2021-11-02T12:27:53-05:00 2020-12-31 232846715 STAMBAUGH NESS INC 2600 EASTERN BLVD STE 101 YORK PA 174022916 990EZ 2020-01-01 201947169 INTERNATIONAL WAGR SYNDROME ASSOCIATION INTE 7179687703 PO BOX 769 HANOVER PA 17331 NIKKI HOFFMAN TREASURER 7179687703 2021-10-28 1 NIKKI HOFFMAN XXX-XX-XXXX NIKKI L BARDIN CPA P01256649 7177576999 2021-10-28 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z X WWW.WAGR.ORG X X 69304 X 57273 17 5905 5416 489 6109 63888 30787 1730 27004 59521 4367 50956 0 55323 X 51132 56145 51132 56145 176 822 50956 55323 X THE INTERNATIONAL WAGR SYNDROME ASSOCIATION (IWSA) IS A PATIENT ADVOCACY ORGANIZATION WITH APPROXIMATELY 225 MEMBER FAMILIES, ENGAGED VIA A VARIETY OF SUPPORT AND INFORMATION-SHARING ACTIVITIES. THE MISSION OF THE IWSA IS TO PROMOTE AWARENESS, STIMULATE RESEARCH, AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. THE IWSA BELIEVES IN PLACING PATIENTS AND FAMILIES IN THE FOREFRONT OF ALL ACTIVITIES OF THE ORGANIZATION. THE IWSA HOSTS GATHERINGS OF FAMILIES TO SHARE GENERAL INFORMATION ABOUT WAGR SYNDROME AND TO PROVIDE EMOTIONAL SUPPORT. BOARD MEMBERS AND OTHER LEADERS OF THE ORGANIZATION ATTEND CONFERENCES PERTAINING TO RARE DISEASE RESEARCH AND PATIENT ADVOCACY. TO PROMOTE AWARENESS, STIMULATE RESEARCH AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. 0 39537 39537 KELLY TROUT CHAIRMAN 5.00 0 0 0 JENNY GUNCKLE VICE CHAIRMAN 1.00 0 0 0 JOHN MORRIS SECRETARY 1.00 0 0 0 NIKKI HOFFMAN TREASURER 2.00 0 0 0 TOM COX DIRECTOR 1.00 0 0 0 LINDA VAN DE SANDE DIRECTOR 1.00 0 0 0 RACHELL REILLEY DIRECTOR (RESIGNED DURING 2020) 1.00 0 0 0 CATHRYNE CANSLER DIRECTOR (RESIGNED DURING 2020) 2.00 0 0 0 SHARI KRANTZ EXECUTIVE DIRECTOR 25.00 28560 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 PA VA SC NIKKI HOFFMAN PO BOX 769 HANOVER PA 17331 7179687703 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 44585 46959 107041 63639 57273 319497 44585 46959 107041 63639 57273 319497 58359 261138 29 27 12 19 17 104 52 827 761 6109 7749 327350 18892 0.79770 0.79500 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 4 - OTHER INVESTMENT INCOME DESCRIPTION: INTEREST INCOME. AMOUNT: 17. FORM 990-EZ, PART I, LINE 8 - OTHER REVENUE DESCRIPTION: OTHER INCOME. AMOUNT: 652. DESCRIPTION: PPP LOAN FORGIVENESS. AMOUNT: 5,457. TOTAL TO FORM 990-EZ, LINE 8: 6,109. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: DUES AND SUBSCRIPTIONS. AMOUNT: 248. DESCRIPTION: COMMISSIONS AND FEES. AMOUNT: 584. DESCRIPTION: INSURANCE. AMOUNT: 1,649. DESCRIPTION: OFFICE EXPENSES. AMOUNT: 16,171. DESCRIPTION: CONFERENCES AND MEETINGS. AMOUNT: 3,965. DESCRIPTION: TRAVEL AND MEALS. AMOUNT: 3,400. DESCRIPTION: ORGANIZATIONAL EXPENSES. AMOUNT: 303. DESCRIPTION: FAMILY SUPPORT EXPENSES. AMOUNT: 684. TOTAL TO FORM 990-EZ, LINE 16: 27,004. FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES DESCRIPTION: CREDIT CARD PAYABLE. BEG. OF YEAR AMOUNT: 176. END OF YEAR AMOUNT: 822. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.