2025-07-26T10:31:17-04:00 2024-12-31 990EZ 2024-01-01 874583041 TBX4LIFE TBX4 6153898176 4233 WALLACE LN NASHVILLE TN 372153231 Anton Morkin CEO 6153898176 2025-07-26 2024 2025-03-06 01:10:19Z X X tbx4.org X X 118395 X 19788 0 98607 20065 78542 0 98330 525 6462 6987 91343 23170 0 114513 23170 114513 23170 114513 23170 114513 Nonprofit dedicated to raising awareness about TBX4 Syndrome, supporting families affected by this ultra?rare genetic disorder, and accelerating international medical research toward a cure Community Fundraising Event ? Cure TBX4 Charity Golf Tournament On November 12, 2024, TBX4Life hosted its first annual charity golf tournament to raise awareness and funds. It took place at Catta Verdera Country Club, with 18 holes, group play, catering, and an awards dinner. The event engaged sponsors and participants to raise approximately USD 78,000. Proceeds will support TBX4Life?s acceleration of research?including funding seed grants and supporting a dedicated TBX4 infrastructure ?and intensifying awareness outreach worldwide. 0 20065 TBX4Life co?organized a pre?conference symposium on TBX4 Syndrome at the European Paediatric Pulmonary Vascular Disease meeting in Groningen, Netherlands. The half?day program brought together over 100 international researchers, clinicians, and families, featuring translational and clinical sessions, keynote talks, and a round?table discussion on complex case management. This event significantly increased global awareness and facilitated new research collaborations in TBX4 biology and therapeutic development. 0 2133 In April 2024, TBX4Life conducted its second annual ?Tour for a Cure,? visiting multiple U.S. cities to bring together clinicians, researchers, affected individuals, and caregivers. Stakeholder meetings, round?tables, and educational briefings engaged participants and significantly increased collaborations within TBX4 Scientific Consortium 0 2898 25096 Anton Morkin CEO 15 0 0 0 Dr Eric Austin President and Scientific Lead 5 0 0 0 LaRae Hacker Treasurer, Director of Communications 8 0 0 0 Tatiana Morkina Secretary 1 0 0 0 Luke Stockdale Director, Strategy and Program Management 2 0 0 0 false false false false false false false false false TN CA Anton Morkin 2 Geranienweg Munich GM 6153898176 false false false false false false false false false false false NONE NONE true X 0 0 0 25109 91585 116694 25109 91585 116694 10584 106110 116694 0 X 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Golf Tournament November 12 98607 98607 0 0 10585 5920 0 3560 0 0 98607 0 98607 0 0 10585 5920 0 3560 20065 78542 Part I Line 16 Banking Fees - 20 Part I Line 16 Business Travel Expenses (travels of Staff to Conferences and to Clinical and Research centres for meetings) - 3965 Part I Line 16 Conferences and Events Expenses (organisational expenses, speakers travel assistance, etc) - 1067 Part I Line 16 Events Participation Fees (participants fee for webinars and conferences) - 175 Part I Line 16 Government and tax fees - 20 Part I Line 16 IT Services Expenses (different online services and tools, data hosting and so on) - 968 Part I Line 16 Marketing Expenses (marketing and advert costs for services like Meta, production of marketing goods with nonprofit logo) - 247