2021-10-19T16:23:58-05:00 2020-12-31 202840805 GOLDSTEIN LIEBERMAN & CO LLC 100 SUMMIT LAKE DR SUITE 120 VALHALLA NY 105951362 990 2020-01-01 133906297 MAKING HEADWAY FOUNDATION INC C/O EDWARD P MANLEY MAKI 9144238838 115 KING STREET CHAPPAQUA NY 105143460 DANIEL LIPKA EXECUTIVE DIRECTOR 0914238838 2021-08-09 DANIEL LIPKA 999009999 REBECCA DRECHSEL P01425212 9147479000 2021-10-16 2020 2022-09-23 18:48:47Z EDWARD P MANLEY 115 NEW KING STREET CHAPPAQUA NY 105143460 1739239 false X WWW.MAKINGHEADWAY.ORG X 1996 WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. 11 11 3 50 0 683703 1127122 0 136429 -123292 181798 1076 1001930 1004906 650283 779117 0 206194 292566 0 65063 435622 479618 1292099 1551301 -290169 -546395 5425202 5028774 404711 537097 5020491 4491677 X WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. false false 984924 779117 MAKING HEADWAY FOUNDATION MAINTAINS A UNIQUE RELATIONSHIP WITH NYU LANGONE MEDICAL CENTER AND ITS STEPHEN D HASSENFELD CHILDRENS CENTER FOR CANCER AND BLOOD DISORDERS. EACH GRANT THAT IS FUNDED IS SELECTED BASED ON ITS ABILITY TO PROVIDE HUMANISTIC SUPPORT TO PATIENT FAMILIES WHILE SEARCHING FOR IMPROVED TREATMENTS AND EVENTUALLY A CURE. GRANTS WERE ALSO AWARDED TO MEMORIAL SLOAN KETTERING CANCER CENTER (MSKCC), ST BALDRICK'S FOUNDATION (SBF) AND PEDIATRIC BRAIN TUMOR FOUNDATION. 176285 RETURNING HOME FROM THE HOSPITAL CAN BE A DISORIENTING AND ISOLATED FEELING FOR THE PATIENTS AND THEIR FAMILY MEMBERS. THEY FIND THEMSELVES STRUGGLING TO ADJUST TO A FAMILAR PLACE WHERE EVERYTHING HAS CHANGED. TO THIS END, MAKING HEADWAY PROVIDES, FREE OF CHARGE, INDIVIDUAL PSYCHOLOGICAL AND PSYCHIATRIC COUNSELING FOR PARENTS AND THEIR CHILDREN WHO ARE DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR AND FREE OF CHARGE EDUCATIONAL COUNSELING FOR CHILDREN SURVIVING A BRAIN OR SPINAL CORD TUMOR WHO HAVE DIFFICULTIES RETURNING TO SCHOOL AND KEEPING UP WITH THE CURRICULUM. 203568 AT THE STEPHEN D HASSENFELD CHILDREN'S CENTER FOR CANCER AND BLOOD DISORDERS WE PROVIDE PATIENT SUPPORT IN THE AMOUNT OF 24,258. OTHER PROGRAMS FUNDED: FUNERAL EXPENSES FOR CHILDREN WHO HAVE PASSED AWAY AND WHOSE FAMILIES CANNOT AFFORD THE COST IN THE AMOUNT OF 66,086, SCHOLARSHIPS TOTALING 86,751 WERE GIVEN TO CHILDREN SURVIVING A BRAIN TUMOR AND FAMILY EVENTS FOR THE CHILDREN AND THEIR FAMILIES - 26,473. OTHER EXPENSES INCLUDE ALLOCATION OF OFFICE EXPENSES, OFFICE SALARIES AND PAYROLL TAXES, DESIGN AND EDITING SERVICES, RECRUITING EXPENSES, OCCUPATION, INFORMATION TECHNOLOGY AND INSURANCE. 1364777 true true false false false false false false false false true false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 26 0 3 true false false false false false false false false X 11 11 true false false false false false false true true false false true true true true true true true true false NY X X X EDWARD P MANLEY 9144238838 115 NEW KING STREET CHAPPAQUA NY 105143460 X DANIEL LIPKA EXECUTIVE DI 40.00 X 130440 0 0 DAVID ALMEIDA DIRECTOR 1.00 X 0 0 0 CLINT GREENBAUM FOUNDER ANDT 2.00 X X 0 0 0 ELISA GREENBAUM VICE CHAIR 2.00 X X 0 0 0 AUDREY MANLEY SECRETARY 2.00 X X 0 0 0 EDWARD P MANLEY FOUNDER AND 2.00 X X 0 0 0 MAYA MANLEY FOUNDER 2.00 X 0 0 0 CHARLES MCMAHON DIRECTOR 1.00 X 0 0 0 JEFFREY ALLEN MD DIRECTOR 1.00 X 0 0 0 SUSAN RUBIN DIRECTOR 1.00 X 0 0 0 SAM SCHWARTZ VP CHAIR RES 2.00 X X 0 0 0 GREG TAUBIN DIRECTOR 1.00 X 0 0 0 130440 1 false false false 362477 764645 18972 1127122 4558 1144 3414 604917 732767 -127850 -127850 -127850 2642 362477 1566 1076 1076 1004906 -126706 4490 779117 779117 252892 166909 58165 27818 9408 5269 2728 1411 30266 19976 6961 3329 42 42 15064 15064 31211 6680 5868 18663 23266 9522 10169 3575 52 52 6357 1335 1017 4005 13217 5974 6788 455 INDIVIDUAL COUNSELING 163014 163014 SCHOLARSHIPS 86751 86751 FUNERAL EXPENSES 66086 66086 SUMMER EVENTS 26473 26473 48085 27671 14607 5807 1551301 1364777 121461 65063 34130 93190 2887584 3295517 1706040 1557220 21081 10019 33706 17222 22841 16484 396028 55344 356498 1000 1000 5425202 5028774 32235 57375 369834 442947 2642 36775 404711 537097 X 4857831 4371785 162660 119892 5020491 4491677 5425202 5028774 -546395 17581 X false true X true false X 916283 958125 996217 683703 1127122 4681450 916283 958125 996217 683703 1127122 4681450 46889 4634561 8282 12654 11888 12019 3414 48257 164015 107914 271929 62325 10225 78705 2642 153897 5155533 24967 0.89890 0.90550 X PART II, LINE 10 OTHER INCOME 151,255 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 33706 17222 16484 16484 1004906 1004906 1004906 1551301 1551301 1551301 WINTER EVENT (M 304301 301659 2642 1566 RACE FOR ACE 35746 35746 3 25072 25072 365119 362477 2642 1566 1566 1076 true NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 218400 PEDIATRIC NEUROSURGE NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 138379 PRECLINICAL COORDINA NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 134490 CARE COORDINATOR NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 89415 NEURO-PSYCHOLOGY NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 65810 CLINCIAL TRIALS MGR NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 62488 RESEARCH NURSE MEMORIAL SLOAN KETTERING 1275 YORK AVENUE NEW YORK NY 10065 131924236 51039 BRAIN TUMOR RECOVERL NYU LANGONE MEDICAL CENTER 550 FIRST AVENUE NEW YORK NY 10016 133971298 19096 BIOREPOSITORY CENTER SCHEDULE I, PAGE 1, PART I, LINE 2 GRANT FUNDS ARE PAID QUARTERLY TO NYU LANGONE MEDICAL CENTER AND MEMORIAL SLOAN KETTERING CANCER CENTER. THEY ARE REQUIRED TO SUBMIT SEMI-ANNUAL AND ANNUAL NARRATIVE AND FINANCIAL REPORTS FOR EACH GRANT. THESE ARE REVIEWED AND THE REMAINING FUNDS ARE PAID OUT DEPENDING ON PROGRESS TOWARD ACHIEVING THE OBJECTIVES STATED IN THE GRANT APPLICATION. PEDIATRIC BRAIN TUMOR FOUNDATION WAS ALSO PAID ONCE DURING THE YEAR. FORM 990 - ORGANIZATION'S MISSION WHEN A CHILD IS DIAGNOSED WITH A BRAIN OR SPINAL CORD TUMOR, THE WHOLE FAMILY NEEDS A SPECIAL KIND OF CARE AND SUPPORT. MAKING HEADWAY FOUNDATION WAS CREATED IN REPSONSE TO THIS NEED. OUR HUMANISTIC SUPPORT PROGRAMS SUPPORT CHILDREN AND THEIR FAMILIES FROM DIAGNOSIS THROUGH TREATMENT AND BEYOND. THE FOUNDATION IS ALSO COMMITTED TO FUNDING MEDICAL RESEARCH SO BETTER TREATMENTS AND CURES CAN BE FOUND. FORM 990, PAGE 2, PART III, LINE 4D OTHER EXPENSES INCLUDE ALLOCATION OF OFFICE EXPENSES, OFFICE SALARIES AND PAYROLL TAXES, DESIGN AND EDITING SERVICES, RECRUITING EXPENSES, OCCUPATION, INFORMATION TECHNOLOGY AND INSURANCE. FORM 990, PAGE 6, PART VI, LINE 2 EDWARD MANLEY MAYA MANLEY FOUNDER/CHR FOUNDER FAMILIAL AUDREY MANLEY EDWARD & MAYA MANLEY SECRETARY FOUNDERS FAMILIAL CLINT GREENBAUM ELISA GREENBAUM FOUNDER/TRE VICE CHAIR FAMILIAL FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF FORM 990 IS EMAILED OR MAILED TO EACH BOARD MEMBER AND THE EXECUTIVE DIRECTOR FOR REVIEW. ANY QUESTIONS THEY MAY HAVE ARE ANSWERED PROMPTLY. BOARD REVIEW AND APPROVAL IS REQUIRED BEFORE FORM 990 IS MAILED TO THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED AT EACH BOARD MEETING AS WELL AS IN THE ANNUAL QUESTIONNAIRE MAILED TO EACH BOARD MEMBER. FORM 990, PAGE 6, PART VI, LINE 15A THE CHAIRMAM REVIEWS EMPLOYEES PERFORMANCE DURING THE YEAR AND CONSULTS INDEPENDENT SALARY SURVEYS FOR NONPROFIT ORGANIZATIONS. HE THEN MAKES A RECOMMENDATION TO THE BOARD WHICH IS THEN REVIEWED AND APPROVED AT THE DECEMBER BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 15B THE CHAIRMAM REVIEWS EMPLOYEES PERFORMANCE DURING THE YEAR AND CONSULTS INDEPENDENT SALARY SURVEYS FOR NONPROFIT ORGANIZATIONS. HE THEN MAKES A RECOMMENDATION TO THE BOARD, WHICH IS THEN REVIEWED AND APPROVED AT THE DECEMBER BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 18 ALL SUCH DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990 AND THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON GUIDESTAR AND THE MAKING HEADWAY WEBSITE. LINKS TO THE FINANCIAL STATEMENTS ARE PROVIDED ON EACH OF OUR SPECIAL EVENT FUNDRAISING PORTALS. FORM 990, PAGE 6, PART VI, LINE 19 ALL SUCH DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990 AND THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON GUIDESTAR AND THE MAKING HEADWAY WEBSITE. LINKS TO THE FINANCIAL STATEMENTS ARE PROVIDED ON EACH OF OUR SPECIAL EVENT FUNDRAISING PORTALS.