2021-12-16T10:10:07-06:00 2021-03-31 GRANT THORNTON 2001 MARKET STREET SUITE 700 PHILADELPHIA PA 19103 990 2020-04-01 202329938 Autism Speaks Inc % JOSEPH T VANYO AUTI 6092287339 1060 State Road Princeton NJ 08540 Joseph T Vanyo COO 6092287339 2021-12-15 true Joseph T Vanyo 999009999 Alycia Solecki P01272637 2155614200 2 2020 2022-09-23 18:48:47Z X Joseph T Vanyo 1060 State Road Princeton NJ 08540 42698952 false X www.autismspeaks.org X 2005 DE Autism Speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow. 25 25 206 188000 0 53131832 41719693 0 0 398856 26981 170762 336622 53701450 42083296 4955263 4027458 0 0 21060957 19524306 301673 349797 6350292 21826789 17264943 48144682 41166504 5556768 916792 46226879 48207079 5438704 6502112 40788175 41704967 PROMOTING SOLUTIONS, ACROSS THE SPECTRUM & THROUGHOUT THE LIFE SPAN, FOR THE NEEDS OF INDIVIDUALS WITH AUTISM & THEIR FAMILIES THROUGH ADVOCACY & SUPPORT; INCREASING UNDERSTANDING & ACCEPTANCE; & ADVANCING RESEARCH INTO CAUSES & BETTER INTERVENTIONS. false false 9911089 2944970 WE PURSUE LIFE-ENANCING RESEARCH BREAKTHROUGHS TO ENHANCE THE HEALTH OF AUTISTIC PEOPLE. LAUNCHED AUTISM CARE NETWORK, THE FIRST OF ITS KIND LEARNING HEALTH SYSTEM FOR AUTISM THAT WILL ACCELERATE RESEARCH AND CARE IMPROVEMENTS AT SPEED AND SCALE. WE UTILIZED ECHO AUTISM TO TRAIN 50% MORE COMMUNITY PROVIDERS AND AUTISM CARE CENTERS. HOSTED A THOUGHT LEADERSHIP SUMMIT ON CHALLENGING BEHAVIORS TO DEVELOP PROGRAMS AND POLICIES FOR BETTER SYSTEMS OF CARE FOR AUTISTIC PEOPLE WITH SEVERE AND HARMFUL BEHAVIORS. CONDUCTED CRITICAL RESEARCH TO ASSESS THE NEEDS AND IMPACT OF COVID-19 ON THE AUTISM COMMUNITY. 7360082 541244 WE ARE STEADFAST IN OUR COMMITMENT TO GREATER UNDERSTANDING AND ACCEPTANCE OF PEOPLE WITH AUTISM. ESTABLISHED A COMMUNITY ADVISORY COUNCIL MADE UP OF AUTISTICS, PROFESSIONALS AND FAMILY MEMBERS. ENGAGED 2.8 MILLION ON SOCIAL MEDIA PLATFORMS WHERE WE PROVIDED RESOURCES AND A PLATFORM FOR AUTISTIC PEOPLE TO SHARE THEIR STORIES. EXPANDED CAREGIVER SKILLS TRAINING IN 36 UNDERSERVED OR LOW RESOURCED COMMUNITIES. LAUNCHED AUTISM FRIENDLY DESIGNATION PROGRAM TO INCREASE INCLUSIVE EXPERIENCES FOR PEOPLE WITH AUTISM AND THEIR FAMILIES. INCREASED AUTISM ADVOCACY AMBASSADORS BY 10% AND DOUBLED THE NUMBER OF GRASSROOTS ADVOCATES TO OVER 1500. 13882189 541244 AIDED MORE THAN 1.5 MILLION PEOPLE. AUTISM RESPONSE TEAM PROVIDED INDIVIDUALIZED RESPONSES TO OVER 70,000 PEOPLE. MOBLIZED COVID-19 TASK FORCE TO CREATE ACCESS TO EVIDENCE BASED RESOURCES THAT WERE VISITED MORE THAN 275,000 TIMES. SUCCESSFULLY ADVOCATED AUTISM BENEFITS COVERAGE FOR AN ADDITIONAL 3.4 MILLION AMERICANS. DEVELOPED AN INTEGRATED EMPLOYMENT SYSTEM WORKPLACE INCLUSION NOW (WIN) FOR AUTISTIC JOB SEEKERS, POTENTIAL EMPLOYERS AND COMMUNITY MEMBERS. LAUNCHED MY AUTISM GUidE WITH PERSONALIZED INFORMATION. FUNDED $1.6 MILLION IN GRANTS TO SERVICE PROVIDERS, COMMUNITIES AND FAMILIES. HOSTED 25 STATE SPECIFIC WEBINARS FOR 5300 PEOPLE REGARDING SPECIAL EDUCATION POLICY ACTIONS DURING COVID. 31153360 true true false true false false false false false false true false false false true true false true false false true true false true true false false true true true false false false false false false false false true false false false true true true true false false true 97 0 true 206 true false false false false false true true false false false false false false X 25 25 false false false false false false false true true false true true true true true true true true true true false AL AR CA CT FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X JOSEPH T VANYO 6463858597 1060 STATE ROAD Princeton NJ 08540 Angela Geiger President & CEO 40.0 0.0 X 617870 0 33989 Lisa Gerbasi Strategic Initiatives & Innova 40.0 0.0 X 273340 0 44237 Andy Shih SR VP Public Health/Inclusion 40.0 0.0 X 246416 0 38140 Joseph Vanyo COO 40.0 0.0 X 254771 0 13028 Lynn Happel SVP, IT & DATA SUPPORT 40.0 0.0 X 225320 0 27835 Jennifer Podoll SVP, Constituent Engagement 40.0 0.0 X 216276 0 28004 Melanie Akins VP, Corporate Initiatives 40.0 0.0 X 199568 0 44063 Stuart Spielman SVP, Advocacy 40.0 0.0 X 227276 0 11136 Donna S Murray VP, Head Clinical Programs 40.0 0.0 X 201513 0 18736 CURTIS ARLEDGE DIRECTOR 1.0 0.0 X X 0 0 0 TOM BERNARD DIRECTOR 1.0 0.0 X 0 0 0 SCOTT R CARPENTER DIRECTOR 1.0 0.0 X 0 0 0 JENNIFER CASERTA DIRECTOR 1.0 0.0 X 0 0 0 JOSEPH T COYLE MD Director 1.0 0.0 X 0 0 0 Barry R Feirstein Director 1.0 0.0 X 0 0 0 Brian L Harper Chair 10.0 0.0 X X 0 0 0 Matthew Higgins Director 1.0 0.0 X 0 0 0 Adrian M Jones Director 1.0 0.0 X X 0 0 0 Tim Jones Director 1.0 0.0 X 0 0 0 Aidan Kehoe Director 1.0 0.0 X 0 0 0 Billy Mann Director 1.0 0.0 X 0 0 0 Kevin J Murray Director 1.0 0.0 X 0 0 0 Jacquelyn Nance Director 1.0 0.0 X 0 0 0 Herbert Pardes MD Director 1.0 0.0 X 0 0 0 Jamie T Richardson Director 1.0 0.0 X X 0 0 0 Chuck Saftler Director 1.0 0.0 X 0 0 0 Stuart Savitz Director 1.0 0.0 X 0 0 0 Dan Schulman Director 1.0 0.0 X 0 0 0 Stephen Shore EdD Director 1.0 0.0 X 0 0 0 Steven P Stanbrook Director 1.0 0.0 X 0 0 0 Dan Tarman Director (thru 2/18/21) 1.0 0.0 X 0 0 0 Cheryl Vitali Director 1.0 0.0 X 0 0 0 Lisa Yang Director 1.0 0.0 X 0 0 0 ADAM FRAZIER DIRECTOR 1.0 0.0 X 0 0 0 Darren Goode Director (Begin 2/25/21) 1.0 0.0 X 0 0 0 2462350 0 259168 53 false true false Craft Commerce LLP creative/advertising 4706751 Thompson Habib Dennison Inc direct mail svcs 349402 Facebook Inc advertising 464149 The Hospital for Sick Children Rese MSSNG consulting 376674 The Advertising Council Inc advertising 385310 13 133576 2245272 4373502 34967343 277931 41719693 0 22121 22121 0 63845 63845 0 0 0 4860 4860 4860 4860 615656 2245272 615656 0 0 0 0 0 0 RECOVERY OF PRIOR YEAR GRANTS 900099 176766 176766 OTHER PROGRAM REVENUE 900099 96011 96011 272777 42083296 363603 2872741 2872741 736586 736586 418131 418131 0 1389163 906292 296593 186278 0 14602654 9841538 1743679 3017437 494815 331587 60257 102971 1881611 1293067 212116 376428 1156063 772599 152176 231288 0 275925 229024 46901 156700 104718 51982 627778 627778 349797 349797 0 2717496 2573982 58001 85513 5172877 4922434 188130 62313 2092825 1111196 115668 865961 1455334 1033491 136063 285780 0 1510034 1069771 174291 265972 27239 22111 637 4491 0 579200 395943 58 183199 0 0 196080 143066 19867 33147 188209 116920 49231 22058 WALK & TEAM-UP EXPENSES 630242 504194 126048 DONATION PROCESSING 344822 344822 GENOME SEQUENCING 750626 750626 DIRECT MAIL 257386 128693 128693 282170 246872 12380 22918 41166504 31153360 3662852 6350292 X 12573446 6801329 1344910 4427207 10354708 10973522 5564463 6116091 1681996 3698518 5042389 3974074 0 0 0 0 0 0 0 0 818454 556433 3437268 2716680 567996 720588 21920530 21950201 0 0 0 0 0 0 276343 217652 46226879 48207079 3816039 4644863 719166 1237090 18790 109613 0 0 0 0 0 0 0 0 0 0 884709 510546 5438704 6502112 X 29230217 29613313 11557958 12091654 40788175 41704967 46226879 48207079 916792 X false true X true false X 50302151 59731829 9489221 53131832 41719693 214374726 0 0 50302151 59731829 9489221 53131832 41719693 214374726 9711023 204663703 125721 135295 156606 456059 85965 959646 0 1559853 2064277 42270 1573626 888433 6128459 221462831 0.92414 0.93465 X Part II, Sections A and B Fiscal year 2021 is reflected in the 2020 column. Fiscal year 2020 is reflected in the 2019 column. Fiscal year 2019, the short period from January 1, 2019 - March 31, 2019, is reflected in the 2018 column. The prior 2 years (2017 - 2018) are reported in columns (a) and (b), respectively. Other income includes gross income from fundraising and gaming as appropriate, along with program revenue. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true true false false false true 742815 false true 115037 857852 false Part II-B, Line 1, Lobbying Activities: During the period beginning April 1, 2020, and ending March 31, 2021, a period marked by the COVID-19 pandemic, Autism Speaks advocated on behalf of the autism community in Washington, DC, and in state capitals. At the federal level, we focused on home and community-based services, economic impact payments, telehealth services, and special education, and continued our long-standing effort to increase appropriations for autism research and services. In the states, we advocated for flexible Medicaid policies, special education-related measures such as extended school year options, and expanded telehealth services, and pressed for enhanced access to autism interventions through private and public insurance and improved transition planning for students. Autism Speaks pursued its advocacy objectives through grassroots volunteers, paid staff, advertisements, contact with legislators and their staff, executive agency personnel, and virtual meetings and events in Washington, DC, and state capitals. 562330 553801 8529 690780 672581 18199 2184158 1490298 693860 720588 0 DEFERRED RENT 461861 INTERCOMPANY PAYABLE 48685 510546 X Part X, Line 2 AS is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code and from state income taxes under comparable laws. The Canadian entity, exempt from Canadian income taxes, is organized without share capital under the Canadian Corporations Act. All significant tax positions have been considered by management, and it has been determined that all tax positions would be sustained upon examination by taxing authorities. There are no material uncertain tax positions that require recognition in the accompanying consolidated financial statements or further disclosure in the notes to the consolidated financial statements. AS is subject to audits by taxing jurisdictions; however, no audits for any periods are currently in progress. true North America Grantmaking 273782 Europe (Including Iceland and Greenland) Grantmaking 125000 Middle East and North Africa Grantmaking 19349 418131 418131 North America SCIENCE & RESEARCH 50000 check North America SCIENCE & RESEARCH 105565 check North America SCIENCE & RESEARCH 118217 CHECK Europe (Including Iceland and Greenland) SCIENCE & RESEARCH 125000 check Sub-Saharan Africa SCIENCE & RESEARCH 19349 check 5 false false false false false false Part I, Line 2: For Science Grants: All grant payments are dependent on the grantee submitting the necessary documentation. The first payment requires a fully executed agreement, ethics approval, and a timeline by which the funded research will be completed. All grantees are required to submit financial and progress reports at defined intervals during the term of the award. Autism Speaks' program staff review all documents for satisfactory and accurate reporting. For Services and Supports Grants: GRANT PAYMENTS ARE DEPENDENT ON THE GRANTEE SUBMITTING THE NECESSARY DOCUMENTATION. THE PAYMENT REQUIRES A FULLY EXECUTED AGREEMENT AND A TIMELINE BY WHICH THE FUNDED PROGRAM WILL BE COMPLETED. ALL GRANTEES ARE REQUIRED TO SUBMIT A FINANCIAL AND NARRATIVE REPORT AT THE COMPLETION OF THE GRANT TERM. AUTISM SPEAKS' GRANTS STAFF REVIEWS ALL DOCUMENTS FOR SATISFACTORY AND ACCURATE REPORTING. X X X X X X X true THOMPSON HABIB DENISON IN 55 OLD BEDFORD ROAD SUITE 201 LINCOLN MA 01773 DIRECT MAIL CONSULTING false 2307779 349797 1957982 2307779 349797 1957982 All States chef gala 529644 425195 104449 100590 3859 golf event 363010 189346 173664 172464 1200 46 1968274 1630731 337543 253243 34587 4172 45541 2860928 2245272 615656 526297 34587 4172 50600 615656 true Marcus Autism Center 1584 Tullie Circle Atlanta GA 30329 262809380 501(c)3 70358 Science & Research New York Presbyterian Fund Inc 525 East 68th Street New York NY 10065 133160356 501(c)3 106862 SCIENCE & RESEARCH Childrens Hospital Los Angeles 4650 Sunset Blvd Los Angeles CA 90027 951690977 501(c)3 94674 Science & Research Cincinnati Children's Hospital Medical Center 3333 Burnet Avenue Cincinnati OH 45229 310833936 501(c)3 185575 Science & Research Regents of the University of California at Irvine 120 Theory Ste 200 Irvine CA 92617 952226406 501(c)3 121492 SCIENCE & RESEARCH; SERVICES Southwest Autism Research & Resource Center 300 North 18th Street Phoenix AZ 85006 311496646 501(c)3 136272 SCIENCE & RESEARCH The Children's Hospital of Philadelphia 3401 Civic Center Blvd Philadelphia PA 19104 231352166 501(c)3 120164 SCIENCE & RESEARCH The Curators of the University of Missouri-Columbi 118 University Hall Columbia MO 65211 436003859 GOV 127304 SCIENCE & RESEARCH Research Institute at Nationwide Children's Hospit 700 Childrens Drive Columbus OH 43205 316056230 501(c)3 149536 SCIENCE & RESEARCH University of Pittsburgh 116 Atwood St 201 Pittsburgh PA 15260 250965591 501(c)3 273267 SCIENCE & RESEARCH University of Rochester 910 Genesee Street Brooks Landing B Rochester NY 14611 160743209 501(c)3 131142 SCIENCE & RESEARCH Vanderbilt University Medical Center PMB 406310 2301 Vanderbilt Place Nashville TN 37240 620476822 501(c)3 136350 SCIENCE & RESEARCH Regents University of California Los Angeles 10920 Wilshire Blvd Suite 620 Los Angeles CA 90024 956006143 501(c)3 76900 SCIENCE & RESEARCH The Board of Trustees of the Leland Stanford Junio 485 Broadway Mail Code 8838 Redwood City CA 94063 941156365 501(c)3 25000 SCIENCE & RESEARCH The General Hospital Corporation 55 Fruit Street Boston MA 02114 042697983 501(c)3 113278 SCIENCE & RESEARCH The Ohio State University 1960 Kenny Road Columbus OH 432101016 316025986 501(c)1 48845 SCIENCE & RESEARCH Board of Regents of the University of Wisconsin Sy 21 N Park St Suite 6401 Madison WI 537151218 396006492 115(1) 7500 SCIENCE & RESEARCH Emory University 1762 Clifton Rd Suite 1400 Mail St Atlanta GA 30322 580566256 501(c)3 66251 SCIENCE & RESEARCH Hospital for Special Care Inc 2150 Corbin Avenue New Britain CT 06053 060646766 501(c)3 14999 SCIENCE & RESEARCH Phoenix Children's Hospital 2929 E Camelback Rd Ste 122 Phoenix AZ 85016 742421549 501(c)3 7500 SCIENCE & RESEARCH Prisma Health-Upstate 300 EAST MCBEE AVENUE NO 302 GREENVILLE SC 29601 811723202 501(c)3 15000 SCIENCE & RESEARCH Regents of the University of Colorado 1800 N Grant St Ste 200 Denver CO 80203 846000555 501(c)3 50000 SCIENCE & RESEARCH The MetroHealth System 2500 MetroHealth Drive Cleveland OH 44109 346004382 gov 14986 SCIENCE & RESEARCH The Rector & Visitors of the University of Virgini 101 N Emmet Street Charlottesville VA 22903 546001796 gov 7500 SCIENCE & RESEARCH University of Massachusetts Worcester 55 Lake Ave North Worcester MA 01655 043167352 GOV 14999 SCIENCE & RESEARCH University of Nebraska Board of Regents 986000 Nebraska Medical center Omaha NE 68198 546001796 GOV 7500 SCIENCE & RESEARCH Food for Good Thought Vocational Support 4185NorthHighStreet Columbus OH 43214 010941310 501(c)3 17500 SERVICES Island of Brilliance 415 E Menomonee St Milwaukee WI 53202 471249195 501(c)3 25000 SERVICES Tech Kids Unlimited Inc 370 JAY STREET ROOM 316C Brooklyn NY 11201 462451747 501(c)3 25000 SERVICES Children's Hospital Corporation 300LongwoodAvenue Boston MA 02115 042774441 501(c)3 50000 SCIENCE & RESEARCH John Carroll University 1John Carroll Boulevard University Heights OH 44118 340714681 501(c)3 29750 SCIENCE & RESEARCH 31 Financial Assistance - Autism Cares Grants 885 412750 Predoctoral Fellowships 7 141036 Postdoctoral Fellowships 1 182800 Part 1, Line 2 For Science Grants: All grant payments are dependent on the grantee submitting the necessary documentation. The first payment requires a fully executed agreement, ethics approval, and a timeline by which the funded research will be completed. All grantees are required to submit financial and progress reports at defined intervals during the term of the award. Autism Speaks' program staff review all documents for satisfactory and accurate reporting. For Services and Supports Grants: GRANT PAYMENTS ARE DEPENDENT ON THE GRANTEE SUBMITTING THE NECESSARY DOCUMENTATION. THE PAYMENT REQUIRES A FULLY EXECUTED AGREEMENT AND A TIMELINE BY WHICH THE FUNDED PROGRAM WILL BE COMPLETED. ALL GRANTEES ARE REQUIRED TO SUBMIT A FINANCIAL AND NARRATIVE REPORT AT THE COMPLETION OF THE GRANT TERM. AUTISM SPEAKS' GRANTS STAFF REVIEWS ALL DOCUMENTS FOR SATISFACTORY AND ACCURATE REPORTING. X X X X X false false false false false false false true false Angela Geiger President & CEO 514469 103401 11400 22589 651859 Joseph Vanyo COO 244771 10000 5000 8028 267799 Jennifer Podoll SVP, Constituent Engagement 216276 28004 244280 Andy Shih SR VP Public Health/Inclusion 246416 10424 27716 284556 Stuart Spielman SVP, Advocacy 227276 9148 1988 238412 Lynn Happel SVP, IT & DATA SUPPORT 213320 12000 8754 19081 253155 Melanie Akins VP, Corporate Initiatives 199568 8257 35806 243631 Donna S Murray VP, Head Clinical Programs 201513 8171 10565 220249 Lisa Gerbasi Strategic Initiatives & Innova 273340 11141 33096 317577 Form 990, Schedule J, Part 1, Line 7 AUTISM SPEAKS AWARDED NON-FIXED PAYMENTS SUCH AS BONUSES BASED ON THE SUCCESSFUL ACHIEVEMENT OF PERFORMANCE GOALS AS REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS. THE NAMES OF EMPLOYEES AND THE AMOUNTS PAID ARE FOUND ON SCHEDULE J, PAGE 2, PART II, COL. (B)(II). X 14 277931 FMV 2 false true true Schedule M, Part I, Column (B) The number reported in column B represents the number of contributions. Schedule M, Line 32B: The organization uses an investment firm to sell stock contributions. Form 990, Part VI, Section B, Line 11b: The form 990 is prepared by Finance Department staff members and reviewed by external independent certified public accountants. Once completed, the form 990 is presented to the board of directors in advance of filing with the IRS. Form 990, Part VI, Section B, Line 12C: Board members, key executives, and all staff are required to review and sign the Conflict of Interest policy on an annual basis and disclose any business entity which provided services to Autism Speaks or to which Autism Speaks provided grants or services that they or their spouse have an interest. Any exceptions are shared with the Executive Committee of the Board for approval. Also required to be listed is any entity, whether business, institution, or non-profit organization, with which they are currently affiliated with in any working capacity. The Autism Speaks staff review each grant awarded for potential conflicts of interest. Every business entity reported by board members or staff with which a working relationship outside of Autism Speaks exists is investigated for a potential conflict of interest. Autism Speaks may impose sanctions on a covered person for non-compliance, including termination. Form 990, Part VI, Section B, Line 15: The compensation committee of the board reviews ceo compensation of several national non-profits of similar size and scope when determining appropriate compensation for autism speaks' president and other senior executives. Additionally, autism speaks has a formal compensation structure based on market data of similarly sized national organizations, which determines a salary range by job. Autism Speaks' aims to pay individuals at competitive market rates targeted to the median. Form 990, Part VI, Section C, Line 19: Autism Speaks' audited financial statements and form 990 are available on its website - autismspeaks.org and are available upon request. Autism Speaks' form 1023, conflict of interests policy and by-laws are available upon request. DELIVERING SCIENTIFIC INNOVATION FOR AUT 1060 State Road 2nd Floor Princeton NJ 08540 461157381 DORMANT DE Autism Speak AUTISM SPEAKS CANADA 2450 Victoria Park Avenue Toronto Ontario CA 869420208 SEE PART VII CA Autism Speak true false true false false false false false false false false false false false false false false false false false AUTISM SPEAKS CANADA B 268359 CASH PAYMENT Form 990, Schedule R Part II (B) Autism Speaks Canada - Autism Speaks Canada is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families by supporting and working with community partners; enhancing resources and services; increasing understanding, acceptance and inclusion of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.