2021-11-11T08:42:17-06:00 2021-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX STREET SUITE 400 ALEXANDRIA VA 22314 990 2020-07-01 112779073 SJOGREN'S FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 JANET CHURCH CHIEF EXECUTIVE OFFICER 3015304420 2021-11-10 1 JANET CHURCH 999009999 ANDREW E YOUNG CPA P01203950 7035351200 2021-11-10 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z X JANET CHURCH 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 3063177 0 X WWW.SJOGRENS.ORG X 1983 NY SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. 18 18 14 550 20750 0 2004952 2505185 391049 427253 67055 17070 5717 12094 2468773 2961602 175000 620500 0 0 1520332 1623685 0 0 241004 732307 686731 2427639 2930916 41134 30686 2458865 2612292 1017693 1048293 1441172 1563999 X THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH PROJECTS. 0 0 997291 620500 THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS TO UNIVERSITY AFFILIATED RESEARCHERS DURING 2021. THE FOUNDATION ALSO AWARDED GRANTS FOR RESEARCH ON POTS IN SJOGREN'S PATIENTS, TO PARTICIPATE IN FNIH RESEARCH ON BIOMARKERS IN AUTOIMMUNE DISEASES, AND TO FUND A CHILDHOOD SJOGREN'S REGISTRY TO BE HOUSED AT THE MAYO CLINIC. THE SJOGREN'S FOUNDATION ALSO FUNDED THE NEW LIVING WITH SJOGREN'S PATIENT SURVEY, CONDUCTED EVERY FIVE YEARS, TO UPDATE OUR UNDERSTANDING OF PATIENT'S SYMPTOMS AND QUALITY OF LIFE. 181220 4121 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 582633 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. 803057 372361 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. 803057 372361 2564201 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 14 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CO FL IL MD MN MS NH NY OH OR PA SC TN UT VA WA WV X X SJOGREN'S FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 DONALD E THOMAS MD CHAIRMAN 2.00 X X 0 0 0 SUSAN BARAJAS CHAIR-ELECT 2.00 X X 0 0 0 TRICIA GOODING SECRETARY 2.00 X X 0 0 0 MONICA MCGILL ED D TREASURER 2.00 X X 0 0 0 PATRICIA HURLEY MSC DIRECTOR 2.00 X 0 0 0 CHADWICK JOHR MD DIRECTOR 2.00 X 0 0 0 KIM KELLEY PHARMD DIRECTOR 2.00 X 0 0 0 ALLISSA LATHAM DIRECTOR 2.00 X 0 0 0 THERESA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 JONATHAN MORSE MSC DIRECTOR 2.00 X 0 0 0 JASON NICHOLS OD PHD DIRECTOR 2.00 X 0 0 0 TIMOTHY NIEWOLD MD FACR DIRECTOR 2.00 X 0 0 0 DAVID SCHRADER DIRECTOR 2.00 X 0 0 0 THOMAS D SUTTON DIRECTOR 2.00 X 0 0 0 ALAN BAER MD DIRECTOR 2.00 X 0 0 0 MICHELLE WALLACE DIRECTOR 2.00 X 0 0 0 AVA WU DDS DIRECTOR 2.00 X 0 0 0 JANET CHURCH CEO (STARTED 2/15/2021) 40.00 X 0 0 0 STEVEN TAYLOR CEO (ENDED 2/26/2021) 40.00 X 346385 0 38872 KATHERINE HAMMITT VICE PRESIDENT OF MEDICAL AND SCIENTIFIC RESEARCH 40.00 X 143091 0 5245 SHERIESE DEFRUSCIO VICE PRESIDENT OF MARKETING 40.00 X 120397 0 21894 BEN BASLOE VICE PRESIDENT OF PHILANTHROPY 40.00 X 116840 0 16672 726713 0 82683 4 0 1 0 0 310425 211800 1982960 30455 2505185 MEMBERSHIP DUES 541900 255824 255824 CONFERENCE 541900 146558 88058 58500 ADVERTISING 541800 20750 20750 NEWSLETTER 541900 4121 4121 427253 19535 19535 791 791 77291 78330 1426 -1039 -1426 -2465 -2465 0 310425 17176 -17176 -17176 20636 4643 15993 15993 MISCELLANEOUS INCOME 541900 12486 12486 12486 2961602 376482 20750 59185 620500 620500 414732 363264 18497 32971 981431 859635 43773 78023 23596 20549 1181 1866 108883 94823 5453 8607 95043 83249 4238 7556 1650 1650 30578 30578 6575 6575 61805 57302 433 4070 18711 16388 835 1488 88280 77324 3938 7018 3409 3409 33800 33800 44811 39249 1999 3563 11013 9646 491 876 PRINTING, DUPLICATING, 93271 64998 1146 27127 AWARENESS ACTIVITIES 65855 65855 POSTAGE AND DELIVERY 65006 52683 1280 11043 MAINTENANCE AND REPAIRS 43082 37734 1923 3425 118885 63793 1721 53371 2930916 2564201 125711 241004 342524 462810 669735 669866 119474 21506 5985 5610 32882 20396 273067 164799 132567 108268 1083977 1265330 62772 49557 8949 8949 2458865 2612292 30997 38852 258750 691451 345155 179286 211800 0 170991 138704 1017693 1048293 X 440276 563103 1000896 1000896 1441172 1563999 2458865 2612292 30686 92141 0 X X 0 1 X 1 0 X 1848890 1844508 3035820 2004952 2505185 11239355 339777 383928 331972 357683 368639 1781999 2188667 2228436 3367792 2362635 2873824 13021354 1170405 1172598 2318228 1361236 791081 6813548 0 1170405 1172598 2318228 1361236 791081 6813548 6207806 16012 22481 24943 30736 20326 114498 16012 22481 24943 30736 20326 114498 7701 2000 632 1798 12486 24617 2212380 2252917 3393367 2395169 2906636 13160469 0.47170 0.41720 0.00870 0.00910 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1000896 1000896 1072896 72000 1000896 1122896 50000 1072896 1.00000 0 0 166103 78355 87748 106964 86444 20520 108268 DEFERRED RENT 46759 CAPITAL LEASE PAYABLE 4228 DEFERRED TENANT ALLOWANCE 87717 138704 X 3088171 92141 34934 127075 2961096 6575 -6069 506 2961602 2965344 34934 6069 41003 2924341 6575 6575 2930916 PART V, LINE 4: THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -4,643. LOSS ON DISPOSAL OF ASSET -1,426. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 4,643. LOSS ON DISPOSAL OF ASSET 1,426. WALKABOUTS AND SIPS EVENTS 293149 293149 17176 PARTNER PROGRAMS 17276 17276 310425 310425 17176 17176 -17176 1 BAYLOR COLLEGE OF MEDICINE 6501 FANNIN ST HOUSTON TX 77030 741613878 SECTION 501(C)(3) 75000 FMV N/A RESEARCH GRANT MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH 11400 ROCKVILLE PIKE SUITE 600 NORTH BETHESDA MD 20852 520858115 N/A 300000 FMV N/A RESEARCH GRANT DYSAUTONOMIA INTERNATIONAL PO BOX 596 EAST MORICHES NY 11940 455437249 SECTION 501(C)(3) 50000 FMV N/A RESEARCH GRANT HARRIS INSIGHTS & ANALYTICS LLC 300 N LASALLE DRIVE SUITE 5575 CHICAGO IL 60654 384087593 N/A 45000 FMV N/A LIVING WITH SJOGRENS PATIENT SURVEY STANFORD UNIVERSITY SCHOOL OF MEDICINE 291 CAMPUS DRIVE STANFORD CA 94305 941156365 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT TUFTS UNIVERSITY DHS BUILDING 11TH FLOOR ROOM 1156 BOSTON MA 02111 042103634 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT UNIVERSITY OF WISCONSIN 1685 HIGHLAND AVE MADISON WI 53705 396006492 SECTION 501(C)(3) 75000 FMV N/A RESEARCH GRANT 6 2 PART I, LINE 2: THE SJOGREN'S FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR CEO (ENDED 2/26/2021) 258275 0 88110 0 0 0 7800 0 31072 0 385257 0 0 0 X 4 30455 FMV 0 1 0 FORM 990, PART I, LINE 1 ORGANIZATION MISSION: THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE FOR ALL SJOGREN'S PATIENTS AND LEAD AND FUND INNOVATIVE RESEARCH PROJECTS. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS.