an enduring component for attendees. We celebrated National Eosinophil Awareness Week by disseminting resourses and providing online support and education. APFED formed a health sciences advisory council from diverse disciplines to assist with educational materials for the putlic, patients and providers. APFED updated and shared digial patient and healthcare provider educational content and disseminated monthly news to our community, contributed to two CME programs for healthcare providers on EGID and EGPA and launced a series of educational webinars. APFED served on the planning committee for the Rare Disease Day event at NIH campus. We advocated and worked with IES and CDC on ICD-10 Codes for HES, Eosinophilic pneumonia, eosinophilic asthma, dress, episodic angiodema with eosinophilia, and name includsion of EGPA. We advocated for insurance reimbursement of medical foods, prioritization of resources to FDA to carry our work related to allergen labeling, and protections for rare disease/high-risk populations during the COVID-19 crisis.Researach:APFED awarded research grants for investigators through our Hope On Horizon research grant program, and a cofunded grant in collaboration with AAAAI. We established a cofunded grant with CEGIR, which provided $25,000 in funding to research EG. We awarded abstract awards for research presented at the annual meeting of AAAAI. We continue to be an active participant in the rare clinical disease research network and the consortium of eosinophil gastrointestinal disease researchers (CEGIR), presenting the patient perspective at CEGIR meetings. APFED co-authored multiple scientific publications and reserach abstracts in collaboration with investigators around the U.S. We disseminated information about research activities recruiting patients, and we served on the steering committee for EGID partmenrs patient registry.